NH Malt Lymphoma of the Stomach

indydorsey13 said:

fibroleo
I still have the Malt Lymphoma / stomach after the H-pylori was treated with antibiotic...H-pylor gone...Lymphoma remains...not sure where I go next....I do know that I go for another biopsy and back to see the oncology hemolotogist for 3rd time.. Would like to know how you are doing...
indydorsey

Malt Lymphoma
Hello Fibroleo,

I was diagnosed with MALT Lymphoma 3 years ago. My symptoms were stomach burning, nausea, bloating, and a mind numbing fatigue. It was really the fatigue that tipped me off but everyone is different. After several tests came in negative I got a second opinion at Dartmouth Hospital in Lebanon NH. They found the lymphoma. I understand that there are 2 kinds of stomach related MALT, one is caused by H-pylori and the treatment is antibiotics. The second is not. I was treated with a drug called Rituxin. The lymphoma was diagnosed with a scope...blood tests...cat & pet scans. I had a 6 week treatment plan followed by endoscopy exams every 3 months. The tumor was completely gone by 9 months and I have been cancer free for 3 years. Please get a second opinion if you are not happy with your treatment. If I hadn't insisted that something was wrong I never would have received treatment. Good Luck!

indydorsey13 said:

Gastric Malt Lymphoma
jeno,

How are you doing with your lymphoma ???? I was diagnosed Sept. 22, 2009....I will have my 4th biopsy & ultrasound this Wed.... My biggest complaint is that I am TIRED to the place that I feel SICK... My husband had his lung REMOVED 2 wks ago from LUNG CANCER diagnosed same week as this my stomach lymphoma problem !!! He had 2 mo. of chemo. & rad. before the pneumonectomy...( all of this could add to TIRED ). I had the 2500 mg antibiotic for 14 days in Oct.....got rid of he H-pylori, but still have the cancer ( lymphoma ) cells so the biopsy shows !! Back to 3rd trip to hemotologist Mar. 9.... Do you think I have a chance of escaping treatment ? Nothing like a good miracle...just goes away !!! indydorsey13@att.net

malt NHL
Hello,

I finally found threads regarding malt NHL. I found your threads on the discussion board very enlightning. I will also paste a copy of this email on the discussion board in the event it might be helpful to others.

The middle of sept 2009 I had the most terrible pain in my stomach, which I have no memory of to this day. I was rushed to the hospital ER. I had a ct scan which showed my bowel had perforated. I was immediately operated on, and was in ICU for 2 weeks, then 1 more week of hospitalization. Total 3 weeks in hospital. I thought I would never leave the hospital. The DX was stage 1, low grade, B cell NHL. They also found H-pylori bacteria and ulcers. Since I was in ICU I would imagine I was on very strong anti-biotics. I went to my oncologist, had a pet scan, pet scan showed node in neck, but after a neck biopsy negative. Then a bone marrow biopsy, which also came back negative.

In dec 2009, I had treatment of rituxan once weekly for 4 weeks. I had no side effects from the rituxan. I saw my oncologist the end of jan 2010, and have another appointment with the oncologist the end of may 2010. I will then be scheduled for another pet scan. I am so scared that the H-Pylort might return. How do they test for that? Someone told me they can test for this bacteria by a blood test and my siliva??? Perhaps it is better to have a colonoscopy????

Anything you can add, will be greatly appreciated. Let me know how you are doing. Your last thread, I believe was in feb 2010.

God bless you and others. By the way, our DX is very positive with everything I have read. I would be more than glad to forward the text on our DX to anyone that is interested.

Take care Maggie tcfcmaggie@aol.com

miss maggie said:

thank you dorsey
I am pasting your reply to this discussion board in the event it can help others.

Dear Dorsey,

Thank you for your speedy reply to my email.

I am so saddened to hear both you and your husband have to go through such trials at the same time. I understand how heartbreaking it can be. I lost my husband may 25, 2004 to pancreatic cancer. He was dx in may 2002. But, at least I was well at the time. How difficult it must be for you, not feeling so well yourself. I suppose at least they are giving your husband treatment, not totally hopeless. That is good news. Most certainly, it is still a struggle.

Thanks for info of detecting H-Pylori. Yes, it is very rare our condition, but curable. I am glad to hear that the Pylori bacteria is gone. It sounds like you nhl is confined to the stomach lining only, and is still stage 1.. That is good news. Hopefully, and yes the radiation will zap the 20% left.

I have no idea the dosage of anti-biotics I was given at the hospital. All I know is this, perforation of the bowel is very serious. The doctors pulled me through, therefore I trust that I was given strong anti-biotics.
I am great at this time. I have a few problems with me knees, but I will learn to live with it.

God Bless both you and your husband. Prayers to both of you.

maggie

cranberry juice & H-Pylori
Hello all,

I just wanted to pass on info that I found on the sloan kettering website. Type in "cranberry juice" where it says "search". Cranberry juice is not only good for urinary tract, but is also helpful at keeping the H-Pylori bacteria away. And yes, please be tested often for the bacteria.

