Nodule in the Upper Right Lobe near the Hilum....... Advice Please????

idlehunters
idlehunters Member Posts: 1,787 Member
edited March 2014 in Colorectal Cancer #1
Hey All!!

I have been doing research on getting this nodule removed. It is growing(1.8cm) and lit up on PET/CT. This is a met previously thought to have been taken care of by chemo but it seems the little bugger just got knocked in the dirt for a while and now is back with a vengeance! Since chemo did not kill it in round 1 I think it is highly unlikely it will kill it in round 2. For this reason I am looking to get it removed. It seems my options may be limited because of it being located so close to the Hilum. I do not know exact margin from Hilum but I know it has to be at least 1cm away to be considered operable for any surgery including RFA (cyberknife) or VATS. I do have an appt with thoracic surgeon on July 21st but I am sorting thru ALL options before I see him.

Does anyone here on the boards have mets to this area??? Been treated for mets to this area?? Have any information about mets to this area???? Know something about this that I don't???? Thanks Lisa for your PM on this! I will appreciate ANY information any of you have and are willing to share. Thanks Semi's!

Jennie

Comments

  • Kerry S
    Kerry S Member Posts: 606 Member
    “fighting face”
    Jennie,
    Can’t help with info, however I just wanted to say I am damn pleased to see you have your “fighting face” on. With your attitude you will find a way to get that sucker the hell out of you.

    Kerry
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    Kerry S said:

    “fighting face”
    Jennie,
    Can’t help with info, however I just wanted to say I am damn pleased to see you have your “fighting face” on. With your attitude you will find a way to get that sucker the hell out of you.

    Kerry

    Thanks Kerry!!!
    Dude.... you crack me up!! Thanks for putting a smile on that "fighting face" You take care ... you and your "KUBOTA" LOL...

    Jennie
  • EJmauldin
    EJmauldin Member Posts: 12

    Thanks Kerry!!!
    Dude.... you crack me up!! Thanks for putting a smile on that "fighting face" You take care ... you and your "KUBOTA" LOL...

    Jennie

    Nodes 2
    I have nodes that chemo didn't get rid of, now they are talking radiation. They said they were to near my heart. That there were to many, I tought I only had 2 that they were talking about. I guess I will do what they tell me. I always try to check out all my opps.
    I didn't think of cyber knife. I am going to look into it. Thanks
    Eileen
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    EJmauldin said:

    Nodes 2
    I have nodes that chemo didn't get rid of, now they are talking radiation. They said they were to near my heart. That there were to many, I tought I only had 2 that they were talking about. I guess I will do what they tell me. I always try to check out all my opps.
    I didn't think of cyber knife. I am going to look into it. Thanks
    Eileen

    Be Cautious...
    Hi Eileen

    Please be careful and seek out another opinion before letting them do radiation near your heart.

    Radiation has a way of frying everything in its path and there are valves around the heart that could be damaged permanently. My uncle had this done and ended up with open heart surgery, but he was lucky that they caught it in time, or it would have been much worse. The radiation had burned some valves and aortas and there were leaks from the damage done.

    Definitely get another opinion before you jump head long into this - not trying to scare you, but keeping it real from real family experience.

    CyberKnife might be a good option as the radiation there is more closely distributed than an external beam of radiation.

    Best of luck and keep us posted.

    -Craig
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    Sundanceh said:

    Be Cautious...
    Hi Eileen

    Please be careful and seek out another opinion before letting them do radiation near your heart.

    Radiation has a way of frying everything in its path and there are valves around the heart that could be damaged permanently. My uncle had this done and ended up with open heart surgery, but he was lucky that they caught it in time, or it would have been much worse. The radiation had burned some valves and aortas and there were leaks from the damage done.

    Definitely get another opinion before you jump head long into this - not trying to scare you, but keeping it real from real family experience.

    CyberKnife might be a good option as the radiation there is more closely distributed than an external beam of radiation.

    Best of luck and keep us posted.

    -Craig

    Eileen
    A fellow semi... Lisa42.... mentioned "Novalis Radiation" Check into that as well. It is slightly different and may be another option for you. It definately is for me.... YAY LISA...Thank you. Since I cannot take pain medication because I am a former "junkie" LOL.... I am looking for the least invasive way possible. PM me if you want to talk more about this Eileen. Hey CRAIG....... love the new pic buddy!!!

    Jennie
  • impactzone
    impactzone Member Posts: 555 Member
    I've had two lung surgeries
    I've had two lung surgeries done at Stanford for mets. Both were open and I loved the thoracic surgeon. They were not as hard for me to come back from as the liver surgery. I still ski and surf and after the two months recovery all was well. I believe you get surgery ASAP. I was at first upset he did not do it VATS but he said he liked to palpate the lungs for anything that he could not see on the CT scans.
    Good luck
    Chip
  • Crow71
    Crow71 Member Posts: 679 Member
    Hey Jennie - I don't know
    Hey Jennie - I don't know **** about lung stuff. I just wanted you to know that I've been thinking a lot about you lately. I'm bummed out, but I love your spirit.
    Many sparks - Roger
  • serrana
    serrana Member Posts: 163 Member
    nodes near/in hillium
    Hi Jennie
    My experience w/ hilliar area lung mets.......the long version:
    I was dx w/ rectal ca 1/2007, had rad, zeloda and then j pouch surgery. The surgeon said there was NO cancer found in the tissue he removed. Whoopee.

    I went thru Folfox as a mopup move. Then immediately they noticed a spot in my lung....the cells had travelled, darn. So I had a wedge resection 8/2008 of my right lung. Again they said they got it all. It was small, can't recall but under a cm.

    Went thru Folfiri for six months then two months after I stopped, another spot in the same lung, same hillar area appeared. Persistent, huh. Had another wedge resection8/2009 and they removed three mets and a string of lymph nodes.

    Nine months later another met less than 1 cm in the same hillar area and I just got out of the hospital two days ago 7/10 They took out the upper lobe of my right lung this time. I had the choice of radiation, chemo or watchful waiting

    I am being treated at an NCI University Hospital Cancer Center and my case was presented at Tumor Board. My radiation onc, medical onc, and cardiothoracic surgeon all felt surgery was the best choice.
    I don't know why yours wouldn't be resectable; possibly you need to consult a different surgeon, one that specializes in lungs . I think i depends how close to the aorta it is. My surgeon does lung transplants etc is a professor of surgery and la de da credentials at major teaching hospital at UCSan Diego Moores Cancer Center.

    On www.pubmed.gov there are articles about surgery for lung mets and I understand if you only have a few then surgery may be appropriate. They usually follow up w/ chemo afterwards. Once I did and once I didn't and they both returned; not sure what I'll do this time. Maybe wait and watch and if it returns then decide. On pubmed it reports some folks having three surgeries and then NED for years..........

    Best prayers for a good decision and wise doctors for you.........
    Serrana
    Survivor for 3 1/2 years of stage IV which everyone said was stage 0 Who knew????
  • geotina
    geotina Member Posts: 2,111 Member
    Jennie:
    I got nothing, George and I are on vacation now in Mid-Michigan and decided to check in and didn't want you to think we forgot about you and your post.

    George still has mets in his lungs but his were advanced when diagnosed so I knew there were no options but now that they are going away (far away I hope) I still hold out that there might be something down the road.

    I don't know if you joined the Colon Club but the people on there are very, very knowledgable on specific medical stuff. Sometimes, I have to read stuff a few times because I'm not sure what they are talking about medically. Just a thought to check in there as well as here.

    Sorry I got no advise but just know we are thinking about you and hoping you can find some solution other than chemo.

    Hugs - Tina