OUCHY! DON"T LIKE BMB TEST!!!!!!

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  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #22
    allmost60 said:

    Don't know yet on "when" treatment will start...
    Hi John...
    My doctor said we won't even have the results back on the BMB until around the week of the 26th. I suppose once we find out if it's in the bone she will get busy on when to start. We are perfectly fine with cancelling vacation. Hubby said he would be more comfortable not being away from home and actually that works good for me too. The fish will always be there! Have a good day....Sue

    BMB
    Sue, I went 2 days later to the hosp. where I had the test and they had the results already. I wasn't scheduled to go back to the the onc. for 10 days. Those results are diagnosed within 24 hrs. I already knew it was in the bone marrow way before I went back to the center. I am not putting the Drs. down, but it does not make any sense why they have to wait so long to give us results. Like we don't have enough weighing on our minds. No matter how it comes out they will still treat it the same. It almost seemed like that is what they were waiting for to begin with(to reach the bone). The Dr. told me we would do a bmb and see if it had reached the marrow and if it had we would start treatment immediately. Makes me wonder what would have happened if it was not in the marrow. Would I still be waiting?
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #23
    COBRA666 said:

    BMB
    Sue, I went 2 days later to the hosp. where I had the test and they had the results already. I wasn't scheduled to go back to the the onc. for 10 days. Those results are diagnosed within 24 hrs. I already knew it was in the bone marrow way before I went back to the center. I am not putting the Drs. down, but it does not make any sense why they have to wait so long to give us results. Like we don't have enough weighing on our minds. No matter how it comes out they will still treat it the same. It almost seemed like that is what they were waiting for to begin with(to reach the bone). The Dr. told me we would do a bmb and see if it had reached the marrow and if it had we would start treatment immediately. Makes me wonder what would have happened if it was not in the marrow. Would I still be waiting?

    test results...
    I know John...I've asked myself the same questions, but at this point I'm trying to stay "in the day" and not let my "stinkin thinkin" get the better part of me. When my doctor said she was sending the bone sample to Seattle and the marrow sample to Spokane, I said "WHY"???? She said "it's just the way she does it"...????....What can I do?...Tell her I think the way she does it "stinks"? You see my point? At some point she's going to have to s--t or get off the pot with getting my treatment started.. so for right now I'm willing to give her the benefit of the doubt...ya know? Hubby is totally PO'd about all of this waiting around and I'm pretty sure thats why he decided to cancel our vacation. His mind is racing and he feels helpless...(even though he won't admit it to me), so I'm thinkin he just wants to hold on to his sanity by just sticking close to me and close to home. It's sad how hard this is on "EVERYONE"...not just the patient. I'm just taking it "one day at a time" buddy...what the heck else can we do...ya know?.....Sue
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #24
    allmost60 said:

    test results...
    I know John...I've asked myself the same questions, but at this point I'm trying to stay "in the day" and not let my "stinkin thinkin" get the better part of me. When my doctor said she was sending the bone sample to Seattle and the marrow sample to Spokane, I said "WHY"???? She said "it's just the way she does it"...????....What can I do?...Tell her I think the way she does it "stinks"? You see my point? At some point she's going to have to s--t or get off the pot with getting my treatment started.. so for right now I'm willing to give her the benefit of the doubt...ya know? Hubby is totally PO'd about all of this waiting around and I'm pretty sure thats why he decided to cancel our vacation. His mind is racing and he feels helpless...(even though he won't admit it to me), so I'm thinkin he just wants to hold on to his sanity by just sticking close to me and close to home. It's sad how hard this is on "EVERYONE"...not just the patient. I'm just taking it "one day at a time" buddy...what the heck else can we do...ya know?.....Sue

    Wait and Wait
    Sue, since she does things that way it is all you can do. Its "Hurry Up and Wait" anymore. Yes, it does have an impression on all people. Ever think if the shoe was on the other foot and she had the biopsy and how long would she would have to wait. I know and you know its beyond your control, its just a shame you have to wait that long. Its a long time to sit and wonder. Anticipation is worse than the diagnosis sometimes. John
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #25
    COBRA666 said:

    Wait and Wait
    Sue, since she does things that way it is all you can do. Its "Hurry Up and Wait" anymore. Yes, it does have an impression on all people. Ever think if the shoe was on the other foot and she had the biopsy and how long would she would have to wait. I know and you know its beyond your control, its just a shame you have to wait that long. Its a long time to sit and wonder. Anticipation is worse than the diagnosis sometimes. John

    wait and wait....
    When we left the clinic Tuesday after the BMB and the doctor said it would be 2 weeks before we know....my husband said..(quote).."you can bet your sweet A$$ if it was her child or husband, she would have the results back faster than you could blink an eye". I told him to just "drop it...I wasn't going to die in two weeks, so lets just roll with it and make each day count while we are waiting". He looked at me and rolled his eyes...ha! I have 7 sisters and at least twice a day one or the other of them calls to say..."hey...whens treatment?" I've gotten to the point where I'm screening calls...ha! Lets just pray the waiting will eventually reap some benefits and in the end we will all be ok. ...Sue
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #26
    allmost60 said:

    wait and wait....
    When we left the clinic Tuesday after the BMB and the doctor said it would be 2 weeks before we know....my husband said..(quote).."you can bet your sweet A$$ if it was her child or husband, she would have the results back faster than you could blink an eye". I told him to just "drop it...I wasn't going to die in two weeks, so lets just roll with it and make each day count while we are waiting". He looked at me and rolled his eyes...ha! I have 7 sisters and at least twice a day one or the other of them calls to say..."hey...whens treatment?" I've gotten to the point where I'm screening calls...ha! Lets just pray the waiting will eventually reap some benefits and in the end we will all be ok. ...Sue

    Wait and Wait
    You are both right!!!!!!!
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #27
    kawilky said:

    BMB Test
    I have NHL, went thru a Bone Marrow Transplant (Autologous) my own stem cells. I had a clean BMB last October, my Onc wants me to have another one 8/2/10. She says she can't put me under, does your dr say they can? HELP I am already on Norco and Morphine for my burning hands and mouthwash for mouth sores. I was treated at Stanford but belong to Kaiser in Redwood City, CA. Please tell me if there is a way to be put out? I have to have one every year to stage the cancer, or see if there are any NHL cell come back.

    kawilky..BMB test
    Hi...I don't know what to tell you about how to convince your doctor to put you out, or under. Mine said "NO" to me on Tuesday, but AFTER the test was done and she saw how up-set I got through-out the prodedure, she promised me that the NEXT time she would sedate me. Believe me I will be holding her to that promise and if she gives me any signs of not keeping that promise I WON'T get it done. No way no how will I go through that again. Others in the group said they got a locale sedative or were put under, so that obviously tells us they(the dr's) "CAN" do it and it doesn't mess up the testing. Wish I could give you a solution, but I think you will have to battle this out with your doctor. I'll be thinking good thoughts for you. BTW...it's day 3 after my test and I really feel just fine. As crumby as the test was..I did survive it.
    Sue
  • KC13167
    KC13167 Member Posts: 215
    #28
    allmost60 said:

    kawilky..BMB test
    Hi...I don't know what to tell you about how to convince your doctor to put you out, or under. Mine said "NO" to me on Tuesday, but AFTER the test was done and she saw how up-set I got through-out the prodedure, she promised me that the NEXT time she would sedate me. Believe me I will be holding her to that promise and if she gives me any signs of not keeping that promise I WON'T get it done. No way no how will I go through that again. Others in the group said they got a locale sedative or were put under, so that obviously tells us they(the dr's) "CAN" do it and it doesn't mess up the testing. Wish I could give you a solution, but I think you will have to battle this out with your doctor. I'll be thinking good thoughts for you. BTW...it's day 3 after my test and I really feel just fine. As crumby as the test was..I did survive it.
    Sue

    BMB and conscious sedation
    Mid June I had a procedure in interventional radiology to obtain tissue samples from the area around and in front of my sacral spine. This procedure was completed under conscious sedation. My IR obtained 16 samples. He stated that they usually require only 8 but that my tissue appeared to be somewhat necrotic and he wanted an adequate sample. Since my blood pressure runs low, I was not able to get the best benefit from the conscious sedation, but is certainly took the edge off. The results were due back in 3 days. On day 4 I was informed that there was not enough tissue to complete all the testing and that they would need to repeat the test. I was still an inpatient at this point and believe that the testing was expedited due to that fact. My next trip down to IR brought in a total of 32 samples. The areas drawn from were similar to that of BMB but they use a stainless steel hammer and drive large, hollow bore needles into the sacrum. Absolutely horrible, even with the conscious sedation.

