Burns

2

Comments

  • sissy310
    sissy310 Member Posts: 300
    mp327 said:

    Laura and Marilyne
    As for the radiation, IMRT vs. another kind, the IMRT, if given like mine was, will cover the entire pelvic area to start. Then at some point, the rad onc will shrink the treatment field, perhaps a couple of times, with the last zaps being directed only at the tumor. This way of delivering the treatment insures that any rogue cells that may have migrated away from the tumor will be zapped. My treatment field was reduced twice during my 30 total treatments. The tumor was getting zapped the whole time and received the most radiation, which makes sense since that's the source of the cancer. As for how another type of radiation treatment differs from this, I'm not sure. I hope this makes sense.

    I am receiving the IMRT - I
    I am receiving the IMRT - I asked the last time I was there and from your description, it sounds like I am getting the same type of treatment. It will be interesting to see with these last 9 radiation treatments how they do this...if they shorten the area or focus only on the tumor area. Take that Harvey, I hope you are suffering and squirming and down to the size of a shriveled up prune. :-)
  • sissy310
    sissy310 Member Posts: 300

    BENADRYL (Diphenhydramine HCI, 25 mg/antihistamine)
    You may not believe this, but when I had extreme itching...I mean itching so bad that I cried because it felt like I had ants crawling under my skin throughout my pelvic area. I felt like I was climbing the walls because I had never had this type of intense burning and itching before. I would be laying on the bed, watching TV, and then all of a sudden I would jump a mile out of bed and grab what I could of my pelvic area and I went into panic mode because the itching was on the inside, not the out. I went through this madness for a couple of weeks! Things had gotten so bad that the radiologist felt that the radiation may have damaged my nerves and she was crazy enough to prescribe anticonvulsant medication!! Luckily, once I picked up the medication and read the warnings and side effects, I had my husband immediately return the medication to the pharmacist who gave me a refund without question. My mother went to the Pharmacy at Target and spoke to the Pharmacist who suggested Benadryl. Guess what? No sooner than I swallowed the two pills, the itching stopped and since Benadryl causes drowsiness, I slept like a baby for the first time since my treatment started! It sounds simple, but sometimes it's the simple things that work for the most difficult problems. Please try it and let me know if it worked for you too.

    Okay, I'm heading out to buy
    Okay, I'm heading out to buy some Benadryl. The itching is horrible as from your description I know you know what I mean. I'm up half the night because I keep getting cold compresses made from clean washcloths and just lay it on top of me, soothes me a little bit but holy cow!! I am going to start benedryl and see if that works. If not, maybe it will put me to sleep so I do not care about the itch. Isn't it amazing how prescriptions are given out - anticonvulsant meds? How is that supposed to help with an itch or even nerve damage? I don't understand. Maybe it soothes the nerves but I'm glad you gave it back. Be well, Marilyne
  • cujuja4evr
    cujuja4evr Member Posts: 106
    sissy310 said:

    Okay, I'm heading out to buy
    Okay, I'm heading out to buy some Benadryl. The itching is horrible as from your description I know you know what I mean. I'm up half the night because I keep getting cold compresses made from clean washcloths and just lay it on top of me, soothes me a little bit but holy cow!! I am going to start benedryl and see if that works. If not, maybe it will put me to sleep so I do not care about the itch. Isn't it amazing how prescriptions are given out - anticonvulsant meds? How is that supposed to help with an itch or even nerve damage? I don't understand. Maybe it soothes the nerves but I'm glad you gave it back. Be well, Marilyne

    I feel your pain!
    Boy, do I remember that awful itch! But, you know what, that intense itching stopped immediately when I took the benadryl. Every now and then I tend to get itchy in the vaginal area during and sometimes after a bowel movement. I take a benadryl and it's gone. I don't even need two pills; one pill did the trick. Please let me know how it worked for you. Our bodies are so doggone different that what might work for one person may not work for another, but I took the advice and used lidocaine before BM and WOW I feel like a whole new person. I still battle with constipation, when those stubborn hard little stools refuse to come out decide to rear their ugly little heads, I don't even feel it because of the numbing sensation from the lidocaine. It has really improved my recovery more than anyone can imagine. I don't fear going to the bathroom like I used to. When I had intense burning when I urinated because of the radiation and because I had a UTI for two weeks that went undected (UNBELIEVABLE PAIN AND SUFFERING) - I complained on a daily basis that something was wrong and instead of checking into why I was having extreme pain when urinating, rad kept telling me that this was a normal side effect due to the treatment. The UTI was discovered by another radiologist who immediately ordered a lab to see what might be going on. It's too bad that I had to go through all that pain for so long before someone took action! ANYWAY, because of this fear I developed, I'm actually seeing a counselor. There's no shame in my game, I almost went crazy! I got to the point, I stopped drinking all liquids to prevent going to the bathroom. But, unfortunately for me, that only made the urine more acidic and burned the heck out of me!
  • cujuja4evr
    cujuja4evr Member Posts: 106
    sissy310 said:

