1st Chemo 2 days ago!
*hugs*
Heather
Comments
-
Probably the steroids areHubby said:Glad to hear your side
Glad to hear your side effects are bearable. Good luck finding something to eat; Donna has been having a lot of vanilla ice cream.
hugs back at ya
Bob
Probably the steroids are keeping you awake. They take a bit of time to get out of your system. We get sleeping pills for a reason. Please take nausea meds for a while longer. My first chemo was on a Thursday and I stopped meds on Saturday morning because I felt fine. Oh boy, Sunday about 1:30 am I thought my body was gonna turn inside out.
I ate nuked baby red potatoes mashed with butter & salt, and noodles for days 3-5. And had a hard time finding something to drink that tastes good. Water was awful. Flavored green tea was decent.
Take care,
Cindy0 -
I was pretty sick, and hadSnowkitty said:Probably the steroids are
Probably the steroids are keeping you awake. They take a bit of time to get out of your system. We get sleeping pills for a reason. Please take nausea meds for a while longer. My first chemo was on a Thursday and I stopped meds on Saturday morning because I felt fine. Oh boy, Sunday about 1:30 am I thought my body was gonna turn inside out.
I ate nuked baby red potatoes mashed with butter & salt, and noodles for days 3-5. And had a hard time finding something to drink that tastes good. Water was awful. Flavored green tea was decent.
Take care,
Cindy
I was pretty sick, and had to make myself eat, so dont forget the fluids and nutrition. just light easy to digest stuff. I really lost my taste buds and wish that I had been more religious about the mouth rinsing protocol, as people said that helped in not losing taste buds all together. I had so much going on, but did not get mouth sores so I was not as fastidious as I should have been. I hope you will round that curve soon. One Down, one you wont have to do again. scratch that off the list!!!!!0 -
One Downcarkris said:I was pretty sick, and had
I was pretty sick, and had to make myself eat, so dont forget the fluids and nutrition. just light easy to digest stuff. I really lost my taste buds and wish that I had been more religious about the mouth rinsing protocol, as people said that helped in not losing taste buds all together. I had so much going on, but did not get mouth sores so I was not as fastidious as I should have been. I hope you will round that curve soon. One Down, one you wont have to do again. scratch that off the list!!!!!
Heather, we only have 5 to go...
Carkris, I am heeding your suggestions...
I start TCH regimen on Monday...Today I can tell my taste buds are changing... I just rinsed with the Biotene mouthwash...
I have been staying hydrating and resting...
Honestly, I cannot decipher what side effects are from what medications...
Overall, it is not as bad as I predicted...0 -
Glad to hear
you're doing ok. I had my port placed yesterday and start chemo Tuesday. I already bought Biotene toothpaste & mouthwash. I also will be getting the Neulasta shot the day after chemo. Someone in these messages mentioned getting the shot slower than faster and it made a difference on how much it hurt. I'll ask my onco nurse about that. Hang in there!
Char0 -
You Go, Heather!cahjah75 said:Glad to hear
you're doing ok. I had my port placed yesterday and start chemo Tuesday. I already bought Biotene toothpaste & mouthwash. I also will be getting the Neulasta shot the day after chemo. Someone in these messages mentioned getting the shot slower than faster and it made a difference on how much it hurt. I'll ask my onco nurse about that. Hang in there!
Char
I think the first one is the worst--just from an anxiety and not knowing what to expect standpoint. You're going to do great. Take whatever meds you need to get through. I had trouble sleeping the first couple of days after treatment too--probably a combo of the chemo and the steroids. The worst thing for me was the lousy taste in my mouth for about the first week-10 days after treatment. Yuk! I never had to take the anti-nausea drugs--I only felt queasy for a couple of days after treatments.
My best wishes to you for a speedy and uneventful treatment course. Hang in there!
Hugs, Renee0 -
Oh Honey!
Boy, do I remember that-all of that! I am so sorry. You know, I think that the neulasta and the steroids were the hardest!!! Now, someone in the chemo suite told me to take claritin (allergy med otc) the morning of and every 4 hours throughout the day of the neulasta shot. I did it the last 3 rounds- maybe it was all in my head, but, it really helped with the aching.
You know the sleep aid seemed to work 3-4 days after chemo for me. Thank goodness for Ativan. Keep drinking all the liquids you can!!!! That is so important. Hang in there- you can do this. Hey, If I can- YOU can!! Keep us posted!xoxoxoxo Jackie0 -
Hey Heather...
