Tumor Board FINALLY, Standford next
At the tumor board meeting, everyone agrees I should have surgery, it's the explaining the surgery apparently to insurance, etc., that could be problem.
As they all agree that someone with "the many masses" as the onc put it, that I HAD, cannot have them disappear like mine. They do not know how this is possible, so there is consensus that perhaps they are still there, just to small to see now, which means by medical standards I'm still beyond help and should not have surgery offered. But they aren't sure. Plus the CEA count is down to 8 from 2184. So I'm the puzzle to them.
However, was told none in this area could do the surgery, they all agreed on that.
Sooo, I'm being referred to Stanford to get their opinion and possible surgery. But onc, thinks if called palliative, I could still get the surgery.
Still no chemo, platelets are still low although up from 94 to 96.
Soo, good news maybe.
Comments
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What a puzzle
First of all, great news about the CEA. That is a dramatic drop for sure.
Tell the docs at Standford to call it whatever they like...palliative...snoopy or Mickey Mouse, as long as they can convince the insurance folks to allow procedures you need.
My best wishes to you as you head to Standford. Any idea of when you will be going?
Take care and get all the beach time you can,
Marie who loves kitties0 -
some good news
Confusing but I'd take most of that as good news, especially the CEA. What are you taking for treatment and why are your platelets so low? My platelets were at 120 and the Onc said he would continue Xeloda down until 75. Luckily 120 was as low as they went.0 -
Progress
It seems like you have been steadily progressing in the right direction and that is why your doctors are so puzzled because you have shown them what you are made of. Hopefully, Standford will come up with the option to do surgery and get those pesky cancer cells out of you. Keep us updated.
Kim0 -
sounds like good news to me~!
So glad they finally got around to you on the tumor board! You've had to wait a long time! I agree, call it what they might so long as they call you to the OR! You sure had a dramatic drop in your CEA! That is really good news! I can't believe they would even consider you to not be a candidate, you sound like a perfect candidate to me! Good luck at Stanford!
mary0 -
Chemo Treatmentsimagineit2010 said:some good news
Confusing but I'd take most of that as good news, especially the CEA. What are you taking for treatment and why are your platelets so low? My platelets were at 120 and the Onc said he would continue Xeloda down until 75. Luckily 120 was as low as they went.
I was on Avastin, Oxiplatinan and Xeloda (3000mgs a day for two week cycle), he said platelets low due to the chemo, but suggested my smoking wasn't helping them recover either. So have to quit. That's going to be the hardest part of cancer so far for me, quitting smoking.0 -
Winter MarieAud said:Winter Marie
congrats on the CEA count! sounds like you had a good response. prayers to you and good luck at Stanford.
~Audrey
Hey..... it really sounds like things have done a complete turnaround on you. that is fantastic news!!! I am so happy for you. Man, that CEA drop is unreal!!! Keep it up girl!!
Jennie0 -
If we are talking about theidlehunters said:Winter Marie
Hey..... it really sounds like things have done a complete turnaround on you. that is fantastic news!!! I am so happy for you. Man, that CEA drop is unreal!!! Keep it up girl!!
Jennie
If we are talking about the liver Dr Robert Osorio in San Francisco is awesome!!
http://maps.google.com/maps/place?oe=utf-8&rls=org.mozilla:en-US:official&client=firefox-a&um=1&ie=UTF-8&q=dr+osorio+san+francisco&fb=1&gl=us&hq=dr+osorio&hnear=San+Francisco,+CA&cid=175721634595601054570 -
Hi Winter Marie,Nana b said:If we are talking about the
If we are talking about the liver Dr Robert Osorio in San Francisco is awesome!!
http://maps.google.com/maps/place?oe=utf-8&rls=org.mozilla:en-US:official&client=firefox-a&um=1&ie=UTF-8&q=dr+osorio+san+francisco&fb=1&gl=us&hq=dr+osorio&hnear=San+Francisco,+CA&cid=17572163459560105457
Got on the band wagon a little late, so as many others have said already mentioned the drop in your CEA is awesome!! Stanford is a great hospital and don't worry everything will work out.0 -
It IS good news
It most definitely IS good news that they can't see the masses anymore and that your CEA has gown done amazingly!!! I know it's weird when you find yourself wishing things showed up as worse than they are just to please the insurance requirements for surgery. Arrgghh- don't get me started on insurance! I think what you're doing, with going to Standford for another opinion is a good idea.
I, too, have always remained not a surgical candidate because of too many widespread tumors (they're called "innumerable" on my scan reports and are everywhere, in every part of my lungs. Weird to think I have so many tumors in my lungs and have absolutely no symptoms or problems at all in the lungs). I'd be a candidate for surgery or cyberknife on my liver, but the condition of my lungs always interferes with my eligibility. I always end up doing more chemo, because that seems to be the only way to keep my lung tumors from growing and taking over.
Well, please do let us know what happens at Stanford- I'm quite interested in what they have to say. I am hoping that they conclude that the tumors can't be seen because they are GONE!!!!
Hugs,
Lisa0 -
Marielisa42 said:It IS good news
It most definitely IS good news that they can't see the masses anymore and that your CEA has gown done amazingly!!! I know it's weird when you find yourself wishing things showed up as worse than they are just to please the insurance requirements for surgery. Arrgghh- don't get me started on insurance! I think what you're doing, with going to Standford for another opinion is a good idea.
I, too, have always remained not a surgical candidate because of too many widespread tumors (they're called "innumerable" on my scan reports and are everywhere, in every part of my lungs. Weird to think I have so many tumors in my lungs and have absolutely no symptoms or problems at all in the lungs). I'd be a candidate for surgery or cyberknife on my liver, but the condition of my lungs always interferes with my eligibility. I always end up doing more chemo, because that seems to be the only way to keep my lung tumors from growing and taking over.
Well, please do let us know what happens at Stanford- I'm quite interested in what they have to say. I am hoping that they conclude that the tumors can't be seen because they are GONE!!!!
Hugs,
Lisa
This si good news, CEA from over 2000 to 8! obviosuly something is going right. i think someone ha said it already but who cares what they call it as long as the surgery happens!
Best of Luck at Standford
Kathy0 -
See what the sunshine will do if you let it shine in !!!sfmarie said:Stanford
I live nearby and would love to help you in any way I can. It is a great hospital.
Marie
Relax a little and enjoy the beach and all the beauty that surrounds you.......Love to you, Buzz0
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