AML subtype M2

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  • honeybea
    honeybea Member Posts: 2
    #22
    Aml M2
    Hello, I pray this comment reaches you. I am a AML M2 Survivor of 4 years. I was first Dx in Dec. of 2004 I was at work, working with a fever of 102 went home was to see my dr. the next day and ended up in the ER. From there I was transported to Duke with a white count of 146,000, The drs at duke told my husband I should of died. I had no platelets and My gums were swollen, petichie all over my body. I had been back and forth to the drs. for 6 months and no one could find anything wrong until I fainted at home and ended up in the ER. I know what you are going through, I have been there had all the side effects as well as Aspergillus, and a blood clot in my lung. I hemorrage, had mouth sores, sweets syndrome nausea and vomiting. I went through Pheresis and started with Hydrea followed by 7+3 days of induction with remission in 2005. A year later the day before my daughter was to get married I had a drs. appt. and I was notified it had returned, was admitted again for treatment, with a referral to the bone marrow transplant team. Went through to transplants and pneumonia and GVH disease. I am here because the God and the team, and my family. God give us the strength to do the impossible,so he can do the possible. He is there holding are hand as we go through our trials in life. I pray for you that all is well and that God the drs., and nurses as well as your family will be the strength you need.
  • vabell52
    vabell52 Member Posts: 11
    #23
    honeybea said:

    Aml M2
    Hello, I pray this comment reaches you. I am a AML M2 Survivor of 4 years. I was first Dx in Dec. of 2004 I was at work, working with a fever of 102 went home was to see my dr. the next day and ended up in the ER. From there I was transported to Duke with a white count of 146,000, The drs at duke told my husband I should of died. I had no platelets and My gums were swollen, petichie all over my body. I had been back and forth to the drs. for 6 months and no one could find anything wrong until I fainted at home and ended up in the ER. I know what you are going through, I have been there had all the side effects as well as Aspergillus, and a blood clot in my lung. I hemorrage, had mouth sores, sweets syndrome nausea and vomiting. I went through Pheresis and started with Hydrea followed by 7+3 days of induction with remission in 2005. A year later the day before my daughter was to get married I had a drs. appt. and I was notified it had returned, was admitted again for treatment, with a referral to the bone marrow transplant team. Went through to transplants and pneumonia and GVH disease. I am here because the God and the team, and my family. God give us the strength to do the impossible,so he can do the possible. He is there holding are hand as we go through our trials in life. I pray for you that all is well and that God the drs., and nurses as well as your family will be the strength you need.

    honeybee you rock!
    Wow, I am amazed at your story, so many hurdles to overcome. You are one strong woman! Congrats on your success. God is good.
    Julia
  • MICREN66
    MICREN66 Member Posts: 7
    #24
    rathgirl said:

    hey
    congrats on being in remission! i have been in remission since june 1st and i still get tired easily and sometimes weak. it is a matter of time until u are not as tired and weak. i know the effects can last for up to a year after treatment so it is still a long road even after treatment. i would do what u think is best. if u are in remission i wouldnt worry about it until (if u ever do) u have to have it done. i had more chemo after i was first told i was in remission just to be safe that we got it all. i also had one more bone marrow biopsy after i was done with my precautionary chemo treatments. i dont know about after bmt. i didnt have a bmt.
    if u have any questions feel free to message me. also i recomend the chat. it is an amazing place to ask questions, complain, and even just have fun.

    good luck,
    rathgirl

    GODs blessings
    Sorry it has taken me so long to post info re how I'm doing, etc....I have completed all 3 rounds of my consolidation treatment and came through them like a trooper - no nausea or vomiting. I am in remission (after the first round of consolidation therapy) and I have since returned back to work part time for now. I am going to Duke Medical Center to enroll in their clinical trial study for the Gleevec pill that apparently is having a lot of success treating AML patients. All I can do is pray that GOD will allow this pill to work and keep me in remission forever.