    The following day, my oco completed a bedside BMB, without conscious sedation. It was difficult as she had difficulty obtaining a sample due to my "dry bones". I did not have conscious sedation for this procedure, buy I will request it in the future.

    I am treated at a large teaching hospital and was assured that I could have conscious sedation if I requested it. I hope that they were not just saying that to put me at ease! The pain associated with BMB is what I consider to be unnecessary. As patients we have enough to worry about; plus, why subject our loved ones to the fact that we will be in pain, a pain that can be avoided. It can't hurt to request conscious sedation.
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #29
    KC13167 said:

    BMB and conscious sedation
    Mid June I had a procedure in interventional radiology to obtain tissue samples from the area around and in front of my sacral spine. This procedure was completed under conscious sedation. My IR obtained 16 samples. He stated that they usually require only 8 but that my tissue appeared to be somewhat necrotic and he wanted an adequate sample. Since my blood pressure runs low, I was not able to get the best benefit from the conscious sedation, but is certainly took the edge off. The results were due back in 3 days. On day 4 I was informed that there was not enough tissue to complete all the testing and that they would need to repeat the test. I was still an inpatient at this point and believe that the testing was expedited due to that fact. My next trip down to IR brought in a total of 32 samples. The areas drawn from were similar to that of BMB but they use a stainless steel hammer and drive large, hollow bore needles into the sacrum. Absolutely horrible, even with the conscious sedation.

    The following day, my oco completed a bedside BMB, without conscious sedation. It was difficult as she had difficulty obtaining a sample due to my "dry bones". I did not have conscious sedation for this procedure, buy I will request it in the future.

    I am treated at a large teaching hospital and was assured that I could have conscious sedation if I requested it. I hope that they were not just saying that to put me at ease! The pain associated with BMB is what I consider to be unnecessary. As patients we have enough to worry about; plus, why subject our loved ones to the fact that we will be in pain, a pain that can be avoided. It can't hurt to request conscious sedation.

    KC13167 BMB
    Hi...I was so happy to see someone else use the term "dry bones". My doctor said my bone was rock hard(not pourous)and the marrow tissue was dry. Thats why she had to go in 3 seperate times with the needle before finally re-locating to another area in my hip to find marrow tissue with ample blood in it. I'm sure the procedure would have been less stressful/painful if she had not encountered the "dry/hard bone" situation.I agree 100% with you...we should NOT have to endure such tremendous pain and discomfort when having this test done. Bottom line...I "refuse" repeat "refuse" to have it done again if I am not going to be sedated...I don't care how they do it... conscious...un-conscious...or a hammer to the head...they "WILL" knock me out before I climb up on the exam table again...if not... it aint happenin!
  • KC13167
    KC13167 Member Posts: 215
    #30
    allmost60 said:

    KC13167 BMB
    Hi...I was so happy to see someone else use the term "dry bones". My doctor said my bone was rock hard(not pourous)and the marrow tissue was dry. Thats why she had to go in 3 seperate times with the needle before finally re-locating to another area in my hip to find marrow tissue with ample blood in it. I'm sure the procedure would have been less stressful/painful if she had not encountered the "dry/hard bone" situation.I agree 100% with you...we should NOT have to endure such tremendous pain and discomfort when having this test done. Bottom line...I "refuse" repeat "refuse" to have it done again if I am not going to be sedated...I don't care how they do it... conscious...un-conscious...or a hammer to the head...they "WILL" knock me out before I climb up on the exam table again...if not... it aint happenin!

    Dry
    I like your Spirit! Kellie

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