Recently diagnosed, need advice from survivors

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Comments

  • tarhoosier
    tarhoosier Member Posts: 195 Member
    your choice
    Thumper:
    The choice for your situation that is clear and unequivocal is...Active surveillance. This is not doing nothing. This is monitoring your condition for as long as it takes before you move to another option. Perhaps a very long time with no regret, no side effects, no cost other than the monitoring you should be doing and that you would be doing after any invasive treatment. Listen, you cancer has been in your prostate for some time before it was identified and you did just fine, right? Your numbers are well within the limits for active surveillance at all top cancer centers. No one is pushing you to treatment now so just lay back and enjoy your life now. Wait until your body tells you something, do not respond with your emotions.
  • hopeful and optimistic
    hopeful and optimistic Member Posts: 2,346 Member

    your choice
    Thumper:
    The choice for your situation that is clear and unequivocal is...Active surveillance. This is not doing nothing. This is monitoring your condition for as long as it takes before you move to another option. Perhaps a very long time with no regret, no side effects, no cost other than the monitoring you should be doing and that you would be doing after any invasive treatment. Listen, you cancer has been in your prostate for some time before it was identified and you did just fine, right? Your numbers are well within the limits for active surveillance at all top cancer centers. No one is pushing you to treatment now so just lay back and enjoy your life now. Wait until your body tells you something, do not respond with your emotions.

    I posted before.....I noticed that I did not
    talk about Active Surveillance which I am on......if you click my name you will find information from a survey that shows why AS is a excellent choice....additionally there are currently some threads about active surveillance on this site that you can read.

    I've been doing active surveillance for a year and a half so far.....and hope to do it for the rest of my life, but, if I have problem , I feel that I can treat with no adverse effects from waiting.

    Active Surveillance is considered a valid treatment option...I am monitored at ucla, that is a highly ranked institution for prostate cancer treatment.

    Be aware that there are many, many docs out there that are financially motivated to treat with their specialty, and in addition some are incompetent and will try to steer you away from AS..they are very slick...I've been posting on this site for a long while, Advised several men to have AS, however the vast majority if not all decided to , in my opinion, overtreat and suffer the side effects of these treatments. I think that many of these decisions were emotionally based, since these men have had a fear of having a cancer in their bodies, eventhough the cancer is very slow growing, and can in my opinion based on a studies that I have read be effective monitored.

    Anyway, I believe that I am the only man who posts at this site who is doing AS.

    I don't think that I have ever ranted here before.....but this is my time.

    Ira
  • guards
    guards Member Posts: 72
    problems down the road
    I finally saw someone here chose actice survelance. I had Brachy about 32 months ago at age 63. I was fine for the first 15 months or so psa down to 0.2 from 11.2 no problems etc. However the last 17 months have been not fun. Developed a BAD infection. Had to have 2 turps and numerous catheters installed in emergency room as my spincter closed completely. Last foley cath. was in for 2 months. Then I started self cath to avoid the emergency room and in Jan. this year finally became totally incontinent. Now I Go in thursday for my next sugery to install a stint ,that will hopefully allow me to have a artificial spincter installed if the stint heals correctly. If I had it to do over I would have chosen the watchful waiting and availabe treatment to try and lower the psa. I used to have a fairly active life ,had a membership at the local public golf course, rode the bike path near my house almost daily. Even bought a recumbent bike after the infection to try and stay riding but I would wet through everything with in a few blocks so I gave up. So I now set home and change my pads and gain weight. My Diabeties got totally out of control and I'm back on insulin ,I had the diabeties in control h1ac of 5.8 down from 12 till this mess. Given my choices I would have preferred the 5-10 years I had left to the life I now live. Please consider quality of life if things go wrong. I know so many locally that have so many problems that would have certainly proceeded much slower. Yes the PC won't kill me but this lifestyle may do it quicker seriously conside active waiting please. My neighbor had external radiation and he and I agree. He had more problems than I do.
  • Kongo
    Kongo Member Posts: 1,166 Member
    guards said:

    problems down the road
    I finally saw someone here chose actice survelance. I had Brachy about 32 months ago at age 63. I was fine for the first 15 months or so psa down to 0.2 from 11.2 no problems etc. However the last 17 months have been not fun. Developed a BAD infection. Had to have 2 turps and numerous catheters installed in emergency room as my spincter closed completely. Last foley cath. was in for 2 months. Then I started self cath to avoid the emergency room and in Jan. this year finally became totally incontinent. Now I Go in thursday for my next sugery to install a stint ,that will hopefully allow me to have a artificial spincter installed if the stint heals correctly. If I had it to do over I would have chosen the watchful waiting and availabe treatment to try and lower the psa. I used to have a fairly active life ,had a membership at the local public golf course, rode the bike path near my house almost daily. Even bought a recumbent bike after the infection to try and stay riding but I would wet through everything with in a few blocks so I gave up. So I now set home and change my pads and gain weight. My Diabeties got totally out of control and I'm back on insulin ,I had the diabeties in control h1ac of 5.8 down from 12 till this mess. Given my choices I would have preferred the 5-10 years I had left to the life I now live. Please consider quality of life if things go wrong. I know so many locally that have so many problems that would have certainly proceeded much slower. Yes the PC won't kill me but this lifestyle may do it quicker seriously conside active waiting please. My neighbor had external radiation and he and I agree. He had more problems than I do.

    Welcome
    Guards, sorry that your quality of life has deteriorated so much after treatment. Your example for us makes a strong case for weighing the potential side effects of any course of action when we receive our diagnosis.

    I hope that the course you are now following results in some relief that enables you to return to the lifestyle you had before all of this happened.

    I am wondering if you could share with us your statistics at diagnosis and whether or not you had any urinary issues before brachytherapy.

    Your after the fact endorsement of AS makes is understandable given your results but had it gone the other way you would likely be a strong supporter of your procedure. I am curious as to whether or not you felt your doctors gave you a balanced perspective on AS BEFORE you elected brachy. I think that many of the treatment courses men eventually choose are largely a function of how their options are presented to them and it isn't until something goes wrong that we go back and start second guessing. Just wondering if that happened with you.

    Best
  • alfmik50
    alfmik50 Member Posts: 3
    NM said:

    I chose davinci
    Hi, I chose Davinci to get rid of my cancer. I am 53. Did i chose right.after 1 year no cancer no incontinence but also no erections. Its a tough choice and I am second guessing myself constantly.

    Sorry there is no cure all. all treatments have trade offs. Please get a second opinion and realize whatever choice you make you alone have to live with the results. No one else does so research pray and whatever your decision enjoy your life as it is now.

    Cancer is gone so far (1year clean psa) but well all choices have edges.

    Sorry I did not endorse anything but I ask you to research pray and make your decision based on whats important to you and yours.

    Nick age 53

    treatment
    Nick, did you opt for the radiation treatment? I am recently diagnosed with prostate cancer, I am 53, and was leaning toward the radiation and want to discuss it with people who have gone through it. Mike
  • Feb2010
    Feb2010 Member Posts: 51
    OTHER OPTION
    Proton Radiation is another option you might want to take a look at.