    Okay, I'm heading out to buy
    Okay, I'm heading out to buy some Benadryl. The itching is horrible as from your description I know you know what I mean. I'm up half the night because I keep getting cold compresses made from clean washcloths and just lay it on top of me, soothes me a little bit but holy cow!! I am going to start benedryl and see if that works. If not, maybe it will put me to sleep so I do not care about the itch. Isn't it amazing how prescriptions are given out - anticonvulsant meds? How is that supposed to help with an itch or even nerve damage? I don't understand. Maybe it soothes the nerves but I'm glad you gave it back. Be well, Marilyne

    I feel your pain!
    Boy, do I remember that awful itch! But, you know what, that intense itching stopped immediately when I took the benadryl. Every now and then I tend to get itchy in the vaginal area during and sometimes after a bowel movement. I take a benadryl and it's gone. I don't even need two pills; one pill did the trick. Please let me know how it worked for you. Our bodies are so doggone different that what might work for one person may not work for another, but I took the advice and used lidocaine before BM and WOW I feel like a whole new person. I still battle with constipation, when those stubborn hard little stools refuse to come out decide to rear their ugly little heads, I don't even feel it because of the numbing sensation from the lidocaine. It has really improved my recovery more than anyone can imagine. I don't fear going to the bathroom like I used to. When I had intense burning when I urinated because of the radiation and because I had a UTI for two weeks that went undected (UNBELIEVABLE PAIN AND SUFFERING) - I complained on a daily basis that something was wrong and instead of checking into why I was having extreme pain when urinating, rad kept telling me that this was a normal side effect due to the treatment. The UTI was discovered by another radiologist who immediately ordered a lab to see what might be going on. It's too bad that I had to go through all that pain for so long before someone took action! ANYWAY, because of this fear I developed, I'm actually seeing a counselor. There's no shame in my game, I almost went crazy! I got to the point, I stopped drinking all liquids to prevent going to the bathroom. But, unfortunately for me, that only made the urine more acidic and burned the heck out of me!
  • lizdeli
    lizdeli Member Posts: 569 Member

    I feel your pain!
    Boy, do I remember that awful itch! But, you know what, that intense itching stopped immediately when I took the benadryl. Every now and then I tend to get itchy in the vaginal area during and sometimes after a bowel movement. I take a benadryl and it's gone. I don't even need two pills; one pill did the trick. Please let me know how it worked for you. Our bodies are so doggone different that what might work for one person may not work for another, but I took the advice and used lidocaine before BM and WOW I feel like a whole new person. I still battle with constipation, when those stubborn hard little stools refuse to come out decide to rear their ugly little heads, I don't even feel it because of the numbing sensation from the lidocaine. It has really improved my recovery more than anyone can imagine. I don't fear going to the bathroom like I used to. When I had intense burning when I urinated because of the radiation and because I had a UTI for two weeks that went undected (UNBELIEVABLE PAIN AND SUFFERING) - I complained on a daily basis that something was wrong and instead of checking into why I was having extreme pain when urinating, rad kept telling me that this was a normal side effect due to the treatment. The UTI was discovered by another radiologist who immediately ordered a lab to see what might be going on. It's too bad that I had to go through all that pain for so long before someone took action! ANYWAY, because of this fear I developed, I'm actually seeing a counselor. There's no shame in my game, I almost went crazy! I got to the point, I stopped drinking all liquids to prevent going to the bathroom. But, unfortunately for me, that only made the urine more acidic and burned the heck out of me!

