Pain after PEG normal????
Comments
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Peg
Hi Vivi, the itching sounds normal. Something "moving around and pulling and burning inside" didn't happen to me, and it's something to find out about from the doctor who put in your peg, same with the "clips". I never had any clips, my exterior portion is simply an oblong piece of soft plastic (about an inch long) that keeps the tube in place. I don't know if your radiologist can help you much, they will usually refer you to the person who put in the peg. Hope it gets better.
Hal0 -
BurningHal61 said:Peg
Hi Vivi, the itching sounds normal. Something "moving around and pulling and burning inside" didn't happen to me, and it's something to find out about from the doctor who put in your peg, same with the "clips". I never had any clips, my exterior portion is simply an oblong piece of soft plastic (about an inch long) that keeps the tube in place. I don't know if your radiologist can help you much, they will usually refer you to the person who put in the peg. Hope it gets better.
Hal
Hi Viv,
I never had any pain or burning with mine. I did have a clip type thing on mine it was round, but I could move mine in and out and turn it in circles but it never hurt. There was a little itching early on, but that went away. They told me that it could come out but you had to pull with 80 pounds of force to get it out.
Best,
Steve0 -
Follow up appointment
Hi, Viv
Did the doctor who installed the PEG ask you to come in for a follow up appointment in 2-3 days? If not, call and schedule an appointment with him. My PEG was installed very tightly, in order to minimize bleeding and facilitate healing. I had to go back in 2 days for them to loosen it up. Until then, it did pull and pinch. I had a flat round disk at skin level, a "clamp" a couple of inches out from that, and a two-headed spigot at the end of a rather lengthy tube. The large spigot would take a syringe, and the smaller spigot seemed to be designed for a smaller syringe for medications. No other clips attached.
Deb0 -
PEG Pictures
Hey, Viv
Sweetblood22 has posted a couple of pictures of her various PEGs on her expressions page. Find a posting by Sweetblood22, and click on her picture. (check a "Chefdaddy" thread t find her.) It will take you to her CSN space. Click on the "expressions" tab and scroll down a bit. I had the same kind of PEG as she shows for her "first PEG." I like her Mickey Button better.
Deb0 -
Viv, I'm sorry, but I had no
Viv, I'm sorry, but I had no pain at all. I stronglyrecommend you contact your doctor.
Best wishes.
debbie0 -
Thank you everyonedebbiejeanne said:Viv, I'm sorry, but I had no
Viv, I'm sorry, but I had no pain at all. I stronglyrecommend you contact your doctor.
Best wishes.
debbie
Wow! You guys are awesome. As it turns out I do not have a PEG I have G-tube (doctor explained. It was inserted by a radiologist instead of an ENT and they do it a bit different (I guess). He said that it was normal to have some pain as long as it was not getting worse and that the two clamps on the side will fall off on their own (he gave me the name of those clamps and I wrote it down but I don't have the paper here with me). Anyone out there had this type of G-tube instead of a PEG that can relate to what I am saying? I have an appt. with dietician or nutritionist (not sure what she is) on Wed. I am just bummed out because I have my first round of chemo and my first radiation tomorrow and it is hard getting up from my own bed (never mind that comfy radiation bed). But it is what it is and I will get through it with God's help.) Thank you all. This is an amazing place with amazing, supportive people. Have a great Sunday!0 -
Thank you everyonedebbiejeanne said:Viv, I'm sorry, but I had no
Viv, I'm sorry, but I had no pain at all. I stronglyrecommend you contact your doctor.
Best wishes.
debbie
Wow! You guys are awesome. As it turns out I do not have a PEG I have G-tube (doctor explained. It was inserted by a radiologist instead of an ENT and they do it a bit different (I guess). He said that it was normal to have some pain as long as it was not getting worse and that the two clamps on the side will fall off on their own (he gave me the name of those clamps and I wrote it down but I don't have the paper here with me). Anyone out there had this type of G-tube instead of a PEG that can relate to what I am saying? I have an appt. with dietician or nutritionist (not sure what she is) on Wed. I am just bummed out because I have my first round of chemo and my first radiation tomorrow and it is hard getting up from my own bed (never mind that comfy radiation bed). But it is what it is and I will get through it with God's help.) Thank you all. This is an amazing place with amazing, supportive people. Have a great Sunday!0 -
Thank you everyonedebbiejeanne said:Viv, I'm sorry, but I had no
Viv, I'm sorry, but I had no pain at all. I stronglyrecommend you contact your doctor.
