A Dream To Come True....

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Comments

  • khl8
    khl8 Member Posts: 807
    #42
    Shayenne said:

    Hey Christy
    I'm not sure on the spheres now, the Folfox didn't give him the response yet he wants...some tumors have grown, some have shrunk, and some aren't doing anything at all, a mixed response, but I'll be doing my 5th treatment tomorrow, so maybe with the next scans he'll know more, he just wants to see how Folfox does first. I'm not doing it anymore if I get any signs of neuropathy though!

    Thanks all for the comments, I did have a great time, and I hope you do get to go to Disneyworld Don, that's another dream of mine for my kids. I have never been there myself.

    Hugsss!
    ~Donna

    Donna,
    I loved the pictures!
    Donna,
    I loved the pictures! you all look so happy! I am thrilled for you!!!!!!!!!
    As for the neuropathy, mine did not show its head until after I was all done, but for me it worked so far and honestly I would rather have the neuropahty than the alternative!
    Kathy
  • iluvmms
    iluvmms Member Posts: 134 Member
    #43
    Shayenne said:

    Hey Christy
    I'm not sure on the spheres now, the Folfox didn't give him the response yet he wants...some tumors have grown, some have shrunk, and some aren't doing anything at all, a mixed response, but I'll be doing my 5th treatment tomorrow, so maybe with the next scans he'll know more, he just wants to see how Folfox does first. I'm not doing it anymore if I get any signs of neuropathy though!

    Thanks all for the comments, I did have a great time, and I hope you do get to go to Disneyworld Don, that's another dream of mine for my kids. I have never been there myself.

    Hugsss!
    ~Donna

    Donna
    The spheres were what got me to resection. I know they are scarey, and each case is different, but I am thankful I did them. They told me repeatidly that I was not a candidate for resection, and after the sphere's I was. I have just done my first post surgery chemo, I hate it still as much as I did almost a year ago. I am not sure how many cycles I have to do for my "insurance policy" as they call it, but I will be glad when they are done.

    Christy
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #44
    Shayenne said:

    Hey Christy
    I'm not sure on the spheres now, the Folfox didn't give him the response yet he wants...some tumors have grown, some have shrunk, and some aren't doing anything at all, a mixed response, but I'll be doing my 5th treatment tomorrow, so maybe with the next scans he'll know more, he just wants to see how Folfox does first. I'm not doing it anymore if I get any signs of neuropathy though!

    Thanks all for the comments, I did have a great time, and I hope you do get to go to Disneyworld Don, that's another dream of mine for my kids. I have never been there myself.

    Hugsss!
    ~Donna

    Donna
    Hi again Donna,

    I just wanted to say I looked at your pics, so now I do know what your kids look like and can even better picture in my mind their faces as they saw the ocean for the first time! Wow- never been to Disneyworld either- you gotta list of things to do and go see now! Maybe you can make Disneyworld your next year's summer trip. That would be great for your whole family.

    Don't give up hope with the mixed scan results- watch the signs for neuropathy, but it can still do more work on those tumors.

    Take care!
    Lisa

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