Congrats! I'm glad you got through it well! See...it's not THAT bad, right??! LOL.
As for the sleep aide, I think that's very commonly prescribed. I know some people poo-poo taking drugs, but you really need to let your body rest and give it a chance to recover. When you don't have good sleep that can really mess you up even more! So...don't feel bad about taking it. Your body and mind will thank you later!:)
Keep the positive attitude:)
Sally0 -
Im glad its going good for
Im glad its going good for ya Heather...and side effects arent to bad...thats awesome! I was always hungry and everything sounded good but nothing ever tasted good. I also suffered with insomnia during chemo till the steriods lost their effect...hope you got some sleep and everything continues to go good for ya!0 -
Heatherbelle .. Every one of us .. Chemo Queens reactjo jo said:Im glad its going good for
Im glad its going good for ya Heather...and side effects arent to bad...thats awesome! I was always hungry and everything sounded good but nothing ever tasted good. I also suffered with insomnia during chemo till the steriods lost their effect...hope you got some sleep and everything continues to go good for ya!
differently to the drugs given to us ... Sleep is important, however, if you have insomnia like I did and so many others ... sleep when you can - during the day .. Eat whatever appeals to you ... keep something in your stomach... nothing really tasted good ... so I used salt .. on my potatoes ... no sour cream!!! Cereal - Cherrio's and whole milk .. I enjoyed even tho whole milk tasted like water .. and banana's. Your taste buds will get better ... Insomnia may not .. you many have waves of restful and peaceful nights ..
Prayers for you.
Vicki Sam0 -
The fatigue was one of my
The fatigue was one of my worst side effects. I also had trouble sleeping from the steroids which makes the fatigue worse. I did get something to help me sleep too. I had very little nausea but it was hard to find something that tasted good. When I was hungry it was usually for junk food ( God Bless
(((Hugs))) Janice0 -
Hi Heather,
I understand how you feel, It does get better after a few days. I usually eat crackers for a couple of days after Chemo, because nothing sounds good. Keep drinking allot. I have found that Ensure ( protean drink ) helps me allot. I also drink Dan-active every day. That helps keep you digestive tract healthy. I dread that Neulasta shot it hurts. I have used Tylenol pm while I have to take the steroids that helps me sleep. Good luck Take care Kay0 -
Hoping that chemo will getJean 0609 said:Hey Heather!
Hope you are doing better today. As you know, I had my chemo on Wednesday too. Was good up to today.....my crash day.....can't wait until tomorrow. Hugs. Jean
Hoping that chemo will get easier for you. Soon you will be done, remember that!
Hugs, Diane0 -
update...put your feet up, this may take a while!
Thank you all for your comments & encouragement! I was up with the birds this morning after a full 6 hours of uninterrupted sleep last night (which is no small task for me, with my sleep issues -PLUS I had my 20 month old baby in bed with me!). I feel like the reverse chemo girl here. I started it last week fully expecting to feel pretty normal for 3 or 4 days then crashing - it has been the exact opposite for me. I started feeling crappy during the chemo itself, got worse over the next couple of days, then started feeling better. I woke up this morning at 5 & decided to fire up the old laptop here instead of going back to sleep. I think the worst part was (sorry for the gross-out here but I do believe we're not a shy group of people around here) being constipated. That along with the nausea from the chemo just made me miserable. I drank alot of water & lipton diet green tea (best.drink.ever.) and took senokot & once i got that situation under control the stomach issues lessened. Even on the steroids though I was literally in bed all day the 1st day and most of the next. I had hardly any appetite at all but did manage to eat a few subway sandwiches with extra lettuce (lettuce is fastly becoming my new comfort food -maybe it's the crunch?) and lots and LOTS of carnation instant breakfast drinks. I think i will get some Biotene wash because I really don't want to have any kind of mouth sores or taste but issues -I'm such a picky eater by nature & don't want to end up living on lettuce & breakfast shakes for the next 5 months!
