I'm new and about to start radiation.

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Comments

  • team stevens
    team stevens Member Posts: 46
    #42
    the first one
    Hi, i'm sure you're resting after your 1st rad. my husband is now 6 wks out and we take one day at a time. still dealing with the thick saliva & some swelling in the treated area of neck. he also has a trech tube.that's great that you have so much support from your family, it'll make a world of difference. all of our fam is in florida & it was very hard on us going it alone, but God got us through & He'll do the same for you. don't be afraid to ask for help, or take it when offered. take in as many calories as possible. mike has a peg and we don't know when or if he'll be off of it, but he makes sure he doesn't miss a meal regardless of how he feels. i suggest that you meet with a nutritionist for advice, since you just had a baby, your dietary needs will be different than most. just know that you're not alone & you can do ALL things through Him that gives you strength.

    love & prayers & keep posting
  • james chambliss
    james chambliss Member Posts: 70
    #43
    team stevens said:

    the first one
    Hi, i'm sure you're resting after your 1st rad. my husband is now 6 wks out and we take one day at a time. still dealing with the thick saliva & some swelling in the treated area of neck. he also has a trech tube.that's great that you have so much support from your family, it'll make a world of difference. all of our fam is in florida & it was very hard on us going it alone, but God got us through & He'll do the same for you. don't be afraid to ask for help, or take it when offered. take in as many calories as possible. mike has a peg and we don't know when or if he'll be off of it, but he makes sure he doesn't miss a meal regardless of how he feels. i suggest that you meet with a nutritionist for advice, since you just had a baby, your dietary needs will be different than most. just know that you're not alone & you can do ALL things through Him that gives you strength.

    love & prayers & keep posting

    Little One
    I was diagnosed with Nasopharyngeal Carcinoma Stage III before my youngest son turned 1yr old. I was told by my doctors to be careful being around my son because of my immune system. I was fortunate. I never got anything from him. However, I was not able to watch him on my own. I had no energy and was in a lot of pain from the radiation after about week 4. I have finished the radiation and the first 3 rounds of chemo about 6 weeks out now. I am about to start the last 3 rounds of chemo. Woo hoo! I will say this, for me the body has begun to heal quickly. There is a lot of good advise on this page. All of which i believe is true. You will find that in a few weeks, all of these kind people sharing their experience truly speak your language. Most people will not understand, but we do. I hope nothing but the best for you. It will be hard, but look at that young one and know that it's worth it to stay alive. You can survive, I believe that. Stay Positive and never give up hope!


    Regards,

    James
  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    #44
    KristynRuth86 said:

    Thank you so so much, that's
    Thank you so so much, that's very helpful.
    I wonder too, while you're on radiation do you have to stop drinking any alcohol? Not that I binge drink or anything lol, I just assume you would need to since like you said your liver is working extra hard.
    I am just looking to be finished with all of this mess! I can't wait for 2011! I'll be ready for the new year when I am done and finished. I don't try to dwell on how I'll be feeling for the next few months (thought of course I do want to know) I'm trying to plan on all I'm going to do once I'm well!
    Thank you so much for the tips and insight!

    how you are doing
    I'm sure I'm not the only one wondering how you are doing - let us hear from you as soon as you feel up to it, KR!
  • KristynRuth86
    KristynRuth86 Member Posts: 140
    #45
    james chambliss said:

    Little One
    I was diagnosed with Nasopharyngeal Carcinoma Stage III before my youngest son turned 1yr old. I was told by my doctors to be careful being around my son because of my immune system. I was fortunate. I never got anything from him. However, I was not able to watch him on my own. I had no energy and was in a lot of pain from the radiation after about week 4. I have finished the radiation and the first 3 rounds of chemo about 6 weeks out now. I am about to start the last 3 rounds of chemo. Woo hoo! I will say this, for me the body has begun to heal quickly. There is a lot of good advise on this page. All of which i believe is true. You will find that in a few weeks, all of these kind people sharing their experience truly speak your language. Most people will not understand, but we do. I hope nothing but the best for you. It will be hard, but look at that young one and know that it's worth it to stay alive. You can survive, I believe that. Stay Positive and never give up hope!


