JohnSFO update

AceSFO
AceSFO Member Posts: 229
edited March 2014 in Colorectal Cancer #1
It's been a while since we've posted here and many of you probably don't know who we are, but I thought I'd post an update for those who remember us and who occasionally email to see how we're doing. I can't remember where things stood when we last posted, but the cancer has continued to grow aggressively and has now engulfed the sacrum and broken through the rectum, and is also encroaching on the right ureter, causing nephrosis of that kidney. The pain is extraordinary and we've had the good fortune to find a palliative care doctor who understands the pain.

Yesterday we met with her and together we all decided that it's time to call in Hospice. In the past doctors have avoided giving anything that resembled a prediction of life-expectancy, but yesterday she told us that based on everything going on with him, it could be a few weeks or a few months.

We continue to feel amazing support from our families and friends and also our local CRC support group at UCSF.

Although we haven't been active on here in a long time, we do continue to think about you guys and are so grateful for all the caring and support you've shown us over the last few years.

Thanks to each of you -

with love,
Adrian
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Comments

  • 462lt
    462lt Member Posts: 117
    #2
    I'm sorry
    I'm sorry things haven't gone as well as everyone would have liked. I hope that hospice can ease everyones pain and help in every why they can. Thoughts and prayers for you all. Laura
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #3
    Praying
    You both are always on my mind and was just hoping that John would have gotten a break and a treatment for him would have been found. Also so sorry that his pain is so bad, but glad that you were able to find someone to help alleviate some of it. Please tell John that he is a valued part of this board and he continues to be thought and prayed for. Adrian, your heart with the semi-colon will forever be a picture that will never be forgot. You are a wonderful artist. Thank you for the update and keep us posted.

    Hugs! Kim
  • msccolon
    msccolon Member Posts: 1,917 Member
    #4
    I am so sorry
    For the both of you, this has been such a tough journey. I'm glad that you are getting the support you need, sure wish John wasn't in such pain. I pray that whatever time he has left, you two will be able to enjoy each other's company and be comforted in love and strength. I hope John is still able to enjoy his garden.
    mary
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #5
    Adrian
    I am so sorry that John's cancer has progressed and that he is in such pain. Thanks so much for updating us; I have wondered how you two have been. You both will be in my thoughts.
  • KathiM
    KathiM Member Posts: 8,028 Member
    #6
    I think often of you both....
    and hoped against all odds that John recovered miraculously, and that you both were out painting the world red....

    I'm sorry that he has so much pain, but glad that you have a doctor that understands....

    We each must walk the last bit, it's wonderful that you are keeping him as much loved as possible. I am placing a soft mother's kiss on John's forehead...

    You must be exhausted, so I say to you, dear friend...sleep, take care of you....

    Wel terusten, lieverd!

    Hugs to you both, Kathi
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #7
    Thank you for posting
    So glad you posted, but am sorry to hear that John is in such pain.

    I am glad that you both have lots of local support, but hope you will continue to come here to allow us to help you as we can.

    You are both in our thoughts and prayers.

    Marie who loves kitties
  • Patteee
    Patteee Member Posts: 945
    #8
    Brings quick tears to my
    Brings quick tears to my eyes and a heavy heart to read that John is in such pain. This hasn't been an easy time for him and you either. But you both have faced this with such grace and courage. Even now Adrian, your words are comforting. John is never far from my thoughts and I continue to hold both of you in the light and pray for peaceful and restful days ahead. It just hurts so that he is in such pain. It ISN"T SUPPOSE TO BE LIKE THIS! I so pray that this doctor will be able to help- that God will give her the skill to help and understand his pain so he can be free. He is deserving of that.
    Hugs and love to both of you.
    Patteee
  • karguy
    karguy Member Posts: 1,020 Member
    #9
    Thank you
    Thank you for the update,I'm sorry john is in pain,maybe he will get something for it.I will pray for you both.
  • Crow71
    Crow71 Member Posts: 679 Member
    #10
    Thanks for the update
    I think about you guys all the time. John has dealt with his disease on his own terms, in his own way. He's never lost his zest for life and I continue to be inspired by both of you.
    Many sparks to you. Please keep us updated when you can.
    Take care - Roger
  • Nana b
    Nana b Member Posts: 3,030 Member
    #11
    Crow71 said:

    Thanks for the update
    I think about you guys all the time. John has dealt with his disease on his own terms, in his own way. He's never lost his zest for life and I continue to be inspired by both of you.
    Many sparks to you. Please keep us updated when you can.
    Take care - Roger