That neulasta shot hurt like HELL when she gave it to me, but I haven't (so far) had much pain from it. I have noticed when I'm on my feet for long periods at a time, my upper back will get achy, my hands have started hurting a few times, but that's about it. I'm thinking the rest of my chemo treatments will go easier for me - I'm pretty sure I had alot of anxiety about getting it started and that itself helped to make me feel so crappy. I must give a special shout-out to Rachel & Jean for texting me throughout my chemo and checking in on me - I really felt you ladies in there with me
Now I'm just doing the waiting game. I got my hair cut super-pixie short -everyone says it's short but I don't like it at all -which is why I did it, because my hair falling out is going to be really hard for me, so I had to start getting used to having almost none I do have some really cute hats & scarves, and I've been splurging at my favorite make-up store so I can still feel pretty. I have no idea what I'll do if my eyebrows fall out - I don't know how to draw them in! I've never penciled in my brows before!! I do get another fill in 2 days at my plastic surgeon's, THAT always perks me up. In more ways than one, I guess!
AND I almost forgot - in a cruel twist of irony - this afternoon I'm taking my mom for a follow up to her annual mammogram. They found something in her left breast that they want to take a closer look at. HOW do I possibly help calm her & reassure her that she'll probably be ok, that about 80% of the time it turns out to be nothing, when her 34 year old daughter is currently undergoing treatment for breast cancer? She's a little scared, but says seeing how well I'm handling it makes her not so anxious. You better believe I'm gonna be right next to her, asking all the questions that I wished I would have at my appointment, because that waiting & not knowing is the worst part of it all through this. She's a smart cookie, though, and faithfully gets her mammograms every year, doesn't have any palpable lumps, and no outward signs (skin dimpling, puckering, nipple discharge, etc.-although I didn't have that either) - but at least with her being so good with getting checked yearly we know if it turns out to be something, that she's finding it fairly early.
Ok -there's my long winded check-in for the day! We had a very busy weekend with family -big wedding at the basilica at Notre Dame (breathtaking in it's beauty -and I'm not a churchgoer) on Saturday, we've been staying with my husband's brother, sister, father, and their families at a lake cottage since thursday (although I've been coming home to sleep because it's more comfy for me here) -so I've been busy busy with that. I even had 2 glasses of red wine at the wedding reception Saturday night! Life in the fast lane!!
*big big hugs*
Heather0 -
Wowzers,Heatherbelle said:update...put your feet up, this may take a while!
Thank you all for your comments & encouragement! I was up with the birds this morning after a full 6 hours of uninterrupted sleep last night (which is no small task for me, with my sleep issues -PLUS I had my 20 month old baby in bed with me!). I feel like the reverse chemo girl here. I started it last week fully expecting to feel pretty normal for 3 or 4 days then crashing - it has been the exact opposite for me. I started feeling crappy during the chemo itself, got worse over the next couple of days, then started feeling better. I woke up this morning at 5 & decided to fire up the old laptop here instead of going back to sleep. I think the worst part was (sorry for the gross-out here but I do believe we're not a shy group of people around here) being constipated. That along with the nausea from the chemo just made me miserable. I drank alot of water & lipton diet green tea (best.drink.ever.) and took senokot & once i got that situation under control the stomach issues lessened. Even on the steroids though I was literally in bed all day the 1st day and most of the next. I had hardly any appetite at all but did manage to eat a few subway sandwiches with extra lettuce (lettuce is fastly becoming my new comfort food -maybe it's the crunch?) and lots and LOTS of carnation instant breakfast drinks. I think i will get some Biotene wash because I really don't want to have any kind of mouth sores or taste but issues -I'm such a picky eater by nature & don't want to end up living on lettuce & breakfast shakes for the next 5 months!
That neulasta shot hurt like HELL when she gave it to me, but I haven't (so far) had much pain from it. I have noticed when I'm on my feet for long periods at a time, my upper back will get achy, my hands have started hurting a few times, but that's about it. I'm thinking the rest of my chemo treatments will go easier for me - I'm pretty sure I had alot of anxiety about getting it started and that itself helped to make me feel so crappy. I must give a special shout-out to Rachel & Jean for texting me throughout my chemo and checking in on me - I really felt you ladies in there with me
Now I'm just doing the waiting game. I got my hair cut super-pixie short -everyone says it's short but I don't like it at all -which is why I did it, because my hair falling out is going to be really hard for me, so I had to start getting used to having almost none I do have some really cute hats & scarves, and I've been splurging at my favorite make-up store so I can still feel pretty. I have no idea what I'll do if my eyebrows fall out - I don't know how to draw them in! I've never penciled in my brows before!! I do get another fill in 2 days at my plastic surgeon's, THAT always perks me up. In more ways than one, I guess!
