Bone scan..positive...mets to bone

Devasted
Devasted Member Posts: 185
edited March 2014 in Colorectal Cancer #1
Well, the cancer has progressed to the next level....bone mets. The onc. will call the clinical trial Dr to decide if my husband should have radiation before or as part of the
clinical trials...cancer has taken our life

Comments

  • Paula G.
    Paula G. Member Posts: 596
    #2
    Damn it! I am so sorry to
    Damn it! I am so sorry to hear this news. Keep us informed. Paula
  • zenmonk
    zenmonk Member Posts: 198
    #3
    question
    Is a bone scan the only way that they can detect this...how did they know to test for this...
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #4
    Sorry
    So sorry to hear this news. Hoping there is a clinical trial he can do that will work.

    Kim
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #5
    Annabelle41415 said:

    Sorry
    So sorry to hear this news. Hoping there is a clinical trial he can do that will work.

    Kim

    figth!
    Search for testimonials here who have deal with this and actualy NED!
    Best.
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #6
    HI D
    That's tough news to take - none of us want it in the bone as that makes the battle more complicated.

    But, don't give in just yet. I'm sure radiation will be part of his protocol. As much as you don't want to do this, it will be of some benefit to attack the growth and to alleviate any pain that might develop.

    Cancer has become a part of your life - but it has not taken it. Don't wave the white flag until (IF) it gets to that point. Stay focused on the options available and do them with as much gusto as you can. Please, do not go to the dark side - options = HOPE!

    I am saddened by your news, but relieved that you will have a plan of attack - very hopeful for your outcome. Always good to hear from you.

    -Craig
  • amcp
    amcp Member Posts: 251 Member
    #7
    So Understand
    I am so deeply sorry for the news...I so understand what you are dealing with. My husband's cancer continues to grow and spread ...4 surgeries, two and a half years of chemo, three clinical trials (phase 1) and nothing has stopped it or even slowed it down. Know that I am here for you no matter the time of day or night. My email address is frankannap@netzero.com. I will be glad to send you my address and phone number if you think I can help in any way. We have to stick together...keep strong...take each day as a blessing and make wonderful memories. Keeping you in my thoughts and prayers.
    Love ya,
    Anna
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #8
    I am sorry to hear this. I
    I am sorry to hear this. I am glad your onc is on this + looking for all possibilities of treatment. Warm thoughts are heading your way.
  • snommintj
    snommintj Member Posts: 601
    #9
    AnneCan said:

    I am sorry to hear this. I
    I am sorry to hear this. I am glad your onc is on this + looking for all possibilities of treatment. Warm thoughts are heading your way.

    ablation or stereotactic radiosurgery
    There is a new bone ablation treatment that should be able to wipe those out, without altering his current treatment. RFA is available here in the states, as are embolization and cryoablation. There is a new treatment in China for bone mets that is showing fantastic results. It is High Intensity Ultrasonic Ablation. Pretty much every hospital in the US is equipped to perform this treatment but the FDA says it will be 3-4 years before it even allows trials in the US. The treatment is performed with the same machine on the same setting the machine uses to destroy fibrous cysts and kidney stones. But I think the treatment is too cheap and will cost hospitals millions of dollars so they are postponing the cancer trials. A trip to china might be in order
  • La.Grammy
    La.Grammy Member Posts: 35
    #10
    My husband is having
    My husband is having radiofrequency ablation tomorrow for bone mets.
    He has a mass between his rib cage & his lung.
    The dr thinks it will zap the cancer.
    I will let you know how well this works.
    Jeannie
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #11
    Sorry
    I'm so very sorry to hear this. I do hope and pray the doctors can come up with a plan that will be very effective.

    *hugs*
    Gail
  • dorookie
    dorookie Member Posts: 1,731 Member
    #12
    I am so sorry
    What horrible news, I will be praying for your husband, please dont give up, as others have said there is still hope, and I believe there are treatments too.

    HUGS
    Beth
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #13
    Sorry
    I'm sorry to hear about the bone mets. I hope you find a trial that is the right one to make the difference for him. There seem to be more and more options all the time, and hoepfully one of them is right for him.
  • taraHK
    taraHK Member Posts: 1,952 Member
    #14
    me too -- AND
    I was diagnosed with bone mets in early May. I have several, all small. Had a biopsy on one to confirm met. I'm on chemotherapy (Xeliri plus Avastin). Also on Zometa (bone strengthener). I was asympomatic (still am). Chemo is going well. Side effects minimal. PET after 4 cycles shows all the mets had shrunk and become less active (in PET terms). Yea!!

    Bone mets sounds so scary. But so did lung met, when I had that. I'm planning to keep plugging away -- staying one step ahead of the miracles of modern medicine!

    Tara
  • mommyof2kds
    mommyof2kds Member Posts: 519
    #15
    taraHK said:

    me too -- AND
    I was diagnosed with bone mets in early May. I have several, all small. Had a biopsy on one to confirm met. I'm on chemotherapy (Xeliri plus Avastin). Also on Zometa (bone strengthener). I was asympomatic (still am). Chemo is going well. Side effects minimal. PET after 4 cycles shows all the mets had shrunk and become less active (in PET terms). Yea!!

    Bone mets sounds so scary. But so did lung met, when I had that. I'm planning to keep plugging away -- staying one step ahead of the miracles of modern medicine!

    Tara

    sorry to hear that yu got
    sorry to hear that yu got this news. will send positive energy your way. hang in there. Petrina
  • just4Brooks
    just4Brooks Member Posts: 980 Member
    #16
    I Hate
    I HATE CANCER!!!

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