New here and newly diagnosed.

home-sweet-home
home-sweet-home Member Posts: 1
edited March 2014 in Colorectal Cancer #1
Hello, my name is Deena and I am very happy I found this group. I am a cancer survivor, at least so far (newly diagnosed). We have 4 biological children, adopted one from foster care in 2008 and April of this year added two beautiful Russian girls to our family.

While in Russia, I started having some blood in my stool and when we came home I went to the doctor. They assumed it was a parasite. When the lab came back normal, we though we should see the colon doctor. My brother (34) has ulcerative colitis and so we assumed that was it. I had a colonoscopy scheduled and done July 16th. It came back with a tumor. 3cm by 17mm. It appeared to be completely contained. We had a ct scan soon after and everything came back clear but two small areas on my liver. I had a MRI with special dye that can tell if it is cancer or not and it came back that it was not. I also had normal labs and my cea was 0.8.

So I had surgery the 29th of July. They removed 15 inches of my colon and were able to reconnect it. The doctor did a massive incision to look around. The liver looked great as did everything else. The tumor appeared to be completely inside the colon. The doctor said, we had to wait for the path report, but he would say, stage 1 and I was cured. No chemo, no radiation!

So 4 days post op, I was doing great and feeling good, only taking toradol. The doc came in and said out of the 27 lymph nodes they got, 11 had cancer. So I went from stage 1 to stage 3. Though I did get to go home that day. (I was told 7 days, and it was 4)

So I am healing and then I will get a port in a few weeks and start low dose chemo combined with radiation on Sept 17th. I will have 28 doses (mon-fri, 5 1/2 weeks). The pump will stay in during that time. Then I will get a 3 week break and then start chemo. I will have 12 doses every other week.

I am told this type of chemo does not usually cause hair loss, and many of his clients work full time. I do not work, but I do have 6 children still at home.

So I am very thankful that we caught this. I am only 38, I was not even due a colonoscopy yet. I am thankful that it was not caught sooner, because my girls would have been stuck in Russia still. It was like God knew they were safe and then said, okay, you need to know. I started having symptoms after court to finalize. I am thankful for a very skilled physician and that we did not know it had spread before, because they would have done radiation first and I would have had to have a colostomy. So they were able to reconnect everything. I am thankful for the amazing support. I had surgery 3 weeks ago and tonight is the first night we have had to cook (my Sunday school class brought meals.) I have an amazing friend that is paying for a housekeeper to come once a week to help with deep cleaning. I have a wonderful family that has been amazing.

I am looking forward to getting to know you guys and getting more information as I have just started this journey.

I will try not to give scripture too much because I know it can be offensive to some and I do not want that. But after I found out, I wanted to read a Psalm for comfort and I was born is 71, so I just chose 71. The whole thing is very inspiring, but especially the first 3 verses:

Psalm 71
1In thee, O LORD, do I put my trust: let me never be put to confusion.

2Deliver me in thy righteousness, and cause me to escape: incline thine ear unto me, and save me.

3Be thou my strong habitation, whereunto I may continually resort: thou hast given commandment to save me; for thou art my rock and my fortress.

Comments

  • AnneCan
    AnneCan Member Posts: 3,673 Member
    Welcome Deena!
    Hi Deena,

    Welcome to this forum. I think you wil find it informative and helpful going through this process. I am sorry you have to be here, but you have found the right place. Take good care.
  • Aud
    Aud Member Posts: 479 Member
    Welcome, Deena
    sorry you have to be here but you came to a good place. A lot of good folks here. Holding you in the Light for healing.
    ~Audrey
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Hi!
    Welcome to the board! I'm sorry you got such a nasty surprise when the pathology came back. I'm sure it was very disappointing to think Stage 1 and then get hit with Stage 3.

    I hope you will be encouraged by our group here. It's beena blessing to me. Let us know how we can help!

    *hugs*
    Gail
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    Welcome
    Sorry you have the need to be here, but glad you found us. We have a diverse group with lots of good information and support. And this is a good place even if you just need to vent (somewhere that others "get" it).

    Sometimes religion gets people riled up here. We try to keep this forum to colon cancer, leaving out other issues, but often we do get off track.

    There is a separate forum dedicated to spirituality that you might enjoy. And no one will get upset if you post anything about religion there. You can find it under Discussion boards: Spirituality... or at this link below:

    http://csn.cancer.org/forum/190
  • greybeard64
    greybeard64 Member Posts: 254
    Welcome
    Hey Deena, welcome to the group no one wants to have to join. I hope we can add to the wonderful support group you have already, and provide some comfort to you while you fight.
    there are no bad questions or topics in regard to cancer and the ability to share experiences, thoughts, or opinions with people who have been there is an asset to all.
    as always
    I hope this finds ya smilin'
    Chris
  • pepebcn
    pepebcn Member Posts: 6,331 Member

    Welcome
    Hey Deena, welcome to the group no one wants to have to join. I hope we can add to the wonderful support group you have already, and provide some comfort to you while you fight.
    there are no bad questions or topics in regard to cancer and the ability to share experiences, thoughts, or opinions with people who have been there is an asset to all.
    as always
    I hope this finds ya smilin'
    Chris

    Wellcome Deena!
    Here we are many from all over the world to help you!
    cheer up!
    Pepe.
    Barcelona.
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Welcome
    Welcome to our board. You must be very proud of your new little girls along with your other children. How Blessed are you to have such a wonderful family. Sorry that you have found out you have this terrible disease. We are here to help you, encourage you and support you. We speak of many topics so feel free to ask away as there is probably someone here that has experienced something similar. Welcome.

    Kim
  • lucyonmustang
    lucyonmustang Member Posts: 1
    Hi,
    My name is Cathy and I

    Hi,

    My name is Cathy and I was diagnosed in May 2010. I had a colon resection on July 1, 2010 and have also started chemo. Good luck and hang in there take care of yourself so you can take care of your girls.
  • luv3jay
    luv3jay Member Posts: 533 Member
    Hi Deena, sorry to say
    Hi Deena, sorry to say welcome to our family.

    Sheri
  • mommyof2kds
    mommyof2kds Member Posts: 519
    luv3jay said:

    Hi Deena, sorry to say
    Hi Deena, sorry to say welcome to our family.

    Sheri

    hi, welcome to the board of
    hi, welcome to the board of knowledge. You will find this site very helpful and ask anything you need to. God bless. Petrina
  • kristasplace
    kristasplace Member Posts: 957 Member
    Welcome
    Nice to meet you, Deena! Your story is much like mine. I was 38 at diagnosis with stage III as well. Symptomatic before diagnosis, the whole bit.

    I'm sure you'll love it here. This board has helped me through some very difficult times.

    Hugs,
    Krista