Cure for slow growing lymphoma?

Richsterr
Richsterr Member Posts: 34 Member
edited March 2014 in Lymphoma (Hodgkin and Non-Hodgkin) #1
Hi
My doctor says I have slow growing non hodgkin's lymphoma. I thought it was manageable but not curable. He says there is a 25 percent chance that it can be cured. Does anyone know how this is possible.

Richard

Comments

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #2
    Not what I've been told
    Hi Richard,
    I was told no cure...just remission and management. We can always pray that any day a cure will happen!!!...Sue
  • Richsterr
    Richsterr Member Posts: 34 Member
    #3
    allmost60 said:

    Not what I've been told
    Hi Richard,
    I was told no cure...just remission and management. We can always pray that any day a cure will happen!!!...Sue

    Is it chronic
    Sue
    Do you know if it is chronic like diabetes? and how long can you manage it ?

    Richard
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #4
    Richsterr said:

    Is it chronic
    Sue
    Do you know if it is chronic like diabetes? and how long can you manage it ?

    Richard

    CURE,CHRONIC OR REMISSION AND FOR HOW LONG?
    Richard,
    Good question!! I have read different stuff on those websites that I don't go to anymore. I know of a few people on here that can answer those questions for us that have more up to date knowledge. So I will let them have the floor on this one. COME ON MARY AND ANYBODY ELSE OUT THERE, HELP US OUT!!! John
  • miss maggie
    miss maggie Member Posts: 929
    #5
    COBRA666 said:

    CURE,CHRONIC OR REMISSION AND FOR HOW LONG?
    Richard,
    Good question!! I have read different stuff on those websites that I don't go to anymore. I know of a few people on here that can answer those questions for us that have more up to date knowledge. So I will let them have the floor on this one. COME ON MARY AND ANYBODY ELSE OUT THERE, HELP US OUT!!! John

    cure, chronic small cell
    Strange for me to post info on this discussion board. I really know so little. I am usually on this site asking questions, and readin all the posts. I was told by my oncologist, and listening to John Leonard's telephone conference June 15, this is chronic, but treatable.
    My question to Dr. Leonard was for B Cell. Take care all Maggie
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #6
    miss maggie said:

    cure, chronic small cell
    Strange for me to post info on this discussion board. I really know so little. I am usually on this site asking questions, and readin all the posts. I was told by my oncologist, and listening to John Leonard's telephone conference June 15, this is chronic, but treatable.
    My question to Dr. Leonard was for B Cell. Take care all Maggie

    cure,chronicsmall cell
    Maggie,
    Did the dr. say for how long it is treatable? Seems we can never get a definite answer to that question. When I think of treatable I think of a lifetime. I know I have heard remission is longest the first time around and then it is shorter with each recurrence. John
  • onlytoday
    onlytoday Member Posts: 609 Member
    #7
    COBRA666 said:

    cure,chronicsmall cell
    Maggie,
    Did the dr. say for how long it is treatable? Seems we can never get a definite answer to that question. When I think of treatable I think of a lifetime. I know I have heard remission is longest the first time around and then it is shorter with each recurrence. John

    From what I have learned from 3 oncologists, b cell indolent lymphoma is very treatable and not curable at this time. The stats that are published do not quote the latest prognosis data because it keeps changing all the time.(So don't believe everything you read!) With the discovery of Rituxan and using that as maintenance (as well as other treatments)everything changed a few years ago in the lymphoma community. One oncologist told me that he believes that we are winning the war against cancer, especially in the field of lymphoma research. :)
  • miss maggie
    miss maggie Member Posts: 929
    #8
    COBRA666 said:

    cure,chronicsmall cell
    Maggie,
    Did the dr. say for how long it is treatable? Seems we can never get a definite answer to that question. When I think of treatable I think of a lifetime. I know I have heard remission is longest the first time around and then it is shorter with each recurrence. John

    chronic small b cell
    That's a good question John. Did you see "only today" post? I will see my oncologist in Nov, I will ask that question. Dr. Leonard did say it usually transforms into follicular.

    John, I tell you, you are so right. I went to other discussion sites. They are not as good as this discussion board. I get more info just reading all the info on this site. Some of the sites are more like chat rooms. Maybe I am going to the wrong sites, oh well.
    Maggie
  • merrywinner
    merrywinner Member Posts: 626 Member
    #9
    I don't know
    What I have been told is that with the most recent treatments such as the Monoclonal antibodies(ie Rituxan) and the radio immunological therapies(ie Zevalin) they are very, very close. Since they are newer they can't know for sure and are waiting to see. People that have had these treatments are now starting to reach their 10 year mark. That's all I know and hope and pray it is so. Right now they know that they are having success at extending remissions for much longer periods of time. This is called progression free survival or PFS and is now the term they use to measure one's progress as opposed to how many years one will live after diagnosis,the reason being that there are so many treatments they can use in the event of a recurrence. Of course this depends on the type of Lymphoma etc. Some are easier to treat. Hodgkin's is considered curable. Long...sorry. Mary
  • bk1950
    bk1950 Member Posts: 43
    #10
    NHL/SLOW GROWING
    i was told the same thing, that i would always have it but they could keep it under control for possibly years. my cancer is almost gone and i am now getting rituxan treatments as a maintinace but not yet considered in remission until my cancer has been stable for a certain amount of time. take care.

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