"Oncxiety", now good news

AnneCan
AnneCan Member Posts: 3,673 Member
edited March 2014 in Colorectal Cancer #1
Yesterday I posted that I was feeling "oncxiety" as I was meeting with my onc this morning. I had a really good meeting with her. First of all, my tumour was tested for the KRAS mutation, + I am a "WILD " thing, so I will be able to go on erubitux at some point if need be. I was very relieved, because @ my last appointment with my onc, she told me that I had some (minimal) progression on my liver, although everything else was stable. Today her resident went over those results again, + it sounds like there was even less progression than we understood there to be before. I will get a CT scan soon to see what is happening, + then if need be, my treatment can be changed. Options are good!

Comments

  • tina dasilva
    tina dasilva Member Posts: 641
    #2
    im happy for you

    im happy for you
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #3
    *Big Grin*
    I'm smiling ear to ear, dearest Anne:)

    How really wonderful it was to hear that today. So happy for you.

    -Craig
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #4
    Sundanceh said:

    *Big Grin*
    I'm smiling ear to ear, dearest Anne:)

    How really wonderful it was to hear that today. So happy for you.

    -Craig

    Great!
    It's a good new!
  • Unknown
    Unknown
    #5
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  • Unknown
    Unknown
    #6
    unknown said:

    This comment has been removed by the Moderator

    This comment has been removed by the Moderator
  • maglets
    maglets Member Posts: 2,576 Member
    #7
    unknown said:

    This comment has been removed by the Moderator

    good good
    how's it going today there? Anne

    lots of rain around here huh? i am still trying to get clothes washed and dried that we had at the cottage.....doesn't help that I don't own clothes dryer.....haha haul them out haul them in.

    OPTIONS are good....hugs

    mags
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #8
    maglets said:

    good good
    how's it going today there? Anne

    lots of rain around here huh? i am still trying to get clothes washed and dried that we had at the cottage.....doesn't help that I don't own clothes dryer.....haha haul them out haul them in.

    OPTIONS are good....hugs

    mags

    Even small victories are HUGE......
    Good news to hear.....Love to you .Buzz
  • KathiM
    KathiM Member Posts: 8,028 Member
    #9
    Options are ALWAYS nice to have!!!
    I'm dancing for you, dear soul!

    Hugs, Kathi
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #10
    glad to hear it
    I'm glad to hear your news, Anne!
    Have a good day!!!

    Lisa
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    #11
    lisa42 said:

    glad to hear it
    I'm glad to hear your news, Anne!
    Have a good day!!!

    Lisa

    YAY!!!
    Good news..... Yippie!! happy for you Anne!!

    Jennie
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #12
    maglets said:

    good good
    how's it going today there? Anne

    lots of rain around here huh? i am still trying to get clothes washed and dried that we had at the cottage.....doesn't help that I don't own clothes dryer.....haha haul them out haul them in.

    OPTIONS are good....hugs

    mags

    No rain here
    Hi Mags,

    There was no rain here today; I think we are expecting it tomorrow. Today was chemo day, just got back ~ 1 hr ago. When the onc told me I was "wild" I felt a huge weight lifting off me; I had been preparing myself for the opposite results. I feel so lucky right now, + my husband has been pretty relieved too. My CEA rose a few months ago, my onc ordered a scan which showed a little growth on the liver, but my CEA has decreased since then, so I am hoping the chemo is still working. I will have another scan in a few weeks to see.
  • maglets
    maglets Member Posts: 2,576 Member
    #13
    AnneCan said:

    No rain here
    Hi Mags,

    There was no rain here today; I think we are expecting it tomorrow. Today was chemo day, just got back ~ 1 hr ago. When the onc told me I was "wild" I felt a huge weight lifting off me; I had been preparing myself for the opposite results. I feel so lucky right now, + my husband has been pretty relieved too. My CEA rose a few months ago, my onc ordered a scan which showed a little growth on the liver, but my CEA has decreased since then, so I am hoping the chemo is still working. I will have another scan in a few weeks to see.

    all good
    Hi Annie...I asked to be tested for wild but my onc in Owen Sound would not do it....must be expensive....a little growth is good.....hope you feel ok on chemo day....

    holding you right up close to my heart

    mags

    oh ps rained like mad here this afternnoon
  • maglets
    maglets Member Posts: 2,576 Member
    #14
    KathiM said:

    Options are ALWAYS nice to have!!!
    I'm dancing for you, dear soul!

    Hugs, Kathi

    great pic
    Kath that is a stunning photo of you

    mags
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #15
    maglets said:

    all good
    Hi Annie...I asked to be tested for wild but my onc in Owen Sound would not do it....must be expensive....a little growth is good.....hope you feel ok on chemo day....

    holding you right up close to my heart

    mags

    oh ps rained like mad here this afternnoon

    Mags
    I think it is expensive - the tumour bit needed to be sent to Califonia; I guess we don't have a testing facility here. I think my onc might have gotten the testing paid for by a pharma company because I had to sign a permission form for them to do it + it was part of the application form for a clinical study where one leg gets erbutitux + the other leg gets erubitus + another drug. At my recent meeting my onc mentionned several combinations + permutations of drugs I could be put on if my drugs need to be changed.

    Thanks for holding me close to your heart; I guess you weren't able to dry any laundry today!
  • Kerry S
    Kerry S Member Posts: 606 Member
    #16
    I don’t know what hocus pocus they did
    Ann,
    Have you asked if chemo embolization would clear up your liver problem. My colon surgeon told me after my resection “I don’t know what hocus pocus they did on your liver but it looks like new”. I never see comments on that procedure on the board. The procedure killed off ½ of my liver along with all the damn cancer.

    Kerry
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #17
    Kerry S said:

    I don’t know what hocus pocus they did
    Ann,
    Have you asked if chemo embolization would clear up your liver problem. My colon surgeon told me after my resection “I don’t know what hocus pocus they did on your liver but it looks like new”. I never see comments on that procedure on the board. The procedure killed off ½ of my liver along with all the damn cancer.

    Kerry

    Kerry
    Thanks, no, I haven't asked her that, but I will at my next appointment. I think my team is hoping the chemo will take care of it. I have lymph nodes + possibly one ovary with cancer; I don't know if that is a factor. I am glad it worked so well for you.
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #18
    KathiM said:

    Options are ALWAYS nice to have!!!
    I'm dancing for you, dear soul!

    Hugs, Kathi

    Mags is right
    Kathi,

    You look gorgeous; what is your secret?
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #19
    Thanks to everyone
    I really appreciate all the kind messages from everyone here; it means the absolute WORLD to me. I really feel we are all part of an important team, + for me the cheering from the rest of the team is helping me to carry the ball over the line (or get the puck in the net, depending on what your favourite sport is). I know this wasn't scan results or a report after surgery, but it meant a great deal to me to find out my options have been expanded + I really appreciate the support from ALL of you. Merci beaucoup!
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #20
    AnneCan said:

    Mags
    I think it is expensive - the tumour bit needed to be sent to Califonia; I guess we don't have a testing facility here. I think my onc might have gotten the testing paid for by a pharma company because I had to sign a permission form for them to do it + it was part of the application form for a clinical study where one leg gets erbutitux + the other leg gets erubitus + another drug. At my recent meeting my onc mentionned several combinations + permutations of drugs I could be put on if my drugs need to be changed.

    Thanks for holding me close to your heart; I guess you weren't able to dry any laundry today!

    Ain't Cheap....
    ....how timely, Ladies:)

    Just got KRAS mutant tested this time around - got the bill today = $853.00

    Gotta' love it!

    -Craig

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