AND I almost forgot - in a cruel twist of irony - this afternoon I'm taking my mom for a follow up to her annual mammogram. They found something in her left breast that they want to take a closer look at. HOW do I possibly help calm her & reassure her that she'll probably be ok, that about 80% of the time it turns out to be nothing, when her 34 year old daughter is currently undergoing treatment for breast cancer? She's a little scared, but says seeing how well I'm handling it makes her not so anxious. You better believe I'm gonna be right next to her, asking all the questions that I wished I would have at my appointment, because that waiting & not knowing is the worst part of it all through this. She's a smart cookie, though, and faithfully gets her mammograms every year, doesn't have any palpable lumps, and no outward signs (skin dimpling, puckering, nipple discharge, etc.-although I didn't have that either) - but at least with her being so good with getting checked yearly we know if it turns out to be something, that she's finding it fairly early.
Ok -there's my long winded check-in for the day! We had a very busy weekend with family -big wedding at the basilica at Notre Dame (breathtaking in it's beauty -and I'm not a churchgoer) on Saturday, we've been staying with my husband's brother, sister, father, and their families at a lake cottage since thursday (although I've been coming home to sleep because it's more comfy for me here) -so I've been busy busy with that. I even had 2 glasses of red wine at the wedding reception Saturday night! Life in the fast lane!!
*big big hugs*
Heather
You- have a very full plate! I'll keep this short- I don't know what I would have done without "Traditional Medicinals, Smooth Move tea". 2 birds=1 stone. I made it like sun tea, and sipped at least twice a day. "Things" were- smoother-lol. I wish all the best for your Mom, I am so sorry for the added stress for you. You are in my heart and prayers. xoxo, Jackie0 -
Heatherbelle,Heatherbelle said:update...put your feet up, this may take a while!
Thank you all for your comments & encouragement! I was up with the birds this morning after a full 6 hours of uninterrupted sleep last night (which is no small task for me, with my sleep issues -PLUS I had my 20 month old baby in bed with me!). I feel like the reverse chemo girl here. I started it last week fully expecting to feel pretty normal for 3 or 4 days then crashing - it has been the exact opposite for me. I started feeling crappy during the chemo itself, got worse over the next couple of days, then started feeling better. I woke up this morning at 5 & decided to fire up the old laptop here instead of going back to sleep. I think the worst part was (sorry for the gross-out here but I do believe we're not a shy group of people around here) being constipated. That along with the nausea from the chemo just made me miserable. I drank alot of water & lipton diet green tea (best.drink.ever.) and took senokot & once i got that situation under control the stomach issues lessened. Even on the steroids though I was literally in bed all day the 1st day and most of the next. I had hardly any appetite at all but did manage to eat a few subway sandwiches with extra lettuce (lettuce is fastly becoming my new comfort food -maybe it's the crunch?) and lots and LOTS of carnation instant breakfast drinks. I think i will get some Biotene wash because I really don't want to have any kind of mouth sores or taste but issues -I'm such a picky eater by nature & don't want to end up living on lettuce & breakfast shakes for the next 5 months!
That neulasta shot hurt like HELL when she gave it to me, but I haven't (so far) had much pain from it. I have noticed when I'm on my feet for long periods at a time, my upper back will get achy, my hands have started hurting a few times, but that's about it. I'm thinking the rest of my chemo treatments will go easier for me - I'm pretty sure I had alot of anxiety about getting it started and that itself helped to make me feel so crappy. I must give a special shout-out to Rachel & Jean for texting me throughout my chemo and checking in on me - I really felt you ladies in there with me
Now I'm just doing the waiting game. I got my hair cut super-pixie short -everyone says it's short but I don't like it at all -which is why I did it, because my hair falling out is going to be really hard for me, so I had to start getting used to having almost none I do have some really cute hats & scarves, and I've been splurging at my favorite make-up store so I can still feel pretty. I have no idea what I'll do if my eyebrows fall out - I don't know how to draw them in! I've never penciled in my brows before!! I do get another fill in 2 days at my plastic surgeon's, THAT always perks me up. In more ways than one, I guess!
