New to Group today--metastatic breast cancer

sockmonkey123
sockmonkey123 Member Posts: 6
edited March 2014 in Breast Cancer #1
1st I had DCIS (non-infiltrating). After a double mastectomy, no radiation or chemo, years later cancer was found in my chest wall. I changed oncologists. This time I had chemo (AC & Taxol), then 35 rounds of radiation. I went on tamoxifen, faslodex, etc. Everything seemed to be going fine until 2007 when I had a recurrence in my R supraclavicular. I was placed on a study drug along w/Faslodex. So far so good I thought, The tumor shrunk & my scans looked good. But the tumor started to grow again & I started on another study drug this time a "PARC" inhibitor. What a great thing, the drug worked & allowed the tumor to shrink down where they could start radiation--so 22 rounds later...the radiation did work. Yeah, but last week I found out merely through an x-ray because I was having severe hip pain that I had a lesion on my femur. I was mortified! Now the oncological ortho wants to put a rod in my leg to prevent it from breaking. Then possible radiation & another drug to strengthen my bones. Has anyone had this procedure?? I don't know what's next. Thanks for letting me share my LONG story. It's great to be able to communicate with others who are going thru the same thing.

Comments

  • Kat11
    Kat11 Member Posts: 1,931 Member
    Welcome Sockmonkey
    I am sorry for the reason your here, but I am glad you found this site. I don't have the answers to your questions, but I am sure someone here might. I just wanted to welcome you and let you know there is someone here for you anytime.
  • CR1954
    CR1954 Member Posts: 1,390 Member
    sockmonkey......
    Like Kat, I don't have the answers either. But I too wanted to welcome you to the board and let you know that I will keep you in my prayers.
    Hopefully, someone here will have answers for you....

    Hugs,

    CR
  • lizzie17
    lizzie17 Member Posts: 548
    sorry
    I am sorry you are going through so much, and over a long period of time.
    My prayers are with you, and welcome to this group. Lots of support here.
  • Megan M
    Megan M Member Posts: 3,000
    CR1954 said:

    sockmonkey......
    Like Kat, I don't have the answers either. But I too wanted to welcome you to the board and let you know that I will keep you in my prayers.
    Hopefully, someone here will have answers for you....

    Hugs,

    CR

    Hi sockmonkey! Just want to
    Hi sockmonkey! Just want to welcome you also to a great support group. I will be praying for you!
  • Mama G
    Mama G Member Posts: 762
    lizzie17 said:

    sorry
    I am sorry you are going through so much, and over a long period of time.
    My prayers are with you, and welcome to this group. Lots of support here.

    Sockmonkey, you are one STRONG woman!~!~~~
    I'm amazed at all you've been through and BEATEN!! You can do this again! Keep the faith and keep fighting! It sounds like you are in good hands.
  • pinkkari09
    pinkkari09 Member Posts: 877 Member
    HI Sockmonkey and welcome to
    HI Sockmonkey and welcome to this site! Like Mama G said, sounds like your a true warrior, you have gone through a lot, mine was in my left breast all lymph nodes, inner mammery node and left supraclavicular, I'm good so far, but I have not had it in my bones, I know many women on here have and I'm sure you will be getting some good feedback soon. Again welcome an keep the faith.
    Cyber Hugs,
    ~Kari
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    Welcome, Sockmonkey. You
    Welcome, Sockmonkey. You are an inspiration and have certainly had your fair share. I can't believe that you have to go through this an additional time. I have been through a lumpectomy, chemo, rads and am on my 5-year plan of Arimidex. We are a very strong board with informative, supportive, caring and loving members. We'll be with you through your treatments so please keep us posted. Sending (((hugs))) your way!!!
  • bjmom1
    bjmom1 Member Posts: 152
    Have metastatic bc
    Hi sockmonkey, I found out about 2months ago I have bone met I had 10 round of radiation and once a month I take zometa infusion to strength my bones. I will go see a neruo surgeon to see how they can fix my T6 in my back. Good Luck on your treatments I hope I have answer your question.

    Barb
  • carkris
    carkris Member Posts: 4,553 Member
    bjmom1 said:

    Have metastatic bc
    Hi sockmonkey, I found out about 2months ago I have bone met I had 10 round of radiation and once a month I take zometa infusion to strength my bones. I will go see a neruo surgeon to see how they can fix my T6 in my back. Good Luck on your treatments I hope I have answer your question.

    Barb

    welcome, sorry you are here,
    welcome, sorry you are here, but its agreat site with lots of wonderful people. I just finished treatment and am going on a bone med every months IV to help prevent bone mets. I guess in studies in europe it has shown to decrease bone mets by 30 plus percent. I am also starting tamoxifen. hope they get rid of the cancer. hugs
  • sockmonkey123
    sockmonkey123 Member Posts: 6
    Kat11 said:

    Welcome Sockmonkey
    I am sorry for the reason your here, but I am glad you found this site. I don't have the answers to your questions, but I am sure someone here might. I just wanted to welcome you and let you know there is someone here for you anytime.

    Thank you
    Kat 11--Thank you for welcoming me...sometimes I find everything overwhelming & I need the support!
  • sockmonkey123
    sockmonkey123 Member Posts: 6
    bjmom1 said:

    Have metastatic bc
    Hi sockmonkey, I found out about 2months ago I have bone met I had 10 round of radiation and once a month I take zometa infusion to strength my bones. I will go see a neruo surgeon to see how they can fix my T6 in my back. Good Luck on your treatments I hope I have answer your question.

    Barb

    Thank you
    Thanks for letting me know about your bone met treatments. Yesterday I went to the oncologist & he changed my meds to Xeloda (oral chemo) & I will start zometa infusions once a month too after I get the surgery done to my leg. Do you have any side effects? Good luck to you too!
  • sockmonkey123
    sockmonkey123 Member Posts: 6
    CR1954 said:

    sockmonkey......
    Like Kat, I don't have the answers either. But I too wanted to welcome you to the board and let you know that I will keep you in my prayers.
    Hopefully, someone here will have answers for you....

    Hugs,

    CR

    Thank you
    CR: Thank you for your prayers & hugs. I have already gotten responses from others who have some answers for me. Thanks again for the support!
  • smalldoggroomer
    smalldoggroomer Member Posts: 1,184
    Welcome Sockmonkey
    I am so sorry to hear what you are going through. I will keep you in my prayers. You are in the right place to talk, vent, find answers, and make friends. We are all with you every step of the way. Keep us posted. Do you know when Surgery is yet? You are a Strong lady and the cancer don't have a chance.