    The itch from hell!
    It drove me to tears it was so bad. Nothing helped because in my case it was mostly internal. I literally punched the wall a few times, I just couldn't take it. Of course trying to stay still during radiaiton when the itch from hell surfaced was such an intense mind game. I literally cried at times. I took a vicodin one hour before radiation for rwo reasons. One, I had a dilator during radiation and it got painful at times, and two it helped keep me calm when the itch surfaced. Dr. Eng told me that as soon as she finds a cure for anal cancer she'll start working a cure for the itch from hell! : - )

    I did sit on two bags of ice once. I was getting my cispatin one Monday and that's a five hour ordeal. The itch was insane and I was pacing back and forth in the room and crying. The nurse came in and asked if I was in pain and I told her no, it's theis ****itch. She didn't know what to do so she brought me to big bags of ice and I laid down on that for a few hours. Helped a little, calmed me down anyway.

    The good news is that it went away 3 days after my last radiation treatment.

    Liz
  • lizdeli
    lizdeli Member Posts: 569 Member

    I feel your pain!
    Boy, do I remember that awful itch! But, you know what, that intense itching stopped immediately when I took the benadryl. Every now and then I tend to get itchy in the vaginal area during and sometimes after a bowel movement. I take a benadryl and it's gone. I don't even need two pills; one pill did the trick. Please let me know how it worked for you. Our bodies are so doggone different that what might work for one person may not work for another, but I took the advice and used lidocaine before BM and WOW I feel like a whole new person. I still battle with constipation, when those stubborn hard little stools refuse to come out decide to rear their ugly little heads, I don't even feel it because of the numbing sensation from the lidocaine. It has really improved my recovery more than anyone can imagine. I don't fear going to the bathroom like I used to. When I had intense burning when I urinated because of the radiation and because I had a UTI for two weeks that went undected (UNBELIEVABLE PAIN AND SUFFERING) - I complained on a daily basis that something was wrong and instead of checking into why I was having extreme pain when urinating, rad kept telling me that this was a normal side effect due to the treatment. The UTI was discovered by another radiologist who immediately ordered a lab to see what might be going on. It's too bad that I had to go through all that pain for so long before someone took action! ANYWAY, because of this fear I developed, I'm actually seeing a counselor. There's no shame in my game, I almost went crazy! I got to the point, I stopped drinking all liquids to prevent going to the bathroom. But, unfortunately for me, that only made the urine more acidic and burned the heck out of me!

    The itch from hell!
    It drove me to tears it was so bad. Nothing helped because in my case it was mostly internal. I literally punched the wall a few times, I just couldn't take it. Of course trying to stay still during radiaiton when the itch from hell surfaced was such an intense mind game. I literally cried at times. I took a vicodin one hour before radiation for rwo reasons. One, I had a dilator during radiation and it got painful at times, and two it helped keep me calm when the itch surfaced. Dr. Eng told me that as soon as she finds a cure for anal cancer she'll start working a cure for the itch from hell! : - )

    I did sit on two bags of ice once. I was getting my cispatin one Monday and that's a five hour ordeal. The itch was insane and I was pacing back and forth in the room and crying. The nurse came in and asked if I was in pain and I told her no, it's theis ****itch. She didn't know what to do so she brought me to big bags of ice and I laid down on that for a few hours. Helped a little, calmed me down anyway.

    The good news is that it went away 3 days after my last radiation treatment.

    Liz
  • lizdeli
    lizdeli Member Posts: 569 Member

    I feel your pain!
    Boy, do I remember that awful itch! But, you know what, that intense itching stopped immediately when I took the benadryl. Every now and then I tend to get itchy in the vaginal area during and sometimes after a bowel movement. I take a benadryl and it's gone. I don't even need two pills; one pill did the trick. Please let me know how it worked for you. Our bodies are so doggone different that what might work for one person may not work for another, but I took the advice and used lidocaine before BM and WOW I feel like a whole new person. I still battle with constipation, when those stubborn hard little stools refuse to come out decide to rear their ugly little heads, I don't even feel it because of the numbing sensation from the lidocaine. It has really improved my recovery more than anyone can imagine. I don't fear going to the bathroom like I used to. When I had intense burning when I urinated because of the radiation and because I had a UTI for two weeks that went undected (UNBELIEVABLE PAIN AND SUFFERING) - I complained on a daily basis that something was wrong and instead of checking into why I was having extreme pain when urinating, rad kept telling me that this was a normal side effect due to the treatment. The UTI was discovered by another radiologist who immediately ordered a lab to see what might be going on. It's too bad that I had to go through all that pain for so long before someone took action! ANYWAY, because of this fear I developed, I'm actually seeing a counselor. There's no shame in my game, I almost went crazy! I got to the point, I stopped drinking all liquids to prevent going to the bathroom. But, unfortunately for me, that only made the urine more acidic and burned the heck out of me!

