Update on Tim

catya88
catya88 Member Posts: 50
edited March 2014 in Head and Neck Cancer #1
Hi Everyone

Been a while.

So, Tim was able to speak to the Chief of Oncology at Dana Farber Cancer Institute, Dr. P, he recommended a different second course than the one Tim's oncologist, Dr. R, wanted to go with. Dr. P spoke to Dr. R and she agreed to run his suggested treatment instead.

Tim's cancer has spread to his lungs, bones and skin and is still in his tongue.

The second course will go for three months and once a month he will get Zometa for his bones.

He is eating well an tasting a little more each day.

Anyone else have there cancer spread?

That's all for now - Cathy

Comments

  • Glenna M
    Glenna M Member Posts: 1,576
    #2
    Best wishes coming your way
    So sorry to hear about Tim's cancer spreading. I am only 8 months post treatment and have not had either of my cancers spread - yet. My medical oncologist told me he no longer needed to see me until it came back - not too encouraging but it could be years before that happens.

    Please stay strong and believe that good things will happen.

    My best to you and Tim.

    Glenna
  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #3
    Cathy, I'm so very, very
    Cathy, I'm so very, very sorry to hear that it has spread so much. Please don't give up and don't let him. You must keep fighting!! Alot of people are praying for you and Tim and that is probably the best medicine...lol. Please keep us posted as to how Tim is doing, we all care and wish you the best.
    God Bless,
    Debbie
  • catya88
    catya88 Member Posts: 50
    #4
    debbiejeanne said:

    Cathy, I'm so very, very
    Cathy, I'm so very, very sorry to hear that it has spread so much. Please don't give up and don't let him. You must keep fighting!! Alot of people are praying for you and Tim and that is probably the best medicine...lol. Please keep us posted as to how Tim is doing, we all care and wish you the best.
    God Bless,
    Debbie

    Thank so much
    Thanks everyone. I appreciate the prayers. I have good days and bad days, I've been with him eight years, I want many more years with him. It was a long two weeks after we found out it had spread. The spots were not there on the initial PET scan.

    As always the doctors weren't forthcoming on anything except the radiologist who just patted himself on the back and blew smoke rings about how much radiation Tim had and blah, blah, blah....I wanted to slap him!

    I still have high hopes it can be kept it checked.

    Glenna, that's great yours hasn't spread, and that your doctor doesn't need to see you, still, I understand. In the support group I go to, a few people don't know how to live cancer free, they worry about every ache, pain and bump, I'm sure it's nerve racking.

    Prayers to all - Cathy
  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #5
    catya88 said:

    Thank so much
    Thanks everyone. I appreciate the prayers. I have good days and bad days, I've been with him eight years, I want many more years with him. It was a long two weeks after we found out it had spread. The spots were not there on the initial PET scan.

    As always the doctors weren't forthcoming on anything except the radiologist who just patted himself on the back and blew smoke rings about how much radiation Tim had and blah, blah, blah....I wanted to slap him!

    I still have high hopes it can be kept it checked.

    Glenna, that's great yours hasn't spread, and that your doctor doesn't need to see you, still, I understand. In the support group I go to, a few people don't know how to live cancer free, they worry about every ache, pain and bump, I'm sure it's nerve racking.

    Prayers to all - Cathy

    Cathy, I'm afraid there're
    Cathy, I'm afraid there're are many, if not all, of us who worry like that. I think it is only human. As for the doctors, be pushy with them, sometimes that is the only way to get the info you need. Make them be straight with you.
    Good luck and God Bless,
    Debbie

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