Has anyone had this problem????
Lewis 3 months ago and have had this issue over & over. It's not dumping, diahrrea or reflux. Even dehydration doesn't explain it since I'd been doing pretty well & also have been on IVs for 3 days. The nausea and sense of fullness is the problem. Three times now in several weeks I wound up hospitalized with this. My x-rays show a nearly full stomach even though I've not eaten in days. This AM, the GI doc thought she'd solved the problem: that the opening to my intestines from the new stomach was too constricted - not even letting fluid through. Did an endoscopy and only had to dilate the "pylorus" a little bit. Now they have me on eyrthromyicin and will start Reglan soon to keep things moving. The only test left is
to drink barium & watch where it goes. Has anyone encountered this repeated problem???? I'd hate to go through my whole life alternately feeling OK then days of nausea. I've lost 20 lbs
and started as a size 2!! I'm weak & spend every day obsessing over how I can possibly eat or drink enough to stay alive. My last option will have to be a feeding tube (for LIFE??!!)
Comments
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You may want to ask the
You may want to ask the doctors to conduct a stomach emptying test. Here is a web site that explains the problem and what can be done and the test http://digestive.niddk.nih.gov/ddiseases/pubs/gastroparesis/
Gastric emptying studies are used for testing patients who are having symptoms that may be due to slow and, less commonly, rapid emptying of the stomach. The symptoms of slow emptying are primarily nausea, vomiting, and abdominal fullness after eating. The symptoms of rapid emptying are diarrhea, weakness or light-headedness after eating after eating. Although diabeties is often the cause of slow stomach emptying surgery on the stomach can also be a cause. Sounds like you have the symptoms of slow emptying.
See an excerpt from the web site about talking about diagnosis. There is treatment if this is your problem so don't give up and think you will need a feeding tube the rest of your life.
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How is gastroparesis diagnosed?
After performing a full physical exam and taking your medical history, your doctor may order several blood tests to check blood counts and chemical and electrolyte levels. To rule out an obstruction or other conditions, the doctor may perform the following tests:
•Upper endoscopy. After giving you a sedative to help you become drowsy, the doctor passes a long, thin tube called an endoscope through your mouth and gently guides it down the throat, also called the esophagus, into the stomach. Through the endoscope, the doctor can look at the lining of the stomach to check for any abnormalities.
•Ultrasound. To rule out gallbladder disease and pancreatitis as sources of the problem, you may have an ultrasound test, which uses harmless sound waves to outline and define the shape of the gallbladder and pancreas.
•Barium x ray. After fasting for 12 hours, you will drink a thick liquid called barium, which coats the stomach, making it show up on the x ray. If you have diabetes, your doctor may have special instructions about fasting. Normally, the stomach will be empty of all food after 12 hours of fasting. Gastroparesis is likely if the x ray shows food in the stomach. Because a person with gastroparesis can sometimes have normal emptying, the doctor may repeat the test another day if gastroparesis is suspected.
Once other causes have been ruled out, the doctor will perform one of the following gastric emptying tests to confirm a diagnosis of gastroparesis.
•Gastric emptying scintigraphy. This test involves eating a bland meal, such as eggs or egg substitute, that contains a small amount of a radioactive substance, called radioisotope, that shows up on scans. The dose of radiation from the radioisotope is not dangerous. The scan measures the rate of gastric emptying at 1, 2, 3, and 4 hours. When more than 10 percent of the meal is still in the stomach at 4 hours, the diagnosis of gastroparesis is confirmed.
•Breath test. After ingestion of a meal containing a small amount of isotope, breath samples are taken to measure the presence of the isotope in carbon dioxide, which is expelled when a person exhales. The results reveal how fast the stomach is emptying.
•SmartPill. Approved by the U.S. Food and Drug Administration (FDA) in 2006, the SmartPill is a small device in capsule form that can be swallowed.The device then moves through the digestive tract and collects information about its progress that is sent to a cell phone-sized receiver worn around your waist or neck. When the capsule is passed from the body with the stool in a couple of days, you take the receiver back to the doctor, who enters the information into a computer.
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My dad has this problem and it actually delayed his EC diagonosis. When they did the test for my dad they used the smart pill.
Let me know if you have any other questions and good luck finding an answer to your problems.
Best,
Cindy0 -
I had the exact same problem
Hello,
Just like you , I underwent Ivor Lewis surgery on 4/5/10 at Memorial Sloan Hospital, and after coming home from the hospital, I had the feeling of being full very fast and also had difficulty breathing. I too had to rush to the ER were the X-ray showed that my stomach wasn't emptying its content quickly and it was obstructing my lungs. I was advised by my surgeon to take Reglan before every big meal, I continued to take the Regaln for about 3 months and now am almost able to eat anything and am also able to eat larger quantities.
Long story short the new plumbing is getting used to everything, and Reglan would most definitely help, its usage is no advised in the long run but it does wonders in the short term.
Hang in there my friend. as hard and frustrating as this situation that you are may be, it shall to pass by.
Feel free to msg me if you have any more questions.0 -
It's so good to know one person with this same problem! They'll putting my back on Eyrthtromyicn 4X a day for a week or so, plus a low-fiber, low fat, low residue diet. HowApurva32 said:I had the exact same problem
Hello,
Just like you , I underwent Ivor Lewis surgery on 4/5/10 at Memorial Sloan Hospital, and after coming home from the hospital, I had the feeling of being full very fast and also had difficulty breathing. I too had to rush to the ER were the X-ray showed that my stomach wasn't emptying its content quickly and it was obstructing my lungs. I was advised by my surgeon to take Reglan before every big meal, I continued to take the Regaln for about 3 months and now am almost able to eat anything and am also able to eat larger quantities.
Long story short the new plumbing is getting used to everything, and Reglan would most definitely help, its usage is no advised in the long run but it does wonders in the short term.
Hang in there my friend. as hard and frustrating as this situation that you are may be, it shall to pass by.
Feel free to msg me if you have any more questions.
will I ever regain weight with this?! Reglan was mentioned as the next step if all this
doesn't work. I've spent a total of 14 days in the hospital with this problem (3 different
visits). You're one month ahead of me now - when does it resolve itself?????0 -
My situation started to get better within a few weeks after I started taking Reglan, my doctor's also advised me that I could take Eyrthtromycin once I get off Reglan, I stopped taking Reglan a few weeks back, took it non stop for almost 4 months.crystalbay said:It's so good to know one person with this same problem! They'll putting my back on Eyrthtromyicn 4X a day for a week or so, plus a low-fiber, low fat, low residue diet. How
will I ever regain weight with this?! Reglan was mentioned as the next step if all this
doesn't work. I've spent a total of 14 days in the hospital with this problem (3 different
visits). You're one month ahead of me now - when does it resolve itself?????
Hang in there buddy, different meds work differently for us, so give it some time and I am sure you will start feeling better. Where did you have your surgery?
Let me know if you have any more questions.0
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