    The itch from hell!
    It drove me to tears it was so bad. Nothing helped because in my case it was mostly internal. I literally punched the wall a few times, I just couldn't take it. Of course trying to stay still during radiaiton when the itch from hell surfaced was such an intense mind game. I literally cried at times. I took a vicodin one hour before radiation for rwo reasons. One, I had a dilator during radiation and it got painful at times, and two it helped keep me calm when the itch surfaced. Dr. Eng told me that as soon as she finds a cure for anal cancer she'll start working a cure for the itch from hell! : - )

    I did sit on two bags of ice once. I was getting my cispatin one Monday and that's a five hour ordeal. The itch was insane and I was pacing back and forth in the room and crying. The nurse came in and asked if I was in pain and I told her no, it's theis ****itch. She didn't know what to do so she brought me to big bags of ice and I laid down on that for a few hours. Helped a little, calmed me down anyway.

    The good news is that it went away 3 days after my last radiation treatment.

    Liz
  • sissy310
    sissy310 Member Posts: 300

    I feel your pain!
    Boy, do I remember that awful itch! But, you know what, that intense itching stopped immediately when I took the benadryl. Every now and then I tend to get itchy in the vaginal area during and sometimes after a bowel movement. I take a benadryl and it's gone. I don't even need two pills; one pill did the trick. Please let me know how it worked for you. Our bodies are so doggone different that what might work for one person may not work for another, but I took the advice and used lidocaine before BM and WOW I feel like a whole new person. I still battle with constipation, when those stubborn hard little stools refuse to come out decide to rear their ugly little heads, I don't even feel it because of the numbing sensation from the lidocaine. It has really improved my recovery more than anyone can imagine. I don't fear going to the bathroom like I used to. When I had intense burning when I urinated because of the radiation and because I had a UTI for two weeks that went undected (UNBELIEVABLE PAIN AND SUFFERING) - I complained on a daily basis that something was wrong and instead of checking into why I was having extreme pain when urinating, rad kept telling me that this was a normal side effect due to the treatment. The UTI was discovered by another radiologist who immediately ordered a lab to see what might be going on. It's too bad that I had to go through all that pain for so long before someone took action! ANYWAY, because of this fear I developed, I'm actually seeing a counselor. There's no shame in my game, I almost went crazy! I got to the point, I stopped drinking all liquids to prevent going to the bathroom. But, unfortunately for me, that only made the urine more acidic and burned the heck out of me!

    I have been using the
    I have been using the benedryl now for a couple days and it does help. I have to take two pills. One does not seem to do the trick totally. Plus I've been using some hydrocordisone (Sp?) in the pelvic area. I'm now going into week 6 and the anal areA pain has gotten worse over the weekend - had my PICC line removed (yeah, freeeeeedom from the chemo pack! and thought oh maybe I will have more of a relaxing weekend - until I went to the bathroom this morning! HOLY MOLEY...

    I remember reading other posts about how one gal when she went to the bathroom had to lay down until the pain subsided. Well that was me this morning. I literally crawled from the bathroom to the bed and lay in a fetal position for a little bit. Did take a pain pill but unfortunately, took it right before I had to go to the potty (not realizing that it would cause this much pain) Now I will simply take the pain pill as prescribed and hope that it at least takes the edge off. With 9 radiation treatments still left to go it's a bit unnerving to think this might get worse. However, I had many people come in here and tell me to stay on top of the pain, take the meds and moisturize, sit in a sitz bath, pat dry, etc.and with their expertise and first hand knowledge I am listening intently. I do walk around the house now in a sundress and no underwear and sleep without underwear - it's just more comfortable. I put a couple towels under me just in case. I see my radiologist and oncologist this week and may ask for some lidocaine cream. I mean what can it hurt. Anything we can use that will not cause infection or make things worse down there but rather give us some peace and pain free moments - why not?