    There were quite a few dark days during treatment and I did not think I would make it to the end without losing my mind or life but I did. I'm not sure exactly when but I feel GOD spoke to me and told me that I was going to be okay and that I was to use this experience for something. It was not explained what I was to do with it but after that I have been able to speak about having leukemia with people I have met at the Drs office, the grocery store, etc. I have also had a family member be diagnosed with a different type of cancer and I have been trying to be her biggest cheerleader by keeping her spirits up and have her fight hard against the disease instead of giving in to it.

    Currently I am waiting on the results of the latest bone marrow biopsy so that we know for sure that I am still in remission. Praying for good results.
  • nanstevekemp
    nanstevekemp Member Posts: 4
    #25
    vabell52 said:

    honeybee you rock!
    Wow, I am amazed at your story, so many hurdles to overcome. You are one strong woman! Congrats on your success. God is good.
    Julia

    Thanks for all of the stories
    I was diagnosed August 27,2010. I went through the 3-7 chemo-treatment and my first Post Remission treatment. My body has responded very well and I have had very minimal side effects, I pray it stays that way. I am 48, was very active and always try to maintain a positive attitude. My family and friends mean the world to me, and truly believe that their prayers have been heard many times by God. He already knows the path he has mapped out for all of us, and I hope everyone on this page has, or will have, a success story. I want to hear more. What am I in for?
  • nanstevekemp
    nanstevekemp Member Posts: 4
    #26
    vabell52 said:

    hi justaharleygirl
    I sure hope you have good news by now. I had 3 rounds of consolidation, each a 5 day stay in hospital. 8 bags of chemo given 12 hours apart. This was after put in 100% remission after 9 weeks from being diagnosed. (May 20,2010) I have finished 3 and will have the 4th and last at the end of September. From what I understand, remission depends on which chromosome is abnormal. Some respond well to chemo and staying in remission than others. A FISH test is done to determine this. My dr. explained they sorta filet the chromosome under fluoroscopy. I would think that knowing the chromosome that caused the leukemia would help in determining whether a BMT is needed.
    I have aml 2 and the chromosomes 8:21. Currently there is no need for transplant for me. Thank the Lord.

    As far as being tired, it comes and goes for me. Certainly while counts are low, I'm pretty useless. But please, just give into it and rest when your body tells you. And please be selfish! You must, it's your time and you need be in order to beat this beast. I told my family early on, I have always put you all first and now it's all about me, things are gonna change. They had no problem with that and I'm sure neither will yours. It's just how you must think, use all your energy for your recovery. My Dr. also puts all his leukies on Zoloft, which I'm sure helps with the mind game we're on.

    Please update us when you can and I wish you a clean marrow, stay strong!
    Julia -vabell52

    Hey Harleygirl and Vabell52
    I am reaching that same crossroad very shortly. I have responded well to the induction phase and the first consolidation round. I am starting the 2nd round next week. I visited a very well know cancer hospital and listened to the options, which included BMT. I know it has many side effects but it also increases your chance of a cure by 30%. In my case, it would go from 40% to 70%. Don't you think it's worth the risk? How are you all doing?

    Steve
  • vabell52
    vabell52 Member Posts: 11
    #27
    nanstevekemp said:

    Hey Harleygirl and Vabell52
    I am reaching that same crossroad very shortly. I have responded well to the induction phase and the first consolidation round. I am starting the 2nd round next week. I visited a very well know cancer hospital and listened to the options, which included BMT. I know it has many side effects but it also increases your chance of a cure by 30%. In my case, it would go from 40% to 70%. Don't you think it's worth the risk? How are you all doing?

    Steve

    How are you?
    Hi Steve,

    Haven't checked these boards in a while; I hope you have finished your treatment and all is clean! I too have AML type 2 and am still in remission, no cells found on last BMB. For now, my doc feels no BMT needed.
    Let us know your "status" when you're able. Praying all is well
    Peace,
    Julia

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