Hi....I'm new to you gals!
Comments
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welcome
Hi Tawny....
I too was diagnosed w/ IDC at 36. I am triple negative so I don't have to take Arimidex. Hot flashes.. yes, they suck.. thank you chemo and early onset menopause...
Don't know anything about Arimidex and vits but just wanted to welcome you to this site.0 -
Thank u for your warm welcome! : )e_hope said:welcome
Hi Tawny....
I too was diagnosed w/ IDC at 36. I am triple negative so I don't have to take Arimidex. Hot flashes.. yes, they suck.. thank you chemo and early onset menopause...
Don't know anything about Arimidex and vits but just wanted to welcome you to this site.
Thank u for your warm welcome! : )0 -
Hi Tawny!TawnyS said:Thank u for your warm welcome! : )
Thank u for your warm welcome! : )
I am shocked by your misdiagnosis. How can that happen? If your cancer had been more aggressive it could have been to late to cure you. I'm so glad that they finally found it and that you are on the mend.
I have been taking Arimidex since Aug. of 09 with no obvious side effects. I take a multi-vitamin with no soy but is designed for women. I'm older so I get one for post menopausal women but it does not have soy. That's very important because so many of them have soy. I also take a number of other vitamins. It is very important to get calcium as well as Vit. D3. I would ask your doctor to check your Vit D levels. I would also have them check your thyroid because many breast cancer survivors have issues with thyroid function. It is a good idea to have a baseline anyway.
I suggest you purchase the book, "Beating Cancer With Nutrition". I also loved, "What Your Doctor May Not Tell You About Breast Cancer". Both can be ordered on Amazon.com.
I wish you continued healing both physically and emotionally.
Roseann0 -
Welcome Tawny
I was also dx with IDC and ICIS. I am her2 pos and dx in April 09. Wow you really had a story to tell. How scary.I am not sure about Arimidex. I am on Tamoxifen and the hot flashes are terrible. I have not found anything that helps with it. I am sure someone here may come up with a good fix. Hang in there and glad you found the site.0 -
Welcome
Welcome to the group. You sound like you got a good handle on things. I know what you mean sideswiped. Seems like to take care of something and something else crops up. Take care of your arm. I have not had lymphedema yet but I hear it can be quite painful. Good to have you with us.0 -
Welcome Tawny
To this a1esome community, though I'm sorry for the reason you have to be here.
I'm not on Arimedex, but my onco okayed a multi- vitamin for me, plus I'm taking a vit B complex. Once I'm done with rads, I can also take vitamin E, which my doc said would help with the hot flashes. Check with your doc to see if that might help you.
Take care,
Cindy0 -
Hi Tawny, Glad you finallycindycflynn said:Welcome Tawny
To this a1esome community, though I'm sorry for the reason you have to be here.
I'm not on Arimedex, but my onco okayed a multi- vitamin for me, plus I'm taking a vit B complex. Once I'm done with rads, I can also take vitamin E, which my doc said would help with the hot flashes. Check with your doc to see if that might help you.
Take care,
Cindy
Hi Tawny, Glad you finally posted here. I also have a story similar to yours. My bc should have been caught at least a year before. I was dxed in Sept. 2009 with IDC, 3 tumors and lymph node involvement and was put on Femara to reduce the tumors before surgery. So far no chemo. You're ahead of me as I'm scheduled for a masectomy April 15, if I can get over an infection quickly. Sounds like you've done everything you could to kick this beast in the butt. You must be one strong lady. I applaud you for coming here and sharing your story. Hope things go better for you and wishing you well. HUGS!0 -
Hi I am new to you, gal
Hi TwwnyS (pink ant)
Glad you found this place. There is so much to be learned here, and so much to be shared. I am beginning to think it like my kitchen table. Yes, when you look at the gamut of things, I also feel blessed. This is a place that never puts you down for who you are, but you always seem to find humility without looking for it. I feel extremely blessed to find this place, but have a cnacer that is readily treatable. I read what other sisters go through and thank the Lord.
