roger
Amy
Comments
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I was just thinking the same thing
Hey ROGER!!!!
Brooks0 -
Roger
I just went and checked his site. Last update was 6/13, Roger was in the ER 6/12, wound infection, fixed up and sent home. Recovery has been difficult but is now slowly improving. He has managed to gain 4 pounds. I don't understand all the open wound thing but guess his wound from surgery is still pretty open and big but slowly healing and improving. I'll leave him and Kim a message to update us on the board.
Tina0 -
I was thinking about Rogergeotina said:Roger
I just went and checked his site. Last update was 6/13, Roger was in the ER 6/12, wound infection, fixed up and sent home. Recovery has been difficult but is now slowly improving. He has managed to gain 4 pounds. I don't understand all the open wound thing but guess his wound from surgery is still pretty open and big but slowly healing and improving. I'll leave him and Kim a message to update us on the board.
Tina
I was thinking about Roger today too. I hope he is doing well. Brenda0 -
Hey Folks. Thanks for asking
Hey Folks. Thanks for asking about me. I've been reading and keeping up with everybody. I guess I haven't had much to say lately. Plenty of bad news lately.
HIPEC is a real ****. At this point, everything on the inside has pretty much healed. There is lots of scar tissue and adhesions that cause some pain from time to time. I'm off the pain meds though. My energy level has been very low but is improving. I've been down emotionally, but that's getting better too. The cancer psychologist says I'm having a "depressive episode." Darn right I am. But as I feel better physically, I feel better emotionally as well. Everyone said it would take a long time to recover. They were right.
The wound is healing slowly but surely. A few inches have closed at the bottom near my pubic bone. It's still a few inches wide from my breast bone to my navel. At first we could see a piece of my liver at the bottom of the wound, but that's finally covered over. We can still see a piece of intestine. We had an infection scare a few weeks ago and ended up in the emergency room. But the doctor pushed out all the puss and it was all fine. Kim remains awesome. She packs the wound with wet gauze three times a day with no complaint.
I'll tell what I don't like - my ileostomy. I had a colostomy for 8 months and did just fine. There were a few blow outs, but for the most part, Stuey the Stoma would poop every now and then, I'd empty the bag and then be back to whatever I was doing. There was always a reasonable chance I could make it through a soccer practice or a meeting without any pooping. It's totally different with Mr. Dribbles. He dribbles all day and all night. He NEVER STOPS!! Sometimes when I empty the bag, by the time I get the clip back on the bag there's already more dribbles. For some reason can't stand this and have to have the bag totally empty. So I sit back down and empty the bag as fast as I can. It's like some sort of demented race. And the little **** head usually wins.
I could go on complaining for a while, but when I come on here I'm reminded that I'm in pretty good shape. I'm still fighting. The crows are still with me. The sparks have been dim lately, but they are getting brighter and I send many many of them to you.
Take Care
Roger0 -
thank you for postingCrow71 said:Hey Folks. Thanks for asking
Hey Folks. Thanks for asking about me. I've been reading and keeping up with everybody. I guess I haven't had much to say lately. Plenty of bad news lately.
HIPEC is a real ****. At this point, everything on the inside has pretty much healed. There is lots of scar tissue and adhesions that cause some pain from time to time. I'm off the pain meds though. My energy level has been very low but is improving. I've been down emotionally, but that's getting better too. The cancer psychologist says I'm having a "depressive episode." Darn right I am. But as I feel better physically, I feel better emotionally as well. Everyone said it would take a long time to recover. They were right.
The wound is healing slowly but surely. A few inches have closed at the bottom near my pubic bone. It's still a few inches wide from my breast bone to my navel. At first we could see a piece of my liver at the bottom of the wound, but that's finally covered over. We can still see a piece of intestine. We had an infection scare a few weeks ago and ended up in the emergency room. But the doctor pushed out all the puss and it was all fine. Kim remains awesome. She packs the wound with wet gauze three times a day with no complaint.
I'll tell what I don't like - my ileostomy. I had a colostomy for 8 months and did just fine. There were a few blow outs, but for the most part, Stuey the Stoma would poop every now and then, I'd empty the bag and then be back to whatever I was doing. There was always a reasonable chance I could make it through a soccer practice or a meeting without any pooping. It's totally different with Mr. Dribbles. He dribbles all day and all night. He NEVER STOPS!! Sometimes when I empty the bag, by the time I get the clip back on the bag there's already more dribbles. For some reason can't stand this and have to have the bag totally empty. So I sit back down and empty the bag as fast as I can. It's like some sort of demented race. And the little **** head usually wins.
