Sugesstions against folfiri diarreah?

pepebcn
pepebcn Member Posts: 6,331 Member
edited March 2014 in Colorectal Cancer #1
I will start with folfiri sceme Next week.
I think l can deal with any side efect
except with diarreah and loos of weith
due to that.
I been succesfully treated with folfox
with no gástric problems.Unfortunadlly
small liver met is back.

Any sugesstions to deal with those efects ?

Tks and congratulations for this wonderful
discussion board.

Pepe.
Barcelona.

Comments

  • Bear23
    Bear23 Member Posts: 84
    #2
    Don't count your chickens
    Pepe
    I am on Irinotecan not the whole folfiri. I have not had the diarreah. So you may not get it. Don't count on those chickens before the eggs hatch. I also had folfox.

    Good luck with it all.
    Valerie
  • Bear23
    Bear23 Member Posts: 84
    #3
    Don't count your chickens
    Pepe
    I am on Irinotecan not the whole folfiri. I have not had the diarreah. So you may not get it. Don't count on those chickens before the eggs hatch. I also had folfox.

    Good luck with it all.
    Valerie
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #4
    Bear23 said:

    Don't count your chickens
    Pepe
    I am on Irinotecan not the whole folfiri. I have not had the diarreah. So you may not get it. Don't count on those chickens before the eggs hatch. I also had folfox.

    Good luck with it all.
    Valerie

    Valerie jajaja nice english say!!
    Thank you for your help l will deal with these
    little inconvenients!!...ln case they appear!!
    good luck to you too.
    Two kisses (that is what we do in Europe!)
    Pepe.
  • msccolon
    msccolon Member Posts: 1,917 Member
    #5
    CPT-11 diarrhea
    As mentioned, don't count your chickens before they hatch, but if you DO get it, it's fairly easily managed if you stay on top of it. I've been on CPT-11 quite a few times and only had to get extra fluids for dehydration from diarrhea once. They will always start you with Imodium, if that doesn't work, Lomotil usually does. Neither of those worked much for me, but Hyocyamine 375mg worked like a charm! Also, once a month shots of Sandostatin made a WORLD of difference. Here's praying you won't have problems and will have smooth sailing!
    mary
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #6
    msccolon said:

    CPT-11 diarrhea
    As mentioned, don't count your chickens before they hatch, but if you DO get it, it's fairly easily managed if you stay on top of it. I've been on CPT-11 quite a few times and only had to get extra fluids for dehydration from diarrhea once. They will always start you with Imodium, if that doesn't work, Lomotil usually does. Neither of those worked much for me, but Hyocyamine 375mg worked like a charm! Also, once a month shots of Sandostatin made a WORLD of difference. Here's praying you won't have problems and will have smooth sailing!
    mary

    thankyou mary for your wishes!
    And for your helpful sugesstions .
    God bless you!
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #7
    pepebcn said:

    thankyou mary for your wishes!
    And for your helpful sugesstions .
    God bless you!

    valerie, mary
    where you both able to do normal life whilst
    you where on irinotencan chem? work, travel
    drive..etc.
    best.
  • Bear23
    Bear23 Member Posts: 84
    #8
    pepebcn said:

    valerie, mary
    where you both able to do normal life whilst
    you where on irinotencan chem? work, travel
    drive..etc.
    best.

    Still doing fine
    Pepe,
    I am on the same dose of Irinotecan as the folfiri regime. My usual working routine is to have my treatment on Friday. This allows the weekend for recuperation time and then go back to work on Monday, half day if needed. Since I haven't had the diarreah, I have been able to keep up pretty well. Started Irinotecan in July and up my dose in August. I'm on Vectibix too. The fatigue was more noticeable with the increased dose. Also the fatigue will be accumulative. The irinotecan gave me some abdominal cramping which caused nausea. They gave me atropine for this and it helped. Just take it easy and see what happens and then deal with it. You can do this!! :)

    Hugs,
    Valerie
  • taraHK
    taraHK Member Posts: 1,952 Member
    #9
    immodium
    I'm on xeliri but face the same issue with diarrhea from the CPT-11.

    I have been lucky so far (have had 5 cycles). I have had episodes of dramatic diarrhea each time, but fairly easily controlled with Immodium.

    My oncologist gave my strict instructions (take 2 immodium, then one every 2 hours for 12 hours. If not resolved, call him and go to hospital). So far I have never had to take more than 4 immodium, and usually the first dose or two takes care of it.

    It's good to be aware and prepared -- but I hope you are one of the lucky ones, as I seem to have been so far

    Tara
  • nursesheri
    nursesheri Member Posts: 50
    #10
    taraHK said:

    immodium
    I'm on xeliri but face the same issue with diarrhea from the CPT-11.

    I have been lucky so far (have had 5 cycles). I have had episodes of dramatic diarrhea each time, but fairly easily controlled with Immodium.

    My oncologist gave my strict instructions (take 2 immodium, then one every 2 hours for 12 hours. If not resolved, call him and go to hospital). So far I have never had to take more than 4 immodium, and usually the first dose or two takes care of it.

    It's good to be aware and prepared -- but I hope you are one of the lucky ones, as I seem to have been so far

    Tara

    Yucky diarrhea
    I, unfortunately, have had to deal with diarrhea. (Always had a sensitive belly). I am going at this with a preventative method that seems to be working great. Every morning I take probiotic acidophilys 10 billion active cultures. I found it at the local health food store. In the doctors office where I work, (a pediatric office) we often recommend this and yogurt for little ones with diarrhea due to antibiotic use or viral diarrhea. Hope this helps!

    Sheri
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #11
    nursesheri said:

    Yucky diarrhea
    I, unfortunately, have had to deal with diarrhea. (Always had a sensitive belly). I am going at this with a preventative method that seems to be working great. Every morning I take probiotic acidophilys 10 billion active cultures. I found it at the local health food store. In the doctors office where I work, (a pediatric office) we often recommend this and yogurt for little ones with diarrhea due to antibiotic use or viral diarrhea. Hope this helps!

    Sheri

    thankyou sheri
    I will try the probiothics actually l already got some diarrhea due to my short colon
    that,s why l,m a little worried!
    best to you!
  • msccolon
    msccolon Member Posts: 1,917 Member
    #12
    pepebcn said:

    valerie, mary
    where you both able to do normal life whilst
    you where on irinotencan chem? work, travel
    drive..etc.
    best.

    traveling
    I did do some traveling, just was always VERY careful about what I ate and kept my meds on hand in case! Something else that helps is rice water. Boil a tablespoon of rice in a cup of water until the water is milky. Strain it off and drink it, adding a bit of salt if you need to for taste. This has always helped with diarrhea.
    mary

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