Sundance Scope Results AND Chemo Under Way Tomorrow *UPDATE*

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Comments

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #22
    LivinginNH said:

    Oh my, you have been through

    Oh my, you have been through so much this year. My best wishes and prayers are being sent your way. My Dad's motto was always, "Never give up!" (ex-Army). These words mean more to me now than they ever did. So, Craig, just keep fighting the good fight. Take care, and God bless. - Cynthia

    Work In Progress...
    Well, wrapped up #1 Tx with CPT-11 and Leucovorin, the 5fu bolus, and the lovely 46-hour 5fu fanny pack. Unhooked tomorrow 'bout this time. Have to immediately start taking Neulasta shots, WBC's were low for the first Tx.

    Doing OK so far - no bad news to report. Hopefully, I'll be able to tolerate this better. On Folfox, I would be under the weather by now, but I'm pleased with what's transpired - so far:)

    Radiation plan still being formed. Apparently, I will have to do the 5fu pump 24-hours a day - every day - for the entire radiation treatment, which is going to 5 or 6 weeks long.
    Fill 'er up, eh?

    Another strange thing - I got my CEA's back yesterday and there are the lowest on record @ 0.7 That's with cancer present in the pleura of my lung right now. I guess CEA's really are a strange marker, I used to think mine meant something, but now don't know.

    Thank you for all your wonderful responses and taking the time to reply. I really appreciate everyone!

    -Craig
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #23
    Sundanceh said:

    Work In Progress...
    Well, wrapped up #1 Tx with CPT-11 and Leucovorin, the 5fu bolus, and the lovely 46-hour 5fu fanny pack. Unhooked tomorrow 'bout this time. Have to immediately start taking Neulasta shots, WBC's were low for the first Tx.

    Doing OK so far - no bad news to report. Hopefully, I'll be able to tolerate this better. On Folfox, I would be under the weather by now, but I'm pleased with what's transpired - so far:)

    Radiation plan still being formed. Apparently, I will have to do the 5fu pump 24-hours a day - every day - for the entire radiation treatment, which is going to 5 or 6 weeks long.
    Fill 'er up, eh?

    Another strange thing - I got my CEA's back yesterday and there are the lowest on record @ 0.7 That's with cancer present in the pleura of my lung right now. I guess CEA's really are a strange marker, I used to think mine meant something, but now don't know.

    Thank you for all your wonderful responses and taking the time to reply. I really appreciate everyone!

    -Craig

    Craig
    I am so glad all is well so far with your first chemo treatment in awhile. You are a fantastic role model through this process; I applaud you!
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #24
    AnneCan said:

    Craig
    I am so glad all is well so far with your first chemo treatment in awhile. You are a fantastic role model through this process; I applaud you!

    Craig exctly the same plan I have,exept that I'm having avastin
    too.After that 5 weeks of daily 5fu and radiotherapy and then operate.
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #25
    Sundanceh said:

    Work In Progress...
    Well, wrapped up #1 Tx with CPT-11 and Leucovorin, the 5fu bolus, and the lovely 46-hour 5fu fanny pack. Unhooked tomorrow 'bout this time. Have to immediately start taking Neulasta shots, WBC's were low for the first Tx.

    Doing OK so far - no bad news to report. Hopefully, I'll be able to tolerate this better. On Folfox, I would be under the weather by now, but I'm pleased with what's transpired - so far:)

    Radiation plan still being formed. Apparently, I will have to do the 5fu pump 24-hours a day - every day - for the entire radiation treatment, which is going to 5 or 6 weeks long.
    Fill 'er up, eh?

    Another strange thing - I got my CEA's back yesterday and there are the lowest on record @ 0.7 That's with cancer present in the pleura of my lung right now. I guess CEA's really are a strange marker, I used to think mine meant something, but now don't know.

    Thank you for all your wonderful responses and taking the time to reply. I really appreciate everyone!

    -Craig

    you've got a plan
    Hi Craig,

    Well, glad to hear you're hangin' in there & so far aren't under the weather. Weird about your CEA- I guess that goes to show you that it's just not an accurate measure for everyone. One thought I had in reading your plan for the 5FU pump 24-7 during radiation is, is it possible to take Xeloda during radiation instead of having the pump be your constant buddy? I know the pump is the more traditional way, but if Xeloda is essentially the same thing, why not? Oh, how I'd hate the pump attached to me nonstop.
    Worth mentioning to your onc.

    SO glad to hear you're doing okay at the moment- you're like the Timex watch commercial of yesteryear- takes a licking and keeps on ticking!! :)

    Hugs,
    Lisa
  • maglets
    maglets Member Posts: 2,576 Member
    #26
    lisa42 said:

    you've got a plan
    Hi Craig,

    Well, glad to hear you're hangin' in there & so far aren't under the weather. Weird about your CEA- I guess that goes to show you that it's just not an accurate measure for everyone. One thought I had in reading your plan for the 5FU pump 24-7 during radiation is, is it possible to take Xeloda during radiation instead of having the pump be your constant buddy? I know the pump is the more traditional way, but if Xeloda is essentially the same thing, why not? Oh, how I'd hate the pump attached to me nonstop.
    Worth mentioning to your onc.