    Regards,

    James

    So blessed
    I feel so blessed to have found this website, all of your advice means the world to me and I thank each one of you for taking time out to respond. I was supposed to start rad 9-7, but they recommended chemo now also and now I'm starting the chemo and rad together 9-9 (tomorrow) I'm nervous to say the least! Thank every single one of you again!
  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    #46
    KristynRuth86 said:

    So blessed
    I feel so blessed to have found this website, all of your advice means the world to me and I thank each one of you for taking time out to respond. I was supposed to start rad 9-7, but they recommended chemo now also and now I'm starting the chemo and rad together 9-9 (tomorrow) I'm nervous to say the least! Thank every single one of you again!

    with you
    In spirit, KristynRuth. You will do well.

    Make sure you give us a report!
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #47
    KristynRuth86 said:

    So blessed
    I feel so blessed to have found this website, all of your advice means the world to me and I thank each one of you for taking time out to respond. I was supposed to start rad 9-7, but they recommended chemo now also and now I'm starting the chemo and rad together 9-9 (tomorrow) I'm nervous to say the least! Thank every single one of you again!

    KristynRuth ~ Child Birth
    After being in the delivery room during the birth of both of my children. You have endured far more pain and courage than I think I could...you can definitely handle this.

    Best,
    John
  • james chambliss
    james chambliss Member Posts: 70
    #48
    KristynRuth86 said:

    So blessed
    I feel so blessed to have found this website, all of your advice means the world to me and I thank each one of you for taking time out to respond. I was supposed to start rad 9-7, but they recommended chemo now also and now I'm starting the chemo and rad together 9-9 (tomorrow) I'm nervous to say the least! Thank every single one of you again!

    Love to You
    You will get through this. It will be rough, but we are all here for you and we understand. That's what i love about this place. Everything i have gone through thus far, others have experienced and came out on the other side doing better. Which gives hope and hope Kristyn is important. Never give up!

    James
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #49
    KristynRuth86 said:

    So blessed
    I feel so blessed to have found this website, all of your advice means the world to me and I thank each one of you for taking time out to respond. I was supposed to start rad 9-7, but they recommended chemo now also and now I'm starting the chemo and rad together 9-9 (tomorrow) I'm nervous to say the least! Thank every single one of you again!

    NERVOUS
    Krystyn, I did my first radiation this morning. the had music playing and also layed warm sheets on me as my room was ice cold. About midway through the treatment, I felt like I could not fill my lungs with air. my breathing started to increase and I felt like I was hyperventilating. Once I slowed down and got my self back to my "happy place" I finished OK. I will most likely struggle with this for a few more times until I figure out how to "play the game".

    I will be thinking of you tomorrow during my treatment and paraying that you make it through uneventfull.

    BEST!!

    Mike
  • CajunEagle
    CajunEagle Member Posts: 408
    #50
    luv4lacrosse said:

    NERVOUS
    Krystyn, I did my first radiation this morning. the had music playing and also layed warm sheets on me as my room was ice cold. About midway through the treatment, I felt like I could not fill my lungs with air. my breathing started to increase and I felt like I was hyperventilating. Once I slowed down and got my self back to my "happy place" I finished OK. I will most likely struggle with this for a few more times until I figure out how to "play the game".

    I will be thinking of you tomorrow during my treatment and paraying that you make it through uneventfull.

    BEST!!

    Mike

    Mental games
    You might try thinking about bench pressing, or counting down till the end of the session. Personally, I played a different golf course (in my mind) when I was going through TOMO radiation. Some sessions, I would go fishing or maybe counting the number of rotations the machine would circumference my head. Every session would be 31 times (I'll never forget that number), but once it went 33 times, and I almost lost it. :) Towards the end, around sessions 29-37, I was such a basket case that I just fell asleep. Which if you can do it, is not a bad idea. Good Luck !!

    Larry

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