To those of you with this cancer
Comments
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Hi,
It's so nice that you
Hi,
It's so nice that you want to do things for your mom to comfort her! I'm so sorry that she's going through this! I just finished my fourth treatment and can start with a few suggestions:
1) I love my heating pad!
2) I brought a pillow and a cozy blanket downstairs to the loveseat so I could hang out with the family ...laying down when I was feeling bad, and sitting up and doing normal "mom" stuff when I felt better!
3) I've been craving slurpees, perhaps your mom is craving a certain food as well?
4) I also shaved my head so I didn't go through the gradual hair loss thing. We had a mohawk for a minute party about two weeks after my first chemo (see profile pic
5) Just hang out and watch a movie with her. It always makes me feel better when my daughter just spends time with me!
Websites for headscarves:
www.4women.com The BeauBeau, a little pricey
www.headcovers.com I love this site! 36" square scarves are great for tying! I have a variety of silk ones and cotton ones. They are fairly affordable. They also have hats with a UPF of 50.
Best of luck to you and your mom! It sounds like she's in good hands with you!
Hugs,
Leesa0 -
to Leesaleesag said:Hi,
It's so nice that you
Hi,
It's so nice that you want to do things for your mom to comfort her! I'm so sorry that she's going through this! I just finished my fourth treatment and can start with a few suggestions:
1) I love my heating pad!
2) I brought a pillow and a cozy blanket downstairs to the loveseat so I could hang out with the family ...laying down when I was feeling bad, and sitting up and doing normal "mom" stuff when I felt better!
3) I've been craving slurpees, perhaps your mom is craving a certain food as well?
4) I also shaved my head so I didn't go through the gradual hair loss thing. We had a mohawk for a minute party about two weeks after my first chemo (see profile pic
5) Just hang out and watch a movie with her. It always makes me feel better when my daughter just spends time with me!
Websites for headscarves:
www.4women.com The BeauBeau, a little pricey
www.headcovers.com I love this site! 36" square scarves are great for tying! I have a variety of silk ones and cotton ones. They are fairly affordable. They also have hats with a UPF of 50.
Best of luck to you and your mom! It sounds like she's in good hands with you!
Hugs,
Leesa
Hi Leesa- I see you are beautiful also! Awwe.. thanks for the advice- I sure can use any good ideas I can get. she doesn't have much of an appetite. I was thinking she had nausea but it's more pain. I thought being there often may be too much .. I have a daughter who is very close to her,too. She's 8. We are all close. Thanks for the great info and it's so nice to meet you- praying for your quick healing too !!!0 -
I made friends with my wigs
I made friends with my wigs early-on. During the winter, I wore hats quite a bit - mostly the "baseball cap" variety. I have never worn a scarf. Most of them have too much fabric (my head is very small) and I never learned to tie one properly.
The American Cancer Society sells head gear (www.tlcdirect.org) and they have have a very liberal return policy (unusual for wigs). Call 1-800-850-9445 for a free catalog.
I have a human hair wig and a synthetic wig. I like both, but for different reasons. Nothing feels like human hair except human hair. But everything that effects your own hair will effect it, too: humidity, etc. They have to be "set" or styled, unlike the synthetics, which are just shake and go. There are also blends.
Full mono-filament tops are best. If you part your hair (or it gets blown around in the wind), the "scalp" looks absolutely natural.
Online, wigs cost at least 50% less than in a bricks and mortar store. The one in my photo (Wendy from the Rene of Paris Amore collection) was $329 at the wig shop. I paid $75.00 online.
I just ordered a medical wig with a special lining that is supposed to fit very securely. It is especially designed for people with little or no hair. I will post a review after I receive it. And again, I only paid $75.00 online for a wig that retails for over $300.
My insurance paid for my first wig. Medicare will not pay for wigs, but if your mom has other insurance, they might.
Carlene0 -
Carlene- that looks like itHissy_Fitz said:I made friends with my wigs
I made friends with my wigs early-on. During the winter, I wore hats quite a bit - mostly the "baseball cap" variety. I have never worn a scarf. Most of them have too much fabric (my head is very small) and I never learned to tie one properly.
The American Cancer Society sells head gear (www.tlcdirect.org) and they have have a very liberal return policy (unusual for wigs). Call 1-800-850-9445 for a free catalog.
I have a human hair wig and a synthetic wig. I like both, but for different reasons. Nothing feels like human hair except human hair. But everything that effects your own hair will effect it, too: humidity, etc. They have to be "set" or styled, unlike the synthetics, which are just shake and go. There are also blends.
Full mono-filament tops are best. If you part your hair (or it gets blown around in the wind), the "scalp" looks absolutely natural.
Online, wigs cost at least 50% less than in a bricks and mortar store. The one in my photo (Wendy from the Rene of Paris Amore collection) was $329 at the wig shop. I paid $75.00 online.
I just ordered a medical wig with a special lining that is supposed to fit very securely. It is especially designed for people with little or no hair. I will post a review after I receive it. And again, I only paid $75.00 online for a wig that retails for over $300.
My insurance paid for my first wig. Medicare will not pay for wigs, but if your mom has other insurance, they might.
Carlene
Carlene- that looks like it would be your real hair and I thought it was- very attractive- thanks a lot for this info..as I am a newbie and so is my mom obviously- she is such a pretty lady and this will a challenge but you ladies are quite an inspiration. Thanks so much. Michele0 -
Hello LuvMyMom
Your mom is really lucky to have such a kind caring daughter looking out for her. Thia will mean such alot to her.
1.When I was in hospital having one of my procedures my sons girlfriend gave me a lovely foot rub. I wasn't in any pain, but it was so relaxing and comforting.
