Weirdly Depressing Week on This Board

Hubby
Hubby Member Posts: 325
edited March 2014 in Breast Cancer #1
I've only been here since April, so I'm sure this has all happened before, or maybe it hasn't. I feel like this Laura thing uncovered a major flaw with the anonymity of this site. Like Dorthy said "My! People come and go so quickly here!", but this was a little more dramatic than usual.

So far, on this site, I've seen three "events" that have really affected me: the cluster of recurrences/mets; the "kids" showing up (you know that week when 3 or 4 30 somethings joined); and now the Laura thing.

I'm just rambling now; It'll get back to "normal" I guess,

Hugs and a lot of big THANK YOUS to all of you who have helped me deal with my issues dealing with my wife's cancer.

Bob
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Comments

  • Alexis F
    Alexis F Member Posts: 3,598
    Unfortunately, having breast
    Unfortunately, having breast cancer and dealing with all that we do can cause depression, some a lot worse than others. Some can get past it and others need a lot of help.

    I wish this board could be only filled with good news and congratulations, but, that isn't all that this board is about. To me, it is more for information, help, and emotional support to get through the fight for our lives. And, if we get some good news, then, we all join in the celebration and are so happy to read about it and share in it.

    I am deeply worried about Laura and I pray that she did get help and that she is alright. I think her post has troubled me the most ever on here.

    I pray for everyone on here and pray that a cure will be found!

    I hope that your day gets better for you. I just feel so lucky to be alive that I don't allow myself to ever be down very long. After all, it does no good.

    Lex♥
  • aysemari
    aysemari Member Posts: 1,596 Member
    How normal can it be.... ? Hahaha
    Bob,

    I have to agree with you those were some rocky times.

    Up until I found this board I never believed in chat rooms and never wrote
    on any boards. But I am so glad I found this. The caring and the solidarity
    on this board are so genuine. I really feel accepted here and understood.

    Anyways, just to say LOVE YA GUYS!!! You have been what got me through this.

    Ayse
  • Pinkpower
    Pinkpower Member Posts: 437
    aysemari said:

    How normal can it be.... ? Hahaha
    Bob,

    I have to agree with you those were some rocky times.

    Up until I found this board I never believed in chat rooms and never wrote
    on any boards. But I am so glad I found this. The caring and the solidarity
    on this board are so genuine. I really feel accepted here and understood.

    Anyways, just to say LOVE YA GUYS!!! You have been what got me through this.

    Ayse

    Wow Ayse, I felt the same
    Wow Ayse, I felt the same way about chat rooms, I never even wanted to consider it until I stumbled here and I loved it from the get go. I felt like I came home! I have shared low points like miscommunication with my hubby and high points like my hair starting to grow again. I know I can always come here and share whatever is on my mind, good or bad.

    Hubby, hows the wife. Hope all is well.

    Lupe
  • cahjah75
    cahjah75 Member Posts: 2,631
    Bob, I've only
    been on this board since June after I had my bilateral mastectomy. Yes, there have been a couple of disturbing posts, most especially Laura's. I sincerely hope she sought help. The only other chat room I've ever been on is Weight Watchers. I chose to be part of an age group where all the women and some men had the same goals and difficulties reaching those goals weight wise. Here I have found so much inspiration and encouragement from those who have walked before me. It is the relationship we all have because of breast cancer that makes it special. Some people don't want to know anything about treatments, etc. I'm not one of them. I want to know all there is to know and what if anything I can do about it. Even though we are all separated by geography we are bound together because of breast cancer. As far as I'm concerned the information I've gotten here is invaluable! I'm sure there are lurkers who don't post but probably get some insight into what to expect from surgery and treatment. That's ok as some don't want to share their experience.

    I hope Donna is doing well. {{hugs}}
    Char
  • Marcia527
    Marcia527 Member Posts: 2,729
    All of us together makes
    All of us together makes this board what it is. We all contribute. We have good days and we have bad days. Some days we give support and some days we take it. I guess that's life.
  • survives
    survives Member Posts: 254 Member
    Marcia527 said:

    All of us together makes
    All of us together makes this board what it is. We all contribute. We have good days and we have bad days. Some days we give support and some days we take it. I guess that's life.

    New here also
    I'm new here also, but have been on another board that more or less cycles that way this one does. I guess it's what Marcia says, we have up days, then there are those dreadful down days. Put it all together, and this board just echos what life is all about.

    Hope your wife is doing better, Bob, and you both are getting a handle on things.

    survives
  • ms.sunshine
    ms.sunshine Member Posts: 707 Member
    survives said:

    New here also
    I'm new here also, but have been on another board that more or less cycles that way this one does. I guess it's what Marcia says, we have up days, then there are those dreadful down days. Put it all together, and this board just echos what life is all about.