AND I almost forgot - in a cruel twist of irony - this afternoon I'm taking my mom for a follow up to her annual mammogram. They found something in her left breast that they want to take a closer look at. HOW do I possibly help calm her & reassure her that she'll probably be ok, that about 80% of the time it turns out to be nothing, when her 34 year old daughter is currently undergoing treatment for breast cancer? She's a little scared, but says seeing how well I'm handling it makes her not so anxious. You better believe I'm gonna be right next to her, asking all the questions that I wished I would have at my appointment, because that waiting & not knowing is the worst part of it all through this. She's a smart cookie, though, and faithfully gets her mammograms every year, doesn't have any palpable lumps, and no outward signs (skin dimpling, puckering, nipple discharge, etc.-although I didn't have that either) - but at least with her being so good with getting checked yearly we know if it turns out to be something, that she's finding it fairly early.
Ok -there's my long winded check-in for the day! We had a very busy weekend with family -big wedding at the basilica at Notre Dame (breathtaking in it's beauty -and I'm not a churchgoer) on Saturday, we've been staying with my husband's brother, sister, father, and their families at a lake cottage since thursday (although I've been coming home to sleep because it's more comfy for me here) -so I've been busy busy with that. I even had 2 glasses of red wine at the wedding reception Saturday night! Life in the fast lane!!
*big big hugs*
Heather
I did not do
Heatherbelle,
I did not do chemo so most of this is out of my territory but I have a possible suggestion for the eyebrow issue. You appear to have really great eyebrows that have a great shape and that you don't use much product on. You could practice now while there are still there. Great a couple types of brow pencils or cake style with a brush and trace over your brows. Use feathery strokes, go heavy with it and get the shape down. Do it several times a day. You can wash it off after. This should help you get the feel for your brows. Also take a picture of your eyes and brows to use as a guide. I have always had nearly non existant brows and it took awhile to get the hang of doing my brows so they didn't look like I had painted them in. Now I don't care because my glasses pretty much hide them. Also there are some classes offered by ACS that can help. Forget the name but someone will remember.
I am sorry to hear about your mom and hope that she it is nothing but she is lucky she has you to help through all of this. I will keep good thoughts prayers for you and your mom.
Stef0 -
Thanks for your update / August Chemo Sista'sfauxma said:Heatherbelle,
I did not do
Heatherbelle,
I did not do chemo so most of this is out of my territory but I have a possible suggestion for the eyebrow issue. You appear to have really great eyebrows that have a great shape and that you don't use much product on. You could practice now while there are still there. Great a couple types of brow pencils or cake style with a brush and trace over your brows. Use feathery strokes, go heavy with it and get the shape down. Do it several times a day. You can wash it off after. This should help you get the feel for your brows. Also take a picture of your eyes and brows to use as a guide. I have always had nearly non existant brows and it took awhile to get the hang of doing my brows so they didn't look like I had painted them in. Now I don't care because my glasses pretty much hide them. Also there are some classes offered by ACS that can help. Forget the name but someone will remember.
I am sorry to hear about your mom and hope that she it is nothing but she is lucky she has you to help through all of this. I will keep good thoughts prayers for you and your mom.
Stef
Heather,
Thanks for your chemo update. Sounds like you are doing well. My thoughts and prayers are for you and your mom. I realize I have more strength than I knew I had and try to keep a positive attitude. All you can do is be the best "you" for your mom. Tomorrow, I start my first chemo. I have been drinking lots of fluids and tried this combo for nausea that was in another thread on this site. (hot water, chunk of fresh peeled ginger and a slice of lemon). I added 1/2 of this mixture to a glass of regular water. Unfortunately, I had 6 surgeries and an infection with the tram flap which did not take due to an infection. So I have been on Femara for over 2 months and 2 1/2 months on two different types of antibiotics until the end of November. So I have been experiencing some of the expected side effects already. Maybe that is a sign that the chemo will not be so bad. lol - can only hope.
Best of luck to everyone and especially the August chemo sista's. Take care. Laurel0 -
Heather so sorryHeatherbelle said:update...put your feet up, this may take a while!