2. Another thing, I still spend some time relaxing in bed and I have a "V" pillow that makes it comfortable to sit up in bed if I want to read or use the Lap top.
3. After Chemo food tastes odd and I used to like to suck hard boiled fruit sweets and fruit ice lollies.
4. Sometimes I like to lie on the sofa in the lounge so I wasn't missing out on what the family were doing. So I have this soft blanket that I use and instead of sofa scatter cushions my son got me a feather pillow.
I am sure you'll do everything to make her feel good.
Love Tina xx0 -
Thank you!Tina Brown said:Hello LuvMyMom
Your mom is really lucky to have such a kind caring daughter looking out for her. Thia will mean such alot to her.
1.When I was in hospital having one of my procedures my sons girlfriend gave me a lovely foot rub. I wasn't in any pain, but it was so relaxing and comforting.
2. Another thing, I still spend some time relaxing in bed and I have a "V" pillow that makes it comfortable to sit up in bed if I want to read or use the Lap top.
3. After Chemo food tastes odd and I used to like to suck hard boiled fruit sweets and fruit ice lollies.
4. Sometimes I like to lie on the sofa in the lounge so I wasn't missing out on what the family were doing. So I have this soft blanket that I use and instead of sofa scatter cushions my son got me a feather pillow.
I am sure you'll do everything to make her feel good.
Love Tina xx
Tina-
Thanks for the note-- you are so sweet- I love everyone's positive attitude here and all the support you give one another and as a newbie, giving me . The support is great. I think about all of you along with my mom each day now. I appreciate the advice and each day I am doing things that I can and taking food for my dad too since he is taking care of her a lot. She is just tired and short of breath and all, but otherwise looks great. I want her to be able to sleep more and dr called something to help her..(my fingers are crossed) Thanks sweetie! What a beautiful bunch of ladies on this board. :-) I thought of the foot rub- (great idea!) Hugs-- xoxo Michele0 -
To LuvMyMom3
Hi there,
I have just another suggestion for you.
I am a volunteer/facilitator for the "Look Good Feel Better" program affiliated with the ACS.
It is wonderful in that we offer any lady with cancer, a very nice make-up bag coordinating with her skin tone. (Trust me this is worth-while, the make-up is namebrand donated by top companies i.e. Clinique, Clarins, MarkKay, Mac, Bobbie Brown,Prescriptives, etc.).
Also any lady that signs up is also offered two free wigs a year; along with turbans, hats, halos scarves, etc.
If the client is homebound, ACS also has the facilitator to pay them a personal visit. It makes them feel very special I think.
I'm not sure what area you are in, but it would definitely be worthwhile to look into, plus; it's a free service.
The facilitators by the way ARE licensed cosmetologists, so they may truly be able to help your mother with her styling needs and questions. I would give ACS a call and ask about the "Look Good Feel Better" program.
Prayers to you for looking out for your mom and prayers that she gets better soon.
Sharon0 -
thanks Sharon!msfanciful said:To LuvMyMom3
Hi there,
I have just another suggestion for you.
I am a volunteer/facilitator for the "Look Good Feel Better" program affiliated with the ACS.
It is wonderful in that we offer any lady with cancer, a very nice make-up bag coordinating with her skin tone. (Trust me this is worth-while, the make-up is namebrand donated by top companies i.e. Clinique, Clarins, MarkKay, Mac, Bobbie Brown,Prescriptives, etc.).
Also any lady that signs up is also offered two free wigs a year; along with turbans, hats, halos scarves, etc.
If the client is homebound, ACS also has the facilitator to pay them a personal visit. It makes them feel very special I think.
I'm not sure what area you are in, but it would definitely be worthwhile to look into, plus; it's a free service.
The facilitators by the way ARE licensed cosmetologists, so they may truly be able to help your mother with her styling needs and questions. I would give ACS a call and ask about the "Look Good Feel Better" program.
Prayers to you for looking out for your mom and prayers that she gets better soon.
Sharon
This sounds just perfect, Sharon. Thank you so very much- what a great program for this situation. I will most definltely check it out. HUGS and prayers sent to you ...too-
Michele0 -
Mornining Michelle,
Meds has
Mornining Michelle,
Meds has me up again, but just wanted to let you know I'm keeping you in my daily prayers.
Love,
Sharon0 -
HUGE hugs to you... Sharon-msfanciful said:Mornining Michelle,
Meds has
Mornining Michelle,
Meds has me up again, but just wanted to let you know I'm keeping you in my daily prayers.
Love,
Sharon
HUGE hugs to you... Sharon- Praying for you too.. mom got her port today - said it felt "WEIRD"0 -
scarves
I found a wonderful site on the internet (headcovers). They have hundreds of scarves and hats. I could not wear wigs. It was last summer when I had chemo and it is soooo hot in south Georgia. I love sequins though and found several scarves with pretty ones. I read some of the other posts. I had a blanket also that I took with me to chemo, it was always so cold. Hope this helps!0 -
Hi thereLuvMyMom3 said:to Leesa
Hi Leesa- I see you are beautiful also! Awwe.. thanks for the advice- I sure can use any good ideas I can get. she doesn't have much of an appetite. I was thinking she had nausea but it's more pain. I thought being there often may be too much .. I have a daughter who is very close to her,too. She's 8. We are all close. Thanks for the great info and it's so nice to meet you- praying for your quick healing too !!!
My Mom aslo has ovarian cancer stage 4 and has been battling since Sept. 07. We're going through a rough patch right now and I'm reaching out to this online support system to get through the night. I have cancer touching my life in a few ways right now and sometimes I get tired of having it in my life. I had a bad dream and didn't want to go back to sleep. How is your Mom?0
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