    Hope your wife is doing better, Bob, and you both are getting a handle on things.

    survives

    The good, the bad, and the ugly
    That sums up what we experience in this cancer journey.
    We didn't choose the journey, but we now have to walk thru it. Rollercoaster of emotions. Anyone cancer related or not needs to get help when dealing with depression.

    Just want to add I have not suffered with depression before. My dr. put me on medication (don't remember what it was) I experienced depression. I had odd thoughts. I knew something was wrong because this thinking wasn't me. I quickly stopped the meds, and I was alright. The wrong meds or combination of meds can cause depression. Quickly seek help if one is experiencing any behavior or thoughts that just isn't "you"

    Take care, stay strong
    Jennifer
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member

    The good, the bad, and the ugly
    That sums up what we experience in this cancer journey.
    We didn't choose the journey, but we now have to walk thru it. Rollercoaster of emotions. Anyone cancer related or not needs to get help when dealing with depression.

    Just want to add I have not suffered with depression before. My dr. put me on medication (don't remember what it was) I experienced depression. I had odd thoughts. I knew something was wrong because this thinking wasn't me. I quickly stopped the meds, and I was alright. The wrong meds or combination of meds can cause depression. Quickly seek help if one is experiencing any behavior or thoughts that just isn't "you"

    Take care, stay strong
    Jennifer

    Jennifer, I love The good,
    Jennifer, I love The good, the bad and the ugly reference. Hubby, there seems to have been a lot of sad things here lately, but we need to deal with all of emotions on our journey. Sometimes when all is soooo happy, it doesn't feel real.
    I hope your wife is okay and I for one, love reading your posts.
    Keep up the good work.
    Wanda
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    You are really on a roller
    You are really on a roller coaster! Please take care of yourself--if not for yourself, so that you can be there for your loved ones. My husband is super supportive and my best friend. He has been through a lot with dealing with this disease for 23 years now (I had a long 22 year remission after chemo, rads, mastectomies, tamoxifen). He also has his own therapist now. I believe it has been a life-saver for him and it makes me happy that he has that support, just in case anything ever happens to me.
  • Hubby
    Hubby Member Posts: 325
    Reading back my post, I guess I'm coming across as being a little whiny and more depressed than I actually am. Some days or weeks this board is hard to read and this past week was especially trying.

    Anyway, Donna is doing pretty well with the Taxol. She traded "chemo fog" (during AC) for a more managable hip, back and knee pain from the Taxol. She hasn't had any of the neuropathy symptoms yet. So far, this round was much better than any of the AC rounds.

    Bob
  • Kat11
    Kat11 Member Posts: 1,931 Member
    Hubby said:

    Reading back my post, I guess I'm coming across as being a little whiny and more depressed than I actually am. Some days or weeks this board is hard to read and this past week was especially trying.

    Anyway, Donna is doing pretty well with the Taxol. She traded "chemo fog" (during AC) for a more managable hip, back and knee pain from the Taxol. She hasn't had any of the neuropathy symptoms yet. So far, this round was much better than any of the AC rounds.

    Bob

    Hubby
    Glad to hear that Donna is doing ok. The AC treatments for me were ruffer than Taxol. Not to say it's all easy from here on out, but Taxol was easier for me. This past week was not one of the better weeks on the board. It was very depressing to read what we all read from Laura. Hopefully she got some help. Hang in there, your doing great.
  • Megan M
    Megan M Member Posts: 3,000
    Kat11 said:

    Hubby
    Glad to hear that Donna is doing ok. The AC treatments for me were ruffer than Taxol. Not to say it's all easy from here on out, but Taxol was easier for me. This past week was not one of the better weeks on the board. It was very depressing to read what we all read from Laura. Hopefully she got some help. Hang in there, your doing great.

    I just am so worried about
    I just am so worried about Laura. I hope and pray she knows that we all are here to support her.
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    Hubby said:

    Reading back my post, I guess I'm coming across as being a little whiny and more depressed than I actually am. Some days or weeks this board is hard to read and this past week was especially trying.

    Anyway, Donna is doing pretty well with the Taxol. She traded "chemo fog" (during AC) for a more managable hip, back and knee pain from the Taxol. She hasn't had any of the neuropathy symptoms yet. So far, this round was much better than any of the AC rounds.

    Bob

    You are not coming off as
    You are not coming off as whiny or depressed at all. I just worry about the guys in our lives that are dealing with this. Cancer is truly a family disease in that it impacts each member. I know guys hate to see doctors, but it may be a great thing for both you and your wife to have that lifeline.

    I just know that it makes me feel better that my husband has the support as I feel guilty enough about making him deal with this. He has never complained to me and has been incredibly supportive, but I know he is human.