I could go on complaining for a while, but when I come on here I'm reminded that I'm in pretty good shape. I'm still fighting. The crows are still with me. The sparks have been dim lately, but they are getting brighter and I send many many of them to you.
Take Care
Roger
I know how you feel, Roger, as you know I've been there done that. It SUCKS!!!! I didn't even want to look at mine, I was content in knowing the nurses knew what it looked like at the bottom of the open incision, I had no desire to see it myself. I know it dehysted down to the intestinal brain, but thankfully that's not one of the visions I have when PTSD sets in. It's been over a year now for me and I'm still having issues, I've finally started going to talk with a counselor to work some of this shi$ out. Don't let the emotional stuff go as long as I did, i think i tried to just ignore it and hope it would go away. the HIPEC really did a number on me and the infections/healing was a rough road. I'm so thankful I didn't have to deal with a stoma at the same time, i think it would have put me over the edge. As it is right now I am dealing with issues with pain and difficulty with my bowels that is a result of all that scar tissue; this too shall pass. Keep strong, Roger; you are stronger than the pain and difficulty. Keep the crows and sparks going, they will brighten and increase your blessings before you know it! I continue to pray for you and your wonderfully loving and caring wife.
mary0 -
Sparks to you!Crow71 said:Hey Folks. Thanks for asking
Hey Folks. Thanks for asking about me. I've been reading and keeping up with everybody. I guess I haven't had much to say lately. Plenty of bad news lately.
HIPEC is a real ****. At this point, everything on the inside has pretty much healed. There is lots of scar tissue and adhesions that cause some pain from time to time. I'm off the pain meds though. My energy level has been very low but is improving. I've been down emotionally, but that's getting better too. The cancer psychologist says I'm having a "depressive episode." Darn right I am. But as I feel better physically, I feel better emotionally as well. Everyone said it would take a long time to recover. They were right.
The wound is healing slowly but surely. A few inches have closed at the bottom near my pubic bone. It's still a few inches wide from my breast bone to my navel. At first we could see a piece of my liver at the bottom of the wound, but that's finally covered over. We can still see a piece of intestine. We had an infection scare a few weeks ago and ended up in the emergency room. But the doctor pushed out all the puss and it was all fine. Kim remains awesome. She packs the wound with wet gauze three times a day with no complaint.
I'll tell what I don't like - my ileostomy. I had a colostomy for 8 months and did just fine. There were a few blow outs, but for the most part, Stuey the Stoma would poop every now and then, I'd empty the bag and then be back to whatever I was doing. There was always a reasonable chance I could make it through a soccer practice or a meeting without any pooping. It's totally different with Mr. Dribbles. He dribbles all day and all night. He NEVER STOPS!! Sometimes when I empty the bag, by the time I get the clip back on the bag there's already more dribbles. For some reason can't stand this and have to have the bag totally empty. So I sit back down and empty the bag as fast as I can. It's like some sort of demented race. And the little **** head usually wins.
I could go on complaining for a while, but when I come on here I'm reminded that I'm in pretty good shape. I'm still fighting. The crows are still with me. The sparks have been dim lately, but they are getting brighter and I send many many of them to you.
Take Care
Roger
Roger,
Thanks for posting. It is so nice to see you here. You have been through a lot. It sounds like things are gradually improving; hang tough!0 -
Roger
Roger,
It is so good to hear from you. Glad you have Kim by your side. You two are a good team. Keeping you in my thoughts and prayers.
Aloha,
Kathleen0 -
RogerCrow71 said:Hey Folks. Thanks for asking
Hey Folks. Thanks for asking about me. I've been reading and keeping up with everybody. I guess I haven't had much to say lately. Plenty of bad news lately.
HIPEC is a real ****. At this point, everything on the inside has pretty much healed. There is lots of scar tissue and adhesions that cause some pain from time to time. I'm off the pain meds though. My energy level has been very low but is improving. I've been down emotionally, but that's getting better too. The cancer psychologist says I'm having a "depressive episode." Darn right I am. But as I feel better physically, I feel better emotionally as well. Everyone said it would take a long time to recover. They were right.