    Be well. Marilyne
  • cujuja4evr
    cujuja4evr Member Posts: 106
    sissy310 said:

    I have been using the
    I have been using the benedryl now for a couple days and it does help. I have to take two pills. One does not seem to do the trick totally. Plus I've been using some hydrocordisone (Sp?) in the pelvic area. I'm now going into week 6 and the anal areA pain has gotten worse over the weekend - had my PICC line removed (yeah, freeeeeedom from the chemo pack! and thought oh maybe I will have more of a relaxing weekend - until I went to the bathroom this morning! HOLY MOLEY...

    I remember reading other posts about how one gal when she went to the bathroom had to lay down until the pain subsided. Well that was me this morning. I literally crawled from the bathroom to the bed and lay in a fetal position for a little bit. Did take a pain pill but unfortunately, took it right before I had to go to the potty (not realizing that it would cause this much pain) Now I will simply take the pain pill as prescribed and hope that it at least takes the edge off. With 9 radiation treatments still left to go it's a bit unnerving to think this might get worse. However, I had many people come in here and tell me to stay on top of the pain, take the meds and moisturize, sit in a sitz bath, pat dry, etc.and with their expertise and first hand knowledge I am listening intently. I do walk around the house now in a sundress and no underwear and sleep without underwear - it's just more comfortable. I put a couple towels under me just in case. I see my radiologist and oncologist this week and may ask for some lidocaine cream. I mean what can it hurt. Anything we can use that will not cause infection or make things worse down there but rather give us some peace and pain free moments - why not?

    Be well. Marilyne

    A light at the end of the tunnel!
    I never thought that I'd ever get the opportunity to talk to others who knew EXACTLY what I was talking about. I suffered terribly when I had a BM. OMG, I did exactly the same thing you did - practically crawled from the bathroom to the bed and laid in the fetal position while sobbing uncontrollably. But, you know what??? There is a light at the end of the tunnel! I can look back and remember the pain, but now I look forward which such hope and positivity (BECAUSE OF THIS SUPPORT GROUP!) and feel that the worst is over and now I am truly in recovery. The BMs for me now are no where near as bad because I'm using lidocaine and I feel pretty much like I used to. When I feel like I have to go to the bathroom, I go...just apply a little lidocaine over, around, and a little in the anus opening, pick up a magazine and relax and let nature takes its course. This is the most normal I have felt since my treatments have ended. I know you still have some more treatments to go, but it will get better over time. Hang in there and best wishes to ya!

    Blessings!
    Judy
  • cujuja4evr
    cujuja4evr Member Posts: 106
    lizdeli said:

    The itch from hell!
    It drove me to tears it was so bad. Nothing helped because in my case it was mostly internal. I literally punched the wall a few times, I just couldn't take it. Of course trying to stay still during radiaiton when the itch from hell surfaced was such an intense mind game. I literally cried at times. I took a vicodin one hour before radiation for rwo reasons. One, I had a dilator during radiation and it got painful at times, and two it helped keep me calm when the itch surfaced. Dr. Eng told me that as soon as she finds a cure for anal cancer she'll start working a cure for the itch from hell! : - )

    I did sit on two bags of ice once. I was getting my cispatin one Monday and that's a five hour ordeal. The itch was insane and I was pacing back and forth in the room and crying. The nurse came in and asked if I was in pain and I told her no, it's theis ****itch. She didn't know what to do so she brought me to big bags of ice and I laid down on that for a few hours. Helped a little, calmed me down anyway.

    The good news is that it went away 3 days after my last radiation treatment.

    Liz

    I feel like I've been cloned!
    It's amazing how so many of us are going through and have gone through the same experience. Listening to you and others, I feel like I've been in a reality show where you had cameras installed throughout my home recording everything that was going on. You have my life down to a Tee! I hate the fact that we are all going through this, but I love the fact that we are not alone anymore! Hope your recovery goes well for you. I'm feeling great today! I take this one day at a time and each day seems better than the day before!

