Eric38

I have been wondering...
...the same thing. Hope you are hanging in there, Eric!

Kelly

Hi buddy,how are you
Hi buddy,how are you doing?Has your MD Anderson trip scheduled?Please let us know how things are going.

Where Are You
Been thinking the same thing so I'm hoping that all is going well. Hope you are doing good and please check in.

Kim

eric38 said:

Thanks for checking up
I am alive and well so far. My treatments stopped working and the doctors were trying to figure out what to do with me. They came up with what looks to be a promising new clinical trial. It is supposed to kick the cancer cells back into acting like normal cells and whether it works or not it supposedly makes your cancer cells more sensitive to chemotherapy. The trial will be for 5 weeks and if it works I will continue with it doing more rounds. If not, i will do the five weeks and then back on a different chemo regimen. Somewhere along the line I hope something will kick in. Thanks for all the support. I will try not to be such a stranger. I can't believe I'm on the cancer board at nearly 4 in the morning. I must be retarded. I don't think there are too many people on here that would disagree with that.

It's 0340 in the blessed AM...
If you're retarded, I guess I am too. Glad to hear that your onc's have a plan. I really hope this trial will work and kick that cancer's arse.

KathiM said:

We are all pulling for you!!!!!
Glad to 'see' you, and I hope the trial works!!!!

It's actually 1 in the afternoon here (Holland), although I see my clock still says 4am for CA.

Hugs, Kathi

Guess I'm not the only one
Thought I was the only one who can't sleep!lol

eric38 said:

Thanks for checking up
I am alive and well so far. My treatments stopped working and the doctors were trying to figure out what to do with me. They came up with what looks to be a promising new clinical trial. It is supposed to kick the cancer cells back into acting like normal cells and whether it works or not it supposedly makes your cancer cells more sensitive to chemotherapy. The trial will be for 5 weeks and if it works I will continue with it doing more rounds. If not, i will do the five weeks and then back on a different chemo regimen. Somewhere along the line I hope something will kick in. Thanks for all the support. I will try not to be such a stranger. I can't believe I'm on the cancer board at nearly 4 in the morning. I must be retarded. I don't think there are too many people on here that would disagree with that.

Good luck
I'm praying the clinical trial will work wonders for you!

*hugs*
Gail

unknown said:

This comment has been removed by the Moderator

Trial
Yes, there are side effects. In order for it to be absorbed into the cells they have to put it into a protien that the body recognizes as a foreign invader so your body reacts accordingly. They have to hospitalize me for 48 hours after the first treatment and then after that your body gets used to it. The doctors said everyone has the same symptoms the first 24 - 32 hours but the severity depends on the individual. The symptoms are fever between 102 and 105, fast heart beat and low blood pressure. But, like I said that is temporary and only for a few days. After that they said the biggest symptom is fatigue but I've had that for quite some time anyway. Fatigue won't be new but the first treatment might be scary. This treatment is cutting edge and sounds very promising. The doc said when they first started doin this treatment on neck cancer where they would inject it directly into the tumor and some of the tumors completely dissolved. I don't know why they are doing this trial the way they are or what happened to make them stop injecting it directly into tumor site. Anyway, it has to do with the p53 gene. A lot of cancer patients are missing the p53 gene which causes your cells to behave and grow normally so they are injecting the p53 gene directly into your cells. There's probably info on the net about it. Getting carpal tunnel now.
Gotta go.

Eric
Eric,
Great to hear from you! It sounds like your docs are on it and have come up with a good trial. We're with you as you go through those first days. We look forward to hearing from you when you can be in touch.

Aloha,
Kathleen

eric38 said:

Trial
Yes, there are side effects. In order for it to be absorbed into the cells they have to put it into a protien that the body recognizes as a foreign invader so your body reacts accordingly. They have to hospitalize me for 48 hours after the first treatment and then after that your body gets used to it. The doctors said everyone has the same symptoms the first 24 - 32 hours but the severity depends on the individual. The symptoms are fever between 102 and 105, fast heart beat and low blood pressure. But, like I said that is temporary and only for a few days. After that they said the biggest symptom is fatigue but I've had that for quite some time anyway. Fatigue won't be new but the first treatment might be scary. This treatment is cutting edge and sounds very promising. The doc said when they first started doin this treatment on neck cancer where they would inject it directly into the tumor and some of the tumors completely dissolved. I don't know why they are doing this trial the way they are or what happened to make them stop injecting it directly into tumor site. Anyway, it has to do with the p53 gene. A lot of cancer patients are missing the p53 gene which causes your cells to behave and grow normally so they are injecting the p53 gene directly into your cells. There's probably info on the net about it. Getting carpal tunnel now.
Gotta go.

how exciting!
Sure hope this does well for you, the treatment sounds very promising!
mary

eric38 said:

Trial
Yes, there are side effects. In order for it to be absorbed into the cells they have to put it into a protien that the body recognizes as a foreign invader so your body reacts accordingly. They have to hospitalize me for 48 hours after the first treatment and then after that your body gets used to it. The doctors said everyone has the same symptoms the first 24 - 32 hours but the severity depends on the individual. The symptoms are fever between 102 and 105, fast heart beat and low blood pressure. But, like I said that is temporary and only for a few days. After that they said the biggest symptom is fatigue but I've had that for quite some time anyway. Fatigue won't be new but the first treatment might be scary. This treatment is cutting edge and sounds very promising. The doc said when they first started doin this treatment on neck cancer where they would inject it directly into the tumor and some of the tumors completely dissolved. I don't know why they are doing this trial the way they are or what happened to make them stop injecting it directly into tumor site. Anyway, it has to do with the p53 gene. A lot of cancer patients are missing the p53 gene which causes your cells to behave and grow normally so they are injecting the p53 gene directly into your cells. There's probably info on the net about it. Getting carpal tunnel now.
Gotta go.

Eric,
Keep us posted. When are they going to start the trial treatment etc.

Let us know how you are.
Jan