HELP!!! Chemo has caused Erythema Multiforme
Comments
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SENDING OH SO GENTLE HUGS
I will never complain again. You have had more trouble with your chemo than I have ever had. I feel sooooo sorry that you are having all of these problems. I stopped taking Taxotere after my third round because of the side effects and mine where no where near as severe as yours. Talk to your onc as soon as possible. There are lots of different chemos and I am sure there has to be one that won't give you these horrible side effects.
Sending lots of prayers and gentle hugs.
Donna0 -
Me too.....
I know exactly how you are feeling, but it sounds like your case is a little worse than mine. I was told in the beginning that it was just stress from the chemo and radiation so I waited a few months itching so bad my body was bruised! I went to a dermatologist and he diagnosed me with dermatitis. Gave me a strong steroid spray and told to take allegra in the a.m. and zyrtec in the p.m. He also told me to start eating Activia. He also told me about a condition called "leaky gut syndrome." I had the Big D really bad from the Taxotere. All of that put a stress on my digestive system and bacteria would leach into my system. Since it was already so compromised it couldn't fight the bacteria, thus the severe itching from dermatitis. Also, all the antibiotics we're on can cause a systemic yeast infection. So first advice is to Google leaky gut syndrome and see if that doesn't fit. When I told my onco about it she said that MANY of her patients are having the Big D from taxotere and she is now advising them to eat Activia.
Then I went to my PCP because I still had welts all over my backside. She said dermatitis, too, but gave me a round of steroids and told me to take Acidophulis. Again, it has something like a billion live bacteria that eats up the bad bacteria in your system. She also gave me an antifungal cream for my welts.
Well, after all of that, I am on the road to better health. I itch once in a while, but it is NOTHING like it was before. I totally know how you are feeling....it's enough to drive a person insane! But, keep after the docs. Between the onco, radiologist, dermatologist and PCP, I think we have it licked. I will continue to eat Activia daily and take my Acidophulis for life. I believe them when they said to you there is no cure. It's up to us to get our digestive systems as strong as it can be to fight the invaders!
I wish you well. Keep us posted!
Patti0 -
i had the itchy taxol rashMyTurnNow said:Tina, I'm so sorry for you.
Tina, I'm so sorry for you. I have not experienced anything like this but please do call your doctor asap. Keep us posted on your progress. I'm hoping you get the relief you need, and very soon. Take care!!
i had the itchy taxol rash all over my face and neck, but nothing like that. perhaps the dermatologist and the added allergy meds is the way to go, plus activia. I use the stony field farm with all the probiotics in it. I think it tastes better.
the rash improved when the taxol ended. I almost didnt finish my last treatment of taxol because of peripheral neuropathy, I might be concerned about the taxol if Ihad that. best too you for comfort and an end to this.0 -
I am so sorry Tina. I hopeMyTurnNow said:Tina, I'm so sorry for you.
Tina, I'm so sorry for you. I have not experienced anything like this but please do call your doctor asap. Keep us posted on your progress. I'm hoping you get the relief you need, and very soon. Take care!!
I am so sorry Tina. I hope your doctors can help you to get thru this.0 -
Hi Tina
Oh I feel so bad for you.After my second treatment of Taxotere I had the same thing happen.I didn,t think i could get through it.My hands looked like I had diped them in hot water.My lips was 3times their size.My feet,fingers itched so bad.and I had huge hives all over.My head was cover,d also,they were huge hives.I went in to my cancer dr.I didn,t get to see her,I seen her nurse.She told me to take benadrle.She wasn,t that concerned.That night it broke out worst.The only thing that would help was my husband kept getting me a wet towel and i would throw on my head.My throat was swelling shut.He took me to the imergency room.They gave me a shot several different medicines in a Iv.I was still itching when I left the hospital.The next morning I went back to my dr. and told them i had to see my Dr.She couln,t beleive it.She gave me a allergy pack they call it.It calmed it down to where I could bare it.They stopped my Chemo,no way would she give it to me after that.I hate to tell you but I have to take an allergy pill every day or I start itching.I take zaretec every day.if i forget i start itching again.That has been since oct.Someone wrotte on here that they had a reaction like this and their Dr. said when they had diarrea with the chemo that it had set off somekind of bateria in their stomach that because of the Chemo could not fight it off and set off the alergic reaction.This is rare to happen my Dr. said.I would stay on my dr.to give you something to help you.I know how misserable it is.If I can help anymore send me a email.I will Pray you get relief. Pat.0 -
My Word!