Best wishes.
debbie
Wow! You guys are awesome. As it turns out I do not have a PEG I have G-tube (doctor explained. It was inserted by a radiologist instead of an ENT and they do it a bit different (I guess). He said that it was normal to have some pain as long as it was not getting worse and that the two clamps on the side will fall off on their own (he gave me the name of those clamps and I wrote it down but I don't have the paper here with me). Anyone out there had this type of G-tube instead of a PEG that can relate to what I am saying? I have an appt. with dietician or nutritionist (not sure what she is) on Wed. I am just bummed out because I have my first round of chemo and my first radiation tomorrow and it is hard getting up from my own bed (never mind that comfy radiation bed). But it is what it is and I will get through it with God's help.) Thank you all. This is an amazing place with amazing, supportive people. Have a great Sunday!0 -
For what it's worth...Vivi C said:Thank you everyone
Wow! You guys are awesome. As it turns out I do not have a PEG I have G-tube (doctor explained. It was inserted by a radiologist instead of an ENT and they do it a bit different (I guess). He said that it was normal to have some pain as long as it was not getting worse and that the two clamps on the side will fall off on their own (he gave me the name of those clamps and I wrote it down but I don't have the paper here with me). Anyone out there had this type of G-tube instead of a PEG that can relate to what I am saying? I have an appt. with dietician or nutritionist (not sure what she is) on Wed. I am just bummed out because I have my first round of chemo and my first radiation tomorrow and it is hard getting up from my own bed (never mind that comfy radiation bed). But it is what it is and I will get through it with God's help.) Thank you all. This is an amazing place with amazing, supportive people. Have a great Sunday!
I had a PEG, not a G-tube so this may not be relevant but...when I got mine in it hurt so badly I ended up back in the ER. I thought something must be wrong because the gastro doc said it shouldn't hurt at all. As it turns out, one of the nurses in the ER had some personal experience with a PEG and helped me more than the docs did. The most likely culprit of my pain? Gas. Evidently sometimes they pump your abdomen full of CO2 to keep it open and easy for them to work in. Sometimes that leaves bubbles that can be really painful. I got rid of mine by lying on my side tucked in a fetal position for a long time...0 -
vivi c-Vivi C said:Thank you everyone
Wow! You guys are awesome. As it turns out I do not have a PEG I have G-tube (doctor explained. It was inserted by a radiologist instead of an ENT and they do it a bit different (I guess). He said that it was normal to have some pain as long as it was not getting worse and that the two clamps on the side will fall off on their own (he gave me the name of those clamps and I wrote it down but I don't have the paper here with me). Anyone out there had this type of G-tube instead of a PEG that can relate to what I am saying? I have an appt. with dietician or nutritionist (not sure what she is) on Wed. I am just bummed out because I have my first round of chemo and my first radiation tomorrow and it is hard getting up from my own bed (never mind that comfy radiation bed). But it is what it is and I will get through it with God's help.) Thank you all. This is an amazing place with amazing, supportive people. Have a great Sunday!
cannot help with the g-tube, as I had a PEG for 15+-months. The pain, however, may in part be due to the tube breeching the abdominal wall, which is a multi-layered tissue wall that is there to protect the stomach. I had pain for about a week, especially when clearing my throat or coughing, which is typical.
As for being bummed-out because of getting your first round of C&R tomorrow, anxiety is typical, but by this time some of us had gotten to the mindset that "it's about time," to get the recovery started. Tomorrow is really the first day of your 2nd-Chance at life. That's a very good thing. Mean it.
Will be a very busy day for you, but all you gotta do is go with the flow. Your med team's been down this road before, but don't hesitate to ask any questions you need to be sure of the answers for. Keep us informed, including the C&R treatment specifics. Everything will be okay.
kcass0 -
ViviKent Cass said:vivi c-
cannot help with the g-tube, as I had a PEG for 15+-months. The pain, however, may in part be due to the tube breeching the abdominal wall, which is a multi-layered tissue wall that is there to protect the stomach. I had pain for about a week, especially when clearing my throat or coughing, which is typical.
