Chef Daddy New Tread and up-date from Mike
Comments
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Boy did I miss you guysClearblue said:MIKES BACK in TOWN
Like i said before, u dont know me and it doesnt matter.
Youre a warrior sir.
C.Blue
Hi guys, t's so great to communicate with you again. I truly missed you. It was terribly lonely and scary in the hospital for those two months. It's a nasty feeling when you feel like your group of doctors are outside your door flipping coins as to what to do or not to do to you. The last group of doctors (residents) basically told me I wasn't going to survive and that they were sending me to a nursing home to die. I was there about 3 hours and they sent me back to the hospital because they were not prepared to properly care for me. I spent a few more days with the doctors pushing me to go to a Hospice and I finally put my foot down and told them I was going home. I'm so very glad I made that choice. I was very concerned that I was putting to much on my children, especially if I were dying. But prayers were answered and things started turning around. I stopped the morphine last night so I'm hoping to see a remarketable change in my digestive track.
I too have been dealing with Thrush, while in the hospital it covered my entire mouth, making it painfully hard to swallow. Now that I'm home I have it contained to my tongue I find that brushing my tongue with the medicine is more effective.
My home health nurse just left and was pleased with my progress, so I'm a happy camper!
I have a lot of weight to put back on, nearly 70 pounds. I have no muscle mass left at all, my upper arms that were 21 inches in my youth are now 7 inches with no strength.
I have never been through anything like this before so if any of you are nutrition savvy please share your ideas or recopies. I'm starting to tolerate some soft things if pureed. Tonight I'm making the kids spaghetti with clam sauce and I'm going to try to puree that and with a little milk added should be able to drink it.
I apologies for being so chatty, but it feels great to be able to sit up and type without feeling like I'm going to pass out.
God has been very merciful to me and my family.
Your friend
Mike0 -
Hi daddy Mikemicktissue said:Mike
Hi Mike.
I got the PEG the last week of treatment when I couldn't swallow anymore and still have it 9+ weeks post-treatment. I've had complications due to thrush and blocked salivary ducts that have made recovery a bit slower than usual, but on the whole feeling pretty good.
Swallowing is difficult. I tried watermelon last week. The juice went down pretty good, but the bits just would not go down. My ENT says there's a lot of thick, rubbery mucus and little in the way of lubrication, but added that the swelling is less. He doesn't want to see me for 6 weeks! I guess he's not worried.
In the meantime I have a PET/CT scan scheduled for the last week of June. Kinda nervous about that. Oh, in the meantime I finished my MA (counseling) which was awesome.
I would have been on here more, crying about my recovery had you not been going through the roughest time I've ever heard anyone going through. Your strength has been a real inspiration to me and a lot of others here. I'm sorry you had to go through that but hope you realize how much your journey has meant to people here.
Best,
Mick
I’ve got to second what Mick said, you have truly been an inspiration to all of us here my friend.0 -
IdeaChefdaddy said:Boy did I miss you guys
Hi guys, t's so great to communicate with you again. I truly missed you. It was terribly lonely and scary in the hospital for those two months. It's a nasty feeling when you feel like your group of doctors are outside your door flipping coins as to what to do or not to do to you. The last group of doctors (residents) basically told me I wasn't going to survive and that they were sending me to a nursing home to die. I was there about 3 hours and they sent me back to the hospital because they were not prepared to properly care for me. I spent a few more days with the doctors pushing me to go to a Hospice and I finally put my foot down and told them I was going home. I'm so very glad I made that choice. I was very concerned that I was putting to much on my children, especially if I were dying. But prayers were answered and things started turning around. I stopped the morphine last night so I'm hoping to see a remarketable change in my digestive track.
I too have been dealing with Thrush, while in the hospital it covered my entire mouth, making it painfully hard to swallow. Now that I'm home I have it contained to my tongue I find that brushing my tongue with the medicine is more effective.
My home health nurse just left and was pleased with my progress, so I'm a happy camper!
I have a lot of weight to put back on, nearly 70 pounds. I have no muscle mass left at all, my upper arms that were 21 inches in my youth are now 7 inches with no strength.