    Hugz
    Judy

    P.S. I see that I'm not the only one sending multiple posts by mistake! Hee! Hee! On one board, my computer went crazy and I kept hitting the send button and it posted about 9 or so of the same response. :-)
  • sissy310
    sissy310 Member Posts: 300
    462lt said:

    now I'm scared
    I thought I was doing good with just the misery of going to the bathroom very bloody and feels like pooping glass. I have had 18 treatments and have 10 to go. I thought maybe I would get to skip the burn part I guess was just kidding myself.Sorry but this sucks..Laura

    Hi Laura - I too thought I
    Hi Laura - I too thought I was going to skip the burn part...so much for that huh? Yikes, no kidding it sucks. My only consolation is that if I'm miserable, then Harvey my tumor must be just as miserable.
  • sissy310
    sissy310 Member Posts: 300

    A light at the end of the tunnel!
    I never thought that I'd ever get the opportunity to talk to others who knew EXACTLY what I was talking about. I suffered terribly when I had a BM. OMG, I did exactly the same thing you did - practically crawled from the bathroom to the bed and laid in the fetal position while sobbing uncontrollably. But, you know what??? There is a light at the end of the tunnel! I can look back and remember the pain, but now I look forward which such hope and positivity (BECAUSE OF THIS SUPPORT GROUP!) and feel that the worst is over and now I am truly in recovery. The BMs for me now are no where near as bad because I'm using lidocaine and I feel pretty much like I used to. When I feel like I have to go to the bathroom, I go...just apply a little lidocaine over, around, and a little in the anus opening, pick up a magazine and relax and let nature takes its course. This is the most normal I have felt since my treatments have ended. I know you still have some more treatments to go, but it will get better over time. Hang in there and best wishes to ya!

    Blessings!
    Judy

    Thanks for the support and
    Thanks for the support and giving me some new information that it can get better. I wrote on top of my notebook that i bting to the dr visits "LIDOCANE" to remind me to ask for it. Thanks Judy.
  • sissy310
    sissy310 Member Posts: 300

    A light at the end of the tunnel!
    I never thought that I'd ever get the opportunity to talk to others who knew EXACTLY what I was talking about. I suffered terribly when I had a BM. OMG, I did exactly the same thing you did - practically crawled from the bathroom to the bed and laid in the fetal position while sobbing uncontrollably. But, you know what??? There is a light at the end of the tunnel! I can look back and remember the pain, but now I look forward which such hope and positivity (BECAUSE OF THIS SUPPORT GROUP!) and feel that the worst is over and now I am truly in recovery. The BMs for me now are no where near as bad because I'm using lidocaine and I feel pretty much like I used to. When I feel like I have to go to the bathroom, I go...just apply a little lidocaine over, around, and a little in the anus opening, pick up a magazine and relax and let nature takes its course. This is the most normal I have felt since my treatments have ended. I know you still have some more treatments to go, but it will get better over time. Hang in there and best wishes to ya!

    Blessings!
    Judy

    Thanks for the support and
    Thanks for the support and giving me some new information that it can get better. I wrote on top of my notebook that i bting to the dr visits "LIDOCANE" to remind me to ask for it. Thanks Judy.
  • sissy310
    sissy310 Member Posts: 300

    I feel like I've been cloned!
    It's amazing how so many of us are going through and have gone through the same experience. Listening to you and others, I feel like I've been in a reality show where you had cameras installed throughout my home recording everything that was going on. You have my life down to a Tee! I hate the fact that we are all going through this, but I love the fact that we are not alone anymore! Hope your recovery goes well for you. I'm feeling great today! I take this one day at a time and each day seems better than the day before!

    Hugz
    Judy

    P.S. I see that I'm not the only one sending multiple posts by mistake! Hee! Hee! On one board, my computer went crazy and I kept hitting the send button and it posted about 9 or so of the same response. :-)

    Good to hear that you are
    Good to hear that you are doing better each day and I pray that you continue to do so - that gives me hope - it's just a matter of now getting from point A to point B and finishing up the last few weeks. I agree, it is wonderful to be able to come in here and vent and see that his is a common occurrence and others have also gone through it. It does help.
  • nonichol
    nonichol Member Posts: 170
    sissy310 said:

    Good to hear that you are
    Good to hear that you are doing better each day and I pray that you continue to do so - that gives me hope - it's just a matter of now getting from point A to point B and finishing up the last few weeks. I agree, it is wonderful to be able to come in here and vent and see that his is a common occurrence and others have also gone through it. It does help.