My word! That's horrible! I'm so sorry you're having this kind of reaction to the taxotere. I had a reaction to the drug during the infusion - got all red all over and hot - the oncologist finally at the 4th round determined it was reaction to taxotere and not the steroids as he'd hoped. After being pumped full of benadryl and extra steroids, I was able to continue and complete infusions. My oncologist was careful, though, keeping close watch over me because allergic reactions can be problematic. He talked with me about alternative cocktails which I was willing to try if he felt it was necessary but we were able to get through. I'd make sure he knows all about everything you've experienced so he can make a good decision on future treatments.
I pray all goes well and you begin feeling better.
Beth0 -
Oh, Tina!
I am so sorry for all that you have gone through. It seems like everything except your sense of humor has been affected. I have been missing your posts and hoped that you were just busy...
You are in my thoughts and prayers and I, also, am sending gentle hugs your way.
Sue0 -
Tina
I'm so sorry for all you've had to endure. I don't know what to say, except I will keep you in my prayers and hope you find some relief from this suffering very soon.
Don't wait to talk to your doctor, have the office track him down or find whoever is filling in while he's out. You should not have to suffer this way.
Gentle Healing Hugz,
Cindy0 -
Tina, I am so sorry thatBethInAz said:My Word!
My word! That's horrible! I'm so sorry you're having this kind of reaction to the taxotere. I had a reaction to the drug during the infusion - got all red all over and hot - the oncologist finally at the 4th round determined it was reaction to taxotere and not the steroids as he'd hoped. After being pumped full of benadryl and extra steroids, I was able to continue and complete infusions. My oncologist was careful, though, keeping close watch over me because allergic reactions can be problematic. He talked with me about alternative cocktails which I was willing to try if he felt it was necessary but we were able to get through. I'd make sure he knows all about everything you've experienced so he can make a good decision on future treatments.
I pray all goes well and you begin feeling better.
Beth
Tina, I am so sorry that this has happened to you. I pray that you will get some relief and feel better soon.
Hugs, Debby0 -
thinking of you how are youcindycflynn said:Tina
I'm so sorry for all you've had to endure. I don't know what to say, except I will keep you in my prayers and hope you find some relief from this suffering very soon.
Don't wait to talk to your doctor, have the office track him down or find whoever is filling in while he's out. You should not have to suffer this way.
Gentle Healing Hugz,
Cindy
thinking of you how are you doing? hope its getting better!0 -
Misdiagnosed!!!!!ppurdin said:Hi Tina
Oh I feel so bad for you.After my second treatment of Taxotere I had the same thing happen.I didn,t think i could get through it.My hands looked like I had diped them in hot water.My lips was 3times their size.My feet,fingers itched so bad.and I had huge hives all over.My head was cover,d also,they were huge hives.I went in to my cancer dr.I didn,t get to see her,I seen her nurse.She told me to take benadrle.She wasn,t that concerned.That night it broke out worst.The only thing that would help was my husband kept getting me a wet towel and i would throw on my head.My throat was swelling shut.He took me to the imergency room.They gave me a shot several different medicines in a Iv.I was still itching when I left the hospital.The next morning I went back to my dr. and told them i had to see my Dr.She couln,t beleive it.She gave me a allergy pack they call it.It calmed it down to where I could bare it.They stopped my Chemo,no way would she give it to me after that.I hate to tell you but I have to take an allergy pill every day or I start itching.I take zaretec every day.if i forget i start itching again.That has been since oct.Someone wrotte on here that they had a reaction like this and their Dr. said when they had diarrea with the chemo that it had set off somekind of bateria in their stomach that because of the Chemo could not fight it off and set off the alergic reaction.This is rare to happen my Dr. said.I would stay on my dr.to give you something to help you.I know how misserable it is.If I can help anymore send me a email.I will Pray you get relief. Pat.