As for being bummed-out because of getting your first round of C&R tomorrow, anxiety is typical, but by this time some of us had gotten to the mindset that "it's about time," to get the recovery started. Tomorrow is really the first day of your 2nd-Chance at life. That's a very good thing. Mean it.
Will be a very busy day for you, but all you gotta do is go with the flow. Your med team's been down this road before, but don't hesitate to ask any questions you need to be sure of the answers for. Keep us informed, including the C&R treatment specifics. Everything will be okay.
kcass
I had a G tube & I was in pain for a good week then it stopped! The Dr. had prescribed some pain meds for me!0 -
ViviKent Cass said:vivi c-
cannot help with the g-tube, as I had a PEG for 15+-months. The pain, however, may in part be due to the tube breeching the abdominal wall, which is a multi-layered tissue wall that is there to protect the stomach. I had pain for about a week, especially when clearing my throat or coughing, which is typical.
As for being bummed-out because of getting your first round of C&R tomorrow, anxiety is typical, but by this time some of us had gotten to the mindset that "it's about time," to get the recovery started. Tomorrow is really the first day of your 2nd-Chance at life. That's a very good thing. Mean it.
Will be a very busy day for you, but all you gotta do is go with the flow. Your med team's been down this road before, but don't hesitate to ask any questions you need to be sure of the answers for. Keep us informed, including the C&R treatment specifics. Everything will be okay.
kcass
I had a G tube & I was in pain for a good week then it stopped! The Dr. had prescribed some pain meds for me!0 -
ViviKent Cass said:vivi c-
cannot help with the g-tube, as I had a PEG for 15+-months. The pain, however, may in part be due to the tube breeching the abdominal wall, which is a multi-layered tissue wall that is there to protect the stomach. I had pain for about a week, especially when clearing my throat or coughing, which is typical.
As for being bummed-out because of getting your first round of C&R tomorrow, anxiety is typical, but by this time some of us had gotten to the mindset that "it's about time," to get the recovery started. Tomorrow is really the first day of your 2nd-Chance at life. That's a very good thing. Mean it.
Will be a very busy day for you, but all you gotta do is go with the flow. Your med team's been down this road before, but don't hesitate to ask any questions you need to be sure of the answers for. Keep us informed, including the C&R treatment specifics. Everything will be okay.
kcass
I had a G tube & I was in pain for a good week then it stopped! The Dr. had prescribed some pain meds for me!0 -
PEG questionsrozaroo said:Vivi
I had a G tube & I was in pain for a good week then it stopped! The Dr. had prescribed some pain meds for me!
Hi all, I had my PEG place May 28 and it hasn't given me any grief until now. A few days ago I noticed on the bottom of the stoma I was itchy and red and had some greenish discharge. So I cleaned it up real well with peroxide and put some triple antibiotic ointment around it, a clean drain sponge and then taped it up tight to me because it had pulled out from the number 4 to 3.(my tube is numbered all the way down)Yesterday it was really itching and I looked and the stomach had split down some and some tissue was sticking out. Not much like the head of a q-tip. So I cleaned it up again and taped it down. I called my gastro and the nurse said it's no big deal it can't fall out I just strained it lifting something...mmmmmm..unless it's my laptop. Did anyone else have this problem? Should I go see someone else? I am keeping it cleaned and bandaged and have the PEG taped tight to me so it can't move. Thanks
Debbie0 -
Me too, Ladylady4darknight said:PEG questions
Hi all, I had my PEG place May 28 and it hasn't given me any grief until now. A few days ago I noticed on the bottom of the stoma I was itchy and red and had some greenish discharge. So I cleaned it up real well with peroxide and put some triple antibiotic ointment around it, a clean drain sponge and then taped it up tight to me because it had pulled out from the number 4 to 3.(my tube is numbered all the way down)Yesterday it was really itching and I looked and the stomach had split down some and some tissue was sticking out. Not much like the head of a q-tip. So I cleaned it up again and taped it down. I called my gastro and the nurse said it's no big deal it can't fall out I just strained it lifting something...mmmmmm..unless it's my laptop. Did anyone else have this problem? Should I go see someone else? I am keeping it cleaned and bandaged and have the PEG taped tight to me so it can't move. Thanks
Debbie
Debbie,
I had the same "growth" that you do, I think. I've been going back and forth on whether or not to call my doc's office. It started out small like yours. I did notice my PEG itching from time to time, but never made the link between growth an itching. I noticed a couple days ago that the "growth" is larger, and sometimes gives off a little blood. I have been getting greenish ooze nearly from the start. My doc's nurse swore the ooze was from overfeeding. At the time she said that, I was getting in from 1,000 to 1,400 calories a day during 4 or 5 feedings and losing weight, so I said I couldn't see how I was overfeeding She insisted I was. The area near the tube (an inch or two away from the tube) has been achy the last few days - that seems to have eased up today). I have to admit, there have been a few times I've lifted something that maybe I shouldn't have, and I've had a few scary moments with dogs hitting my tube, or sticking their paw in my tummy in that area.