God Bless all. maggie

PBJ44 said:

Malt Lymphoma / Stomach w/ no H Pylori
I was diagnosed in 2005 with Malt Lymphoma in my stomach but had no signs of H Pylori. I received one month of radiation treatments. So far I have not had any signs of the Malt Lymphoma since.

NHL w/no H Pylori
I am thrilled to read the good news from your post.

Did you have non-hodgkins malt lymphoma? When you were dx in 2005, how was it discovered?

I was dx in sept 2009. I had terrible pain, went to ER, bowel perforated and ulcers. I had surgery. I was in the hospital for 3 weeks, and also received heavy doses of antibiotics. A biopsy confirmed h-pylori, stage 1, b cell, low grade NHL. I received 4 weeks rituxan in dec 2009. I will be going for a pet scan in may or june 2010. Curious, why you were given radiation, and no rituxan?

Stay well, and God Bless

I have Gastric MALT Lymphoma...need support
Hello,
I was diagnosed with Gastric MALT Lymphoma on April 19, 2011. So far my treatments have not been entirely successful. I had the antiobiotics, then ritauxan, then radiation (20 sessions) and then another dose of antibiotics. Apparently, my cancer is puzzling. They haven't seen it like this before. I should be cured but am not. I have searched everywhere for a GML safe nutrtiional diet but come up empty. I have sought a second opinion and was told no. You can't get a second opinion without having the consent from the first doctor.

I am looking for support more because I have been told that if my next scope is still showing no signs of improvement I will be looking at chemo and will lose my hair. I am devastated. I found a treatement that helps chemo patients keep their hair but my oncologist said this treatment would not be a good idea. I have been searching and some say it is safe and some do not (peguin ice caps therapy). Has anyone out there been through chemo? Did you lose your hair? Has anyone tried the Penguin Ice Caps? Does anyone have a good diet regimen? Help please!!

annie1968 said:

I have Gastric MALT Lymphoma...need support
Hello,
I was diagnosed with Gastric MALT Lymphoma on April 19, 2011. So far my treatments have not been entirely successful. I had the antiobiotics, then ritauxan, then radiation (20 sessions) and then another dose of antibiotics. Apparently, my cancer is puzzling. They haven't seen it like this before. I should be cured but am not. I have searched everywhere for a GML safe nutrtiional diet but come up empty. I have sought a second opinion and was told no. You can't get a second opinion without having the consent from the first doctor.

I am looking for support more because I have been told that if my next scope is still showing no signs of improvement I will be looking at chemo and will lose my hair. I am devastated. I found a treatement that helps chemo patients keep their hair but my oncologist said this treatment would not be a good idea. I have been searching and some say it is safe and some do not (peguin ice caps therapy). Has anyone out there been through chemo? Did you lose your hair? Has anyone tried the Penguin Ice Caps? Does anyone have a good diet regimen? Help please!!

Second Opinion
Annie,

First of all, I am sorry that you have to be on this sight, but you have come to the right place... great people and tons of info here.

Who told you that the first doc has to give consent for a second opinion?? When I was diagnosed,May 2010, I not only got a second, but a third opinion! I still have two different oncologists involved! I would say check with your healthcare provider first to check for coverage, but it is important! Especially with your doctors being puzzled!

I have Nodal Marginal Zone Lymphoma stage iv and Malt lymphoma in my stomach. The malt was found while doing stomach biopsies and there are no tumors at this time. H Pylori is negative. Right now they are waiting for a bacterial overgrowth in my sm intestine to clear and then they want to treat with chemo because the Marginal Zone NHL is on the move. They are not concerning with the Malt right now but keeping a watch on it.

I don't know of any specific diet- others may know. I just stay on a healthy diet. Right now - no gluten, no sugar, no lactose because of the bacteria problem in my sm intestine. But generally I just stay away from junk food and eat healthy. I also stay very hydrated all the time.

I always get a second opinion - every step of the way. Both of my doctors know this.

I have not lost my hair from treatment, but others have (like Vinny) and i'm sure they'll chime in.

God Bless you and all the best.

Donna

PBJ44 said:

Malt Lymphoma / Stomach w/ no H Pylori
I was diagnosed in 2005 with Malt Lymphoma in my stomach but had no signs of H Pylori. I received one month of radiation treatments. So far I have not had any signs of the Malt Lymphoma since.

Radiation

Hi I was treated w radiation August 2016 for Stage 1 Gastric Malt H Pylori Negative.  Just Had a post radiation Biopsy and I'm waiting for results.  Did the radiation kick your Gastric Malt to the Curb?  Are you in Complete Remission?  If not what was the next step?

I was diagnosexd after having

I was diagnosexd after having an endoscopy  in August. They found a m& M size lymphoma.   In my stomach. Pet scan clear except for some areas by jawline which ENT stated is not lymphoma.   Had ct scan of head and neck. No masses.  So go back to oncologist this friday. Dont know if any treatment will be recommended. Worried about medical bills. Climbing everuday even wifh insurance.