Hello from new member in Washington DC

Hello everyone. My name is Marc. I work for the FDA and live in Washington, DC. I have been a stable, healthy CLL (Chronic Lymphocytic Leukemia) patient, in "watch and wait", since 2002, when in May, 2010, I experienced a rather sudden eruption of my right tonsil, which was biopsied and diagnosed as Stage 4 SCC, which had spread to a lymph node in my neck, which had swollen, and two lymph nodes near my right ear. I had 4 treatments of Cisplatin, Taxitir (spelling?), 3 weeks apart. Treatments 2, 3 and 4 were supplemented with 5FU via an infusion pump I wore at home from Friday afternoon until Monday afternoon. The chemo phase was hell. Then in September 2010 I began 34 daily doses of radiation to my head and neck areas, supplemented by Erbitux infusions on Mondays. After 4 doses of Erbitux we had to stop the radiation for one week because my mouth was just too painful. My chemo oncologist decided to stop the Erbitux. In a week the radiation resumed, and this morning I had my 22nd treatment, with 12 more to come this week and the next two weeks, at which time I am told I have a 90% or better chance of being cured. I should add that after just the first chemo, the tumor behind my right tonsil disappeared more than 90%, and the swollen node in my neck reduced also around 90%. After the 2nd chemo my chemo oncologist (my radiation oncologist is a different doc) told me the tumor was 100% gone and the node was totally normal, and he told me that the response to the chemo was unprecedented, that he had never seen so dramatic a response to chemo, and that the chemo response would correlate with the probability of a cure from the subsequent radiation. So here I write, on a chilly Wednesday Washington DC morning, with 12 more radiation treatments to go. My mouth, tongue, cheeks and throat are sore. Thus far I have stubbornly avoided a feeding tube, and I am now drinking a few cans of ensure a day, some milk, occasionally mixed with oatmeal but loose enough to drink it. I can eat Chinese wonton and eggdrop soup, and can somewhat taste them. I can taste chai tea with milk and sugar. I can't really eat or taste anything else. I would welcome the advice of anyone on this website, which I am happy and lucky to have found. I am 53 years old, and look forward to just having the CLL I started with, because I have felt generally healthy since I was diagnosed with that little gift in March 2002.