OK - I just called, and left a message for a nurse. It'll probably be a while before they call me. I'll let you know, Debbie.0 -
Same thing for mePam M said:Me too, Lady
Debbie,
I had the same "growth" that you do, I think. I've been going back and forth on whether or not to call my doc's office. It started out small like yours. I did notice my PEG itching from time to time, but never made the link between growth an itching. I noticed a couple days ago that the "growth" is larger, and sometimes gives off a little blood. I have been getting greenish ooze nearly from the start. My doc's nurse swore the ooze was from overfeeding. At the time she said that, I was getting in from 1,000 to 1,400 calories a day during 4 or 5 feedings and losing weight, so I said I couldn't see how I was overfeeding She insisted I was. The area near the tube (an inch or two away from the tube) has been achy the last few days - that seems to have eased up today). I have to admit, there have been a few times I've lifted something that maybe I shouldn't have, and I've had a few scary moments with dogs hitting my tube, or sticking their paw in my tummy in that area.
OK - I just called, and left a message for a nurse. It'll probably be a while before they call me. I'll let you know, Debbie.
Debbie and Pam,
I had the exact same thing about two weeks ago - "growth", green stuff and nearby pain. I called my GI and he said the same thing. "It's normal and will go away." It finally did a couple days ago and hasn't returned. If it hadn't gone away I was going to force him to look at it. I'll be glad when I'm pegless!!
Greg0 -
Thanks, GregGreg53 said:Same thing for me
Debbie and Pam,
I had the exact same thing about two weeks ago - "growth", green stuff and nearby pain. I called my GI and he said the same thing. "It's normal and will go away." It finally did a couple days ago and hasn't returned. If it hadn't gone away I was going to force him to look at it. I'll be glad when I'm pegless!!
Greg
Good to hear it went away on its own. My nurse asked me to come in Tuesday (my doc is only at the office part of the time - it's the first day he's in). She said it sounds like it's nothing to be concerned about, but would like doc to check. I said I was scheduled for removal on the 27th. She said, "Oh - maybe when he looks at it, he'll go ahead and - is this your first PEG?" I was THIS CLOSE to getting it out a week early. Oh well - at my doc's office, you have to have it removed at their surgical center (same location, different floor), so I'll have to wait 'til the 27th.0 -
Just waitPam M said:Thanks, Greg
Good to hear it went away on its own. My nurse asked me to come in Tuesday (my doc is only at the office part of the time - it's the first day he's in). She said it sounds like it's nothing to be concerned about, but would like doc to check. I said I was scheduled for removal on the 27th. She said, "Oh - maybe when he looks at it, he'll go ahead and - is this your first PEG?" I was THIS CLOSE to getting it out a week early. Oh well - at my doc's office, you have to have it removed at their surgical center (same location, different floor), so I'll have to wait 'til the 27th.
Pam and Greg, Thank you both so much for your input. This was something that I wasn't sure about. Glad to know I am not alone here. My doc wasn't concerned either. So I guess I will just wait for it to clear on it's own like Greg's. 5 know it's not leakage as I haven't used it for 11 days except to flush it.Don't no where I would be without you guys. Pam, I envy you getting yours out. Of course I would be pleased to lose both the PEG and the trache..lol. I would love to swim again. Thank you again for all your help.
Debbie0
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