I have never been through anything like this before so if any of you are nutrition savvy please share your ideas or recopies. I'm starting to tolerate some soft things if pureed. Tonight I'm making the kids spaghetti with clam sauce and I'm going to try to puree that and with a little milk added should be able to drink it.
I apologies for being so chatty, but it feels great to be able to sit up and type without feeling like I'm going to pass out.
God has been very merciful to me and my family.
Your friend
Mike
Mike,
I have been making my dad this. I cook brocoli really soft and mash it with butter and a some cheese. I make sure I just use the florets so they mash up really easy. If you want you could add a little milk and warm it back up and you would have soup kinda. My dad could just eat the broccali now with out mashing but he really likes this.
I also have used the recipie from the back of Libby's pumpkin for pie. I do not put it in a shell I just pour it in a pie plate and back following the instructions. This was a good source of protein with the eggs and milk.
I was eating so much of the stuff I made my dad that I also gained 3 pounds, so I know it will work for weight gain.0 -
Glad Your BackChefdaddy said:Boy did I miss you guys
Hi guys, t's so great to communicate with you again. I truly missed you. It was terribly lonely and scary in the hospital for those two months. It's a nasty feeling when you feel like your group of doctors are outside your door flipping coins as to what to do or not to do to you. The last group of doctors (residents) basically told me I wasn't going to survive and that they were sending me to a nursing home to die. I was there about 3 hours and they sent me back to the hospital because they were not prepared to properly care for me. I spent a few more days with the doctors pushing me to go to a Hospice and I finally put my foot down and told them I was going home. I'm so very glad I made that choice. I was very concerned that I was putting to much on my children, especially if I were dying. But prayers were answered and things started turning around. I stopped the morphine last night so I'm hoping to see a remarketable change in my digestive track.
I too have been dealing with Thrush, while in the hospital it covered my entire mouth, making it painfully hard to swallow. Now that I'm home I have it contained to my tongue I find that brushing my tongue with the medicine is more effective.
My home health nurse just left and was pleased with my progress, so I'm a happy camper!
I have a lot of weight to put back on, nearly 70 pounds. I have no muscle mass left at all, my upper arms that were 21 inches in my youth are now 7 inches with no strength.
I have never been through anything like this before so if any of you are nutrition savvy please share your ideas or recopies. I'm starting to tolerate some soft things if pureed. Tonight I'm making the kids spaghetti with clam sauce and I'm going to try to puree that and with a little milk added should be able to drink it.
I apologies for being so chatty, but it feels great to be able to sit up and type without feeling like I'm going to pass out.
God has been very merciful to me and my family.
Your friend
Mike
Mike
Glad you are back and doing a lot better. I also am glad you have a home health nurse helping you out. After all of what Hondo was telling us about your treatment/troubles I told my wife I wish I could have went out there to help.
I cant even imagine what it would have been like to go thru all that alone. After my third week of chemo/radiation I told the hospital I was quitting, If not for my wonderful wife I would have. So you are one tough cookie.
Do they have you on anything for the thrush. Diflucan worked for me, dont really know if it was exactly thrush, but the 5FU left sores all over my mouth and tongue and that worked wonders. how is the iodine allergy going? Have you found anything that you can supplement with that doesn't contain it?
Did you get a port? I used mine for the first two months post for hydration, Had to go back every week to have it reaccessed with a new needle, but was able to hook things up myself.
Well anyway enough for now. Best Wishes & Prayers on your recovery.
Dave0 -
Great to see you posting!Chefdaddy said:Good news time!
Hi everyone,
I finally have some good news.
I've gained two pounds and the plumbing is starting to work a little bit on it's own. I am starting to be able to swallow some things, this morning I had a bowl of cream of wheat that was pretty wet with milk, but it went down well. I am still on the feeding pump. They delivered an electric hospital bed yesterday so that I can now safely pump feed through the night. I am getting stronger, the blood pressure has left the high 40's and back up to the 70's and 80's, so passing out has stopped.
I've been able to work myself back into the kitchen again for short stints, the kids are very happy, not only for my physical turn-around, but for some of dad's home cooking again.
I had bought a leg of lamb to celebrate my son's final chemo date, before my health went south.
