Boston area

cfight
cfight Member Posts: 69
edited March 2014 in Esophageal Cancer #1
Is there anyone who lives in the Boston area? I'd like to get together and see if there's anything we can do to raise awareness and possibly funds for this type of cancer -- I need control over something these days! If so, feel free to email me at carolynwhipple@juno.com.

Thanks!

Comments

  • K_ann1015
    K_ann1015 Member Posts: 500
    #2
    EC Awareness
    Hi---I am not in the Boston Area, but feel the same as you---very frustrated that it is so difficult to get this diagnosed early and treated---with a good outcome. I have done a lot of research and feel that this new non-profit & site can really make a difference! I don't want to re-invent a wheel that is already invented, but want my efforts to make a difference-that is why I am supporting this site, instead of forging out on my own. It is Esophageal Cancer Awareness Network or ECAN.org. I have spoke to the Executive director Mindy Mordecai who lost her husband to EC about 2 years ago. She is supported by a very qualified board of directors and they are making many strides, not just locally, but nationally--(see the website for news). They are really trying to educate the public about the dangers of chronic reflux. It spurned me me to get the word out about how to get your governor to declare an esophageal Cancer Awareness month--I think we had 5-6 states that were able to do that this year (April). The goal is for a national declaration. I can give you that info if you'd like. Also another thing that I'd like to do but haven't done yet (but my aunt did) is have a local fund raiser to raise $$ to donate to ECAN to further their efforts in improving early diagnosis, treatment, awareness, physician training, etc. My aunt had a "gold" party where people could sell their gold for cash. She also had family and friends donate gift baskets and other misc items that were for sale as well. She was able to make quite a bit and gave 1/2 to ECAN and 1/2 to her Relay for Life team!.

    We can all pitch in our own way---a little or a lot. I hope to make a difference-little by little. I also have done other things and have other ideas but won't make this longer--send me a private message and I can share email and ideas! It does help me cope when I feel like I am DO-ing something!
    Kim
    (my dad is battling/winning EC battle, but my uncle, his brother, just passed from EC)
  • iansmom
    iansmom Member Posts: 25
    #3
    I live in Boston and I
    I live in Boston and I noticed your photo is of the Green Monster Seats...aside from our troubles what is with the SOX? and what happened to the Celts last night? A little distraction for us both.

    There is an organization that is working on this, I have pasted their info. I have never contacted them myself. I did read that they are trying to make April the EC month.
    Hopethis helps


    Esophageal Cancer Awareness Association, Inc.

    P.O. Box 55071 #15530, Boston MA 02205-5071
    1-800-601-0613
  • Unknown
    Unknown
    #4
    iansmom said:

    I live in Boston and I
    I live in Boston and I noticed your photo is of the Green Monster Seats...aside from our troubles what is with the SOX? and what happened to the Celts last night? A little distraction for us both.

    There is an organization that is working on this, I have pasted their info. I have never contacted them myself. I did read that they are trying to make April the EC month.
    Hopethis helps


    Esophageal Cancer Awareness Association, Inc.

    P.O. Box 55071 #15530, Boston MA 02205-5071
    1-800-601-0613

    This comment has been removed by the Moderator
  • LindsayBrown
    LindsayBrown Member Posts: 22
    #5
    unknown said:

    This comment has been removed by the Moderator

    I live in North Reading
    I live in the Boston area as well. My dad had his surgery done at Mass. General in March.

    Lindsay
  • cfight
    cfight Member Posts: 69
    #6
    LindsayBrown said:

    I live in North Reading
    I live in the Boston area as well. My dad had his surgery done at Mass. General in March.

    Lindsay

    Hi Lindsay,
    Let me know if
    Hi Lindsay,

    Let me know if you're interested in getting together. I live in Salem, MA. My email address is carolynwhipple@juno.com. My thoughts are with you and your family!

    Take care,

    Carolyn
  • cfight
    cfight Member Posts: 69
    #7
    iansmom said:

    I live in Boston and I
    I live in Boston and I noticed your photo is of the Green Monster Seats...aside from our troubles what is with the SOX? and what happened to the Celts last night? A little distraction for us both.

    There is an organization that is working on this, I have pasted their info. I have never contacted them myself. I did read that they are trying to make April the EC month.
    Hopethis helps


    Esophageal Cancer Awareness Association, Inc.

    P.O. Box 55071 #15530, Boston MA 02205-5071
    1-800-601-0613

    Yes, the play offs have been
    Yes, the play offs have been a bit of a distraction!! Thanks for the org information. I recently received information regarding making April EC awareness month. I'm hoping to get something passed once I wrap up wedding planning.

