thanks

sephie
sephie Member Posts: 650 Member
edited March 2014 in Anal Cancer #1
i really appreciate your feedback. in 2008, my proctologist could not see nor feel what I was trying to show him and he kept telling me that I did not have cancer. so I thought it was hemmorrhoid . finally after over 9 months of going to him , I got a 2nd opinion who immediately put me in hospital for biopsy. then i got the dx . then went to MD Anderson from May until July 2009. so I am afraid that Doctors do not feel what I feel--(the bump and the inflammation) Last April the colorectal surgeon said that it seems OK but needs to be checked every few months or so for reoccurance. will let you know after i go to MDA. thanks again

Comments

  • mp327
    mp327 Member Posts: 4,440 Member
    #2
    I wish you the best with
    I wish you the best with your upcoming appt. Please let us know what you find out.
  • sissy310
    sissy310 Member Posts: 300
    #3
    I also wish you the best -
    I also wish you the best - doctors need to listen more to their patients. I did the same thing, I kept telling my doctor I felt there was something more there and he and the general surgeon chalked it up to hemi's. Only after a biopsy did they realize it was cancer. Now did you get a diagnosis of cancer or are they just watching it? Did you have surgery? I must have missed a thread or two on this. Keep us posted on what happens after you go to MDA. Marilyne
  • sephie
    sephie Member Posts: 650 Member
    #4
    i do not know how to easily reply to questions on this site
    here is answer to question: yes, March 2009 i went to another Dr. and he did incisional biopsy ( took out as much as he could without damaging sphincter) and it came back as squamous cell. have gone thru chemo and radiation at MDA 13 months ago. still have inflammation and bump. pain with walking and sitting. bleed. . i go to MDA this friday and monday. will let you know what i am told. my colorectal surgeon is man of few words. can barely understand what he sees. gets in and out of the room really fast. my hubby stopped him last time to try to get some answers. I cannot have sex due to pulling of tissue too painful and i am afraid of tearing. thanks sephie
  • sissy310
    sissy310 Member Posts: 300
    #5
    sephie said:

    i do not know how to easily reply to questions on this site
    here is answer to question: yes, March 2009 i went to another Dr. and he did incisional biopsy ( took out as much as he could without damaging sphincter) and it came back as squamous cell. have gone thru chemo and radiation at MDA 13 months ago. still have inflammation and bump. pain with walking and sitting. bleed. . i go to MDA this friday and monday. will let you know what i am told. my colorectal surgeon is man of few words. can barely understand what he sees. gets in and out of the room really fast. my hubby stopped him last time to try to get some answers. I cannot have sex due to pulling of tissue too painful and i am afraid of tearing. thanks sephie

    If some doctors only
    If some doctors only realized that spending a few minutes explaining things to a patient would make the patient less anxious. So far I have had my questions answered but I'm only 3 weeks out of treatment. Will be interesting to see what happens as time progresses. Was your doctor always a man of few words? I am assuming you are NED except for inflammation and pain (I am learning about that with walking too much, as it irritates it even more...have to sit on a pillow - one of those soft foamy kinds). You are over a year out and still have issues, I'm sorry to hear that. Hope that things improve for you and you are in my thoughts and prayers. Marilyne
  • pjjenkins
    pjjenkins Member Posts: 173
    #6
    sephie said:

    i do not know how to easily reply to questions on this site
    here is answer to question: yes, March 2009 i went to another Dr. and he did incisional biopsy ( took out as much as he could without damaging sphincter) and it came back as squamous cell. have gone thru chemo and radiation at MDA 13 months ago. still have inflammation and bump. pain with walking and sitting. bleed. . i go to MDA this friday and monday. will let you know what i am told. my colorectal surgeon is man of few words. can barely understand what he sees. gets in and out of the room really fast. my hubby stopped him last time to try to get some answers. I cannot have sex due to pulling of tissue too painful and i am afraid of tearing. thanks sephie

    Post treatment issues
    Have you had all the standard follow-ups? PETs and/or CAT scans, colonoscopy or sigmoidoscopy?

    At a conference we had for cancer survivors here in Maine, a radiation oncologist told us people react differently to radiation and heal differently also. I know that 2 3/4 year post treatment my bottom "landscape" is different. The tissue is sensitive and occasionally painful or bleeds.

    I have developed some walking difficulties that may be attributable in part to radiation but it doesn't take the form of pain at the location of the treatment for the most part.

    Check in the discussions we have had about both pain/bleeding and sex problems. We definitely have had quite a few!

    Do press your doctor for answers! Maybe give him a written list!

    Good luck and keep us posted.

    Priscilla

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