Seeing a neurologist tomorrow for my numbness

Mama G
Mama G Member Posts: 762
edited March 2014 in Breast Cancer #1
The Onc took me off Arimidex, but the numbness is still there. Pretty much the whole left side of my body, but not my neck, face, arm from the elbow to the hand. Strange. Scary.
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Comments

  • carkris
    carkris Member Posts: 4,553 Member
    #2
    do you think its a form of
    do you think its a form of neuropathy? I am seeing a neurologist for peripheral neuropathy in the beginning of september. good luck hope its just some quirly thing that goes away quickly
  • aisling8
    aisling8 Member Posts: 1,627 Member
    #3
    carkris said:

    do you think its a form of
    do you think its a form of neuropathy? I am seeing a neurologist for peripheral neuropathy in the beginning of september. good luck hope its just some quirly thing that goes away quickly

    Good luck
    And here's hoping it's a temporary side effect from Arimidex that will go away.

    I'll be thinking of you,

    Victoria
  • jo jo
    jo jo Member Posts: 1,175 Member
    #4
    Mama G i hope this is just a
    Mama G i hope this is just a temperary side effect...that has to be pretty scary...i hope the neurologist can give you some good news...keep us posted!
  • RE
    RE Member Posts: 4,591 Member
    #5
    :-(
    Oh Mama G please let us know how your visit with the neurologist goes, personally I found that the farther I got from chemo the less numbness I had although some of it was permanent.

    Hugs,

    *´¨)
    ¸.•´¸.•*´¨) ¸.•*¨)
    (¸.•´ (¸.•` ¤ RENA
  • meena1
    meena1 Member Posts: 1,003
    #6
    RE said:

    :-(
    Oh Mama G please let us know how your visit with the neurologist goes, personally I found that the farther I got from chemo the less numbness I had although some of it was permanent.

    Hugs,

    *´¨)
    ¸.•´¸.•*´¨) ¸.•*¨)
    (¸.•´ (¸.•` ¤ RENA

    Mama G, i will be thinking
    Mama G, i will be thinking of you today. Please let us know how you are. I have some numbness, but only in my arm and my hands.
  • survives
    survives Member Posts: 254 Member
    #7
    meena1 said:

    Mama G, i will be thinking
    Mama G, i will be thinking of you today. Please let us know how you are. I have some numbness, but only in my arm and my hands.

    Injury to your wrist, maybe?
    Do you remember, or do you think you injured your wrist, causing a corpal tunnel type of problem? I was pulling on some sacks, and over-used my good side, causing some tendonitis type thing in my thumb and pointer finger, with zaps going past the elbow. Pcp wanted me to have some tests done, but sadly, can't afford it now. My finger and thumb and part of my hand did go numb, but is slowly getting back to normal with splinting.

    Here's hoping you will have to just splint. I do know that ai's can make these type of things worse, and I do hope it's not neuropathy.
  • Jean 0609
    Jean 0609 Member Posts: 2,462
    #8
    Hey Mama G,
    We will be thinking of you. Make sure to keep us posted. Hope everything is okay.
  • cahjah75
    cahjah75 Member Posts: 2,631
    #9
    MamaG
    I hope the neurologist has news that will help you. Four years ago I saw a neurologist when I was dx with degenerative disc disease. I had 3 vertebra collapse in my neck and they were pressing on my spinal cord causing my brain not to connect with my feet and nerve damage on the left side. It also caused bladder & bowel problems, buttoning and balance issues. Neuropathy is not something to fool around about. It can create all kinds of problems. I'm sure hoping you get some answers. Awful to think Arimidex could be at fault. {{hugs}}
    Char
  • Mama G
    Mama G Member Posts: 762
    #10
    cahjah75 said:

    MamaG
    I hope the neurologist has news that will help you. Four years ago I saw a neurologist when I was dx with degenerative disc disease. I had 3 vertebra collapse in my neck and they were pressing on my spinal cord causing my brain not to connect with my feet and nerve damage on the left side. It also caused bladder & bowel problems, buttoning and balance issues. Neuropathy is not something to fool around about. It can create all kinds of problems. I'm sure hoping you get some answers. Awful to think Arimidex could be at fault. {{hugs}}
    Char

    How very sweet to come on and find so many caring people!
    I love you all so much! Thank you for caring about me. Well, the neurologist couldn't find anything wrong and wants me to just hang in there for a couple more weeks. If it doesn't go away, slowly but surely, she wants to do an MRI on my brain and spinal cord, near the base of it. She's going along with the arimedex theory and says it may take months to get relief. I asked if it could be a side effect that is permanent and she said,
    with the human body anything is possible. YUCK! It's so annoying and tiring. But I have to say it's better than PAIN!!!! So many things could be worse than this. If I have to learn to live with it, I will.... but you all are going to have to put up with my b!tch!n~~~
  • carkris
    carkris Member Posts: 4,553 Member
    #11
    Mama G said:

    How very sweet to come on and find so many caring people!
    I love you all so much! Thank you for caring about me. Well, the neurologist couldn't find anything wrong and wants me to just hang in there for a couple more weeks. If it doesn't go away, slowly but surely, she wants to do an MRI on my brain and spinal cord, near the base of it. She's going along with the arimedex theory and says it may take months to get relief. I asked if it could be a side effect that is permanent and she said,
    with the human body anything is possible. YUCK! It's so annoying and tiring. But I have to say it's better than PAIN!!!! So many things could be worse than this. If I have to learn to live with it, I will.... but you all are going to have to put up with my b!tch!n~~~

    I was talking to my onc
    I was talking to my onc about the PN, it takes a while for the myelin sheaths to repair. he said it could take 1-2 years, however I am thinking that you were not on the med that long and hopefully it will resolve more quickly. Are they going to give you something else to take? prayers.
  • Mama G
    Mama G Member Posts: 762
    #12
    carkris said:

    I was talking to my onc
    I was talking to my onc about the PN, it takes a while for the myelin sheaths to repair. he said it could take 1-2 years, however I am thinking that you were not on the med that long and hopefully it will resolve more quickly. Are they going to give you something else to take? prayers.

    Well, I'm back to the neurologist tomorrow again
    no change, in fact it's gotten worse. I'm thinking she's going to want me to have an MRI on my brain since my ct scan of my body came back clear.
    What is it like?
  • cahjah75
    cahjah75 Member Posts: 2,631
    #13
    Mama G said:

    Well, I'm back to the neurologist tomorrow again
    no change, in fact it's gotten worse. I'm thinking she's going to want me to have an MRI on my brain since my ct scan of my body came back clear.
    What is it like?

    Good luck
    and post when you get results. I'm hoping they find the problem so it doesn't get any worse.
    {{hugs}} Char
  • carkris
    carkris Member Posts: 4,553 Member
    #14
    cahjah75 said:

    Good luck
    and post when you get results. I'm hoping they find the problem so it doesn't get any worse.
    {{hugs}} Char

    MRI 's are just really
    MRI 's are just really noisy, they put ear plugs in and can give you a sedative, but its not worse than a cat scan although it takes longer,
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #15
    carkris said:

    MRI 's are just really
    MRI 's are just really noisy, they put ear plugs in and can give you a sedative, but its not worse than a cat scan although it takes longer,

    Mama G .. go to a safe and happy place in your mind, as
    stated above the clicking noise may drive you crazy. Please let us know, how things are going .. we are all concerned. We will be there in the room with you today, so when you get tense - close your eyes and feel our presence, love and prayers.



    Vicki Sam
  • Angie2U
    Angie2U Member Posts: 2,991
    #16
    Mama G said:

    How very sweet to come on and find so many caring people!
    I love you all so much! Thank you for caring about me. Well, the neurologist couldn't find anything wrong and wants me to just hang in there for a couple more weeks. If it doesn't go away, slowly but surely, she wants to do an MRI on my brain and spinal cord, near the base of it. She's going along with the arimedex theory and says it may take months to get relief. I asked if it could be a side effect that is permanent and she said,
    with the human body anything is possible. YUCK! It's so annoying and tiring. But I have to say it's better than PAIN!!!! So many things could be worse than this. If I have to learn to live with it, I will.... but you all are going to have to put up with my b!tch!n~~~

    I hope this is just
    I hope this is just temporary Mama G and that you get relief soon!

    Hugs, Angie
  • mwallace1325
    mwallace1325 Member Posts: 806
    #17
    Mama G
    I know I had so many side effects from the femera that I finally went off it and am feeling much better. Here's hoping the same will happen with you. Prayers and good thoughts are going out for you. Please let us know what happens.
    BTW awesome picture. Thanks for sharing with us.

    marge
  • Skeezie
    Skeezie Member Posts: 586 Member
    #18
    mwallace1325 said:

    Mama G
    I know I had so many side effects from the femera that I finally went off it and am feeling much better. Here's hoping the same will happen with you. Prayers and good thoughts are going out for you. Please let us know what happens.
    BTW awesome picture. Thanks for sharing with us.

    marge

    Wishing you well with your appt.
    Please keep us posted....

    Hugs, Judy :-)
  • Mama G
    Mama G Member Posts: 762
    #19
    Skeezie said:

    Wishing you well with your appt.
    Please keep us posted....

    Hugs, Judy :-)

    well, now I'm on lyrica
    anyone try that? Plus I have to have a brain mri. I was afraid of that. I am so claustrophobic! How long does it take?
  • smalldoggroomer
    smalldoggroomer Member Posts: 1,184
    #20
    Mama G said:

    well, now I'm on lyrica
    anyone try that? Plus I have to have a brain mri. I was afraid of that. I am so claustrophobic! How long does it take?

    Ga-lee Mama G You sure have been through it..
    I sure hope the MRI goes fast for you. I have never had one so I can't say how long they take. I pray you feel better soon. When do you have your MRI? Take care Kay,
  • cahjah75
    cahjah75 Member Posts: 2,631
    #21
    Mama G said:

    well, now I'm on lyrica
    anyone try that? Plus I have to have a brain mri. I was afraid of that. I am so claustrophobic! How long does it take?

    Mama G
    I've had several MRI's but not a brain one. My breast one was the longest (50 minutes). I'm not claustrophobic though. Wishing you the best.
    {{hugs}} Char

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