PET /Cat results

Kathleen808
Kathleen808 Member Posts: 2,342 Member
edited March 2014 in Colorectal Cancer #1
Hi Friends,
We met with ****'s onc today and the PET/Cat they did on Wednesday showed all clear. We are very happy with these results. As you know he had surgery on May 13th and they felt good that the margins were clear. The plan is for 4 months of Folfori + Avastin. The onc here and Dr. Lenz will talk over the weekend and confirm that treatment. They ran a bunch of tests of his cancer and the oncs office here said they did not get the results that Lenz faxed so they need to follow up. **** will probably start chemo on Tuesday. He has been off since March 27 and is not looking forward to chemo again but we are hopeful that if there is remaining cancer it is killed with this round of chemo.

On another note, a bit of an update on our family. Thursday was my birthday and our 16 year old daughters birthday (both of us June10). We were just singing happy birthday with cake and all when our 13 year old went to the bathroom and had a lot of blood in her urine. Then she was in tremendous pain in her back. Within 15 minutes I had to leave with her to the ER (older daughter in tears because 16th birthday dinner was ruined). As I was driving her over the mountain to Honolulu she had a Grand Mal siezure (she has epilepsy). I had to pull over, call 911, administer emergency seizure med rectally, and wait for the ambulance. The ambulance took her to the ER with me following. She was in horrible pain. When they used a catheter on her, her urine was the color of dark tea. They had to give her 2 doses of morphine. **** came to the hospital at 11:00 as I was so worried about her. They were talking about all sorts of very scary kidney things. They admitted her to the hospital and at 3:00am she had a coke colored urine. I was so scared. However, at 6:00am Friday she had a fairly clear urine. It looks like she passed a kidney stone. We are home now. I got home at 10:30am today and **** and I went to the onc at 10:45am. We are very pleased with the good news but we are all very tired.

Thanks for your continued thoughts and prayers for **** and our family.

Aloha,
Kathleen
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Comments

  • lesvanb
    lesvanb Member Posts: 905
    #2
    Excellent news Kathleen and
    that was a scary story about your older daughter. I am so glad that all worked out well. Holding you all in my heart, and hoping for good sleep for you all.

    all the best, Leslie
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #3
    Hi Kathleen
    I am happy that
    Hi Kathleen

    I am happy that **** got good results from his scan. That must have been a scary episode with your 13 year old. I am glad to hear everyone is home now + hope your daughter is feeling much better. I hope you + your 16 year old celebrate your birthdays on another day. Belated Happy Birthday to you both!
  • jenhopesprays
    jenhopesprays Member Posts: 128 Member
    #4
    Kathleen,
    Oh my goodness...
    Kathleen,

    Oh my goodness... You brought tears to my eyes. Have you been through the wringer or what. Glad to hear you daughter is doing better but what a scare.

    Glad to hear that **** had a clean scan! Chemo stinks but it kills cancer so we love it too! I did the same thing after my HIPEC. 4 months of Folfiri w/ avastin.

    Oh and Happy Birthday!!!

    XO

    Jennifer

    PS. Guess who is in HNL for the weekend?
  • pf78248
    pf78248 Member Posts: 209
    #5
    How strong you must be, Kathleen!
    Kathleen,

    First of all, HAPPY BIRTHDAY to you and your "Sweet Sixteen" Daughter and CONGRATULATIONS to you and **** for the clean scans. That is wonderful news! But I am so sorry about your younger daughter's seizure and kidney stone. I hate that she was in so much pain and you were so frightened for her. Enough already! None of you deserved that. But it sounds that no permanent damage was done - just a lot of anxiety and loss of sleep. So I pray for your whole family to get some good rest this weekend.

    David was on the same chemo that **** will be on. It's hard on the liver so watch those numbers but it works. David's liver tumor disappeared with it for quite awhile. **** will see some hair loss, too,but most guys handle that part well. I am sorry he has to get back on chemo, but I am confident it will be just the insurance he needs. Let us know how he does with it.

