OMG ca 125 4000

pambakercity
pambakercity Member Posts: 15
edited March 2014 in Ovarian Cancer #1
My check up the 9th of June after being off for 5 months. I am just Floored. I went in for a ct scan the 14th and haven't heard back yet. I am calling tomorrow. This is my 4th recurrence I believe....at this point I don't know anything about anything--just a fog. Anybody have these high of numbers with a recurrence?

Comments

  • Unknown
    Unknown
    #2
    This comment has been removed by the Moderator
  • pambakercity
    pambakercity Member Posts: 15
    #3
    unknown said:

    This comment has been removed by the Moderator

    I was dx Dec.2006 I had a
    I was dx Dec.2006 I had a 5 month break my ca 125 was down to 16 January 2010
  • eward
    eward Member Posts: 210
    #4
    high numbers
    My mom was dx April of 2009 and her numbers were up to 3800 3 months after she finished chemo. She is back in treatment on doxil and her numbers are inching down so far to 3200 and now 2500.

    Are you feeling well?? Do you have primary peritoneal or ovarian cancer?
    Eileen
  • pambakercity
    pambakercity Member Posts: 15
    #5
    eward said:

    high numbers
    My mom was dx April of 2009 and her numbers were up to 3800 3 months after she finished chemo. She is back in treatment on doxil and her numbers are inching down so far to 3200 and now 2500.

    Are you feeling well?? Do you have primary peritoneal or ovarian cancer?
    Eileen

    ovarian cancer stage 2 but I
    ovarian cancer stage 2 but I am worried that that may go up too. I was feeling fine other than a cold I can't shake, but now of course I am freaking my self out with every little twinge and twang. I am really being my own worst enemy with the crap in my head and the waiting game.
  • eward
    eward Member Posts: 210
    #6
    pambakercity said:

    ovarian cancer stage 2 but I
    ovarian cancer stage 2 but I am worried that that may go up too. I was feeling fine other than a cold I can't shake, but now of course I am freaking my self out with every little twinge and twang. I am really being my own worst enemy with the crap in my head and the waiting game.

    hope
    I hope that your stage won't change and that your number is up for some other reason. You are not alone in being your own worst enemy with thoughts and waiting out the testing. Sometimes the waiting is harder than actually finding out what is going on, isn't it?

    Best of luck and health. Keep us posted.
    Eileen
  • msfanciful
    msfanciful Member Posts: 559
    #7
    Please don't beat yourself
    Please don't beat yourself up with the numbers games so much.

    It could be numerous reasons that they are.

    We all have panicked when our numbers rise or for me when waiting on the results from my scans.

    Just stay positive and be determined to gain as much knowledge of this cancer so that you will know exactly what you are dealing with and what it will take to beat it.


    Prayers to you,


    Sharon
  • nancy591
    nancy591 Member Posts: 1,027 Member
    #8
    pambakercity said:

    ovarian cancer stage 2 but I
    ovarian cancer stage 2 but I am worried that that may go up too. I was feeling fine other than a cold I can't shake, but now of course I am freaking my self out with every little twinge and twang. I am really being my own worst enemy with the crap in my head and the waiting game.

    not alone
    I think most of us panic with every ache or pain. I know that I definately do that. Yes, waiting for the other shoe to drop.

    GOOD LUCK!
  • pambakercity
    pambakercity Member Posts: 15
    #9
    msfanciful said:

    Please don't beat yourself
    Please don't beat yourself up with the numbers games so much.

    It could be numerous reasons that they are.

    We all have panicked when our numbers rise or for me when waiting on the results from my scans.

    Just stay positive and be determined to gain as much knowledge of this cancer so that you will know exactly what you are dealing with and what it will take to beat it.