Thank you all for your comments & encouragement! I was up with the birds this morning after a full 6 hours of uninterrupted sleep last night (which is no small task for me, with my sleep issues -PLUS I had my 20 month old baby in bed with me!). I feel like the reverse chemo girl here. I started it last week fully expecting to feel pretty normal for 3 or 4 days then crashing - it has been the exact opposite for me. I started feeling crappy during the chemo itself, got worse over the next couple of days, then started feeling better. I woke up this morning at 5 & decided to fire up the old laptop here instead of going back to sleep. I think the worst part was (sorry for the gross-out here but I do believe we're not a shy group of people around here) being constipated. That along with the nausea from the chemo just made me miserable. I drank alot of water & lipton diet green tea (best.drink.ever.) and took senokot & once i got that situation under control the stomach issues lessened. Even on the steroids though I was literally in bed all day the 1st day and most of the next. I had hardly any appetite at all but did manage to eat a few subway sandwiches with extra lettuce (lettuce is fastly becoming my new comfort food -maybe it's the crunch?) and lots and LOTS of carnation instant breakfast drinks. I think i will get some Biotene wash because I really don't want to have any kind of mouth sores or taste but issues -I'm such a picky eater by nature & don't want to end up living on lettuce & breakfast shakes for the next 5 months!
That neulasta shot hurt like HELL when she gave it to me, but I haven't (so far) had much pain from it. I have noticed when I'm on my feet for long periods at a time, my upper back will get achy, my hands have started hurting a few times, but that's about it. I'm thinking the rest of my chemo treatments will go easier for me - I'm pretty sure I had alot of anxiety about getting it started and that itself helped to make me feel so crappy. I must give a special shout-out to Rachel & Jean for texting me throughout my chemo and checking in on me - I really felt you ladies in there with me
Now I'm just doing the waiting game. I got my hair cut super-pixie short -everyone says it's short but I don't like it at all -which is why I did it, because my hair falling out is going to be really hard for me, so I had to start getting used to having almost none I do have some really cute hats & scarves, and I've been splurging at my favorite make-up store so I can still feel pretty. I have no idea what I'll do if my eyebrows fall out - I don't know how to draw them in! I've never penciled in my brows before!! I do get another fill in 2 days at my plastic surgeon's, THAT always perks me up. In more ways than one, I guess!
AND I almost forgot - in a cruel twist of irony - this afternoon I'm taking my mom for a follow up to her annual mammogram. They found something in her left breast that they want to take a closer look at. HOW do I possibly help calm her & reassure her that she'll probably be ok, that about 80% of the time it turns out to be nothing, when her 34 year old daughter is currently undergoing treatment for breast cancer? She's a little scared, but says seeing how well I'm handling it makes her not so anxious. You better believe I'm gonna be right next to her, asking all the questions that I wished I would have at my appointment, because that waiting & not knowing is the worst part of it all through this. She's a smart cookie, though, and faithfully gets her mammograms every year, doesn't have any palpable lumps, and no outward signs (skin dimpling, puckering, nipple discharge, etc.-although I didn't have that either) - but at least with her being so good with getting checked yearly we know if it turns out to be something, that she's finding it fairly early.
Ok -there's my long winded check-in for the day! We had a very busy weekend with family -big wedding at the basilica at Notre Dame (breathtaking in it's beauty -and I'm not a churchgoer) on Saturday, we've been staying with my husband's brother, sister, father, and their families at a lake cottage since thursday (although I've been coming home to sleep because it's more comfy for me here) -so I've been busy busy with that. I even had 2 glasses of red wine at the wedding reception Saturday night! Life in the fast lane!!
*big big hugs*
Heather
to hear about your mom. Hoping all goes well at her mammo. At the very least you will be a great comfort to her. So far you've been a trouper. I'm so glad you posted about feeling yucky as you were getting chemo and that you felt worse the next 2 days instead of 3 days later. I'm getting very anxious as my 1st chemo is tomorrow. I took Dex this morning and will take it with dinner. Tomorrow before chemo I'll take Emend.
I discovered a dilemma today. After bilateral mastectomy I bought a prosthetic camisole w/cotton boobs. Well it covers my Purple Power Port so I called the onco nurse and asked about it. She suggested I wear a button down shirt that can be undone to access port then I'll cover up. I have black sutures where the incision is and I'm swollen and bruised. So, the onco nurse called in Emla cream for me to use. Such nuisances are a real pain in the butt!
Keep us posted on how you're doing. It's really comforting to chat with everyone who posts their experiences. Sending a shout out to Lauren as we go to our 1st chemo tomorrow :-0
Char0 -
Look Good-Feel BetterHeatherbelle said:update...put your feet up, this may take a while!