    itchy
    I have begun having the itch as well. It has been just a night, which is strange, but I thin that is when cells trjuvenate most. I dunno know, not a scientist. Anyway now hiving them today as well as last night. Bendaryl make me nervous rather than sleepy. So I just tried childrens Benadryl feel a little better. OMG. Thanks fod for this site, especially when I had an accident yesterday as I was walking across the room, Thankfully I was at home. If I hadn't read about people having accidents it would have totally freaked me out. I had my accident at noon and knew why, but still late last night found myself dowm a bit from it as I like to have control of big issues, let alone minor ones like BM control.
    Itchy, fatigued and crappily,
    Norma
  • pjjenkins
    pjjenkins Member Posts: 173

    I feel like I've been cloned!
    It's amazing how so many of us are going through and have gone through the same experience. Listening to you and others, I feel like I've been in a reality show where you had cameras installed throughout my home recording everything that was going on. You have my life down to a Tee! I hate the fact that we are all going through this, but I love the fact that we are not alone anymore! Hope your recovery goes well for you. I'm feeling great today! I take this one day at a time and each day seems better than the day before!

    Hugz
    Judy

    P.S. I see that I'm not the only one sending multiple posts by mistake! Hee! Hee! On one board, my computer went crazy and I kept hitting the send button and it posted about 9 or so of the same response. :-)

    Hey all y'all
    Before you know it you will be on the other side of treatment with us! Keeping you in thoughts and prayers...PJJ
  • azkookie18
    azkookie18 Member Posts: 22
    nonichol said:

    itchy
    I have begun having the itch as well. It has been just a night, which is strange, but I thin that is when cells trjuvenate most. I dunno know, not a scientist. Anyway now hiving them today as well as last night. Bendaryl make me nervous rather than sleepy. So I just tried childrens Benadryl feel a little better. OMG. Thanks fod for this site, especially when I had an accident yesterday as I was walking across the room, Thankfully I was at home. If I hadn't read about people having accidents it would have totally freaked me out. I had my accident at noon and knew why, but still late last night found myself dowm a bit from it as I like to have control of big issues, let alone minor ones like BM control.
    Itchy, fatigued and crappily,
    Norma

    Hi Norma
    You'd mentioned you were also a stage iv.
    Just curious as to what your treatments have been to date?
  • nonichol
    nonichol Member Posts: 170

    Hi Norma
    You'd mentioned you were also a stage iv.
    Just curious as to what your treatments have been to date?

    new
    AZ,
    Just having what I presume is standard txment. IMRT radiation for six weeks, it was going to be five weeks, but Doc added another week after Stage iv confirmed. Two weeks chemo with mytomycin and 5fu. Chemo seems to have affected my memory immediately, which is disconcerting to say the least. Hoefully it will go away shortly after txment.
    Norma
  • 462lt
    462lt Member Posts: 117
    pjjenkins said:

    Hey all y'all
    Before you know it you will be on the other side of treatment with us! Keeping you in thoughts and prayers...PJJ

    Thanks everyone for all the info
    Yea had my last radiation treatment today. Put a fork in it I'm done. Got on top of the pain with a little help from my regular doctor. Makes such a difference. I also got a UTI and got that under control now i'm oozing alitte and I know the itching is going to start soon feel a little treak every now and then so thanks for the info about benadrly. See my surgeon on the 26th hoping the tumor shrunk enough only need to remove scar tissue. I have rectal cancer that is 1cmm from the anal verge if not I am in big trouble don't want a colostomy. Thanks again for all the info on this anal site radiation treatment more like your experience than colon cancer radiation. Good luck to everyone. Laura
  • z
    z Member Posts: 1,414 Member
    462lt said:

    Thanks everyone for all the info
    Yea had my last radiation treatment today. Put a fork in it I'm done. Got on top of the pain with a little help from my regular doctor. Makes such a difference. I also got a UTI and got that under control now i'm oozing alitte and I know the itching is going to start soon feel a little treak every now and then so thanks for the info about benadrly. See my surgeon on the 26th hoping the tumor shrunk enough only need to remove scar tissue. I have rectal cancer that is 1cmm from the anal verge if not I am in big trouble don't want a colostomy. Thanks again for all the info on this anal site radiation treatment more like your experience than colon cancer radiation. Good luck to everyone. Laura

    Laura
    Hi Laura,
    Good for you and completing tx. I hope that you'll only have to remove the scar tissue, that would be great. Now let the healing begin. I wish you well. Lori