    SO glad to hear you're doing okay at the moment- you're like the Timex watch commercial of yesteryear- takes a licking and keeps on ticking!! :)

    Hugs,
    Lisa

    hello sweetie boy
    man o man and round and round and up and down we go.....or sometimes I think endless escalator......STOP I want off.....no way man. Craig I completely identify with all you are saying. sorry about the rectal blip.....pleazzzze try not to fuss too much.

    good for you for surviving numero uno....I hated the 5FU bolus....good for you....

    sending hugs and would you like some cold hard rain? NO?

    darn cuz it's raining cats and dogs here.....

    all best love and hugs and a big smooch

    mags
  • Hatshepsut
    Hatshepsut Member Posts: 336 Member
    #27
    Sundanceh said:

    Work In Progress...
    Well, wrapped up #1 Tx with CPT-11 and Leucovorin, the 5fu bolus, and the lovely 46-hour 5fu fanny pack. Unhooked tomorrow 'bout this time. Have to immediately start taking Neulasta shots, WBC's were low for the first Tx.

    Doing OK so far - no bad news to report. Hopefully, I'll be able to tolerate this better. On Folfox, I would be under the weather by now, but I'm pleased with what's transpired - so far:)

    Radiation plan still being formed. Apparently, I will have to do the 5fu pump 24-hours a day - every day - for the entire radiation treatment, which is going to 5 or 6 weeks long.
    Fill 'er up, eh?

    Another strange thing - I got my CEA's back yesterday and there are the lowest on record @ 0.7 That's with cancer present in the pleura of my lung right now. I guess CEA's really are a strange marker, I used to think mine meant something, but now don't know.

    Thank you for all your wonderful responses and taking the time to reply. I really appreciate everyone!

    -Craig

    Progress...

    Craig:

    I'm glad to hear that your first treatment went well. I hope you make progress each day.

    Who is that handsome dog next to you in the photo? Is that the famous Harley? He had gotten even more handsome. I'll bet he is a great companion and comfort to you as you heal.

    You are in my thoughts.

    Hatshepsut
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #28
    Hatshepsut said:

    Progress...

    Craig:

    I'm glad to hear that your first treatment went well. I hope you make progress each day.

    Who is that handsome dog next to you in the photo? Is that the famous Harley? He had gotten even more handsome. I'll bet he is a great companion and comfort to you as you heal.

    You are in my thoughts.

    Hatshepsut

    Hatsepshut - You Are Close
    Hi L

    First, I cannot tell you how good it is to see and hear from you - I've missed you on my posts:)

    And the picture of my Avatar is of me and Jerry Lee (Harley's papa) right before he won Best of Show.

    He's a handsome devil, and Harley is starting to look just like him all over. I'll have to post some new pics of Harley soon.

    Thinking of you as well - really glad to see you:)

    -Craig
  • sfmarie
    sfmarie Member Posts: 602
    #29
    Sending my prayers
    Your way Craig. You are our inspiration! An inspiration to everyone battling this disease end your endless spirit and wisdom have touched us all.

    Blessings,
    Marie

    PS-The puppy has gotten so big!
  • pluckey
    pluckey Member Posts: 484 Member
    #30
    Sundanceh said:

    Work In Progress...
    Well, wrapped up #1 Tx with CPT-11 and Leucovorin, the 5fu bolus, and the lovely 46-hour 5fu fanny pack. Unhooked tomorrow 'bout this time. Have to immediately start taking Neulasta shots, WBC's were low for the first Tx.

    Doing OK so far - no bad news to report. Hopefully, I'll be able to tolerate this better. On Folfox, I would be under the weather by now, but I'm pleased with what's transpired - so far:)

    Radiation plan still being formed. Apparently, I will have to do the 5fu pump 24-hours a day - every day - for the entire radiation treatment, which is going to 5 or 6 weeks long.
    Fill 'er up, eh?

    Another strange thing - I got my CEA's back yesterday and there are the lowest on record @ 0.7 That's with cancer present in the pleura of my lung right now. I guess CEA's really are a strange marker, I used to think mine meant something, but now don't know.

    Thank you for all your wonderful responses and taking the time to reply. I really appreciate everyone!

    -Craig

    Craig - I was on the same
    Craig - I was on the same cocktail. Never had nausea, which i was thankful for. Tired the next day, but would always rally, and you, well, that's what you do, dear Craig, you rally...

    be well

    (hugs)

    Peggy
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #31
    Sundanceh said:

    Work In Progress...
    Well, wrapped up #1 Tx with CPT-11 and Leucovorin, the 5fu bolus, and the lovely 46-hour 5fu fanny pack. Unhooked tomorrow 'bout this time. Have to immediately start taking Neulasta shots, WBC's were low for the first Tx.

    Doing OK so far - no bad news to report. Hopefully, I'll be able to tolerate this better. On Folfox, I would be under the weather by now, but I'm pleased with what's transpired - so far:)

    Radiation plan still being formed. Apparently, I will have to do the 5fu pump 24-hours a day - every day - for the entire radiation treatment, which is going to 5 or 6 weeks long.
    Fill 'er up, eh?

    Another strange thing - I got my CEA's back yesterday and there are the lowest on record @ 0.7 That's with cancer present in the pleura of my lung right now. I guess CEA's really are a strange marker, I used to think mine meant something, but now don't know.

    Thank you for all your wonderful responses and taking the time to reply. I really appreciate everyone!

    -Craig

    Very weird
    Very weird about your CEA. Hmmmm?

    You're a couple days ahead of me. I'm on day 2 FOLFIRI w/Avastin. So far it is a LOT easier than my first round of FOLFOX. I did get Emend which I didn't have with my first FOLFOX round.

    Leucovorin shortage kept me from getting that to go with my 5-FU. So I did get the bolus, which had been removed after my first round of FOLFOX.

    Here's to hoping we both have a lot easier time on FOLFIRI than FOLFOX!

    Keep on hangin' on. You're doing great!

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