    Take care of yourself, too.

    Hugs and Healing,
    Priscilla
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #6
    jenhopesprays said:

    Kathleen,
    Oh my goodness...
    Kathleen,

    Oh my goodness... You brought tears to my eyes. Have you been through the wringer or what. Glad to hear you daughter is doing better but what a scare.

    Glad to hear that **** had a clean scan! Chemo stinks but it kills cancer so we love it too! I did the same thing after my HIPEC. 4 months of Folfiri w/ avastin.

    Oh and Happy Birthday!!!

    XO

    Jennifer

    PS. Guess who is in HNL for the weekend?

    Jen
    Jen,
    Are you here? Who's here? I'm curious. :)

    Kathleen
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #7
    oh my
    Hi Kathleen,

    Wonderful news about ****'s "all clear" scan!!! SO glad to hear it!
    Sorry about your daughter- that must have been scary. I can only imagine the drama involved with her and your 16 year old too.

    Praying for you guys!! Again- wonderful news about ****'s scan!

    Lisa
  • jenhopesprays
    jenhopesprays Member Posts: 128 Member
    #8
    Kathleen808 said:

    Jen
    Jen,
    Are you here? Who's here? I'm curious. :)

    Kathleen

    Wish it was me but it's my
    Wish it was me but it's my better half. I would have come if I could have squeezed onto the plane. :)
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #9
    jenhopesprays said:

    Wish it was me but it's my
    Wish it was me but it's my better half. I would have come if I could have squeezed onto the plane. :)

    Oh...
    Jen,
    I was hoping it was you. It would be great if you could jump on the plane this summer. Think about it. :)

    Aloha,
    Kathleen
  • jenhopesprays
    jenhopesprays Member Posts: 128 Member
    #10
    Kathleen808 said:

    Oh...
    Jen,
    I was hoping it was you. It would be great if you could jump on the plane this summer. Think about it. :)

    Aloha,
    Kathleen

    Sign me up!
    Call anytime if
    Sign me up!

    Call anytime if you want (or need) to chat.

    XOXO,

    Jen
  • maglets
    maglets Member Posts: 2,576 Member
    #11
    lisa42 said:

    oh my
    Hi Kathleen,

    Wonderful news about ****'s "all clear" scan!!! SO glad to hear it!
    Sorry about your daughter- that must have been scary. I can only imagine the drama involved with her and your 16 year old too.

    Praying for you guys!! Again- wonderful news about ****'s scan!

    Lisa

    happy birthday
    birthday greeting to you and your daughter Kathleen. so sorry about the kidney stone...that must have frightened you so badly.

    great news about ****....yes you just have to kick those few last bits of cancer ****....much better times ahead

    hugs
    mags
  • coloCan
    coloCan Member Posts: 1,944 Member
    #12
    maglets said:

    happy birthday
    birthday greeting to you and your daughter Kathleen. so sorry about the kidney stone...that must have frightened you so badly.

    great news about ****....yes you just have to kick those few last bits of cancer ****....much better times ahead

    hugs
    mags

    I guess if its not one thing, its something else....
    but seems like relatively happy endings so far for **** and your daughter, which means for you too...........steve
  • ktlcs
    ktlcs Member Posts: 358
    #13
    WOW
    What a weekend of ups and downs. Congratullations on ****'s scans, that really is great news. The situation with your daugther must have been terrifying, glad it worked out in the end and everyone is home and well.

    K
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #14
    Too much!
    Kathleen,

    Y'all have had such a time of it! I'm so very glad about ****'s news, and we'll keep praying for continued wellness for him. And I'm so sorry about the scare with your daughter, but I'm glad that is turning out not to be quite as scary as it looked at first.