I finally got to prepare it as if it were a holiday meal for them the other night and they were delighted. I had to sit down several times but I got through it. I'm getting a little stronger each day as long as I can get enough calories in me. It's very difficult using the Scandi-Shakes as they are extremely rich and nauseating. The vanilla flavor is so strong that even when fresh berries and flavored espresso syrups are added it doesn't remove the sickening vanilla flavor.
I would appreciate any ideas or recipes for any high calorie, high protein foods or soups that I can blend and drink.
I missed you all very much while stuck in the hospital, I thank you all for your phone calls. Unfortunately, they had me so drugged up that I don't remember all the details of our conversations, but what mattered most to me was that I knew I was not alone in that place.
Thank you all so very much for your endless prayers for me as well as for my children.
Your friend
Mike
Great to see you posting! All the best wishes..Many thoughts and prayers have been sent your way!!0 -
Good to see you posting.staceya said:Great to see you posting!
Great to see you posting! All the best wishes..Many thoughts and prayers have been sent your way!!
Good to see you posting. Have more pictures to email you. Lol0 -
Mike, are you kidding, weChefdaddy said:Boy did I miss you guys
Hi guys, t's so great to communicate with you again. I truly missed you. It was terribly lonely and scary in the hospital for those two months. It's a nasty feeling when you feel like your group of doctors are outside your door flipping coins as to what to do or not to do to you. The last group of doctors (residents) basically told me I wasn't going to survive and that they were sending me to a nursing home to die. I was there about 3 hours and they sent me back to the hospital because they were not prepared to properly care for me. I spent a few more days with the doctors pushing me to go to a Hospice and I finally put my foot down and told them I was going home. I'm so very glad I made that choice. I was very concerned that I was putting to much on my children, especially if I were dying. But prayers were answered and things started turning around. I stopped the morphine last night so I'm hoping to see a remarketable change in my digestive track.
I too have been dealing with Thrush, while in the hospital it covered my entire mouth, making it painfully hard to swallow. Now that I'm home I have it contained to my tongue I find that brushing my tongue with the medicine is more effective.
My home health nurse just left and was pleased with my progress, so I'm a happy camper!
I have a lot of weight to put back on, nearly 70 pounds. I have no muscle mass left at all, my upper arms that were 21 inches in my youth are now 7 inches with no strength.
I have never been through anything like this before so if any of you are nutrition savvy please share your ideas or recopies. I'm starting to tolerate some soft things if pureed. Tonight I'm making the kids spaghetti with clam sauce and I'm going to try to puree that and with a little milk added should be able to drink it.
I apologies for being so chatty, but it feels great to be able to sit up and type without feeling like I'm going to pass out.
God has been very merciful to me and my family.
Your friend
Mike
Mike, are you kidding, we have been waiting for you to post and are thankful that you are strong enuf to type that much ;0) It is absolutely great to hear from you, even better than when we talked on the phone b/c now you are at home and still making great progress. I hope your children are doing as well as you are. I can only imagine how happy they must be, not only are you home and getting better but you're even well/strong enuf to cook great meals for them. I'll tell you, there is NOTHING in this world stronger that PRAYERS, you are a witness to that.
Take care, Mike, and continue to get better. Thank you for letting us know you are doing much better. We will all keep you and your children in our prayers.
God Bless You Friend,
debbiejeanne0 -
Mike, are you kidding, weChefdaddy said:Boy did I miss you guys
Hi guys, t's so great to communicate with you again. I truly missed you. It was terribly lonely and scary in the hospital for those two months. It's a nasty feeling when you feel like your group of doctors are outside your door flipping coins as to what to do or not to do to you. The last group of doctors (residents) basically told me I wasn't going to survive and that they were sending me to a nursing home to die. I was there about 3 hours and they sent me back to the hospital because they were not prepared to properly care for me. I spent a few more days with the doctors pushing me to go to a Hospice and I finally put my foot down and told them I was going home. I'm so very glad I made that choice. I was very concerned that I was putting to much on my children, especially if I were dying. But prayers were answered and things started turning around. I stopped the morphine last night so I'm hoping to see a remarketable change in my digestive track.