    Thanks again for the information!
  • cfight
    cfight Member Posts: 69
    #8
    K_ann1015 said:

    EC Awareness
    Hi---I am not in the Boston Area, but feel the same as you---very frustrated that it is so difficult to get this diagnosed early and treated---with a good outcome. I have done a lot of research and feel that this new non-profit & site can really make a difference! I don't want to re-invent a wheel that is already invented, but want my efforts to make a difference-that is why I am supporting this site, instead of forging out on my own. It is Esophageal Cancer Awareness Network or ECAN.org. I have spoke to the Executive director Mindy Mordecai who lost her husband to EC about 2 years ago. She is supported by a very qualified board of directors and they are making many strides, not just locally, but nationally--(see the website for news). They are really trying to educate the public about the dangers of chronic reflux. It spurned me me to get the word out about how to get your governor to declare an esophageal Cancer Awareness month--I think we had 5-6 states that were able to do that this year (April). The goal is for a national declaration. I can give you that info if you'd like. Also another thing that I'd like to do but haven't done yet (but my aunt did) is have a local fund raiser to raise $$ to donate to ECAN to further their efforts in improving early diagnosis, treatment, awareness, physician training, etc. My aunt had a "gold" party where people could sell their gold for cash. She also had family and friends donate gift baskets and other misc items that were for sale as well. She was able to make quite a bit and gave 1/2 to ECAN and 1/2 to her Relay for Life team!.

    We can all pitch in our own way---a little or a lot. I hope to make a difference-little by little. I also have done other things and have other ideas but won't make this longer--send me a private message and I can share email and ideas! It does help me cope when I feel like I am DO-ing something!
    Kim
    (my dad is battling/winning EC battle, but my uncle, his brother, just passed from EC)

    Thanks, Kim! I agree,
    Thanks, Kim! I agree, reinventing the wheel just doesn't make sense. I think fundraising or raising awareness for one of these organizations is a great idea. I have April as EC Awareness Month on my to do list. I think I may have received the language from you actually. I'm staring to lose track of names-- sorry!

    I'll keep you posted on my success. Until then, I have your father in my thoughts!
  • Jules11
    Jules11 Member Posts: 8
    #9
    Boston
    We live in Boston. I have been thinking the same thing - I recently talked to someone about raising funds for EC. There is not enough info out there.
    Jules
  • Jules11
    Jules11 Member Posts: 8
    #10
    iansmom said:

    I live in Boston and I
    I live in Boston and I noticed your photo is of the Green Monster Seats...aside from our troubles what is with the SOX? and what happened to the Celts last night? A little distraction for us both.

    There is an organization that is working on this, I have pasted their info. I have never contacted them myself. I did read that they are trying to make April the EC month.
    Hopethis helps


    Esophageal Cancer Awareness Association, Inc.

    P.O. Box 55071 #15530, Boston MA 02205-5071
    1-800-601-0613

    Boston
    Do they have a web address?
    Thanks
    Jules
  • Jules11
    Jules11 Member Posts: 8
    #11
    K_ann1015 said:

    EC Awareness
    Hi---I am not in the Boston Area, but feel the same as you---very frustrated that it is so difficult to get this diagnosed early and treated---with a good outcome. I have done a lot of research and feel that this new non-profit & site can really make a difference! I don't want to re-invent a wheel that is already invented, but want my efforts to make a difference-that is why I am supporting this site, instead of forging out on my own. It is Esophageal Cancer Awareness Network or ECAN.org. I have spoke to the Executive director Mindy Mordecai who lost her husband to EC about 2 years ago. She is supported by a very qualified board of directors and they are making many strides, not just locally, but nationally--(see the website for news). They are really trying to educate the public about the dangers of chronic reflux. It spurned me me to get the word out about how to get your governor to declare an esophageal Cancer Awareness month--I think we had 5-6 states that were able to do that this year (April). The goal is for a national declaration. I can give you that info if you'd like. Also another thing that I'd like to do but haven't done yet (but my aunt did) is have a local fund raiser to raise $$ to donate to ECAN to further their efforts in improving early diagnosis, treatment, awareness, physician training, etc. My aunt had a "gold" party where people could sell their gold for cash. She also had family and friends donate gift baskets and other misc items that were for sale as well. She was able to make quite a bit and gave 1/2 to ECAN and 1/2 to her Relay for Life team!.

    We can all pitch in our own way---a little or a lot. I hope to make a difference-little by little. I also have done other things and have other ideas but won't make this longer--send me a private message and I can share email and ideas! It does help me cope when I feel like I am DO-ing something!
    Kim
    (my dad is battling/winning EC battle, but my uncle, his brother, just passed from EC)

    EC
    Hi,
    It would be great to plan a large fundraising event for EC here in Boston. On the ECAN.org website it looks like there are events being held in other states. I've worked in fudraising for over 20 years and would love to be involved. My email address is jucocap@hotmail.com.
    Thanks
    Jules

Discussion Boards