My new plan with my onc...

HollyID
HollyID Member Posts: 946 Member
edited March 2014 in Colorectal Cancer #1
Just as a reminder, I'm a stage III B. Since I developed an "allergic" reaction to my oxi, I think I'm going back to my primary onc and discuss how much I really want to continue it... at least for two more rounds. Even I'm put in the hospital for those two, I just wanna continue it for at least two more rounds. For some reason, I'm just thinking that 8 rounds would be better than 6. My seventh round only lasted for 20 minutes.

I think I'm gonna print out my replies I've gotten here and at the Colon Club to see if this might change his mind. His onc nurses say he'll never put me on oxi again because of the reaction. I just wanna try to change his mind.

Is there anything else anyone would do?

I'm looking for ideas so he might continue it. If he absolutely won't, I guess I'll just go with the 5-FU and the Leucovorin. I don't want avastin or Irinotecan. I'm really flying blind here. Any other ideas?

Comments

  • mom_2_3
    mom_2_3 Member Posts: 953 Member
    #2
    Holly,

    I'm not sure of the extent of your reaction to oxi but my allergic reaction on my 7 treatment resulted in a cardiac arrest. My doctor told me she would never ever give me oxi again. I finished my rounds with FUDR (liver pump) and 5-FU.

    Amy
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    #3
    Tight throat and splotches
    I had splotches that moved all over my body and a tight throat. My onc thought I'd never be able to complete all 12. He added in Ativan prior to chemo, with a bit more Benadryl and I completed all 12.
  • abrub
    abrub Member Posts: 2,174 Member
    #4
    I handled 5 rounds of oxy
    My drs were satisfied with that - I had to quit because of severe neuropathy. Your dr doesn't want to kill you, just the tumor. You can discuss it, but you'll have to trust your dr.

    For me, the IP (IntraPeritoneal) chemo was more important, but I only got through 5 rounds of a planned 8 before my drs stopped it because of the level of pain I was in. I begged them to continue, to just drug me more (I was being heavily drugged with Dilaudid and Hydrocodone to tolerate the treatments) but they felt that the pain might indicate more damage than benefit - no more IP chemo. But I understand how you feel, wanting to do anything to ensure that this beast is stopped.
  • damama24
    damama24 Member Posts: 174 Member
    #5
    abrub said:

    I handled 5 rounds of oxy
    My drs were satisfied with that - I had to quit because of severe neuropathy. Your dr doesn't want to kill you, just the tumor. You can discuss it, but you'll have to trust your dr.

    For me, the IP (IntraPeritoneal) chemo was more important, but I only got through 5 rounds of a planned 8 before my drs stopped it because of the level of pain I was in. I begged them to continue, to just drug me more (I was being heavily drugged with Dilaudid and Hydrocodone to tolerate the treatments) but they felt that the pain might indicate more damage than benefit - no more IP chemo. But I understand how you feel, wanting to do anything to ensure that this beast is stopped.

    only 6 roundsof oxi
    Holly I wish I could be more help. My dr stopped oxi after 6 rounds because of severe neuropathy and extremely low blood counts. Stayed on leucovorin and 5-fu until it stopped working in march. Will be starting on iriontecan and vectibix april 21. Don't know what to expect just hoping for the best. Your drs want what is best for you they don't want to harm you by continuing the oxi. Hopefully they will come up with another combination of chemo that will work for you. Blessings to you all. Deb

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