trust doctors - here's a rant

LOUSWIFT
LOUSWIFT Member Posts: 371 Member
edited March 2014 in Colorectal Cancer #1
When I turned 50 I did what my family doc said go get a sigmoid colonoscopy. No cancer in my family for generations and I was in great health (still trying to remember what that felt like to be in great health). Anyway, I did get the sigmoid colonoscopy. Gastro doc said everything was great. Fast forward five years family doc says time for full colonoscopy (preventaive). Same Gastro doc comes in and says "good news and bad news" I removed a ployp and by the way you have rectal cancer. Surgeon says strange they didn't see this when they did the sigmoid it was certainly low enough and would have ben there at least five years considering the low growth rate and size. Okay six weeks of chemo/radiation then surgery and 15 weeks Xeloda. Chemo damages left eye and I need lense replacement. Four 1/2 years later CEA goes from 1.4 to 5.6. Onc says do a CT/Pet scan. It comes back clear. Onc is happy says we'll do another CEA again in four months its not cancer it's likely something else. Four months later CEA 14.6. Onc says might be cancer must be really small lets let it grow if its there and we'll check again in two months with another ct/pet scan. Family doc says B.S. orders colonoscopy and they find a new cancer not in rectum but in asending colon. Smaller... sure but now through the wall and spread to 3 nodes. BUT it did not show on the CT/Pet Scan. Onc said strange about that but could be because it was low grade. Yet my last low grade tumor lit up like a Christmas Tree. So I checked and it turned out when they did my scans there were reported times on that day that the CT/Pet scan was not working properly within "parameters for standard operation". So they shut it down at times due to malfunctions. Of course they didn't tell the patients...like me and still charged $7200 dollars. Now I have to TRUST more doctors to put in a port and give me more chemo and monitor what is going to happen. Yea trust them....give me a good reason!

Comments

  • John23
    John23 Member Posts: 2,122 Member
    Hey Lou.....


    Cheer up:




    "Wrong Diagnosis of Cancer Results in Medically Unnecessary
    Radiation and Permanent Scarring

    A significant settlement was reached during trial in Miami-Dade
    in a medical malpractice case where a pathologist improperly
    diagnosed a tissue sample as being cancerous, causing the
    patient, a Coral Springs man, to undergo approximately 40
    treatments of radiation therapy that were not medically
    necessary. The patient had a lump on his right shoulder, which an
    orthopedic oncologist told him was benign. The biopsy of the mass
    taken during surgery to remove it was interpreted by the
    pathologist then on call to be an extremely rare form of soft
    tissue cancer, which he had little experience in dealing with.
    The pathologist failed to send the sample out to one of many
    world-renowned hospitals that were more familiar with this rare
    form of cancer, and who could have interpreted the specimen
    within one or two days. The patient ultimately had the specimen
    reviewed, and it was determined that it was benign. The painful
    radiation treatments left the patient permanently scarred,
    disfigured and injured."

    Here: http://www.sgglaw.com/CM/NotableCases/medical-malpractice-cases.asp




    And "MIMA" in Florida:
    "The complaint also alleges that defendants administered
    image-guided radiation therapy IGRT without the required level of
    supervision, and used a hand-held device system to create an
    illusion of proper supervision; billed for immobilization devices
    (to assist in irradiating the proper part of the body) when such
    devices were not used; excessively billed for complex
    simulations, and billed for other services not actually performed. "

    From: http://www.dotmed.com/news/story/11365/

    (This was subsequently settled for around 12 mil..)

    So Lou, actually... you're not doing too bad at all!

    (and you'll be doing even better soon!)

    John
  • dorookie
    dorookie Member Posts: 1,731 Member
    Talk to an attorney
    I think you have a good malpractice suit, I would talk to an attorney, but thats just me...

    Sorry this happened, and I hear ya about the trust thing. I do have to say I was lucky with my ONC, GI and PC doctors, however since I have moved to Texas I am not liking the practice of my new ONC, I like him, but I was supposed to have my 3 month scans in September, but no one called to set it up, so now I am calling them saying WTF??? I should have called earlier but with the loss of our son, things have been so crazy this month.

    Anyway didnt meant to ramble..WIll keep you in my prayers..

    HUGS
    Beth
  • dorookie
    dorookie Member Posts: 1,731 Member
    Talk to an attorney
    I think you have a good malpractice suit, I would talk to an attorney, but thats just me...

    Sorry this happened, and I hear ya about the trust thing. I do have to say I was lucky with my ONC, GI and PC doctors, however since I have moved to Texas I am not liking the practice of my new ONC, I like him, but I was supposed to have my 3 month scans in September, but no one called to set it up, so now I am calling them saying WTF??? I should have called earlier but with the loss of our son, things have been so crazy this month.

    Anyway didnt meant to ramble..WIll keep you in my prayers..

    HUGS
    Beth
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Some Good Reasons...
    First, Lou - you gotta' trust somebody. When you feel things are going south and on more than once occasion, it is at that time, that it's time to pack up your marbles and find someone else. The next medical team could be the one you are looking for.

    I say this as I stayed with my original clinic too long - many mistakes were made at my expense. In retrospect, I was lucky to walk away from there and live to fight another day.

    I went to a teaching hospital that is highly regarded in my area. They have the latest equipment (no breakdowns like at the other place) and they are schooled and up to date on the latest thing going.

    You combine that with you yourself getting just enough of an education to be able to talk to the doctors on a level playing field - and your health chances increase substantially. Once you can talk the talk with them, they realize you are in the know and your dicussions will be more beneficial and your options get better - you take your own medical care by the horns and hire yourself as your own advocate.


    It's been 14 months since I walked away - I have not looked back! I regret that I stayed too long but we can't look back for long, we must look ahead. I've applied what I've learned and can talk to any doctor or surgeon on a level where they understand that I am nobody's fool and we are going to discuss it.

