Who here has gone through the stem cell transplant?
I just saw this too
http://www.lymphomation.org/comparing-sct.htm
mortality rates? dang...I would love to get my brothers stem cells - he's healthy as a horse...but 30%?!?!?!?! I wanna talk to my doc. being 25 might help.
Comments
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thanks for the reply! Maybevinny59 said:stem cell
Sorry about the relapse, I have not been thru Stem Cell, I was going to suggest talking to your Onc they know best, I do remember reading a post of someone one who went thru that type of treatment. All the best.......... Vinny
thanks for the reply! Maybe that person will stop in, but hopefully he's cured and living life so he won't! haha. I have talked with my onc, and there is a separate doctor that I will get passed off to who will be in charge of me during the whole transplant process, I was just... curious what other people have felt about it going through.
Thanks again!0 -
BM Transplantbobsbarricades said:thanks for the reply! Maybe
thanks for the reply! Maybe that person will stop in, but hopefully he's cured and living life so he won't! haha. I have talked with my onc, and there is a separate doctor that I will get passed off to who will be in charge of me during the whole transplant process, I was just... curious what other people have felt about it going through.
Thanks again!
Bob,
What type of lymphoma were you diagnosed with in the beginning and what type have you you been rediagnosed with. Sometimes the diagnosis can change with lymphoma? John0 -
it was Nodular Sclerosing
it was Nodular Sclerosing Hodgkin's the first time and I just know Hodgkin's the second. My doctor said it mutated and we needed to do the stem cell transplant.0 -
stem cell transplantbobsbarricades said:it was Nodular Sclerosing
it was Nodular Sclerosing Hodgkin's the first time and I just know Hodgkin's the second. My doctor said it mutated and we needed to do the stem cell transplant.
Hi Bob,
It's nice to meet you. I am so sorry that you have had a recurrance of you Hodgkin's and are now facing a SCT. I have been told that if my aggressive NHL recurs again I will need a SCT too. We have some one who posts every so often who has recently undergone a SCT. Her name is Natalie14 and the last post on her SCT was 7/20 under newly out of sc. I know she is a young mother and was very scared going in. Have you posted with the LLS as they have a stem cell site which is pretty active.
Remember you have youth on your side. We have had people on this board who had esharp also, I've heared it is very harsh.
Has your brother already been tested? Have you been told you will need an Allo transplant, donor transplant, or can you have an Auto transplant, you donate your own stem cells? Autos are much easier to recover from but don't always have as good results.
Sorry for this long post. Please let us know how you are doing. I'll be sending you lots of positive energy.
Leslie0 -
brother hasn't ben testedyesyes2 said:stem cell transplant
Hi Bob,
It's nice to meet you. I am so sorry that you have had a recurrance of you Hodgkin's and are now facing a SCT. I have been told that if my aggressive NHL recurs again I will need a SCT too. We have some one who posts every so often who has recently undergone a SCT. Her name is Natalie14 and the last post on her SCT was 7/20 under newly out of sc. I know she is a young mother and was very scared going in. Have you posted with the LLS as they have a stem cell site which is pretty active.
Remember you have youth on your side. We have had people on this board who had esharp also, I've heared it is very harsh.
Has your brother already been tested? Have you been told you will need an Allo transplant, donor transplant, or can you have an Auto transplant, you donate your own stem cells? Autos are much easier to recover from but don't always have as good results.
Sorry for this long post. Please let us know how you are doing. I'll be sending you lots of positive energy.
Leslie
brother hasn't ben tested yet as we're not at the stage of preparing, still doing the pre stem cell chemo to get rid of the stuff that came back.
Can anybody tell me what primary refractory disease is and how it is different than just an early relapse? From my understanding, since I came back so soon, I'm refractory. Am I wrong? Please tell me I'm wrong 0.0 lol0 -
It is my understanding that you would be considered refractory to the first type of treatment you had. That does not mean you are refractory to them all. But because of your age they want to do the stem cell transplant as they are highly successful in the very young. They will save all the other treatments for your future if you should need them. Best of luck. Marybobsbarricades said:brother hasn't ben tested
brother hasn't ben tested yet as we're not at the stage of preparing, still doing the pre stem cell chemo to get rid of the stuff that came back.
Can anybody tell me what primary refractory disease is and how it is different than just an early relapse? From my understanding, since I came back so soon, I'm refractory. Am I wrong? Please tell me I'm wrong 0.0 lol0 -
Allogenic Transplant
My daughter, 35, has just been given the all clear and heading home from the University of Nebraska Med. Center in Omaha. She had Hepatosplenic T-cell lymphoma and underwent IVAC chemo. The cancer went into remission and she had stem cell transplant from her brother. She was in Omaha for 100 days after transplant. Dr. Julie Voss is amazing. The after effects of the chemo were bad but she is doing well now. Prognosis is good so the Lord willing, she will have many years to continue His work here.
Good luck to you and your journey. At times the cure seems worse than the cancer. Be strong and trust in God. Jeremiah 29:11 sustained our daughter through the bad times.0 -
Congratsiml said:Allogenic Transplant
My daughter, 35, has just been given the all clear and heading home from the University of Nebraska Med. Center in Omaha. She had Hepatosplenic T-cell lymphoma and underwent IVAC chemo. The cancer went into remission and she had stem cell transplant from her brother. She was in Omaha for 100 days after transplant. Dr. Julie Voss is amazing. The after effects of the chemo were bad but she is doing well now. Prognosis is good so the Lord willing, she will have many years to continue His work here.
Good luck to you and your journey. At times the cure seems worse than the cancer. Be strong and trust in God. Jeremiah 29:11 sustained our daughter through the bad times.
Glad to hear she's doing better and on her way to a happy healthy life!0
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