New regime

JaneE2366
JaneE2366 Member Posts: 289 Member
edited March 2014 in Esophageal Cancer #1
Hi All,
Have not been posting much lately.....busy and a little overwhelmed. We did get away to RI for a couple of weeks...got back last night and tried to catch up with everyone and once again I find there are so many newbies. I want you all to know you are in my prayers.
Today we start a new regime. Charlie has been on Xeloda since last Aug....15 rounds. We don't think it is working anymore. He is having more and more difficulty swallowing so the tumor must be back. (Never had swllowing issues before.) Last PET showed activity back in the esophagus. So today we start back on the Taxotere and Cisplatin. Charlie will have 4 - 6 infusions. We will go weekly. Getting ready to leave for the first one. We need your prayers....we need this to kick this beast to the curb and get Charlie back in remission. For those that are not familiar with our story....just click on our picture...Our Story has been updated. Thanks in advance for the prayers....I know I can count on you all.
Stay strong.
Jane

Comments

  • Pghmomma
    Pghmomma Member Posts: 141
    #2
    Stay strong... Prayers are
    Stay strong... Prayers are with you both!

    God Bless
    Tina
  • emg09
    emg09 Member Posts: 228
    #3
    Pghmomma said:

    Stay strong... Prayers are
    Stay strong... Prayers are with you both!

    God Bless
    Tina

    Prayers are being said right
    Prayers are being said right now!!! Charlie has been doing so good, I'm sure this is just another bump in that long road!!! Stay strong!! I think of you both often.

    Erika
  • Donna70
    Donna70 Member Posts: 852 Member
    #4
    emg09 said:

    Prayers are being said right
    Prayers are being said right now!!! Charlie has been doing so good, I'm sure this is just another bump in that long road!!! Stay strong!! I think of you both often.

    Erika

    prayers coming
    Hi Jane,
    I will keep you and Charlie in my prayers. He always does good so hope this new regimen will work and he will kick this EC in the butt!!! prayers always,
    Donna70
  • Unknown
    Unknown
    #5
    This comment has been removed by the Moderator
  • JaneE2366
    JaneE2366 Member Posts: 289 Member
    #6
    Update
    We went for chemo this morning and the dr is also suggesting radiation to the tumor site. So we are waiting for a call back to set up the appointment. This makes us feel so much better. Since we saw the dr 2 weeks ago, I have been wondering they this was not an option. I guess it is. Dr thought it would be a good idea to change the chemo to Taxol and Carboplatin...goes better with radiation. We are hoping to start the radiation asap...maybe next week. Charlie has been napping since we got home this afternoon. He says he is just tired. He was hungry when we got home and was able to eat something....so hopefully the nausea meds worked.
    Thanks for all the good wishes....we appreciate them.
    Jane
  • unclaw2002
    unclaw2002 Member Posts: 599
    #7
    JaneE2366 said:

    Update
    We went for chemo this morning and the dr is also suggesting radiation to the tumor site. So we are waiting for a call back to set up the appointment. This makes us feel so much better. Since we saw the dr 2 weeks ago, I have been wondering they this was not an option. I guess it is. Dr thought it would be a good idea to change the chemo to Taxol and Carboplatin...goes better with radiation. We are hoping to start the radiation asap...maybe next week. Charlie has been napping since we got home this afternoon. He says he is just tired. He was hungry when we got home and was able to eat something....so hopefully the nausea meds worked.
    Thanks for all the good wishes....we appreciate them.
    Jane

    Jane and Charlie,
    Good luck
    Jane and Charlie,

    Good luck om this latest battle. You guys are winners. My dad was on Taxol and Carboplating and seemed to tolerate that fairly well --- the radiation started kicking his butt after about the 5th treatment. Mostly he was tired and said he had "foggy chemo brain" so he had to write stuff down to remember things. There have been some recent studies that suggest the Taxol Carboplatin regime is pretty effective against EC.

    Prayers and wishes for an effective treatment are on your way.

    Hugs,
    Cindy
  • Lylesmyprince
    Lylesmyprince Member Posts: 130
    #8
    unclaw2002 said:

    Jane and Charlie,
    Good luck
    Jane and Charlie,

    Good luck om this latest battle. You guys are winners. My dad was on Taxol and Carboplating and seemed to tolerate that fairly well --- the radiation started kicking his butt after about the 5th treatment. Mostly he was tired and said he had "foggy chemo brain" so he had to write stuff down to remember things. There have been some recent studies that suggest the Taxol Carboplatin regime is pretty effective against EC.

    Prayers and wishes for an effective treatment are on your way.

    Hugs,
    Cindy

    Jane and Charlie...I'm
    Jane and Charlie...I'm thinking and praying for you! This is a tough journey...but you will make it through! I'm so glad you guys got away to play for a little while. Pause and breathe in those special times, Jane...they are precious!

    Love,
    Susie
  • Unknown
    Unknown
    #9
    This comment has been removed by the Moderator
  • Unknown
    Unknown
    #10
    Lylesmyprince said:

    Jane and Charlie...I'm
    Jane and Charlie...I'm thinking and praying for you! This is a tough journey...but you will make it through! I'm so glad you guys got away to play for a little while. Pause and breathe in those special times, Jane...they are precious!

    Love,
    Susie

    This comment has been removed by the Moderator
  • JaneE2366
    JaneE2366 Member Posts: 289 Member
    #11
    unknown said:

    This comment has been removed by the Moderator

    Thank you
    Thank you, William and Loretta. Both Charlie and I hold onto those "nuggets." We know how precious they are. Last year when Charlie was dx, we set up goals. One of our first goals was to get to Bristol, RI for the 4th of July. (Bristol is the site of the oldest and largest 4th of July celebration in the country.....was featured in the Parade magazine this past Sunday.) We had spent the previous 9 years celebrating the 4th in RI with dear friends. So we prayed we would make it for the 10th time. Well we did....Charlie wasn't feeling so great...slept a lot but we were there. We prayed it wouldn't be our last and it wasn't. Now we have had 11 years in Bristol and we are determined to get there next year too. We often count our blessings.....we start out our morning and evening prayers thanking God for giving us this extra time....as we all know, many of us don't get that.

    No talk of a J-tube yet. The swallowing isn't that bad yet...he is still able to eat a lot of different things but must remember to go slowly and chew very well. So hopefully the chemo (from what I have read it is a good combo) and the radiation will shrink the tumor enough so he is more comfortable eating. When (and if) the time comes, I will definitely push for the J-tube vs. the stent.


    Thank you again...you are truly an inspiration.
    Stay strong,
    Jane
  • Tina Blondek
    Tina Blondek Member Posts: 1,500 Member
    #12
    JaneE2366 said:

    Thank you
    Thank you, William and Loretta. Both Charlie and I hold onto those "nuggets." We know how precious they are. Last year when Charlie was dx, we set up goals. One of our first goals was to get to Bristol, RI for the 4th of July. (Bristol is the site of the oldest and largest 4th of July celebration in the country.....was featured in the Parade magazine this past Sunday.) We had spent the previous 9 years celebrating the 4th in RI with dear friends. So we prayed we would make it for the 10th time. Well we did....Charlie wasn't feeling so great...slept a lot but we were there. We prayed it wouldn't be our last and it wasn't. Now we have had 11 years in Bristol and we are determined to get there next year too. We often count our blessings.....we start out our morning and evening prayers thanking God for giving us this extra time....as we all know, many of us don't get that.

    No talk of a J-tube yet. The swallowing isn't that bad yet...he is still able to eat a lot of different things but must remember to go slowly and chew very well. So hopefully the chemo (from what I have read it is a good combo) and the radiation will shrink the tumor enough so he is more comfortable eating. When (and if) the time comes, I will definitely push for the J-tube vs. the stent.


    Thank you again...you are truly an inspiration.
    Stay strong,
    Jane

    Hi Jane and Charlie I am
    Hi Jane and Charlie
    I am praying the best for you both with this new regime! You and Charlie are great fighters, so this should not be a problem for you. I will be thinking of you both. May the peace of God be with you at this time.
    Tina

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