Looking for information

whistlestopgirl
whistlestopgirl Member Posts: 28
edited March 2014 in Lesbians Talk About Cancer #1
I was wondering if anyone out there may be familiar or have an opinion on the following.
My partner is currently taking a combo of taxol and carbo chemo drugs. This is her second time dealing with chemo due to a spread of her cancer. The first time with the same drugs she had really little problem. However this time around she is dealing with fevers. After two chemo treatments this second time around she developed a bad fever. She went to the cancer place and the physicians assistant said she thought it was tumor fever. She took blood work and they could find no infection at least bacterial. Her counts stayed pretty good so she didn't have to go into the hospital however they put her on iv antibiotics for about a week of going into the cancer place every day. She finally had a major session of sweating through three sets of p.j.s and soaked the sheets with sweat then she was ok. After the next chemo treatment about a week after she had slight congestion in her lungs. Antibiotics were again perscribed by phone and they seemed to work. Upon seeing the doctor he ruled out tumor fever and feels she just picked up some type of bug that they couldn't see on the blood work. Well today after having a good week after her last chemo all of a sudden she is sick again with a fever. They have phoned in more antibiotics for her to take so I hope they work at least until I can take her to the cancer place on Monday. Spending Easter Sunday at the ER is not what either of us want. Anyway to make a long story short is anyone familiar with this type of sympton during chemo. She has two more chemo's to go and it is pretty hard right now. I just don't feel the doctor knows what is really going on right now and I am trying to make sense of this. So if this sounds like something anyone else has any knowledge about I would appreciate your feedback.

Thanks,
Diane

Comments

  • 24242
    24242 Member Posts: 1,398 Member
    #2
    Hmmmm
    Hi Diane,
    Our Immune systems are hugely comprimised and I felt like I had a fever most of the time heating up inside and nauseated. After second chemo I had raging staph infection that antibiotics were not working for and was one of the first on neuprogen shots which spurned the bone marrow into production which it wasn't doing. I had no white cells at all and spent 8 days in isolation till they finally realized there was a drug out there that would get marrow producing white cells.
    I hate to say but after surgery, chemo, and radiation I was ill for another 7 years till I finally felt I had put it all behind me. A very small percentage of the population are very sensitive to all that is done to and for us. If there was 1% chance of getting it or it happening it happened to me. Maybe had I gone to doctor more I might have known this earlier on.
    It is all very traumatic for the body and the best things we can do is flush with water and try and keep nutritional level up. I lived on boost for all those years along with fruit and yogurt shakes. I just believe after living the healthier life and still getting the big C that if it goes down and stays that is a very good thing. Simplicity is a fine art for sure and keeping it simple is the hardest to do.
    14 years to do the day I am dealing with more lumps and I have to say a little disheartening after putting it all back together again, finally working at a job that I had passion about. I had finally found my form of artistic impression mudding and taping drywall and painting things one could never have dreamed of going through my two individual mastectomies. Sometimes I just believe I have lived this long because I worked hard and found my lifes passion. The doctors use to giggle at all I had come to do when their hopes were not so good for me since I had so many problems I would have to live with.
    But LIVING is all there is to do and I never did that laying down to well...
    It took allot for doctors to address side effects when they are truly focused on getting you better and that is through treatments. It wasn't till I wasn't getting better that addressing it finally had to happen for me to get better. Working was all I knew and returning was my only option too young to retire.
    Hard not worrying and getting on with things but one thing I do know for sure that anxiety and fear do not cause real physical pain in the body, it is the other way around. The bodies Pain can raise the level of our anxiety and fear. Addressing issues is all you can do.
    Happy Easter to you and your girlfriend,
    and to all of you,
    Tara
  • whistlestopgirl
    whistlestopgirl Member Posts: 28
    #3
    24242 said:

    Hmmmm
    Hi Diane,
    Our Immune systems are hugely comprimised and I felt like I had a fever most of the time heating up inside and nauseated. After second chemo I had raging staph infection that antibiotics were not working for and was one of the first on neuprogen shots which spurned the bone marrow into production which it wasn't doing. I had no white cells at all and spent 8 days in isolation till they finally realized there was a drug out there that would get marrow producing white cells.
    I hate to say but after surgery, chemo, and radiation I was ill for another 7 years till I finally felt I had put it all behind me. A very small percentage of the population are very sensitive to all that is done to and for us. If there was 1% chance of getting it or it happening it happened to me. Maybe had I gone to doctor more I might have known this earlier on.
    It is all very traumatic for the body and the best things we can do is flush with water and try and keep nutritional level up. I lived on boost for all those years along with fruit and yogurt shakes. I just believe after living the healthier life and still getting the big C that if it goes down and stays that is a very good thing. Simplicity is a fine art for sure and keeping it simple is the hardest to do.
    14 years to do the day I am dealing with more lumps and I have to say a little disheartening after putting it all back together again, finally working at a job that I had passion about. I had finally found my form of artistic impression mudding and taping drywall and painting things one could never have dreamed of going through my two individual mastectomies. Sometimes I just believe I have lived this long because I worked hard and found my lifes passion. The doctors use to giggle at all I had come to do when their hopes were not so good for me since I had so many problems I would have to live with.
    But LIVING is all there is to do and I never did that laying down to well...
    It took allot for doctors to address side effects when they are truly focused on getting you better and that is through treatments. It wasn't till I wasn't getting better that addressing it finally had to happen for me to get better. Working was all I knew and returning was my only option too young to retire.
    Hard not worrying and getting on with things but one thing I do know for sure that anxiety and fear do not cause real physical pain in the body, it is the other way around. The bodies Pain can raise the level of our anxiety and fear. Addressing issues is all you can do.
    Happy Easter to you and your girlfriend,
    and to all of you,
    Tara

    Thanks for your respose
    Tara,

    Thanks for your response. She is feeling better today and her fever has gone down. Thanks for the info. I am just trying to put together pieces of a very hard puzzle.
    Happy Easter to you and everyone.

    Diane
  • Unknown
    Unknown
    #4
    This comment has been removed by the Moderator
  • whistlestopgirl
    whistlestopgirl Member Posts: 28
    #5
    unknown said:

    This comment has been removed by the Moderator

    Nancy thanks for your post
    Nancy,

    Welcome to this board, and thanks for posting. I think you are right about my partner getting some other unrelated germs to make her have a fever or it may be her own body fighting all that chemo. I would like to put you on my friends list if you don't mind and also I would like to send you an email in the next few days on your nancy707 account. I would like to ask you some specific questions concerning ovca since you are the first survivor other than my partner who I have connected with who has actually had ovca. As the caregiver of my partner I don't really feel that comfortable on the regular caregiver boards, and so I am grateful for this board even if it isn't as active as the other boards. Anyway I will check this board for your reply to this post.

    Thanks,
    Diane
  • Unknown
    Unknown
    #6
    whistlestopgirl said:

    Nancy thanks for your post
    Nancy,

    Welcome to this board, and thanks for posting. I think you are right about my partner getting some other unrelated germs to make her have a fever or it may be her own body fighting all that chemo. I would like to put you on my friends list if you don't mind and also I would like to send you an email in the next few days on your nancy707 account. I would like to ask you some specific questions concerning ovca since you are the first survivor other than my partner who I have connected with who has actually had ovca. As the caregiver of my partner I don't really feel that comfortable on the regular caregiver boards, and so I am grateful for this board even if it isn't as active as the other boards. Anyway I will check this board for your reply to this post.

    Thanks,
    Diane

    This comment has been removed by the Moderator
  • whistlestopgirl
    whistlestopgirl Member Posts: 28
    #7
    unknown said:

    This comment has been removed by the Moderator

    Thanks for your reply Nancy
    Nancy,

    Thanks Nancy I will send you an email in the next few days. Right now I am getting everything ready for chemo number 5. Looking forward to getting your thoughts and opinions about some of the things we are dealing with and have been dealing with since her original diagnosis.

    Thanks,
    Diane

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