I nominate you the mammo machine expert! You've had lots of experience. Suggestion though: why not go get certified for the mammo machine tech. Experience should count for something. I think I read you misdiagnosed thread before. Sounds like you are dealing wiht reality in a good way. Of course, what is the alternative?
You have already been through alot of the nasties. Way to go girl! I really hate it when bc attacks people as young as you. I am 57, and my harware is about useless. I don't see how you could feel that way. Even so, I went for a lumpectomy just so I could keep mind and body together. They never told me about chemo-brain. So mind and body are seperate entities. Like I alweays know where my cancer boob is, but sometimes don't know where the rest of the body is. Perhaps adventure is a perk?
No one is invincible. But when young it is a curse. I am so happy you have found this place, and hope you make it a required stop. Sounds like you have already gone through the worst of chemo. Congratulations on making it to the other side, and hope your new boobies are problem free. Don't worry, we all feel sideswiped. No one plans something like this. You seem to have a good attitude about it all. Perhaps you have an old soul? Anyway, love your attitude, and hope to run into you again. Don't know what to tell you for vitamins or anything. I am 56, and am on four different vitamins for bones and memory, Your doc will let you know what you need for vits. Take care, and keep posting0 -
Hi TawnyFlakey_Flake said:Hi I am new to you, gal
Hi TwwnyS (pink ant)
Glad you found this place. There is so much to be learned here, and so much to be shared. I am beginning to think it like my kitchen table. Yes, when you look at the gamut of things, I also feel blessed. This is a place that never puts you down for who you are, but you always seem to find humility without looking for it. I feel extremely blessed to find this place, but have a cnacer that is readily treatable. I read what other sisters go through and thank the Lord.
I nominate you the mammo machine expert! You've had lots of experience. Suggestion though: why not go get certified for the mammo machine tech. Experience should count for something. I think I read you misdiagnosed thread before. Sounds like you are dealing wiht reality in a good way. Of course, what is the alternative?
You have already been through alot of the nasties. Way to go girl! I really hate it when bc attacks people as young as you. I am 57, and my harware is about useless. I don't see how you could feel that way. Even so, I went for a lumpectomy just so I could keep mind and body together. They never told me about chemo-brain. So mind and body are seperate entities. Like I alweays know where my cancer boob is, but sometimes don't know where the rest of the body is. Perhaps adventure is a perk?
No one is invincible. But when young it is a curse. I am so happy you have found this place, and hope you make it a required stop. Sounds like you have already gone through the worst of chemo. Congratulations on making it to the other side, and hope your new boobies are problem free. Don't worry, we all feel sideswiped. No one plans something like this. You seem to have a good attitude about it all. Perhaps you have an old soul? Anyway, love your attitude, and hope to run into you again. Don't know what to tell you for vitamins or anything. I am 56, and am on four different vitamins for bones and memory, Your doc will let you know what you need for vits. Take care, and keep posting
Welcome to the side. I do have lymphedema to and can understand your problems. I was diagnosed in June of 2008 with Stage IIIC estrogen positive, her2 negative at the age of 46. I have been am on Tamoxifen for almost 12 months now. Plus I am Vitamin D3 2000 and Ca daily.
Wishing you the best,
New Flower0 -
Hi
Wow you have really been through alot! I'm so sorry for what happened to you with the mis-diagnosis! And to find out you also have Crohns on top of all that, I can't even imagine. I know very little of that disease, my sister in law has it and I know it has been very hard on her. I wish you all the best and I am glad you found this site and the wonderful friends here!0 -
Thank you, and thanks to allelm3544 said:Hi
Wow you have really been through alot! I'm so sorry for what happened to you with the mis-diagnosis! And to find out you also have Crohns on top of all that, I can't even imagine. I know very little of that disease, my sister in law has it and I know it has been very hard on her. I wish you all the best and I am glad you found this site and the wonderful friends here!