Thank you all for your comments & encouragement! I was up with the birds this morning after a full 6 hours of uninterrupted sleep last night (which is no small task for me, with my sleep issues -PLUS I had my 20 month old baby in bed with me!). I feel like the reverse chemo girl here. I started it last week fully expecting to feel pretty normal for 3 or 4 days then crashing - it has been the exact opposite for me. I started feeling crappy during the chemo itself, got worse over the next couple of days, then started feeling better. I woke up this morning at 5 & decided to fire up the old laptop here instead of going back to sleep. I think the worst part was (sorry for the gross-out here but I do believe we're not a shy group of people around here) being constipated. That along with the nausea from the chemo just made me miserable. I drank alot of water & lipton diet green tea (best.drink.ever.) and took senokot & once i got that situation under control the stomach issues lessened. Even on the steroids though I was literally in bed all day the 1st day and most of the next. I had hardly any appetite at all but did manage to eat a few subway sandwiches with extra lettuce (lettuce is fastly becoming my new comfort food -maybe it's the crunch?) and lots and LOTS of carnation instant breakfast drinks. I think i will get some Biotene wash because I really don't want to have any kind of mouth sores or taste but issues -I'm such a picky eater by nature & don't want to end up living on lettuce & breakfast shakes for the next 5 months!
That neulasta shot hurt like HELL when she gave it to me, but I haven't (so far) had much pain from it. I have noticed when I'm on my feet for long periods at a time, my upper back will get achy, my hands have started hurting a few times, but that's about it. I'm thinking the rest of my chemo treatments will go easier for me - I'm pretty sure I had alot of anxiety about getting it started and that itself helped to make me feel so crappy. I must give a special shout-out to Rachel & Jean for texting me throughout my chemo and checking in on me - I really felt you ladies in there with me
Now I'm just doing the waiting game. I got my hair cut super-pixie short -everyone says it's short but I don't like it at all -which is why I did it, because my hair falling out is going to be really hard for me, so I had to start getting used to having almost none I do have some really cute hats & scarves, and I've been splurging at my favorite make-up store so I can still feel pretty. I have no idea what I'll do if my eyebrows fall out - I don't know how to draw them in! I've never penciled in my brows before!! I do get another fill in 2 days at my plastic surgeon's, THAT always perks me up. In more ways than one, I guess!
AND I almost forgot - in a cruel twist of irony - this afternoon I'm taking my mom for a follow up to her annual mammogram. They found something in her left breast that they want to take a closer look at. HOW do I possibly help calm her & reassure her that she'll probably be ok, that about 80% of the time it turns out to be nothing, when her 34 year old daughter is currently undergoing treatment for breast cancer? She's a little scared, but says seeing how well I'm handling it makes her not so anxious. You better believe I'm gonna be right next to her, asking all the questions that I wished I would have at my appointment, because that waiting & not knowing is the worst part of it all through this. She's a smart cookie, though, and faithfully gets her mammograms every year, doesn't have any palpable lumps, and no outward signs (skin dimpling, puckering, nipple discharge, etc.-although I didn't have that either) - but at least with her being so good with getting checked yearly we know if it turns out to be something, that she's finding it fairly early.
Ok -there's my long winded check-in for the day! We had a very busy weekend with family -big wedding at the basilica at Notre Dame (breathtaking in it's beauty -and I'm not a churchgoer) on Saturday, we've been staying with my husband's brother, sister, father, and their families at a lake cottage since thursday (although I've been coming home to sleep because it's more comfy for me here) -so I've been busy busy with that. I even had 2 glasses of red wine at the wedding reception Saturday night! Life in the fast lane!!
*big big hugs*
Heather
Heather There's a cancer workshop (Look Good Feel Better) sponsored by the American Cancer Society. Phone 1-800-395-5665 or you can go on-line to www.lookgoodfeelbetter.org. Trained cosmetologist volunteers bring each participant a basket of "free" cosmetics and they teach you the proper techniques to apply make-up (such as applying a lost brow line) and they also give guidance on the use of wigs, scarves, hats, skin care. If one of these workshops is not available in your area call the # anyway and they will send a video including an instructional booklet showing all the techniques. One message they try to convey to all cancer patients is not to use "old" make-up (bacterial infection possibility). I myself am scheduled for one of their workshops this coming Wednesday.
Hope your Mom's results turn out to be negative but if not, you're right, you'll be such a treasure of experience & info for her.
Stay Positive,
Judy0
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