Mother Diagnosed with UPSC Stage 4b

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Comments

  • nempark
    nempark Member Posts: 681

    your mom with stage 4 upsc

    hi kristin,

    that is such great news re: your mother. i'm in my late 60s, diagnosed with stage 4 upsc may'09. had a radical hysterectomy then 6 infusions of chemo, 3 weeks apart. it's been 4 months since treatment, and so far so good though i' m having another ca125 tomorrow. i'm wondering if you would be willing to say what treatments your mother has gone through, and what hurdles there were for her. i'd greatly appreciate hearing your mom's experience, in as much detail as you and she care to share. and what she's doing now, if anything in particular to stay healthy.

    thanking you in advance,
    maggie

    What is USPC cancer?
    please explain
  • nempark
    nempark Member Posts: 681

    your mom with stage 4 upsc

    hi kristin,

    that is such great news re: your mother. i'm in my late 60s, diagnosed with stage 4 upsc may'09. had a radical hysterectomy then 6 infusions of chemo, 3 weeks apart. it's been 4 months since treatment, and so far so good though i' m having another ca125 tomorrow. i'm wondering if you would be willing to say what treatments your mother has gone through, and what hurdles there were for her. i'd greatly appreciate hearing your mom's experience, in as much detail as you and she care to share. and what she's doing now, if anything in particular to stay healthy.

    thanking you in advance,
    maggie

    What is USPC cancer?
    please explain
  • nempark
    nempark Member Posts: 681

    your mom with stage 4 upsc

    hi kristin,

    that is such great news re: your mother. i'm in my late 60s, diagnosed with stage 4 upsc may'09. had a radical hysterectomy then 6 infusions of chemo, 3 weeks apart. it's been 4 months since treatment, and so far so good though i' m having another ca125 tomorrow. i'm wondering if you would be willing to say what treatments your mother has gone through, and what hurdles there were for her. i'd greatly appreciate hearing your mom's experience, in as much detail as you and she care to share. and what she's doing now, if anything in particular to stay healthy.

    thanking you in advance,
    maggie

    What is USPC cancer?
    please explain
  • Ro10
    Ro10 Member Posts: 1,561 Member
    nempark said:

    What is USPC cancer?
    please explain

    UPSC
    Is Uterine Papilary Serous Carcinoma. A highly aggressive and likely to reoccur type of cancer. Unfortunately many times it shows no symptoms and is not found until it is in the advanced stages. Many ladies on this site have been diagnosed with UPSC.
  • Jniccoli21
    Jniccoli21 Member Posts: 3
    Ladyebc said:

    I am an almost 8 yr survivor of stage 3C UPSC and had my surgery and all treatment chemo & radiation at MSKCC both in NYC at Memorial and on LI at Commack and Rockville Center.

    wondering why is your mom not staying with this institution for her treatment???

    Hello I'm curious to know
    Hello I'm curious to know your treatments? My mom has recurrent endometrial cancer that spread to the spine. We really need help. We did radiation and chemo but at the end nothing seem to work. They said surgery is not an option for her. I need a doctor who specializes in this type of cancer. My email is jniccoli21@yahoo.com
  • Jniccoli21
    Jniccoli21 Member Posts: 3
    Ladyebc said:

    I am an almost 8 yr survivor of stage 3C UPSC and had my surgery and all treatment chemo & radiation at MSKCC both in NYC at Memorial and on LI at Commack and Rockville Center.

    wondering why is your mom not staying with this institution for her treatment???

    Please let me know your
    Please let me know your doctor? Thank you
  • Always Hopeful
    Always Hopeful Member Posts: 234
    Kris Ann said:

    Hi Rachel,
    My mom was also

    Hi Rachel,

    My mom was also stage 4 upsc.. diagnosed in March of 2008. She was 61. She was treated at Dana Farber in Boston. She went thru her treatments and some hurdles for sure but she is actually fine now.. she just had a ct scan March 4th and it was clear. Stay hopeful!

    Kristin

    Looking for advice
    Hi Kristen,
    My name is Susan and I'm posting for my cousin JJ, who owns the "Always Hopeful" ID. She is my cousin and also has stage four UPSC. She had no success, unfortunately even a great spread of the disease after her first 18 weeks of Carbo/Taxol chemo. She just found this out Friday so she is in an understandably overwhelmed state so I'm trying to get some info for her.
    I am so thrilled and delighted for you that your mom met with such success at Dana Farber and I too would love to know what their protocol was for your mom. My email is hookster1@comcast.net
    Any help would be greatly appreciated!!
    Strength and blessings to you and yours,
    Susan