Thank you, and thanks to all that have welcomed me. I am loving this feeling of sisterhood! Everyone is so encouraging and helpful. I think that you can learn a lot more from people that have experienced it than doctors sometimes. Just like the vitamins I was asking about. I don't know about you all, but my oncologist isn't really into vitamins. He just never seems impressed with them when I bring it up. I figured someone out here would know a vitamin I should try. I also noticed your name in the sand....Edna...right? If so, that brings such fond memories of my grandmother...her name was Edna. Her initials were E.E. and I carried that over to my daughter's name and gave her a first and middle with the initials E.E. It makes me smile! : )0 -
Welcome, Tawny....althoughTawnyS said:Thank you, and thanks to all
Thank you, and thanks to all that have welcomed me. I am loving this feeling of sisterhood! Everyone is so encouraging and helpful. I think that you can learn a lot more from people that have experienced it than doctors sometimes. Just like the vitamins I was asking about. I don't know about you all, but my oncologist isn't really into vitamins. He just never seems impressed with them when I bring it up. I figured someone out here would know a vitamin I should try. I also noticed your name in the sand....Edna...right? If so, that brings such fond memories of my grandmother...her name was Edna. Her initials were E.E. and I carried that over to my daughter's name and gave her a first and middle with the initials E.E. It makes me smile! : )
Welcome, Tawny....although it is not the place you want to be on purpose. This site is wonderful, and has helped so many of us to conquer our fears, smile when a smile is the last thing we want, and vent when the venting is needed. Your story sounds familiar, as I was also misdiagnosed...for four years. There have been many who have said I should have gone after the radiologist who looked at my mammogram for four years in a row and didn't see the tumor, but haven't acted on it as of yet. I just thank God that I moved to another state, immediately established myself with a new hospital/doctor, and was diagnosed within three weeks after making this move. It saved my life. Two years later, there are things still ruling my life that all stem from the bc, but I am here.....that's what counts. You question regarding vitamins is a common one, and in my particular situation, my oncologist wants me on a non-soy multi-vitamin, as well as calcium and D3. These seem to be the most important vitamins needed, and I am sure others will have advice on what their doctors have recommended. You are a strong and brave sister, who has found her way through treatment, and survived. Your situation will help someone else who has been lurking out there, afraid to speak up and post, but needing the information you have provided. Again, welcome, and we all are glad you have added to the best site on the web for those who are fighting the beast. Hugs. Judy0 -
Thank you Judy! Your postcreampuff91344 said:Welcome, Tawny....although
Welcome, Tawny....although it is not the place you want to be on purpose. This site is wonderful, and has helped so many of us to conquer our fears, smile when a smile is the last thing we want, and vent when the venting is needed. Your story sounds familiar, as I was also misdiagnosed...for four years. There have been many who have said I should have gone after the radiologist who looked at my mammogram for four years in a row and didn't see the tumor, but haven't acted on it as of yet. I just thank God that I moved to another state, immediately established myself with a new hospital/doctor, and was diagnosed within three weeks after making this move. It saved my life. Two years later, there are things still ruling my life that all stem from the bc, but I am here.....that's what counts. You question regarding vitamins is a common one, and in my particular situation, my oncologist wants me on a non-soy multi-vitamin, as well as calcium and D3. These seem to be the most important vitamins needed, and I am sure others will have advice on what their doctors have recommended. You are a strong and brave sister, who has found her way through treatment, and survived. Your situation will help someone else who has been lurking out there, afraid to speak up and post, but needing the information you have provided. Again, welcome, and we all are glad you have added to the best site on the web for those who are fighting the beast. Hugs. Judy
Thank you Judy! Your post made my teary eyed! I am so glad to be here!0 -
VitaminsTawnyS said:Thank you, and thanks to all
Thank you, and thanks to all that have welcomed me. I am loving this feeling of sisterhood! Everyone is so encouraging and helpful. I think that you can learn a lot more from people that have experienced it than doctors sometimes. Just like the vitamins I was asking about. I don't know about you all, but my oncologist isn't really into vitamins. He just never seems impressed with them when I bring it up. I figured someone out here would know a vitamin I should try. I also noticed your name in the sand....Edna...right? If so, that brings such fond memories of my grandmother...her name was Edna. Her initials were E.E. and I carried that over to my daughter's name and gave her a first and middle with the initials E.E. It makes me smile! : )
My oncologist told me to take a B complex vitamin plus I have to self inject B12 each month. I was told NOT to take a multi vitamin or anything other than the B complex. Of course everyone is different, this is what my body needs.0 -
Hi Tawny and welcome! Justroseann4 said:Hi Tawny!