I too have been dealing with Thrush, while in the hospital it covered my entire mouth, making it painfully hard to swallow. Now that I'm home I have it contained to my tongue I find that brushing my tongue with the medicine is more effective.
My home health nurse just left and was pleased with my progress, so I'm a happy camper!
I have a lot of weight to put back on, nearly 70 pounds. I have no muscle mass left at all, my upper arms that were 21 inches in my youth are now 7 inches with no strength.
I have never been through anything like this before so if any of you are nutrition savvy please share your ideas or recopies. I'm starting to tolerate some soft things if pureed. Tonight I'm making the kids spaghetti with clam sauce and I'm going to try to puree that and with a little milk added should be able to drink it.
I apologies for being so chatty, but it feels great to be able to sit up and type without feeling like I'm going to pass out.
God has been very merciful to me and my family.
Your friend
Mike
Mike, are you kidding, we have been waiting for you to post and are thankful that you are strong enuf to type that much ;0) It is absolutely great to hear from you, even better than when we talked on the phone b/c now you are at home and still making great progress. I hope your children are doing as well as you are. I can only imagine how happy they must be, not only are you home and getting better but you're even well/strong enuf to cook great meals for them. I'll tell you, there is NOTHING in this world stronger that PRAYERS, you are a witness to that.
Take care, Mike, and continue to get better. Thank you for letting us know you are doing much better. We will all keep you and your children in our prayers.
God Bless You Friend,
debbiejeanne0 -
Mike, are you kidding, weChefdaddy said:Boy did I miss you guys
Hi guys, t's so great to communicate with you again. I truly missed you. It was terribly lonely and scary in the hospital for those two months. It's a nasty feeling when you feel like your group of doctors are outside your door flipping coins as to what to do or not to do to you. The last group of doctors (residents) basically told me I wasn't going to survive and that they were sending me to a nursing home to die. I was there about 3 hours and they sent me back to the hospital because they were not prepared to properly care for me. I spent a few more days with the doctors pushing me to go to a Hospice and I finally put my foot down and told them I was going home. I'm so very glad I made that choice. I was very concerned that I was putting to much on my children, especially if I were dying. But prayers were answered and things started turning around. I stopped the morphine last night so I'm hoping to see a remarketable change in my digestive track.
I too have been dealing with Thrush, while in the hospital it covered my entire mouth, making it painfully hard to swallow. Now that I'm home I have it contained to my tongue I find that brushing my tongue with the medicine is more effective.
My home health nurse just left and was pleased with my progress, so I'm a happy camper!
I have a lot of weight to put back on, nearly 70 pounds. I have no muscle mass left at all, my upper arms that were 21 inches in my youth are now 7 inches with no strength.
I have never been through anything like this before so if any of you are nutrition savvy please share your ideas or recopies. I'm starting to tolerate some soft things if pureed. Tonight I'm making the kids spaghetti with clam sauce and I'm going to try to puree that and with a little milk added should be able to drink it.
I apologies for being so chatty, but it feels great to be able to sit up and type without feeling like I'm going to pass out.
God has been very merciful to me and my family.
Your friend
Mike
sorry for double post0 -
so grateful to see yousweetblood22 said:Good to see you posting.
Good to see you posting. Have more pictures to email you. Lol
so grateful to see you posting again
Kathy0 -
Hi Mike
It would be so nice if someday all of us here could all meet and get to really know each other as, we live, we talk, and we pray, for everyone here each day it is like a Family extension of people we learn to love and care for.
I guess in part that would be a miniature heaven on earth, take care my friend and may God continue to bless and give you strength each day.0 -
MikeHondo said:Hi Mike
It would be so nice if someday all of us here could all meet and get to really know each other as, we live, we talk, and we pray, for everyone here each day it is like a Family extension of people we learn to love and care for.
I guess in part that would be a miniature heaven on earth, take care my friend and may God continue to bless and give you strength each day.
Mike,
I've never spoke to you but have been following the threads on you. I am super impressed with all the friends you have here and the great attitude you have after all you've dealt with. Good luck.