    Thanks for the update, very
    Thanks for the update, very sad for you! Thinking of you two always! May you both have a decent loving closure on this journey and life. All we have left is to be strong...Hugs!
  • mommyof2kds
    mommyof2kds Member Posts: 519
    #12
    Nana b said:

    Thanks for the update, very
    Thanks for the update, very sad for you! Thinking of you two always! May you both have a decent loving closure on this journey and life. All we have left is to be strong...Hugs!

    wish I could say something
    wish I could say something to ease your pain a little. just know that you both are in our prayers. God bless petrina
  • snommintj
    snommintj Member Posts: 601
    #13
    mommyof2kds said:

    wish I could say something
    wish I could say something to ease your pain a little. just know that you both are in our prayers. God bless petrina

    sad news
    I was wondering how you guys were doing. I hope John still gets to enjoy his garden. Your news saddens me, but please know John's strength through this has inspired me to be stronger. I pray John's pain is lessened and his passing is peaceful. I'll pray for you to maintain your courage, strength and compassion to endure his passing.
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #14
    Adrian and John
    Adrian and John,
    You have both been in my thoughts a lot. Adrian thank you for the update. I am so sorry to hear that John's pain is severe. I will continue to pray for you as the two of you enter into the hospice journey. Many of us will hold you in our hearts.

    Aloha,
    Kathleen
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #15
    Kathleen808 said:

    Adrian and John
    Adrian and John,
    You have both been in my thoughts a lot. Adrian thank you for the update. I am so sorry to hear that John's pain is severe. I will continue to pray for you as the two of you enter into the hospice journey. Many of us will hold you in our hearts.

    Aloha,
    Kathleen

    sorry to hear this news,
    Prayers to don't have any more pain!
    Hugs!
  • maglets
    maglets Member Posts: 2,576 Member
    #16
    pepebcn said:

    sorry to hear this news,
    Prayers to don't have any more pain!
    Hugs!

    Adrian and John
    with such a heavy heart I read your post this morning. I cannot tell you why I always felt so close to you two but I did and still do.

    I pray that hospice will give John all the help and comfort possible and perhaps some solution to his intense pain.

    Holding you both
    Best love
    maggie
  • Unknown
    Unknown
    #17
    maglets said:

    Adrian and John
    with such a heavy heart I read your post this morning. I cannot tell you why I always felt so close to you two but I did and still do.

    I pray that hospice will give John all the help and comfort possible and perhaps some solution to his intense pain.

    Holding you both
    Best love
    maggie

    This comment has been removed by the Moderator
  • geotina
    geotina Member Posts: 2,111 Member
    #18
    Dear Adrian and John:
    I am so sorry. I follow your site and have read of John's unending pain and suffering and Adrian your strength, love and care is amazing. I sincerely hope that John's pain can now be eased.

    Love to you both - Tina
  • HollyID
    HollyID Member Posts: 946 Member
    #19
    Adrian...
    Thank you for the update. I've often wondered how you two were doing.

    I'm so sorry to read of John's pain. I hope that hospice gives him the care that he deserves. I'm also grateful that you've found a compassionate physician who understands palliative measures. Adrian, I hope you take comfort in knowing your compassion, love and faithfulness is comforting to the rest of us as well.

    Love and hugs to you both,

    Holly
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #20
    HI Guys
    Adrian

    As everyone has mentioned, I'm sorry to hear about all of this. John really put his foot forward and gave this fight everything that he had. I hope that hospice will provide pain relief during the transition and that both of you find peace at this stage of the journey.

    "Holding you in the light" as you like to say - it seems very appropriate right about now.

    -Craig
  • coolvdub
    coolvdub Member Posts: 408 Member
    #21
    Sundanceh said:

    HI Guys
    Adrian

    As everyone has mentioned, I'm sorry to hear about all of this. John really put his foot forward and gave this fight everything that he had. I hope that hospice will provide pain relief during the transition and that both of you find peace at this stage of the journey.

    "Holding you in the light" as you like to say - it seems very appropriate right about now.

    -Craig

    May you both find peace
    Adrian,

    Thanks for the update on John. I echo the sentiments already given. I'm so sorry John is in such pain. I wish I could take it away, both of you have been through so much. I will pray for a peaceful and serene end when it comes for John. You have been and continue to be such a wonderful caregiver and partner for John. Peace to you both, you guys will be in my prayers.

    Don

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