Thank you all for your support & prayers. I still haven't talked to my oncologist...I gave up on her after (7) days. However, I went to a dermatologist yesterday & was diagnosed with a case of the hives. He gave me some new meds to take last night & I awoke up this morning feeling normal. My lips & hands aren't swollen & I'm not broken out anywhere. I can honestly say that was the hardest thing I have had to physcially endure. Pat, my dermatologist said I have Urticaria(hives) & Angioedema which is the swelling in my hands & lips. He prescribed Doxepin HCL 25mg...1-3 a night. It is an antihistimine that makes me sleep like a baby. I took (2) last night & woke up this morning with ALL symptoms gone. I was supposed to take (4) claritin this morning, but since I felt good, I didn't want to put anything else in my body. You may want to check with your dr & try out this medicine for itching.
At this point, I am going to take (4) Claritin on Thurs & go in for my last round of chemo. Hopefully, it doesn't kill me. They say what doesn't kill us makes us stronger...I say I am going to be Hercules, Hercules, Hercules!!!!
Love to each & every one of you,
Tina0 -
Tinabug
I hope you are feeling better. I can't believe your Onc. They told me before I started chemo that I may experience this type of thing and if I did, I was to contact them immediately for treatment. The Onc's office should have treated you immediately before it got to swollen lips and throat and stuff. That kind of BS makes me mad. They should have known better.
But alas...I am glad you are on the road to recovery.
P0 -
I sure hope you are feelingaztec45 said:Tinabug
I hope you are feeling better. I can't believe your Onc. They told me before I started chemo that I may experience this type of thing and if I did, I was to contact them immediately for treatment. The Onc's office should have treated you immediately before it got to swollen lips and throat and stuff. That kind of BS makes me mad. They should have known better.
But alas...I am glad you are on the road to recovery.
P
I sure hope you are feeling much better.0 -
Glad you are doing better!aztec45 said:Tinabug
I hope you are feeling better. I can't believe your Onc. They told me before I started chemo that I may experience this type of thing and if I did, I was to contact them immediately for treatment. The Onc's office should have treated you immediately before it got to swollen lips and throat and stuff. That kind of BS makes me mad. They should have known better.
But alas...I am glad you are on the road to recovery.
P
Glad you are doing better!0 -
So sorry you wereTinabug said:Misdiagnosed!!!!!
Thank you all for your support & prayers. I still haven't talked to my oncologist...I gave up on her after (7) days. However, I went to a dermatologist yesterday & was diagnosed with a case of the hives. He gave me some new meds to take last night & I awoke up this morning feeling normal. My lips & hands aren't swollen & I'm not broken out anywhere. I can honestly say that was the hardest thing I have had to physcially endure. Pat, my dermatologist said I have Urticaria(hives) & Angioedema which is the swelling in my hands & lips. He prescribed Doxepin HCL 25mg...1-3 a night. It is an antihistimine that makes me sleep like a baby. I took (2) last night & woke up this morning with ALL symptoms gone. I was supposed to take (4) claritin this morning, but since I felt good, I didn't want to put anything else in my body. You may want to check with your dr & try out this medicine for itching.
At this point, I am going to take (4) Claritin on Thurs & go in for my last round of chemo. Hopefully, it doesn't kill me. They say what doesn't kill us makes us stronger...I say I am going to be Hercules, Hercules, Hercules!!!!
Love to each & every one of you,
Tina
So sorry you were misdiagnosed. Just glad you know now what it is and have help!0
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