Just came back from the oncologist - bad news
Comments
-
Xeloda Works
Eric, keep fighting, Xeloda worked for me, and has for many others. Like Lisa I am not sure why they are not using something along side of the Xeloda, but I do know I used Xeloda alone for almost 8 months at the maximum strength and it worked for me. How much are you taking? I will be praying for you my friend, dont give up....
HUGS
Beth0 -
This comment has been removed by the Moderatordorookie said:Xeloda Works
Eric, keep fighting, Xeloda worked for me, and has for many others. Like Lisa I am not sure why they are not using something along side of the Xeloda, but I do know I used Xeloda alone for almost 8 months at the maximum strength and it worked for me. How much are you taking? I will be praying for you my friend, dont give up....
HUGS
Beth0 -
I am so sorryunknown said:This comment has been removed by the Moderator
I m so sorry to hear this news. I just hate this cancer!. As has been said already someone has to be that 20-25% group so why not you? Miracles do happen
I am sending prayers that the Xeloda works for you..
Hugs
Kathy0 -
Xeloda will workktlcs said:I am so sorry
I m so sorry to hear this news. I just hate this cancer!. As has been said already someone has to be that 20-25% group so why not you? Miracles do happen
I am sending prayers that the Xeloda works for you..
Hugs
Kathy
l have good vibes!
Remember you are made in iron!0 -
Eric
Eric,
I will be holding you in prayer. I hope to hear good news about the xoloda in the near future.
Aloha,
Kathleen0 -
0
-
Healing...
Eric:
You have a very strong combination going for you: Xeloda and your powerful determination to beat your disease.
Best wishes to you for healing.
Hatshepsut0 -
I am hoping and praying thatHatshepsut said:Healing...
Eric:
You have a very strong combination going for you: Xeloda and your powerful determination to beat your disease.
Best wishes to you for healing.
Hatshepsut
I am hoping and praying that you are the 20 to 25 percent that this works on.
Kathy0 -
You keep fighting
20 to 25% chance is better then not a chance at all. Eric, Keep up the fight!!
Brooks0 -
Love you Eric
The Rilke saying continues to ring true and provide much solace for me and perhaps for you too: "So you mustn't be frightened, if a sadness rises in front of you, larger than any you have ever seen; if an anxiety, like light and cloud-shadows, moves over your hands and over everything you do. You must realize that something is happening to you, that life has not forgotten you, that it holds you in its hand and will not let you fall."
Leslie0 -
Eric, I'm at Georgetown and
Eric, I'm at Georgetown and we have several experimental trials going on there. I'm going to pm you with my docs name and info. Can you find a way to get out here? You can stay with me as long as you need. Please don't give up! Let's beat this together.
Sheri0 -
Eric I am reminded of what
Eric I am reminded of what my onc told me when I first confronted him with my new knowledge that I had read online said that I had only a very small percentage of a chance to live,
He told me he treated people and the numbers were numbers. Eric, you are such an inspiration to everyone here. You are in my prayers and thoughts. Keep up the fight. Jean0 -
Dear One,
You are sooooo
Dear One,
You are sooooo dear to all of us. You are so open and honest and give so much of yourself. I just want you to know that you have inspired so many people and given us the determination to keep fighting. We appreciate you so much and really love you. I am praying for you and your "angel mom". You let her know that we are here for her also if she needs anything. Hope to hear from you when you're up to it.
Big Hugs and Prayers,
Debbie0 -
Hey Eric!
Just signed in tonight (ok, I guess it's morning) and read your post. Bummer... that is NOT the news we want to hear when we go see our oncologists. And after what you have just been through with the surgery and all... sheesh... it's almost as if your oncologist is trying to put you in a depression! Sometimes I wish these oncologists would stop and think before they speak. Oh sure, they are trying to be "realistic" and making sure you know what the "stats" are, hence what your "chances" are. Poppycock!! If we all read/listened/believed in the stats/chances then we all would have been gone long ago!
Let's look at some other things that are going on here.
- Xeloda is going to give you a 20-25% chance of working... which means more like a 40-50% chance. Let's face it... when dealing with percentages, they always tell us the lowest ones to "prepare us" in case they don't work (IE: once you are diagnosed as stage 4, you are given the 2 months - 24 months max prognosis. How many of us have surpassed that 24 months and are still going strong?) Ok, so now you have closer to a 50% chance of the Xeloda kicking in and doing it's job... that means 1 in 2, or out of 100,000 people, 50,000 did really, really well on it. So why not you??
- Attitude. Attitude is half the battle (meds/surgery/chemo/alternative therapies the other half). You've got the attitude that is needed, so don't let no doctor try and destroy that attitude. Use it to the best of your ability so that your attitude supplements the Xeloda.
- Youth/strength. You are not elderly. Not that there aren't healthy elderly folk who are also fighting this battle but let's face it... you have the strength of youth on your side. Don't ever take your youth for granted... it's a powerful tool on it's own.
- Hope. Hey, there's absolutely no need to give up hope at this point. Xeloda is not a cheap chemo. Why do I mention that? Well, if your oncologist and team really had no hope left for you, they wouldn't just throw you on Xeloda because there's nothing to lose.... let's face it, the Pharmaceutical/Insurance industry is all about saving money, not throwing it out the window. If they are putting you on this rather costly chemo, it means that there is still hope there that it will work... so a combination of Xeloda, Youth, and Attitude... there is no reason why you can't hope that this will be the magic pill that is going to work for you!
So hopefully you aren't going to be feeling too badly. I'm on 3300mg Xeloda/day and am feeling fine. The second day of my break week I get the "tireds" but I'm still able to bop around, go shopping, spend 4 afternoons at the theatre office/week and about to start taking in Fringe Festival performances. So I mention this only to show that Xeloda may not be too hard on you as far as side affects go.
Hugggggggs!
Cheryl0 -
HI eric, you are one of the
HI eric, you are one of the strongest people I have followed on this site. Keep fighting, you have been so helpful to many of us offering info and words of support. God bless.0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.9K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 398 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 671 Leukemia
- 794 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 63 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 540 Sarcoma
- 733 Skin Cancer
- 653 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards