Bleeding as a symptom of a recurrence
Comments
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Oops...repeatlindaprocopio said:Small bit of GOOD NEWS today!
I got the results of the PAP test that I had when I went in to see my gyne-onc: it was CLEAR! And the spotting hadn't happened again since I had the PAP, so I am much less worried about it now. So I wanted to share my little bit of good news.
My CT/PET is Monday. I am trying not to think about it. (trying). The results will either mean 3 more months of being ME and FREE of treatment, or a return to chemo and the loss of this wonderful chemo break I've been on. ARGH! So much riding on a stupid test. I plan to NOT exercise for 48 hours prior and to havre NO carbs 24 hours prior and do everything in my power to get an accurate scan. And then I wait for the results. ARGH! The stress every 3 months can't be good for me!0 -
Good News~kkstef said:Oops...repeat
Linda,
I'm thinking very positive, in hopes the good vibes give you "excellent" results on scan. Yep we all are in the same boat, a mess waiting for the results. Such are our lives with this cancer...not fun hum!
I'll keep you in my prayers as well...((((( hugs )))))
Jan0 -
Sending Linda lots of great healthy vibes!lindaprocopio said:Small bit of GOOD NEWS today!
I got the results of the PAP test that I had when I went in to see my gyne-onc: it was CLEAR! And the spotting hadn't happened again since I had the PAP, so I am much less worried about it now. So I wanted to share my little bit of good news.
My CT/PET is Monday. I am trying not to think about it. (trying). The results will either mean 3 more months of being ME and FREE of treatment, or a return to chemo and the loss of this wonderful chemo break I've been on. ARGH! So much riding on a stupid test. I plan to NOT exercise for 48 hours prior and to havre NO carbs 24 hours prior and do everything in my power to get an accurate scan. And then I wait for the results. ARGH! The stress every 3 months can't be good for me!
Good Luck on your test Monday!
Laurie0 -
Im soo happy for you! andlindaprocopio said:Small bit of GOOD NEWS today!
I got the results of the PAP test that I had when I went in to see my gyne-onc: it was CLEAR! And the spotting hadn't happened again since I had the PAP, so I am much less worried about it now. So I wanted to share my little bit of good news.
My CT/PET is Monday. I am trying not to think about it. (trying). The results will either mean 3 more months of being ME and FREE of treatment, or a return to chemo and the loss of this wonderful chemo break I've been on. ARGH! So much riding on a stupid test. I plan to NOT exercise for 48 hours prior and to havre NO carbs 24 hours prior and do everything in my power to get an accurate scan. And then I wait for the results. ARGH! The stress every 3 months can't be good for me!
Im soo happy for you! and praying that your ct scans are clear from here on out!!
hugs
Amanda0 -
Good News and Hugslindaprocopio said:Small bit of GOOD NEWS today!
I got the results of the PAP test that I had when I went in to see my gyne-onc: it was CLEAR! And the spotting hadn't happened again since I had the PAP, so I am much less worried about it now. So I wanted to share my little bit of good news.
My CT/PET is Monday. I am trying not to think about it. (trying). The results will either mean 3 more months of being ME and FREE of treatment, or a return to chemo and the loss of this wonderful chemo break I've been on. ARGH! So much riding on a stupid test. I plan to NOT exercise for 48 hours prior and to havre NO carbs 24 hours prior and do everything in my power to get an accurate scan. And then I wait for the results. ARGH! The stress every 3 months can't be good for me!
Dear (((Linda)))!
Really glad to hear the good news on the PAP and that the spotting has subsided!
I, too, am praying for a “clean” CT/PET for you on Monday, and I commend your determination to assist in the scan results being as unequivocal as possible. At this time of year gardening is a helpful distraction for me when trying not to stress out about tests, etc, but gardening as I do it on the weekends is anything but relaxing. Hope your yard is in good enough shape that you can just saunter through and enjoy your gardens this weekend!
Sally0 -
I play in my garden every day.kansasgal said:Good News and Hugs
Dear (((Linda)))!
Really glad to hear the good news on the PAP and that the spotting has subsided!
I, too, am praying for a “clean” CT/PET for you on Monday, and I commend your determination to assist in the scan results being as unequivocal as possible. At this time of year gardening is a helpful distraction for me when trying not to stress out about tests, etc, but gardening as I do it on the weekends is anything but relaxing. Hope your yard is in good enough shape that you can just saunter through and enjoy your gardens this weekend!
Sally
My gardens (which are ridiculously huge!) look beautiful today after last night's soaking rain. I too find gardening a relaxing stress-reducer, and spend my lunch hour every day grooming my garden, re-cutting the edges, deadheading all spent blooms, moving little 'volunteers' to better homes, and digging out over-crowded plants and moving them to the woods' edge. It's funny you mentioned gardening because it feels me with such mixed emotions. This morning I moved a tiny baby crabapple tree I found growing under my old one; plus a tiny red maple I 'stole' from along the roadside after admiring its flaming 'mother tree' every fall for years. (One day I just pulled my car over, looked for a seedling, and dug it up, adding it to my 'nursery bed' to allow it to grow to a transplantable size.) I added those two baby trees to my 'woods edge' garden this morning, imagining how beautiful they will look there in 10 years, knowing it is very unlikely I will be here to see it. But in my mind I can envision the baby lilac, the rooted rhododendrons and azaleas, and tiny pine tree I put there last fall, and the baby hollys I put between them as evergreen understory plants. At least I can enjoy the columbine and irises I put in there, in beautiful bloom this morning in the very front of the woods edge. But it is strange to look at the tall trees I planted as rooted cuttings a decade ago, and know how long I have already been tending this little acre of land I have, and that my baby plants will probably be on their own sooner than I'd planned. Still, I will enjoy a fresh organic spinach salad out of my veggie bed for lunch in an hour, so life is good!0 -
Beautiful Gardenslindaprocopio said:I play in my garden every day.
My gardens (which are ridiculously huge!) look beautiful today after last night's soaking rain. I too find gardening a relaxing stress-reducer, and spend my lunch hour every day grooming my garden, re-cutting the edges, deadheading all spent blooms, moving little 'volunteers' to better homes, and digging out over-crowded plants and moving them to the woods' edge. It's funny you mentioned gardening because it feels me with such mixed emotions. This morning I moved a tiny baby crabapple tree I found growing under my old one; plus a tiny red maple I 'stole' from along the roadside after admiring its flaming 'mother tree' every fall for years. (One day I just pulled my car over, looked for a seedling, and dug it up, adding it to my 'nursery bed' to allow it to grow to a transplantable size.) I added those two baby trees to my 'woods edge' garden this morning, imagining how beautiful they will look there in 10 years, knowing it is very unlikely I will be here to see it. But in my mind I can envision the baby lilac, the rooted rhododendrons and azaleas, and tiny pine tree I put there last fall, and the baby hollys I put between them as evergreen understory plants. At least I can enjoy the columbine and irises I put in there, in beautiful bloom this morning in the very front of the woods edge. But it is strange to look at the tall trees I planted as rooted cuttings a decade ago, and know how long I have already been tending this little acre of land I have, and that my baby plants will probably be on their own sooner than I'd planned. Still, I will enjoy a fresh organic spinach salad out of my veggie bed for lunch in an hour, so life is good!
Dear Linda,
Just yesterday in a different discussion you told me not to despair...that there are survivors out there. Of course you're going to see that baby crabapple tree and red maple grow up! Positive thoughts lead to positive happenings...those baby plants, your grandchildren and family and friends, all of us need you to BE POSITIVE.
Saying prayers and sendng positive energy for you...JJ0 -
I remember the book Thelindaprocopio said:I play in my garden every day.
My gardens (which are ridiculously huge!) look beautiful today after last night's soaking rain. I too find gardening a relaxing stress-reducer, and spend my lunch hour every day grooming my garden, re-cutting the edges, deadheading all spent blooms, moving little 'volunteers' to better homes, and digging out over-crowded plants and moving them to the woods' edge. It's funny you mentioned gardening because it feels me with such mixed emotions. This morning I moved a tiny baby crabapple tree I found growing under my old one; plus a tiny red maple I 'stole' from along the roadside after admiring its flaming 'mother tree' every fall for years. (One day I just pulled my car over, looked for a seedling, and dug it up, adding it to my 'nursery bed' to allow it to grow to a transplantable size.) I added those two baby trees to my 'woods edge' garden this morning, imagining how beautiful they will look there in 10 years, knowing it is very unlikely I will be here to see it. But in my mind I can envision the baby lilac, the rooted rhododendrons and azaleas, and tiny pine tree I put there last fall, and the baby hollys I put between them as evergreen understory plants. At least I can enjoy the columbine and irises I put in there, in beautiful bloom this morning in the very front of the woods edge. But it is strange to look at the tall trees I planted as rooted cuttings a decade ago, and know how long I have already been tending this little acre of land I have, and that my baby plants will probably be on their own sooner than I'd planned. Still, I will enjoy a fresh organic spinach salad out of my veggie bed for lunch in an hour, so life is good!
I remember the book The Secret Garden...a favorite of mine as a child. The garden gave strength and hope. I am hoping that in ten years you will be rereading this post about your lovely garden. It sounds amazing. Sending you {{{HUGS}}} and lots of prayer and positive thoughts.0 -
linda's gardenlindaprocopio said:I play in my garden every day.
My gardens (which are ridiculously huge!) look beautiful today after last night's soaking rain. I too find gardening a relaxing stress-reducer, and spend my lunch hour every day grooming my garden, re-cutting the edges, deadheading all spent blooms, moving little 'volunteers' to better homes, and digging out over-crowded plants and moving them to the woods' edge. It's funny you mentioned gardening because it feels me with such mixed emotions. This morning I moved a tiny baby crabapple tree I found growing under my old one; plus a tiny red maple I 'stole' from along the roadside after admiring its flaming 'mother tree' every fall for years. (One day I just pulled my car over, looked for a seedling, and dug it up, adding it to my 'nursery bed' to allow it to grow to a transplantable size.) I added those two baby trees to my 'woods edge' garden this morning, imagining how beautiful they will look there in 10 years, knowing it is very unlikely I will be here to see it. But in my mind I can envision the baby lilac, the rooted rhododendrons and azaleas, and tiny pine tree I put there last fall, and the baby hollys I put between them as evergreen understory plants. At least I can enjoy the columbine and irises I put in there, in beautiful bloom this morning in the very front of the woods edge. But it is strange to look at the tall trees I planted as rooted cuttings a decade ago, and know how long I have already been tending this little acre of land I have, and that my baby plants will probably be on their own sooner than I'd planned. Still, I will enjoy a fresh organic spinach salad out of my veggie bed for lunch in an hour, so life is good!
linda,
your garden post was lovely and very poignant, a poem, really. i could picture your vast garden, and you amonst all the flowers and trees you've planted, tending them so carefully and tenderly all these years. and i can relate to the bittersweetness of imagining how even more beautiful your garden will look in 10 years, and contemplating the possibility of not being here to see your baby plants in full bloom. no one can take care of your garden in quite the way that you do; how could they? yet, being here now, with the sun shining after the night's rain, and looking forward to enjoying the fruits of your labor for lunch, how delicious that sounds, and yes, how good life is.
l'chaim (to life)
maggie0 -
Doing my 'no physical activity' day before CT/PET scanmaggie_wilson said:linda's garden
linda,
your garden post was lovely and very poignant, a poem, really. i could picture your vast garden, and you amonst all the flowers and trees you've planted, tending them so carefully and tenderly all these years. and i can relate to the bittersweetness of imagining how even more beautiful your garden will look in 10 years, and contemplating the possibility of not being here to see your baby plants in full bloom. no one can take care of your garden in quite the way that you do; how could they? yet, being here now, with the sun shining after the night's rain, and looking forward to enjoying the fruits of your labor for lunch, how delicious that sounds, and yes, how good life is.
l'chaim (to life)
maggie
It's funny that you mention "The Secret Garden" as that is what my granddaughter asked me to make the garden by the wood's edge. None of my other flower beds or borders have that 'hidden' quality she finds so romantic. So I sawed off select limbs of some of the old trees to let in more lights and have created a little stone path into the woods. I planted bulbs and flowering ground covers and tucked hardy flag irises and lily of the valley all along the path. Wildflowers (weeds really) have started to bloom in there with the additional new light coming in. There's lots of poison ivy in there and 'tree-fort-building' neighbor kids have been badly stung stepping into the nests of ground bees, so I make the grandkids stay on the path. But it's the 'peeking inside' and the beauty hidden from anyone who doesn't venture into the woods that she likes the most.
Today is my 'no carbs/no exercise' day before my CT/PET. It's so hard to be so inactive, but it really does give you a more accurate PET-scan if you can have no carborhydrates and not move around much at least 24 hours (better 48 hours!) before a scan. I need to totally fast (just water) at least 6 hours before the scan.
May 17th sounded so far off when the appointment was made; suddenly it is here. I am anxious to get confirmation that I am still in remission, and terrified that I'll find out that I am not. There's so much riding on this scan for me, as the results will define my summer. I am trying to remain philosophical and not give in to anxiety and worrying. Whatever will be, will be. Most of you know this passive waiting and know the internal 'Zen' you have to try to achieve or go crazy! OOOOOOOMMMMMMMMMMMMMMM! Ha!0 -
Linda wishing you luck with your PET scan tomorrowlindaprocopio said:Doing my 'no physical activity' day before CT/PET scan
It's funny that you mention "The Secret Garden" as that is what my granddaughter asked me to make the garden by the wood's edge. None of my other flower beds or borders have that 'hidden' quality she finds so romantic. So I sawed off select limbs of some of the old trees to let in more lights and have created a little stone path into the woods. I planted bulbs and flowering ground covers and tucked hardy flag irises and lily of the valley all along the path. Wildflowers (weeds really) have started to bloom in there with the additional new light coming in. There's lots of poison ivy in there and 'tree-fort-building' neighbor kids have been badly stung stepping into the nests of ground bees, so I make the grandkids stay on the path. But it's the 'peeking inside' and the beauty hidden from anyone who doesn't venture into the woods that she likes the most.
Today is my 'no carbs/no exercise' day before my CT/PET. It's so hard to be so inactive, but it really does give you a more accurate PET-scan if you can have no carborhydrates and not move around much at least 24 hours (better 48 hours!) before a scan. I need to totally fast (just water) at least 6 hours before the scan.
May 17th sounded so far off when the appointment was made; suddenly it is here. I am anxious to get confirmation that I am still in remission, and terrified that I'll find out that I am not. There's so much riding on this scan for me, as the results will define my summer. I am trying to remain philosophical and not give in to anxiety and worrying. Whatever will be, will be. Most of you know this passive waiting and know the internal 'Zen' you have to try to achieve or go crazy! OOOOOOOMMMMMMMMMMMMMMM! Ha!
You have remained in my prayers, and I pray that all will go well with your PET scan on Monday. Hope you enjoyed your relaxing day, and you could enjoy and admire your gardens. I too hope you remain in remission and can have an enjoyable summer without treatments.
Do you still have such discomfort with the position your arms have to be in for the scans. I hope that is better with the PET scans.
I know I thought I would have to go back on treatment last fall, but was able to enjoy the winter without treatments. I too am hoping for a treatment free summer. I go June 1st for my next lab and CT scan. I read the other day on a Cancer site that a cause of elevated CA 125 can be CAT scans. I had multiple scans last summer to follow up on the abscess in my abodomen. Then I have been having CAT scans every 6 - 8 weeks because of rising CA 125. I wonder if those CAT scans are attributing to my slow rise in the CA 125? Just wondering out loud. Will ask the onocologist when I see her in June.
Wishing you well on Monday. In peace and caring0 -
Hope Hope Hopelindaprocopio said:Doing my 'no physical activity' day before CT/PET scan
It's funny that you mention "The Secret Garden" as that is what my granddaughter asked me to make the garden by the wood's edge. None of my other flower beds or borders have that 'hidden' quality she finds so romantic. So I sawed off select limbs of some of the old trees to let in more lights and have created a little stone path into the woods. I planted bulbs and flowering ground covers and tucked hardy flag irises and lily of the valley all along the path. Wildflowers (weeds really) have started to bloom in there with the additional new light coming in. There's lots of poison ivy in there and 'tree-fort-building' neighbor kids have been badly stung stepping into the nests of ground bees, so I make the grandkids stay on the path. But it's the 'peeking inside' and the beauty hidden from anyone who doesn't venture into the woods that she likes the most.
Today is my 'no carbs/no exercise' day before my CT/PET. It's so hard to be so inactive, but it really does give you a more accurate PET-scan if you can have no carborhydrates and not move around much at least 24 hours (better 48 hours!) before a scan. I need to totally fast (just water) at least 6 hours before the scan.
May 17th sounded so far off when the appointment was made; suddenly it is here. I am anxious to get confirmation that I am still in remission, and terrified that I'll find out that I am not. There's so much riding on this scan for me, as the results will define my summer. I am trying to remain philosophical and not give in to anxiety and worrying. Whatever will be, will be. Most of you know this passive waiting and know the internal 'Zen' you have to try to achieve or go crazy! OOOOOOOMMMMMMMMMMMMMMM! Ha!
It springs eternal with all of us. My thoughts are with you tonight and will be with you tomorrow. We all hold you in our hearts.
Speaking of gardens, this is the first summer in many years that I've worked on what we plant in our garden. It's another life affirming activity that's so necessary in our journey. Every time we go to the nursery or the home improvement store, I'm now on the lookout for something unusual to add to our new collection of plants. And I find plants to rescue in the 50% off rack. So much fun!
Lynn0 -
I have to have my Zen checked;)lindaprocopio said:Doing my 'no physical activity' day before CT/PET scan
It's funny that you mention "The Secret Garden" as that is what my granddaughter asked me to make the garden by the wood's edge. None of my other flower beds or borders have that 'hidden' quality she finds so romantic. So I sawed off select limbs of some of the old trees to let in more lights and have created a little stone path into the woods. I planted bulbs and flowering ground covers and tucked hardy flag irises and lily of the valley all along the path. Wildflowers (weeds really) have started to bloom in there with the additional new light coming in. There's lots of poison ivy in there and 'tree-fort-building' neighbor kids have been badly stung stepping into the nests of ground bees, so I make the grandkids stay on the path. But it's the 'peeking inside' and the beauty hidden from anyone who doesn't venture into the woods that she likes the most.
Today is my 'no carbs/no exercise' day before my CT/PET. It's so hard to be so inactive, but it really does give you a more accurate PET-scan if you can have no carborhydrates and not move around much at least 24 hours (better 48 hours!) before a scan. I need to totally fast (just water) at least 6 hours before the scan.
May 17th sounded so far off when the appointment was made; suddenly it is here. I am anxious to get confirmation that I am still in remission, and terrified that I'll find out that I am not. There's so much riding on this scan for me, as the results will define my summer. I am trying to remain philosophical and not give in to anxiety and worrying. Whatever will be, will be. Most of you know this passive waiting and know the internal 'Zen' you have to try to achieve or go crazy! OOOOOOOMMMMMMMMMMMMMMM! Ha!
My Zen is sometimes wacky. And then there are times when I feel like all is right with the world. Like yesterday, the birds were having a United Nations meeting at the feeder. Cardinals, sparrows, grey mourning doves, red-winged blackbirds posturing for position. So much fun to watch. And then suddenly a painted bunting showed up. If none of you have ever seen one it looks like someone took a sparrow and used their paint box to recolor him. Purple, green, red markings make him distinctive. I rarely see the buntings here in Southeast, Texas and took it as a sign that all is well. So, dear Linda, I hope your visit goes well. You are like the painted bunting. A rare and wonderful creature. I so enjoy your writings, filled with humor, intelligence and your unique view of the world.
I will be praying for you and sending a huge {{{{LINDA}}}}.0 -
Great description, Normanorma2 said:I have to have my Zen checked;)
My Zen is sometimes wacky. And then there are times when I feel like all is right with the world. Like yesterday, the birds were having a United Nations meeting at the feeder. Cardinals, sparrows, grey mourning doves, red-winged blackbirds posturing for position. So much fun to watch. And then suddenly a painted bunting showed up. If none of you have ever seen one it looks like someone took a sparrow and used their paint box to recolor him. Purple, green, red markings make him distinctive. I rarely see the buntings here in Southeast, Texas and took it as a sign that all is well. So, dear Linda, I hope your visit goes well. You are like the painted bunting. A rare and wonderful creature. I so enjoy your writings, filled with humor, intelligence and your unique view of the world.
I will be praying for you and sending a huge {{{{LINDA}}}}.
I loved your very descriptive writing about your birds....so vivid I could picture your birds...especially the painted bunting. I don't think they live in Kansas but I will keep my eyes open!
I love watching the birds at my feeders too.....they are so entertaining! AND I finally saw my first hummingbird of the season! A bit late, but we are having very cool weather lately.
Am thinking your Zen is just fine!!
Karen0 -
Dear Karen, Thanks!! I wishkkstef said:Great description, Norma
I loved your very descriptive writing about your birds....so vivid I could picture your birds...especially the painted bunting. I don't think they live in Kansas but I will keep my eyes open!
I love watching the birds at my feeders too.....they are so entertaining! AND I finally saw my first hummingbird of the season! A bit late, but we are having very cool weather lately.
Am thinking your Zen is just fine!!
Karen
Dear Karen, Thanks!! I wish I could shoo that bunting your way, honey. The hummingbirds are late here too. I think it was the unusually cold winter. Hard to believe those tiny guys fly all the way across the Gulf of Mexico to migrate. Sending you a big {{{hugggggg}}}.
Linda, I am on pins and needles today while you get your scan. Thinking of you.0 -
birds and morelindaprocopio said:Doing my 'no physical activity' day before CT/PET scan
It's funny that you mention "The Secret Garden" as that is what my granddaughter asked me to make the garden by the wood's edge. None of my other flower beds or borders have that 'hidden' quality she finds so romantic. So I sawed off select limbs of some of the old trees to let in more lights and have created a little stone path into the woods. I planted bulbs and flowering ground covers and tucked hardy flag irises and lily of the valley all along the path. Wildflowers (weeds really) have started to bloom in there with the additional new light coming in. There's lots of poison ivy in there and 'tree-fort-building' neighbor kids have been badly stung stepping into the nests of ground bees, so I make the grandkids stay on the path. But it's the 'peeking inside' and the beauty hidden from anyone who doesn't venture into the woods that she likes the most.
Today is my 'no carbs/no exercise' day before my CT/PET. It's so hard to be so inactive, but it really does give you a more accurate PET-scan if you can have no carborhydrates and not move around much at least 24 hours (better 48 hours!) before a scan. I need to totally fast (just water) at least 6 hours before the scan.
May 17th sounded so far off when the appointment was made; suddenly it is here. I am anxious to get confirmation that I am still in remission, and terrified that I'll find out that I am not. There's so much riding on this scan for me, as the results will define my summer. I am trying to remain philosophical and not give in to anxiety and worrying. Whatever will be, will be. Most of you know this passive waiting and know the internal 'Zen' you have to try to achieve or go crazy! OOOOOOOMMMMMMMMMMMMMMM! Ha!
love hearing all those descriptions of birds in everyone's neighborhoods. right now, we have a nest of mourning doves on our front porch light fixture! the mama has been there constantly for the past week and a half, just sitting motionless on her eggs. it's possible, though i haven't seen it myself, that papa may be taking turns on the nest with her since it does seem like there could be two birds taking turns . in any case, it's such a lovely reminder of spring and life.
linda, i am, with others, thinking of you especially today, and hoping for the very best outcome of your scans. i know you'll let us know when you know. in the meantime, try not to worry too much.... (easier said than done) i have my first post treatment scan next week, and it's very nerve wracking, though i'm hoping for the best, but preparing for the worst.
sisterhood,
maggie0 -
Scan is over, but no results yet.maggie_wilson said:birds and more
love hearing all those descriptions of birds in everyone's neighborhoods. right now, we have a nest of mourning doves on our front porch light fixture! the mama has been there constantly for the past week and a half, just sitting motionless on her eggs. it's possible, though i haven't seen it myself, that papa may be taking turns on the nest with her since it does seem like there could be two birds taking turns . in any case, it's such a lovely reminder of spring and life.
linda, i am, with others, thinking of you especially today, and hoping for the very best outcome of your scans. i know you'll let us know when you know. in the meantime, try not to worry too much.... (easier said than done) i have my first post treatment scan next week, and it's very nerve wracking, though i'm hoping for the best, but preparing for the worst.
sisterhood,
maggie
Thanks, everyone. I had my CA125 drawn and my CT/PET done, so that much is over. But I didn't get any results yet.
It helped a little to have my pillow along and tucked under my arms for the scan, and that took a little pressure off that pinched nerve or whatever it is that hurts so much when I'm in the machine. I didn't cry this time at least! But it really did still hurt and was like an endurance test before the scan was over. My hands and arms go NUMB when they are over my head like that. But it's over now and I am home so no use dwelling on such a small thing. My belly is upset from the contrast and I have a little headache because I missed my morning caffeine (I know! I know!). I called to see if I could get my CA125 and it is there in my file, but they said they would have to have my oncology nurse call me with it. So I wait.
I am guessing I will have to wait until Thursday morning for my scan results, as they have already set me up with an appointment with my chemo-onc to review the results. I'll keep you posted. Thanks again, everyone.0 -
Arms - Scanlindaprocopio said:Scan is over, but no results yet.
Thanks, everyone. I had my CA125 drawn and my CT/PET done, so that much is over. But I didn't get any results yet.
It helped a little to have my pillow along and tucked under my arms for the scan, and that took a little pressure off that pinched nerve or whatever it is that hurts so much when I'm in the machine. I didn't cry this time at least! But it really did still hurt and was like an endurance test before the scan was over. My hands and arms go NUMB when they are over my head like that. But it's over now and I am home so no use dwelling on such a small thing. My belly is upset from the contrast and I have a little headache because I missed my morning caffeine (I know! I know!). I called to see if I could get my CA125 and it is there in my file, but they said they would have to have my oncology nurse call me with it. So I wait.
I am guessing I will have to wait until Thursday morning for my scan results, as they have already set me up with an appointment with my chemo-onc to review the results. I'll keep you posted. Thanks again, everyone.
Linda -
I am relatively new to this board and seldom post but read almost daily to stay up with all that is happening with all of you in your journey. Briefly, I was diagnosed with ULMS in November, 2008 - have been through chemo (gemzar&taxotere) and radiation. Still areas of concern showing on lungs and liver - just had a PET/CT scan last Friday and will visit with OB/GYN/ONC on Wednesday this week. I was wondering..have you ever requested to keep your arms at your sides during your scans? The technicians that have performed my scans put small boards (used like shelves) under the pad and allow me to keep my arms at my sides. Last time, because I am slightly claustrophobic (spelling?) he put me through the machine head first instead of feet first. He also stayed in the room during the PET portion of the scan and talked with me through the procedure. After the CT when I went on into the PET he stood at the top of the machine and layed his hand on my head so I could get a reference of how close I was to actually being outside the end. I can not believe what a hugh difference it made. I pray for good results from your scan and next visit with the doctor. Waiting is so difficult. Gods peace as you continue on your journey.0 -
Linda:lindaprocopio said:Scan is over, but no results yet.
Thanks, everyone. I had my CA125 drawn and my CT/PET done, so that much is over. But I didn't get any results yet.
It helped a little to have my pillow along and tucked under my arms for the scan, and that took a little pressure off that pinched nerve or whatever it is that hurts so much when I'm in the machine. I didn't cry this time at least! But it really did still hurt and was like an endurance test before the scan was over. My hands and arms go NUMB when they are over my head like that. But it's over now and I am home so no use dwelling on such a small thing. My belly is upset from the contrast and I have a little headache because I missed my morning caffeine (I know! I know!). I called to see if I could get my CA125 and it is there in my file, but they said they would have to have my oncology nurse call me with it. So I wait.
I am guessing I will have to wait until Thursday morning for my scan results, as they have already set me up with an appointment with my chemo-onc to review the results. I'll keep you posted. Thanks again, everyone.
I am glad your scan
Linda:
I am glad your scan is over. Rest and get some caffeine! lol. I hope all goes well for you at your appointment. I go for my PET Scan next week, so I know how you feel!0
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