update on Ed

lindadanis
lindadanis Member Posts: 235
edited March 2014 in Esophageal Cancer #1
Well Ed was not a candidate for that stereoradiation so we are starting whole brain radiation tomorrow., fifteen sessions and the oncologists told us up front " I do not believe it will get rid of the entire tumor but hopefully it will shrink it down", there is a 50/50 chance of this happening, also you can only do whole head radiation once so this is a one time shot. If more tumor appear in the future, then we are at the end of the rope I believe. I am nervous about starting this radiation treatment, has anyone had this done before? also I have read all my posts under my other posting and wanted to thank all of you for your well wishes and concerns. Diana and I are hanging in there, it is very tough, we seem to be getting more bad news all the time, don't know if Ed will return to chemo after this radiation treatment, we will have to see. Ed is still pretty much the same, nothing new in that department. Diana and I are taking turns going out everyday, we feel one of us should be around for him with this new met to his brain. I will not give up hope, I pray everyday.
thank you William for your words of wisdom again and yes, I do agree with Ed on this one too, I think he has too much cancer everywhere else to even consider brain surgery followed up with radiation. I do not think he would survive it.
I will keep posting to let you know how radiation goes.
thanks so much again,

Linda

Comments

  • Unknown
    Unknown
    #2
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  • LindsayBrown
    LindsayBrown Member Posts: 22
    #3
    unknown said:

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    whole brain radiation
    My dad just went through it. So far the side effects have been nausea and headaches and more weightloss(for about a month after the radiation). He is 6' 4" and now weighs 147lbs. Some short term memory loss but minimal and it's been 6 weeks now and he's feeling much better.
  • Tina Blondek
    Tina Blondek Member Posts: 1,500 Member
    #4
    Peace Be With You
    Hi Linda, Ed, and Diana,
    We are hoping the best for you and this recent brain tumor. You do all that you can before you actually give in to giving up. Ultimitely, it will be Ed's decision. That will be something you and Diana will have to respect and accept. Cross that bridge if and when you come to it. We will be thinking of you and praying for your daily. Keep in touch when you can. Hugs to all of you.
    Tina
  • lindadanis
    lindadanis Member Posts: 235
    #5
    unknown said:

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    You make so much sense and made me really think William
    This is to you William, you make so much sense and you have such a way with words. You know exactly how I feel and what I am thinking. Thank God we have people like you in our worlds even though we have never met in person, you can really feel how I am feeling the past ten months and now, with this new addition of new mets, you can feel how anxious I am about it all and how lonely this cancer can be on not just the one with cancer, but also the entire family that lives with cancer. Cancer is a family disease, it does not just affect the patient but the entire family. My poor Mom who is almost 80 years old next month, suffering herself with end stage copd, in and out of hospitals the past year, cries everyday thinking about Ed and about me and Diana. She is devastated. She feels so helpless that she cannot do anything for me, she sent me a card today explaining all this to me. I cried when I read her card, it just made me realize how much Ed's cancer has affected all of us, not just him.
    I agree with your song, I read every word of it just now and yes, it is so true and it is exactly how I feel. I think your statement that cancer can bring two people much closer and others much more apart. It is so sad when there is nothing you can do to change it. I wish I could reach Eddie but feel that I just cannot get into his head. I have tried for months. Someday William, in the future, I would love to talk to you on the phone and express really how much I have appreciated all your kind words and advice. I do not have a father, never really did, and you make me feel that you are always there to listen, no matter what.
    You are an angel to all of us who have need you and I think I can personally speak for everyone on this site, you are much appreciated. We start our radiation tomorrow, I am praying it will do something good and Ed will come out of it ok. Thank you again and I will keep posting to let everyone know how we are doing.

    Linda
  • mmr19
    mmr19 Member Posts: 75
    #6
    For you...
    Linda-
    I am so sorry for all you are going through. It just keeps getting tougher and tougher.
    Know that you and Diana and Ed are in my thoughts and prayers. Wishing you all the best.

    Marta
  • lindadanis
    lindadanis Member Posts: 235
    #7
    mmr19 said:

    For you...
    Linda-
    I am so sorry for all you are going through. It just keeps getting tougher and tougher.
    Know that you and Diana and Ed are in my thoughts and prayers. Wishing you all the best.

    Marta

    A "big" thank you to all
    I was just reading some of the post you all have written to me and I appreciate them all.
    I am anxiously awaiting to go to radiation in one hour, Ed has been in his room all day except for one hour this morning. I feel so bad for him, I am sure that he is worried sick about radiation done to his entire head but feel that staying in that room is not helping him nor is it helping Diana or myself. I feel so helpless, I feel like I cannot say or do anything that will help Eddie. He has kept all of this to himself for ten months and it is getting worse day by day especially since he was told of this brain met. Life is not fair, good people become very sick and some of them just don't know how to accept or deal with it.
    I don't know how I would be if it had happened to me., I often wonder about that. how would I have dealt with it. I look at my poor daughter's face, day after day, and feel like she lost a father a long time ago, this is not the man that was her dad for twenty two years. I feel so bad for her, I only hope that she remember the dad she always knew, the one who she went to yardsales with, the one she laughed with., it is so sad to see each day go by without any memories, just this sadnest.
    I am so scared of radiation especially to the brain, whole head radiation, I do not know what to expect so the unknown is always scarry. I will take it day by day and try to figure it out as it goes on.
    thank you everyone for your well wishes. They mean so much to me.
    And you William, if you are reading this, I hope you read my post above. You are my hereo, you keep me going, day by day. A big thanks to you also.

    Linda

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