    For your port, find yourself a good VASCULAR surgeon...they will be able to use their expertise and put that thing in nicely for you and it will work for you with no problems. Sometimes, you just have to assemble your own team, like I have. You're the coach and it's your life, do just do some homework and meet with them - you'll know what to do.

    Don't just trust your care to the folks you've been using - once they demonstrate enough mistakes, that is the norm over the exception and you've got the right to walk and pursue better care - and you owe that to yourself to do just that.

    You won't be sorry. Listening to your story echoed many things I went through in the old days. Gather other opinion and find yourself a hospital with up to date equipment - the machines really do make a difference in your care - I've learned that first hand as well.

    Stay strong, Lou - engage your resources, assess your situation, and then be prepared to move wherever you need to.

    Good luck!

    P.S. I had a classic malpractice suit as well - and called ten different attornies. I was told I had a case, but was not "Economically Viable." The cap for lawsuits is $250,000 against medical malpractice here in Texas, so it's not worth it for the law firms to represent you. Might be different in your state.

    I got the same answer 10 different times and decided to invest my energies into fighting and surviving. So, I let it go and redirected my energies.

    -Craig
  • LOUSWIFT
    LOUSWIFT Member Posts: 371 Member
    Sundanceh said:

    Some Good Reasons...
    First, Lou - you gotta' trust somebody. When you feel things are going south and on more than once occasion, it is at that time, that it's time to pack up your marbles and find someone else. The next medical team could be the one you are looking for.

    I say this as I stayed with my original clinic too long - many mistakes were made at my expense. In retrospect, I was lucky to walk away from there and live to fight another day.

    I went to a teaching hospital that is highly regarded in my area. They have the latest equipment (no breakdowns like at the other place) and they are schooled and up to date on the latest thing going.

    You combine that with you yourself getting just enough of an education to be able to talk to the doctors on a level playing field - and your health chances increase substantially. Once you can talk the talk with them, they realize you are in the know and your dicussions will be more beneficial and your options get better - you take your own medical care by the horns and hire yourself as your own advocate.


    It's been 14 months since I walked away - I have not looked back! I regret that I stayed too long but we can't look back for long, we must look ahead. I've applied what I've learned and can talk to any doctor or surgeon on a level where they understand that I am nobody's fool and we are going to discuss it.

    For your port, find yourself a good VASCULAR surgeon...they will be able to use their expertise and put that thing in nicely for you and it will work for you with no problems. Sometimes, you just have to assemble your own team, like I have. You're the coach and it's your life, do just do some homework and meet with them - you'll know what to do.

    Don't just trust your care to the folks you've been using - once they demonstrate enough mistakes, that is the norm over the exception and you've got the right to walk and pursue better care - and you owe that to yourself to do just that.

    You won't be sorry. Listening to your story echoed many things I went through in the old days. Gather other opinion and find yourself a hospital with up to date equipment - the machines really do make a difference in your care - I've learned that first hand as well.

    Stay strong, Lou - engage your resources, assess your situation, and then be prepared to move wherever you need to.

    Good luck!

    P.S. I had a classic malpractice suit as well - and called ten different attornies. I was told I had a case, but was not "Economically Viable." The cap for lawsuits is $250,000 against medical malpractice here in Texas, so it's not worth it for the law firms to represent you. Might be different in your state.

    I got the same answer 10 different times and decided to invest my energies into fighting and surviving. So, I let it go and redirected my energies.

    -Craig

    lawyers
    I've deal with them most of my adult life. I was a cop until I retired and Union president for many years during that. Lawyers are the only group of people who get paid to lie and take a moral high ground like it a divine calling. Before I retired I was a key witness in a sexual harassment case for a female officer. I was a sergeant at the time. One of the department's lawyers came to me and informed me that unless I became a "team player" the department would fire me on unrelated causes of course and I would lose health care to fight cancer. So I would face financial ruin or die. Real nice after nearly 30 years of service and doing the right thing. I grabbed a reduced pension and locked in health care before they could stop me. I testified for her and they had to write her a check. Who won? The lawyers always win. In my case too the lawyers didn't see enough profit in suing the police because I would run out of money before the tax payers did and time diminishes profit for attorneys. Yet attorneys fight for justice for their clients...I saw that on a bumper sticker.
  • 462lt
    462lt Member Posts: 117
    LOUSWIFT said:

    lawyers
    I've deal with them most of my adult life. I was a cop until I retired and Union president for many years during that. Lawyers are the only group of people who get paid to lie and take a moral high ground like it a divine calling. Before I retired I was a key witness in a sexual harassment case for a female officer. I was a sergeant at the time. One of the department's lawyers came to me and informed me that unless I became a "team player" the department would fire me on unrelated causes of course and I would lose health care to fight cancer. So I would face financial ruin or die. Real nice after nearly 30 years of service and doing the right thing. I grabbed a reduced pension and locked in health care before they could stop me. I testified for her and they had to write her a check. Who won? The lawyers always win. In my case too the lawyers didn't see enough profit in suing the police because I would run out of money before the tax payers did and time diminishes profit for attorneys. Yet attorneys fight for justice for their clients...I saw that on a bumper sticker.

    good advice
    Craig had really good advice find someone else. The most important thing is listen to your gut! YOur gut never lies it always knows when something just doesn't seem right. Question Question Question if they don't want to answer find someone else. Good machines do make a difference. Follow your gut!Laura
  • sheri22
    sheri22 Member Posts: 273
    Thats just not right
    Lou

    I am sorry for all you have been thru with this could you go somewhere else?

    I have been lucky so far my drs have been overly cautious and have been very honest about any mistakes good luck to you

    Sheri22