Onc visit

yesyes2
yesyes2 Member Posts: 591
edited March 2014 in Lymphoma (Hodgkin and Non-Hodgkin) #1
On my way back from the LRF conference I had an appointment with my Hemo/Onc specialist at UCSF. He is very knowledgable about my LPD NHL and I like and respect him very much. Although my blood work appears normal my immune system is haywire. Since I finished chemo in Feb I am sick on average every 2 weeks with a productive cough, sinus problems and lose of voice, sometimes a low fever. I hope it's not cronic broncitis(sp). I also have not gotten my energy back and am getting sick and tired of being sick and tired. This time my onc seemed concerned. Said everything looks OK, I'm in CR, but he can't say, having his radiologist read my July CT. Ordered additional blood work and wants to see me in 2 months instead of every 6 months. My Hemo/Onc here where I live isn't concerned but the specialist is, so go figure, LOL. I'll see my local onc in mid Oct. I should get a CT scan in December. And I may start IGG IV for my immune system.

Here I thought all was well for a change and now I'm back into a doctor being concerned. I just need to remind myself that he's a little concerned, not a whole lot concerned.

Thanks for letting me vent. Hard not to jump right to is it back? The trial that looked promising for my type of disease was canceled just this past week by the drug company according to my specialist. He seemed disappointed by this.

Thanks for letting me vent. And sorry for being so long winded, but no voice, LOL.

Blessings to everyone here,
Leslie

Comments

  • vinny59
    vinny59 Member Posts: 1,036 Member
    #2
    sorry to hear that
    Hey Leslie, sorry to hear about the trail being cancelled, but they are coming up with incredible new things everyday. Just keep the faith, take it a day at a time..... Wishing you well Vinny
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #3
    Onc visit
    Hi Leslie,
    Between you and Vinny I have come to realize that I need to bone up on information concerning our blood counts. I am just starting this cancer journey and have soooo much to learn, but it sure helps when those of you that have been "around the block" with fighting this, keep us posted on how things are going with you. I'll keep you in my prayers that nothing new has developed. So sorry the trial was cancelled by the drug company...maybe it will open back up at a later date. Your venting is good, it helps me see what all I need to be aware of. Hang in there...Love...Sue
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #4
    CR
    Leslie,
    I don't want to sound like a dummy, but what does CR stand for. I have the worse problem with abbrev. of things especially with this chemo brain. Once you say it I will say say Oh yea, thats right. Anyway the surprises never cease with these treatments. Sometimes they are pleasant and other time they are disappointing. I have had a few along the way that were not very welcomed,but able to go along with it. When we get Drs. that don't agree then it may be time to get a little concerned. There is nothing wrong with venting. If it was I would have been kicked off here a long time ago. John
  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    #5
    COBRA666 said:

    CR
    Leslie,
    I don't want to sound like a dummy, but what does CR stand for. I have the worse problem with abbrev. of things especially with this chemo brain. Once you say it I will say say Oh yea, thats right. Anyway the surprises never cease with these treatments. Sometimes they are pleasant and other time they are disappointing. I have had a few along the way that were not very welcomed,but able to go along with it. When we get Drs. that don't agree then it may be time to get a little concerned. There is nothing wrong with venting. If it was I would have been kicked off here a long time ago. John

    CR PR
    CR stands for Complete Response or remission and PR stands for Partial Response or Remission I believe John. Then I think PFS is Progression Free Survival.

    That's about it with my knowledge.

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