The wound is healing slowly but surely. A few inches have closed at the bottom near my pubic bone. It's still a few inches wide from my breast bone to my navel. At first we could see a piece of my liver at the bottom of the wound, but that's finally covered over. We can still see a piece of intestine. We had an infection scare a few weeks ago and ended up in the emergency room. But the doctor pushed out all the puss and it was all fine. Kim remains awesome. She packs the wound with wet gauze three times a day with no complaint.
I'll tell what I don't like - my ileostomy. I had a colostomy for 8 months and did just fine. There were a few blow outs, but for the most part, Stuey the Stoma would poop every now and then, I'd empty the bag and then be back to whatever I was doing. There was always a reasonable chance I could make it through a soccer practice or a meeting without any pooping. It's totally different with Mr. Dribbles. He dribbles all day and all night. He NEVER STOPS!! Sometimes when I empty the bag, by the time I get the clip back on the bag there's already more dribbles. For some reason can't stand this and have to have the bag totally empty. So I sit back down and empty the bag as fast as I can. It's like some sort of demented race. And the little **** head usually wins.
I could go on complaining for a while, but when I come on here I'm reminded that I'm in pretty good shape. I'm still fighting. The crows are still with me. The sparks have been dim lately, but they are getting brighter and I send many many of them to you.
Take Care
Roger
You know I am rooting for you! "Depressive Episode", my therapist seems to think every one is one some sort of anti-depressent they may as well put it in the drinking water But that is crazy California for you! Of course you are in a depressive episode, you have been through one heck of a ride. But, I believe in you and your fighting spirit. Keep on fighting! Don't stop believing.
Marie0 -
RogerCrow71 said:Hey Folks. Thanks for asking
Hey Folks. Thanks for asking about me. I've been reading and keeping up with everybody. I guess I haven't had much to say lately. Plenty of bad news lately.
HIPEC is a real ****. At this point, everything on the inside has pretty much healed. There is lots of scar tissue and adhesions that cause some pain from time to time. I'm off the pain meds though. My energy level has been very low but is improving. I've been down emotionally, but that's getting better too. The cancer psychologist says I'm having a "depressive episode." Darn right I am. But as I feel better physically, I feel better emotionally as well. Everyone said it would take a long time to recover. They were right.
The wound is healing slowly but surely. A few inches have closed at the bottom near my pubic bone. It's still a few inches wide from my breast bone to my navel. At first we could see a piece of my liver at the bottom of the wound, but that's finally covered over. We can still see a piece of intestine. We had an infection scare a few weeks ago and ended up in the emergency room. But the doctor pushed out all the puss and it was all fine. Kim remains awesome. She packs the wound with wet gauze three times a day with no complaint.
I'll tell what I don't like - my ileostomy. I had a colostomy for 8 months and did just fine. There were a few blow outs, but for the most part, Stuey the Stoma would poop every now and then, I'd empty the bag and then be back to whatever I was doing. There was always a reasonable chance I could make it through a soccer practice or a meeting without any pooping. It's totally different with Mr. Dribbles. He dribbles all day and all night. He NEVER STOPS!! Sometimes when I empty the bag, by the time I get the clip back on the bag there's already more dribbles. For some reason can't stand this and have to have the bag totally empty. So I sit back down and empty the bag as fast as I can. It's like some sort of demented race. And the little **** head usually wins.
I could go on complaining for a while, but when I come on here I'm reminded that I'm in pretty good shape. I'm still fighting. The crows are still with me. The sparks have been dim lately, but they are getting brighter and I send many many of them to you.
Take Care
Roger
It is so good to see you here. Holding you in the Light for continued healing and uplifted spirits.
~Audrey0 -
nice to see your postCrow71 said:Hey Folks. Thanks for asking
Hey Folks. Thanks for asking about me. I've been reading and keeping up with everybody. I guess I haven't had much to say lately. Plenty of bad news lately.
HIPEC is a real ****. At this point, everything on the inside has pretty much healed. There is lots of scar tissue and adhesions that cause some pain from time to time. I'm off the pain meds though. My energy level has been very low but is improving. I've been down emotionally, but that's getting better too. The cancer psychologist says I'm having a "depressive episode." Darn right I am. But as I feel better physically, I feel better emotionally as well. Everyone said it would take a long time to recover. They were right.
The wound is healing slowly but surely. A few inches have closed at the bottom near my pubic bone. It's still a few inches wide from my breast bone to my navel. At first we could see a piece of my liver at the bottom of the wound, but that's finally covered over. We can still see a piece of intestine. We had an infection scare a few weeks ago and ended up in the emergency room. But the doctor pushed out all the puss and it was all fine. Kim remains awesome. She packs the wound with wet gauze three times a day with no complaint.
