Pam accepted for clinical trial NCT01051596

tabur
tabur Member Posts: 71 Member
edited March 2014 in Colorectal Cancer #1
Pam's onc hooked us up with a clinical trial at the Lombardi Cancer Center at Georgetown University. We have an appointment with the Principal Investigator on June 2nd. It's a 3+ hour drive for us but we are both excited and aprehensive, if that makes any sense. Details of the trial are here:
http://clinicaltrials.gov/show/NCT01051596

But first, we are going on a camping trip that we have been really looking forward to. Five nights at beautiful Hammond Lake in Tioga County, PA. We will keep you posted on the trip, and the trial, when time permits.

Warm wishes,

Al

Comments

  • zenmonk
    zenmonk Member Posts: 198
    #2
    please share your experience.
    I have not been through a clinic trial nor do I know anyone who has so I am looking forward to your future postings on your experince with this.
  • amyb15
    amyb15 Member Posts: 109 Member
    #3
    zenmonk said:

    please share your experience.
    I have not been through a clinic trial nor do I know anyone who has so I am looking forward to your future postings on your experince with this.

    that is great about the
    that is great about the clinical trial. What exactly is it for? How did you find out it was available? Hope ewverything goes perfect. Have a great time camping. WE live in Wayne County,PA. It is near the ".Poconos" if youu've ever heard of that. Please keep us posted about the trial. I will be sending toughts and prayers your way.

    Amy
  • tabur
    tabur Member Posts: 71 Member
    #4
    amyb15 said:

    that is great about the
    that is great about the clinical trial. What exactly is it for? How did you find out it was available? Hope ewverything goes perfect. Have a great time camping. WE live in Wayne County,PA. It is near the ".Poconos" if youu've ever heard of that. Please keep us posted about the trial. I will be sending toughts and prayers your way.

    Amy

    Hi Amy
    I guess I should have included a little background...

    Pam was dx, 12-08 Stage IV w/mets to liver. Inoperable. For the first 6 months of treatment she was on Folfox 6 w/Avastin. Due to complications, she had to be taken off this regiment. Since Aug 09, she has been on Irinotecan and Xeloda. Everything was working good and she was handling the regiment well but unfortunately, last week's scan showed significant growth of her tumors.

    I posted the topic "How many chemo regiments for CRC?" on this board and received a lot of support and info on clinical trials. You can see that thread here:
    http://csn.cancer.org/node/192165

    (I really have to learn to do a hot link)

    Anyway, we met with her onc yesterday and he had info on 6 different trials that he discussed in depth with us. After much discussion, we collectively chose the one at the Lombardi Cancer Center in DC.

    A Clinical Trial is usually an experimental regiment consisting of new drugs, or combination of drugs. This particular trial uses and existing drug (Temozolomide) and an experimantel drug (ABT-888).

    Hope this helps.

    By the way, we live in Snyder Co and love going to the Poconos!

    Al
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #5
    Excellent news!
    Best wishes for great results from this study + a wonderful vacation!
  • robinvan
    robinvan Member Posts: 1,012
    #6
    Have Fun!
    Glad to hear about the possibility of a clinical trial for Pam.

    I hope your camping trip goes well.

    Have fun... Rob; in Vancouver
  • pf78248
    pf78248 Member Posts: 209
    #7
    Have a great vacation
    Al.

    I hope you and Pam have a wonderful vacation! I'll bet that is a beautiful place to camp. I also wish you both exceptional results with the clinical trial. My husband's cancer spread to his liver, too, and we were told he was inoperable by two surgeons but on the third try at M D Anderson he was given new hope. His liver resection was in March and he goes back for scans tomorrow to see how things are working out. So this cancer is a roller coaster, and definitely not for sissies!

    Best of luck to both of you!

    Hugs and Healing,
    Priscilla

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