Papajedi, Update

papajedi
papajedi Member Posts: 110
edited March 2014 in Colorectal Cancer #1
Hey guys, I'm still here just have been in and out of the ER a lot. As soon as we make positive steps we suffer a setback. I began peeing large amounts of blood yesterday and my plattlets and red cell count crashed. They gave me transfusions ect. and stabilized it. My gallbladders surgery is healing slowly and still very sore. They give me say 4-8 months depending on how I hold up to the chemo so have been preparing the family, it's SO hard and exhausting.

Comments

  • lisa42
    lisa42 Member Posts: 3,625 Member
    #2
    sorry
    Hi,

    I'm sorry to hear the troubles you've been having. I guess the peeing blood is from low platelets. That's what my onc warned me of. Said my platelets have been borderline, but not too bad & said that when they go really low I'd know it because I'd get lots of bruises and probably start urinating blood. Hopefully the transfusions will help you get the levels up again.
    Re. time lines of how much time you have left... just remember God's timeline isn't always the same as the doctors'. I'm hoping you will surpass the doctors' timeline.

    You take care and thank you for updating us- blessings to you and your family as you go through this.

    Lisa
  • Erinb
    Erinb Member Posts: 293
    #3
    Hi PapaJedi,
    I'm not sure
    Hi PapaJedi,
    I'm not sure what is in the background of your pic, but I like it. It looks like you have angel wings. I'm sorry that you have been in the hospital with complications.I can't imagine how mentally and physically exhausted you must feel. I will keep you in my thoughts.
    Erin
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #4
    Hi Papajedi,
    It sounds like
    Hi Papajedi,

    It sounds like you have been through a lot. I am so sorry for this. I agree with Lisa; the doctors cannot predict accurately + I hope the chemo works well for you.
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #5
    Sorry
    I'm so sorry you're having such a hard time. If (big if) the doctors are correct in their timetable, it would be so wonderful if you could at least feel really well and make the most of this time with your family. Of course, I'm hoping and praying they are just completely off!

    *hugs*
    Gail
  • Shayenne
    Shayenne Member Posts: 2,342
    #6
    tootsie1 said:

    Sorry
    I'm so sorry you're having such a hard time. If (big if) the doctors are correct in their timetable, it would be so wonderful if you could at least feel really well and make the most of this time with your family. Of course, I'm hoping and praying they are just completely off!

    *hugs*
    Gail

    Awww.....
    Hoping you get well from that surgery soon papajedi, I don't ever believe what a doctor says when they give you those darn timetables. Only God knows, and there are people who have proved their doctors who gave them a timeline wrong, and are still here years later! Keep on living, smile everyday, and just make sure nothing stops you from being you :)

    My thoughts and prayers are with you!

    Hugsss!
    ~Donna
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #7
    papajedi
    Papajedi,

    Sorry it is so hard right now. It sounds like the transfusions are just what you needed. No one knows how much time we have. I am just praying that you have some joy filled, pain free days.

    Aloha
    Kathleen
  • geotina
    geotina Member Posts: 2,111 Member
    #8
    Hard
    It must be so difficult up and down and preparing family, I'm sorry you have to go through this.

    We wish you peace and comfort during this most trying time.

    Sincerely,

    Tina and George
  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    #9
    Your in my thoughts and prayers
    If you can as many have said, please try and not to listen to the doctors they are not God.
    Keep taking each day as it comes. Hugs
  • dorookie
    dorookie Member Posts: 1,731 Member
    #10
    Hey Papa
    I am so sorry to hear you are feeling so bad, like many have said I too dont believe doctors know when our time is up, only God knows. I will pray that you start to feel better and that you have lots and lots of time left with your family...God Bless you

    HUGS
    Beth
  • sheri22
    sheri22 Member Posts: 273
    #11
    SORRY FOR WHAT YOU ARE GOING THRU
    Papajedi

    I am sorry for what you are going thru, dont believe everything you hear though I have knowen more then one person who had 6-8 months to live and with at least one person is still here and it was 8 years ago dr said 6 months drs are good but they arent GOD, and try not to focus on the 4-8 months keep posting and take care

    prayers are with you

    Sheri22

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