Tonsil Cancer - 4 months post treatment

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  • pascotty
    pascotty Member Posts: 174 Member
    #22
    Hondo said:

    Hi Pascotty
    I too just want to say welcome to our CSM faimily, hope you plan to stay and help help others who are just starting.

    Hi Hondo
    Very cool name by the way, thank you for posting Cheers Jen
  • pascotty
    pascotty Member Posts: 174 Member
    #23
    Greend said:

    Welcome
    13 years post treatment....welcome

    AWESOME
    13 years, wow, that is so inspirational, thank you for posting, Cheers Jen
  • Scambuster
    Scambuster Member Posts: 973
    #24
    pascotty said:

    Hey there
    Hi Glenna, thank you for posting a comment, it is really comforting to know that someone you don't even know would take the time to say hello, I wish you all the best for your treatment and I find you a total inspiration. Love and happiness to you always Cheers Jen

    Acupuncture
    Hi Jen,

    I am 11 mths out for same deal as you though I was given Erbitux + IMRT and had the left Tonsil (SCC) removed (again). I actually had a tonsillectomy as a kid.

    I also went through with Naturopaths and still do. I also started Acupuncture about 2 months out to restore my saliva. I have had some improvement but it still goes up and down. One of the girls posted an Acupuncture technique here done by a US Acupuncturist/Dr. I sent it to my lady in HK and she ran that technique with me 2 weeks ago. I had immediate results so it has improved but I still would like a bunch more. I reckon I am producing 10-15% now which is OK. You have 3 main sets of Salivary glands and you, like me, had them blasted. We also a myriad of tiny ones all through out mouth so that most likely where the most recovery is from.

    Anyway I can PM or email you the paper if you are interested and thanks to whoever posted that information a couple of months back.

    Scam
    PS I am East coast 3 hrs North of Sydney but live in China. Had my Tx in HK. Bunbury and Bussletown are beautiful towns !
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #25
    pascotty said:

    Grateful
    Hi John, this is starting sound like an epidemic. Before diagnosis I didn't even know such a thing existed. We're you a smoker, I am interested only because, I have met 3 ladies around my age in Western Australia that have the same thing and have never smoked. They don't test here for HPV but my radiologist said he is 98% sure that is what I had. It seems most people have proved positive, but, becuase they don't test you never know. ANyway will keep posting Cheers Jen

    Never Smoked
    I have never smoked or used tobacco in my life. I posted on your thread on commonalities...

    HPV is greatly on the rise, and especially in the H&N cancer for adults within the 40 - 50 year old range. To the point of overtaking tobacco related H&N Cancers.

    The thought within the medical community (from what I've read) is mainly from two common practices;

    Less tobacco users due to education and awareness of the dangers of tobacco use.
    Greater acceptance and practice of oral sex within the last few decades.

    Best,
    John

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