I am shocked by your misdiagnosis. How can that happen? If your cancer had been more aggressive it could have been to late to cure you. I'm so glad that they finally found it and that you are on the mend.
I have been taking Arimidex since Aug. of 09 with no obvious side effects. I take a multi-vitamin with no soy but is designed for women. I'm older so I get one for post menopausal women but it does not have soy. That's very important because so many of them have soy. I also take a number of other vitamins. It is very important to get calcium as well as Vit. D3. I would ask your doctor to check your Vit D levels. I would also have them check your thyroid because many breast cancer survivors have issues with thyroid function. It is a good idea to have a baseline anyway.
I suggest you purchase the book, "Beating Cancer With Nutrition". I also loved, "What Your Doctor May Not Tell You About Breast Cancer". Both can be ordered on Amazon.com.
I wish you continued healing both physically and emotionally.
Roseann
Hi Tawny and welcome! Just wishing you good luck and sending you prayers and hugs!
Leeza0 -
Hi Tawny,TawnyS said:Thank you, and thanks to all
Thank you, and thanks to all that have welcomed me. I am loving this feeling of sisterhood! Everyone is so encouraging and helpful. I think that you can learn a lot more from people that have experienced it than doctors sometimes. Just like the vitamins I was asking about. I don't know about you all, but my oncologist isn't really into vitamins. He just never seems impressed with them when I bring it up. I figured someone out here would know a vitamin I should try. I also noticed your name in the sand....Edna...right? If so, that brings such fond memories of my grandmother...her name was Edna. Her initials were E.E. and I carried that over to my daughter's name and gave her a first and middle with the initials E.E. It makes me smile! : )
Wow, your story is really amazing. Unfortunately, misdiagnosis is not rare among women our age (I was 34 at diagnosis).It really is so fortunate that your tumor was slow growing. A lot of us have grade 3 tumors. So, as far as your vitamin question goes, doctors differ. With my oncologist's blessing, I take 2000 IUs of Vitamin D and a calcium/magnesium supplement daily. I was low (though not deficient) in Vitamin D. I have a breast cancer nutritionist who says that multivitamins can cause other disorders if taken too much, so I only take them on days when I don't get most of my nutrition through food. I also take fish oil on days when I don't eat fish and a baby aspirin on days when I don't drink any alcohol. Aspirin has recently been found to reduce breast cancer mortality, so I'm trying it.
Have you been on www.youngsurvival.org? It's a site for younger women with a breast cancer diagnosis and is also a good place to talk. Hugs to you.
Mimi0 -
Warm welcome, TawnyS
Glad you found us, though regret the reason. We're all here to support and encourage each other. I just started my 5th year of Arimidex. And, I take a Centrum multi-vitamin daily, along with additional Calcium/Vitamin D supplements - per my med onc. Since we're all unique, best to consult with your own doctor for his/her recommendations regarding supplements.
Part of the beauty of this board - it's always open, 24/7, including weekends and holidays. Hope you visit often, whenever you'd like or need to.
Kind regards, Susan0 -
Just want to welcome you andelm3544 said:Hi
Wow you have really been through alot! I'm so sorry for what happened to you with the mis-diagnosis! And to find out you also have Crohns on top of all that, I can't even imagine. I know very little of that disease, my sister in law has it and I know it has been very hard on her. I wish you all the best and I am glad you found this site and the wonderful friends here!
Just want to welcome you and to say hi Tawny! Wishing you the best!
Lex0
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