    Prayers to you,


    Sharon

    Thank you so much for your
    Thank you so much for your replies. Went to Boise yesterday for doc. I have cancer fluid build up in my belly and abdomen, tumor still in the lining of my pelvis. Can't take platinum drugs no more so I am on abraxane and avistin. He said we would do this for 5 months every two weeks and we had lots of options if this doesn't work. Poor Doc... I have always been so positive but yesterday I felt my banana peel slip out from under me....
    I think/ pretend I am better today, I truly feel I am in the best of hands. Thank God he brought me to my Doc everyday.
  • nancy591
    nancy591 Member Posts: 1,027 Member
    #10
    pambakercity said:

    Thank you so much for your
    Thank you so much for your replies. Went to Boise yesterday for doc. I have cancer fluid build up in my belly and abdomen, tumor still in the lining of my pelvis. Can't take platinum drugs no more so I am on abraxane and avistin. He said we would do this for 5 months every two weeks and we had lots of options if this doesn't work. Poor Doc... I have always been so positive but yesterday I felt my banana peel slip out from under me....
    I think/ pretend I am better today, I truly feel I am in the best of hands. Thank God he brought me to my Doc everyday.

    sorry to hear
    Why no more platinum meds? What chemo meds have you been on thus far?

    Yes, there are still lots of options. Good luck with avastin. You may get huge success from that. I haven't heard of abraxane.

    Keep holding on, Pam.

    GOOD LUCK!
  • katie.bug
    katie.bug Member Posts: 14
    #11
    pambakercity said:

    Thank you so much for your
    Thank you so much for your replies. Went to Boise yesterday for doc. I have cancer fluid build up in my belly and abdomen, tumor still in the lining of my pelvis. Can't take platinum drugs no more so I am on abraxane and avistin. He said we would do this for 5 months every two weeks and we had lots of options if this doesn't work. Poor Doc... I have always been so positive but yesterday I felt my banana peel slip out from under me....
    I think/ pretend I am better today, I truly feel I am in the best of hands. Thank God he brought me to my Doc everyday.

    hang in there
    will pray for
    hang in there

    will pray for you

    so sorry to hear about the tumor still being there
  • pambakercity
    pambakercity Member Posts: 15
    #12
    katie.bug said:

    hang in there
    will pray for
    hang in there

    will pray for you

    so sorry to hear about the tumor still being there

    Ladies, You all are so
    Ladies, You all are so awesome and positive. I am so great full for this sight. I am usually a "Lurker" I only get access of a computer at work early-----prolly a good thing cause if I had one at home I would be a "Stalker" LOL

    I can't do the platinum drugs no more cause they both cisplat and carbo were rejected violently by my body, guess we used them too much 3 1/2 years off and on.
    Last reaction was January 2010 on my last treatment.

    It was explained to me that one of the drugs was like taxol (it was like a liquid soap in the iv bag) and the other one was "gonna choke the life out of the tumor"

    Good news the side effects on both these drugs are very minimal compared to the platinum drugs. Might not even lose my hair..course I believe hair is highly over rated after being bald for so long and the hot flashes being so many.....I don't know how I feel about that.

    Anyway thank you all so very much for all your info and inspirations here, Pam
  • Unknown
    Unknown
    #13
    pambakercity said:

    Ladies, You all are so
    Ladies, You all are so awesome and positive. I am so great full for this sight. I am usually a "Lurker" I only get access of a computer at work early-----prolly a good thing cause if I had one at home I would be a "Stalker" LOL

    I can't do the platinum drugs no more cause they both cisplat and carbo were rejected violently by my body, guess we used them too much 3 1/2 years off and on.
    Last reaction was January 2010 on my last treatment.

    It was explained to me that one of the drugs was like taxol (it was like a liquid soap in the iv bag) and the other one was "gonna choke the life out of the tumor"

    Good news the side effects on both these drugs are very minimal compared to the platinum drugs. Might not even lose my hair..course I believe hair is highly over rated after being bald for so long and the hot flashes being so many.....I don't know how I feel about that.

    Anyway thank you all so very much for all your info and inspirations here, Pam

    This comment has been removed by the Moderator

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