    *hugs*
    Gail
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #15
    Wow
    Oh my goodness you have been through so much - and happy birthday to you both. So glad to hear of the good news on the scans but so sorry to hear of your daughter's episode with the urine and with the seizure. You all have been through so much and just hoping that things stay on the positive road for you all now. Glad she is doing better and that things have seemed to get better. You are such an amazing couple with tons of inspiration. You are always in my thoughts.

    Kim
  • dorookie
    dorookie Member Posts: 1,731 Member
    #16
    Tough birthday
    So glad to hear that Dicks results are good. Sorry to hear your little one had such troubles, glad she is doing better.

    Keeping **** and your family in my prayers

    Beth
  • HollyID
    HollyID Member Posts: 946 Member
    #17
    You just made my day...
    with ****'s all clear scan!!

    What a scare you must have had with your 13 year old. Kidney stones are very painful. Think about having a baby. I'm glad to read she's home and doing well. I hope you get to celebrate your belated birthday with your 16 year old. HAPPY BELATED BIRTHDAYS to you both!!
  • dmdwins
    dmdwins Member Posts: 454 Member
    #18
    HollyID said:

    You just made my day...
    with ****'s all clear scan!!

    What a scare you must have had with your 13 year old. Kidney stones are very painful. Think about having a baby. I'm glad to read she's home and doing well. I hope you get to celebrate your belated birthday with your 16 year old. HAPPY BELATED BIRTHDAYS to you both!!

    Emotional roller coaster
    What an emotional roller coaster of a day. So many emotions...no wonder you are all exhausted.

    I can't tell how so very happy I am for ****'s great news.

    I am glad that your daughter is doing better and sending some healing prayers.

    My heart also goes out to you 16yo daughter....Im sure she felt like it was her special day (and yours too) As much as she understands that what happened was unavoidable..I can feel her sadness. I hope she can have a grand celebration another day.


    Smiles,
    Dawn
  • PGLGreg
    PGLGreg Member Posts: 731
    #19
    Goodness gracious. If it
    Goodness gracious. If it isn't one thing, it's another. I can't help wondering why you had to go "over the mountain". I had to do that once when my mother was ill, and I wound up having to make that trek every day for months, when she was admitted to St. Francis. But I'm sure there must have been a good reason. I guess that it was just a kidney stone is good news?

    My wife and I were shopping today at the Kailua Safeway, and it occurred to me that one day I will surely run across you there.

    I'm happy to hear that ****'s tests and prospects continue to be good.

    --Greg
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #20
    PGLGreg said:

    Goodness gracious. If it
    Goodness gracious. If it isn't one thing, it's another. I can't help wondering why you had to go "over the mountain". I had to do that once when my mother was ill, and I wound up having to make that trek every day for months, when she was admitted to St. Francis. But I'm sure there must have been a good reason. I guess that it was just a kidney stone is good news?

    My wife and I were shopping today at the Kailua Safeway, and it occurred to me that one day I will surely run across you there.

    I'm happy to hear that ****'s tests and prospects continue to be good.

    --Greg

    Greg,
    Hi Neighbor,
    We go over the mountain because Kapiolani has all of Katie's records and they are very extensive. Let's put it this way, we go in the ER or up on the floor and at least 1/2 the docs and nurses say, "Oh hi , we remember Katie." Castle is a great hospital too but the folks at Kap know Katie.

    You'll need to come up to me at Safeway to say hi cuz I don't know what you look like. :) **** was in Safeway yesterday, if you see him say hi.

    Aloha,
    Kathleen
  • taraHK
    taraHK Member Posts: 1,952 Member
    #21
    here we go again
    So scary about your daughter! Hope she is totally OK now.

    Great news about the clear scan - yea!!

    I've just started chemo again, after a long break (one year). So, I can certainly sympathise with what **** and you will soon be going through: "here we go again". If it's any consolation -- I survived my first cycle with reasonable side effects and no nasty surprises (new 'cocktail') -- here's hoping **** has a very smooth ride.....

    Tara

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