I'll tell what I don't like - my ileostomy. I had a colostomy for 8 months and did just fine. There were a few blow outs, but for the most part, Stuey the Stoma would poop every now and then, I'd empty the bag and then be back to whatever I was doing. There was always a reasonable chance I could make it through a soccer practice or a meeting without any pooping. It's totally different with Mr. Dribbles. He dribbles all day and all night. He NEVER STOPS!! Sometimes when I empty the bag, by the time I get the clip back on the bag there's already more dribbles. For some reason can't stand this and have to have the bag totally empty. So I sit back down and empty the bag as fast as I can. It's like some sort of demented race. And the little **** head usually wins.
I could go on complaining for a while, but when I come on here I'm reminded that I'm in pretty good shape. I'm still fighting. The crows are still with me. The sparks have been dim lately, but they are getting brighter and I send many many of them to you.
Take Care
Roger
I know things are not great for you right now, but I am glad you posted. You have a lot of people who care about you here obviously and we think about you often. Hope you get Mr. Dribbles under control enough to satisfy you and may you continue to progress both physically and emotionally. Your one of the good guys!!
Chris0 -
IleostomyCrow71 said:Hey Folks. Thanks for asking
Hey Folks. Thanks for asking about me. I've been reading and keeping up with everybody. I guess I haven't had much to say lately. Plenty of bad news lately.
HIPEC is a real ****. At this point, everything on the inside has pretty much healed. There is lots of scar tissue and adhesions that cause some pain from time to time. I'm off the pain meds though. My energy level has been very low but is improving. I've been down emotionally, but that's getting better too. The cancer psychologist says I'm having a "depressive episode." Darn right I am. But as I feel better physically, I feel better emotionally as well. Everyone said it would take a long time to recover. They were right.
The wound is healing slowly but surely. A few inches have closed at the bottom near my pubic bone. It's still a few inches wide from my breast bone to my navel. At first we could see a piece of my liver at the bottom of the wound, but that's finally covered over. We can still see a piece of intestine. We had an infection scare a few weeks ago and ended up in the emergency room. But the doctor pushed out all the puss and it was all fine. Kim remains awesome. She packs the wound with wet gauze three times a day with no complaint.
I'll tell what I don't like - my ileostomy. I had a colostomy for 8 months and did just fine. There were a few blow outs, but for the most part, Stuey the Stoma would poop every now and then, I'd empty the bag and then be back to whatever I was doing. There was always a reasonable chance I could make it through a soccer practice or a meeting without any pooping. It's totally different with Mr. Dribbles. He dribbles all day and all night. He NEVER STOPS!! Sometimes when I empty the bag, by the time I get the clip back on the bag there's already more dribbles. For some reason can't stand this and have to have the bag totally empty. So I sit back down and empty the bag as fast as I can. It's like some sort of demented race. And the little **** head usually wins.
I could go on complaining for a while, but when I come on here I'm reminded that I'm in pretty good shape. I'm still fighting. The crows are still with me. The sparks have been dim lately, but they are getting brighter and I send many many of them to you.
Take Care
Roger
Wow, Roger, i can sure relate! Like Mary, i couldn't stand to even look at my stoma. My boyfriend changed my bag for me, but eventually, i was able to do it myself, but always with trepidation. I hated it. It constantly leaked, or blew out completely, often times in public places. After fifteen months with it, i was sure happy to see it go. Even with all the bowel issues that have followed (stricture), i was happy i did it. I did have considerations of going back and getting a colostomy, but i'm so happy i didn't do that now. Do you know how long you'll have this one?
As far as pain and healing, my Chinese doctor has helped me so much with that since my last surgery four weeks ago. The pain was so intense until the first treatment. I was amazed at how fast the pain went almost completely away, and the wound began healing faster. I've had two treatments now, and i am without my binder, and actually feel 'normal'. There are two places where my suture wound opened up, and it looked like i was getting an infection in both places. After the first acupuncture treatment, the openings pussed through the bandaging, binder, my underwear, and my pants. After that, it was fine, and no longer looks infected. I wish you were in my area so i could recommend her to you.
Wishing you a speedy recovery!
Hugs,
Krista0 -
This comment has been removed by the ModeratorKathleen808 said:Roger
Roger,
It is so good to hear from you. Glad you have Kim by your side. You two are a good team. Keeping you in my thoughts and prayers.
Aloha,
Kathleen0
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