    Also, know that guys often use denial as a coping mechanism. My psychiatrist sister says that this is a "primitive coping mechanism" (whatever that means ;-)and that when it is not working, the individual who has relied on denial can have a really tough time.

    Just think about it. You will know when you are ready. It is great that you are here and venting; a very healthy thing I think.
  • Heatherbelle
    Heatherbelle Member Posts: 1,226 Member

    You are not coming off as
    You are not coming off as whiny or depressed at all. I just worry about the guys in our lives that are dealing with this. Cancer is truly a family disease in that it impacts each member. I know guys hate to see doctors, but it may be a great thing for both you and your wife to have that lifeline.

    I just know that it makes me feel better that my husband has the support as I feel guilty enough about making him deal with this. He has never complained to me and has been incredibly supportive, but I know he is human.

    Also, know that guys often use denial as a coping mechanism. My psychiatrist sister says that this is a "primitive coping mechanism" (whatever that means ;-)and that when it is not working, the individual who has relied on denial can have a really tough time.

    Just think about it. You will know when you are ready. It is great that you are here and venting; a very healthy thing I think.

    My husband is also extremely
    My husband is also extremely supportive. He and I have both found this super strentgh we were both hiding inside of us that neither knew we were capable of. I truly believe my cancer diagnosis has been harder on him than on me. I look at it this way - I've been ok through all of this, but if it was Tim who had cancer and was going through surgeries, chemo, etc, I would be a basketcase.
    I love the open-ness, and the "realness' of these boards. Yes, we congratulate and cheer and "hug" when everyone shares their good news, we support and encourage. But we also all know the realness of "bad" news or the not so great downs that go along with breast cancer, the fears too. This is a great place where we can share those fears, sometimes getting that reassurance that it will be ok, or just that we are not alone.
    I know for me personally it has been one hell of a last 7 days...chemo friday & shaved the noggin last night. Like I remind myself, I'm still here. My head is stubbly & sore & itchy, but I'm still alive. When I feel like I'm getting whiny or feeling sorry for myself I remind myself to take a look at the big picture. A lifetime of baldness would be worth it for me, if it meant I'd get to watch my girls grow up and raise families of their own, and grow old with my husband.
    *hugs & here's to a better week to be had by us all*
    Heather
  • jnl
    jnl Member Posts: 3,869 Member

    You are not coming off as
    You are not coming off as whiny or depressed at all. I just worry about the guys in our lives that are dealing with this. Cancer is truly a family disease in that it impacts each member. I know guys hate to see doctors, but it may be a great thing for both you and your wife to have that lifeline.

    I just know that it makes me feel better that my husband has the support as I feel guilty enough about making him deal with this. He has never complained to me and has been incredibly supportive, but I know he is human.

    Also, know that guys often use denial as a coping mechanism. My psychiatrist sister says that this is a "primitive coping mechanism" (whatever that means ;-)and that when it is not working, the individual who has relied on denial can have a really tough time.

    Just think about it. You will know when you are ready. It is great that you are here and venting; a very healthy thing I think.

    Maybe you should look into
    Maybe you should look into some counseling or some antidepressants? I know men don't like to even talk about those two subjects, but, it might help you. Good luck!


    Leeza
  • creampuff91344
    creampuff91344 Member Posts: 988
    jnl said:

    Maybe you should look into
    Maybe you should look into some counseling or some antidepressants? I know men don't like to even talk about those two subjects, but, it might help you. Good luck!


    Leeza

    Bob, your post really hits
    Bob, your post really hits the nail on the head when you state that "things" that are posted on this Board really can put us into a depression. It is awful that any of us have to go through this disease, but we girls often forget that the significant other is just as affected by our illness as we are. My husband has virtually been there for everything I have been through (missing only one rad treatment, and he still kicks himself for doing that). Our partners are definitely our strength, but on the other hand, I think they are also affected in other ways other than the physical. It is hard to watch someone we love being poked on, operated on, filled with poison, put through physical theraphy, stuffed with pills that make them feel totally unlike themselves, etc. Our treatment involves all who are around us, especially our partner in life. your statement that there were three things that affected you these past few weeks - the "kids" who are joining the group, and the "Laura" thing being two of them. Some of us on this Board remember about a year ago when we had a poster who literally took us all down a lane regarding her being a college student, no family to lean on, only friends in school to support her, and the eventual outcome resulted in her "death".....posted by one of her "friends" the next day. Turns out it was a hoax. This was such a horrible experience for a lot of us, some reacted much worse than most when we found out the whole thing was made up. I do hope Laura is okay, and I do hope that she is truly being honest with us, and has found help. Another one of those "false reportings" would be devastating. I pray for Laura, and for all of us who are battling the beast, both the affected and the caregivers. Hugs Judy
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    Hubby said:

    Reading back my post, I guess I'm coming across as being a little whiny and more depressed than I actually am. Some days or weeks this board is hard to read and this past week was especially trying.

