update on Ed

Tina Blondek said:

Hugs to you Linda and Dianna....and even Ed!
Hello Linda
Thank you for your recent Ed update. I have been thinking of all of you. Sorry you did not get any better news. I have been where you are with my dad almost signing himself out of the hospital! Gee Ed, don't you think you should have given the rehab a chance? One day? Come on Man! Is there another place Ed can go for rehab that he approves of? I am totally lost for words. I will continue to pray for all of you. Peace be with you at this most difficult time. Keep in touch. Take some time for yourself this week. Go get your nails done, have a massage, get your haircut.
Tina

thank you all for caring thoughts
first William, I couldn't have agreed with you more, whole brain radiation is very very tough with alot of problems, more than I realized when we signed up for it, but honestly, everyone even his oncologist suggested doing it because he was having severe headaches and balancing issues when we found out about the brain met, there were no other choices except to stay on high dose decadrone which they suggested no. It has been a long long 10 months and honestly, I do not know how I have done it, it has been the hardest and most painful year of my life. I believe that the tumor is still there according to the mri, actually has grown a bit while doing radiation, hoping this will change up a bit., won't know for another month or so. Decadrone is a tough drug, I don't know if he will ever come off because he does have swelling in the brain still. I think that his oncoligst is somewhat pissed off and I cannot blame him and no, William, the place he signed out of would not fine me another rehab for him which was a big problem. He did not give it a chance now the visiting nurses have order pt/ot therapy at home. We will have alot of people coming to this house, it will be crazy. Diana and I are going out for my mom's birthday tomorrow and have a pedicure, which I am looking forward too, Ed is going over my sister's house to be watched. We cannot leave him alone for a minute, the stairs are a problem along with him just being a problem. He is still unbalanced, memory issues, mood issues, you name it, we have it here!!!!!!!!!!
We see his oncologist next week, I am sure he will give Ed hell. thanks so much everyone for your words of wisdom and thoughts. I will keep you all updated on us. I take one day at a time, there is nothing else I can do. I pray alot and keep reminding myself that this is a terrible cancer and yes William, I do agree, you cannot blame everything on cancer.

thanks again,

Linda

lindadanis said:

thank you all for caring thoughts
first William, I couldn't have agreed with you more, whole brain radiation is very very tough with alot of problems, more than I realized when we signed up for it, but honestly, everyone even his oncologist suggested doing it because he was having severe headaches and balancing issues when we found out about the brain met, there were no other choices except to stay on high dose decadrone which they suggested no. It has been a long long 10 months and honestly, I do not know how I have done it, it has been the hardest and most painful year of my life. I believe that the tumor is still there according to the mri, actually has grown a bit while doing radiation, hoping this will change up a bit., won't know for another month or so. Decadrone is a tough drug, I don't know if he will ever come off because he does have swelling in the brain still. I think that his oncoligst is somewhat pissed off and I cannot blame him and no, William, the place he signed out of would not fine me another rehab for him which was a big problem. He did not give it a chance now the visiting nurses have order pt/ot therapy at home. We will have alot of people coming to this house, it will be crazy. Diana and I are going out for my mom's birthday tomorrow and have a pedicure, which I am looking forward too, Ed is going over my sister's house to be watched. We cannot leave him alone for a minute, the stairs are a problem along with him just being a problem. He is still unbalanced, memory issues, mood issues, you name it, we have it here!!!!!!!!!!
We see his oncologist next week, I am sure he will give Ed hell. thanks so much everyone for your words of wisdom and thoughts. I will keep you all updated on us. I take one day at a time, there is nothing else I can do. I pray alot and keep reminding myself that this is a terrible cancer and yes William, I do agree, you cannot blame everything on cancer.

thanks again,

Linda

thanks for all your posts
Susie, I know you understand after what you have been through. Yes, he is my husband and we have been together twenty five years next week. he was a wonderful husband, a loving father and this man that we see today is not the same man., cancer does alot of terrible things to people, not only physically, but also emotionally. I pray everyday that his anger will leave him and that he will come to peace with everything that is going on with him. I want to thank all of you for posting and keeping all of us in your thoughts and prayers. I will continue to post and let you all know how we are doing. Today, Diana and I went out today and took my mom out for her 79th birthday. It was a nice day and I thank God that she is still with us also. We had a terrible scare a few weeks ago and almost lost her.

thanks again everyone,

Linda