Hondo. Great thought on getting together. Even though I'm fairly new here and don't post all that often, it is a great bunch of folks!!
Greg0 -
Chat Away!Chefdaddy said:Boy did I miss you guys
Hi guys, t's so great to communicate with you again. I truly missed you. It was terribly lonely and scary in the hospital for those two months. It's a nasty feeling when you feel like your group of doctors are outside your door flipping coins as to what to do or not to do to you. The last group of doctors (residents) basically told me I wasn't going to survive and that they were sending me to a nursing home to die. I was there about 3 hours and they sent me back to the hospital because they were not prepared to properly care for me. I spent a few more days with the doctors pushing me to go to a Hospice and I finally put my foot down and told them I was going home. I'm so very glad I made that choice. I was very concerned that I was putting to much on my children, especially if I were dying. But prayers were answered and things started turning around. I stopped the morphine last night so I'm hoping to see a remarketable change in my digestive track.
I too have been dealing with Thrush, while in the hospital it covered my entire mouth, making it painfully hard to swallow. Now that I'm home I have it contained to my tongue I find that brushing my tongue with the medicine is more effective.
My home health nurse just left and was pleased with my progress, so I'm a happy camper!
I have a lot of weight to put back on, nearly 70 pounds. I have no muscle mass left at all, my upper arms that were 21 inches in my youth are now 7 inches with no strength.
I have never been through anything like this before so if any of you are nutrition savvy please share your ideas or recopies. I'm starting to tolerate some soft things if pureed. Tonight I'm making the kids spaghetti with clam sauce and I'm going to try to puree that and with a little milk added should be able to drink it.
I apologies for being so chatty, but it feels great to be able to sit up and type without feeling like I'm going to pass out.
God has been very merciful to me and my family.
Your friend
Mike
Like the others have said, it's great to hear you're moving in the right direction from you. Hope those new docs will think of you the next time they consider writing someone off. Keep up the good work.0 -
LocationsHondo said:Hi Mike
It would be so nice if someday all of us here could all meet and get to really know each other as, we live, we talk, and we pray, for everyone here each day it is like a Family extension of people we learn to love and care for.
I guess in part that would be a miniature heaven on earth, take care my friend and may God continue to bless and give you strength each day.
Hondo & Greg,
I was actually thinking something similar and started to post the idea yesterday, maybe it's subject for a new thread....
Just an idea mind you, but perhaps there would be interest in starting a topic of locations. Letting everyone know where you are located. Maybe even getting together for a lunch or even sitting in on a treatment for support if desired....
I know that Hondo and I have met and had dinner as I have with Illoozions whom happens to be in my hometown. Anyways, just a thought, like others on here, I guess having cancer, going through this treatment and recovering has left me with a feeling of enjoyment in sharing my knowledge and experiences. It's a bond similar to being in the Marine Corps or service to me. It's a bond that you can't really experience or appreciate unless you have been there and done that....
John0 -
John / GregSkiffin16 said:Locations
Hondo & Greg,
I was actually thinking something similar and started to post the idea yesterday, maybe it's subject for a new thread....
Just an idea mind you, but perhaps there would be interest in starting a topic of locations. Letting everyone know where you are located. Maybe even getting together for a lunch or even sitting in on a treatment for support if desired....
I know that Hondo and I have met and had dinner as I have with Illoozions whom happens to be in my hometown. Anyways, just a thought, like others on here, I guess having cancer, going through this treatment and recovering has left me with a feeling of enjoyment in sharing my knowledge and experiences. It's a bond similar to being in the Marine Corps or service to me. It's a bond that you can't really experience or appreciate unless you have been there and done that....
John
Hi John:
I think that is a great idea to start a thread about where we live; who knows some of the people here may live next door to us and we would never know it.
Hi Greg:
I am glad to have you here are part of our family so drop in anytime you want, glad to here the good news on your all clear.0 -
MikeHondo said:John / Greg
Hi John:
I think that is a great idea to start a thread about where we live; who knows some of the people here may live next door to us and we would never know it.
Hi Greg:
I am glad to have you here are part of our family so drop in anytime you want, glad to here the good news on your all clear.
Any updates on Chefdaddy>0
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