    Anyway, Donna is doing pretty well with the Taxol. She traded "chemo fog" (during AC) for a more managable hip, back and knee pain from the Taxol. She hasn't had any of the neuropathy symptoms yet. So far, this round was much better than any of the AC rounds.

    Bob

    Don't feel bad Bob. I
    Don't feel bad Bob. I ramble on all of the time. lol That is one of the great reasons for this site, to share how we are feeling.

    Some posts have been very upsetting on here, especially Laura's lately. But, I just pray as hard as I can that she and everyone on here can get some help and peace.

    You just take care of yourself and your wife. We are all here to support everyone!


    Sue :)
  • cahjah75
    cahjah75 Member Posts: 2,631

    Bob, your post really hits
    Bob, your post really hits the nail on the head when you state that "things" that are posted on this Board really can put us into a depression. It is awful that any of us have to go through this disease, but we girls often forget that the significant other is just as affected by our illness as we are. My husband has virtually been there for everything I have been through (missing only one rad treatment, and he still kicks himself for doing that). Our partners are definitely our strength, but on the other hand, I think they are also affected in other ways other than the physical. It is hard to watch someone we love being poked on, operated on, filled with poison, put through physical theraphy, stuffed with pills that make them feel totally unlike themselves, etc. Our treatment involves all who are around us, especially our partner in life. your statement that there were three things that affected you these past few weeks - the "kids" who are joining the group, and the "Laura" thing being two of them. Some of us on this Board remember about a year ago when we had a poster who literally took us all down a lane regarding her being a college student, no family to lean on, only friends in school to support her, and the eventual outcome resulted in her "death".....posted by one of her "friends" the next day. Turns out it was a hoax. This was such a horrible experience for a lot of us, some reacted much worse than most when we found out the whole thing was made up. I do hope Laura is okay, and I do hope that she is truly being honest with us, and has found help. Another one of those "false reportings" would be devastating. I pray for Laura, and for all of us who are battling the beast, both the affected and the caregivers. Hugs Judy

    Judy that is awful news
    to think that someone could be so untruthful to post something false. How cruel! I certainly hope that is not the case with Laura and that she sought the help she needed.

    Bob, my husband is a man of few words. We have lost his brother (throat & mouth cancer) and his sister (lung, brain cancer). Now he is dealing with my breast cancer in his own quiet way. Eight years ago he had a malignant Thymus gland removed. He had 6 weeks of rads at the time. All has been ok since and he saw his surgeon yesterday to get another good bill of health. However, the surgeon still wants to see him again next year.....

    So we support each other whether it's good news or bad. I don't think you came across like a whiner. I think you were simply disturbed by some of the posts. You've been great support to Donna and I'm glad to hear she's coping with the Taxol. {{hugs}}
    Char
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    Hubby said:

    Reading back my post, I guess I'm coming across as being a little whiny and more depressed than I actually am. Some days or weeks this board is hard to read and this past week was especially trying.

    Anyway, Donna is doing pretty well with the Taxol. She traded "chemo fog" (during AC) for a more managable hip, back and knee pain from the Taxol. She hasn't had any of the neuropathy symptoms yet. So far, this round was much better than any of the AC rounds.

    Bob

    I think if and when this
    I think if and when this board gets hard to read, maybe you should just take a lil break. It might help some. There always has been depressing and difficult posts on here and there always will be. I just hope I can always help in some way, even if I am not on everyday like some are. Good luck!

    Jan
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    Alexis F said:

    Unfortunately, having breast
    Unfortunately, having breast cancer and dealing with all that we do can cause depression, some a lot worse than others. Some can get past it and others need a lot of help.

    I wish this board could be only filled with good news and congratulations, but, that isn't all that this board is about. To me, it is more for information, help, and emotional support to get through the fight for our lives. And, if we get some good news, then, we all join in the celebration and are so happy to read about it and share in it.

    I am deeply worried about Laura and I pray that she did get help and that she is alright. I think her post has troubled me the most ever on here.

    I pray for everyone on here and pray that a cure will be found!

    I hope that your day gets better for you. I just feel so lucky to be alive that I don't allow myself to ever be down very long. After all, it does no good.

    Lex♥

    Hoping that you and your
    Hoping that you and your wife can find some happiness. Do you have children? Just look at their faces and realize how blessed you are to have them and for you and your wife to have each other. Try looking sometimes at the little things, it does help.


    Diane