nexavar

zack1 said:

nexavar
My husband has been on Nexavar for 3months now. Tolerating it well. Has diarrhea and some nausea but manageble. He has HCC and cirrhosis and needs a transplant but was denied because he has to many tumors in the liver.
We stay in pray and will add you and your husband to our prayer list. Obey Jesus and and command that mountain of PAIN, CANCER, Disease,etc., to go NOW out of your body(husband's) in the name of Jesus.Jesus said you can have what you say. Began to call your body whole, healed, well, don't stop, don't listen to your body, don't listen to doubt and fear, listen only to Jesus, listen only to his Word. This is what My husband and I are doing. We read our healing scriptures off an on throughout the day. Walk in faith because Faith is the key. God Bless you. Diana

Nexavar
My Dad is doing well overall. He has sever diarrhea, fatigue and seems to be out of breath a lot. I am starting to get nervous because he seems to be getting week, but on other days he is happy go lucky. What a rollercoaster! His MRI didn't show much that I am aware of. His doctor was gone the day of our appointment and his PA was hard to understand and talked way too fast. We have another appointment on 4/29/10 with the doctor and I will be requesting a copy of the MRI report. I will post when I know more.

ljw1121 said:

It gets better
I'm o Nexavar since Oct 09 and first scan stayed the same. No change in size and no new growth. Next scan is Mon. 3-22 and I'm anxious toreceive results. To any of you with these bad side effects, they will get better. My skin issues are almost completely gone and I foind a few other side effects are improving. At Least we can feel descent at times now. Keep positive!! Lisa

ljw1121
How did your scan go?

jim2204 said:

my medical experience is similar to Labrierie and Prayalot. I had resection surgery on 12/15/09 to removed 7.6cm tumor with good margin. My pathology is very discouraging, it indicated the tumor is poorly differentiated with nuclear grade 4 of 4, hep B grade 2 out of 4, extensive vascular invasion and finally Bridging fibrosis stage 3 out of 4. I waiting for CT scan and more lab work to decide the next treatment. My guess is the doctor most likely will put me on Nexavar. I am scare to death I am told there's 50/50 chance my cancer will return.

Labrierie, why did u say that, if it recurred you are not a transplant candidate at all? I thought as long as the tumor is below 5cm and has not spread, you can wait for transplant. was I wrong?

Once I learn more of my situation, I will post my update, I also want to hear others with similar cases to mine. we need to support each other. thanks.

One of the critera items
One of the critera items they use is tumor size and if your tumor is over 5 cm then you are no longer a transplant candidate. Also the doctors told me that if my cancer were to recur that the hepatic nerve would spread the cancer to the new transplanted liver just like it would my original one. I was told that a person can have several resections if necessary.
Sorry about the delay in communication. I will try to check back more frequently.

jim2204 said:

my medical experience is similar to Labrierie and Prayalot. I had resection surgery on 12/15/09 to removed 7.6cm tumor with good margin. My pathology is very discouraging, it indicated the tumor is poorly differentiated with nuclear grade 4 of 4, hep B grade 2 out of 4, extensive vascular invasion and finally Bridging fibrosis stage 3 out of 4. I waiting for CT scan and more lab work to decide the next treatment. My guess is the doctor most likely will put me on Nexavar. I am scare to death I am told there's 50/50 chance my cancer will return.

Labrierie, why did u say that, if it recurred you are not a transplant candidate at all? I thought as long as the tumor is below 5cm and has not spread, you can wait for transplant. was I wrong?

Once I learn more of my situation, I will post my update, I also want to hear others with similar cases to mine. we need to support each other. thanks.

Sirspheres treatment for HCC
My husband was diagnosed with HCC in January 2010. He is being treated at the Medical College of Virginia in Richmond. They first suspected cancer in Oct. 09 when a small nodule showed on his ultrasound. He also has Hep C and cirrhosis, so we have been undergoing observation since March of 08. He tried the treatment for hep c but was a nonresponder. He had radiofrequency ablation treatment Jan. 22 for the 3 cm tumor they found in October. When he had his follow up MRI in March, his one tumor had become 10 to 12 tumors and involved both lobes of the liver. They initially suggested that he might be a candidate for transplant, but after the eruption of so many more tumors, that is no longer an option. He is now scheduled for a sirspheres treatment May 5. they told me that it is a very aggressive cancer, so my question is this. Why did they wait so long to do this treatment? They are also going to start him on Nexavar after this treatment. He is to begin taking it on May 24. He is very apprehensive, as he does not fully understand the seriousness of his disease. The doctors tell us very little, so I call and talk to the nurse after I get home. That way I have time to think of all the questions I want to ask. I also would like to know of people who have had the sirsphers treatment and taken the Nexavar. Is it really worth a few extra months if your quality of life is so poor that you can't do anything? Right now my husband feels great, and I wonder if this is really the path we should take.