Not a real cancer?

emma54
emma54 Member Posts: 59
edited March 2014 in Thyroid Cancer #1
I went to a pulmonary doctor today for a cough I've had for years. I'd never met him before and he took a medical history of me. When I told him I had had papillary thyroid cancer and had my thyroid removed, he shrugged it off and said, "Oh that's not a real cancer!"

Now mind you, I think I know where he was coming from in the sense that he wanted me to believe that I was going to be alright and not to worry. But I am still furious over this statement.

Then he went on to say it's curable. And I pointed out that it could come back to which he responded, "Well, nothing in life is guaranteed."

To myself I said, "Duh..."

What do you guys think of this ignorant statement?
«13

Comments

  • usljh10
    usljh10 Member Posts: 85 Member
    #2
    ignorant statement?
    ignorant statement is what it is. It's really hard to understand how anyone could say that. Cancer is bad no matter where it is. You always have the feeling it could come back. Cancer is the devil.
  • emma54
    emma54 Member Posts: 59
    #3
    usljh10 said:

    ignorant statement?
    ignorant statement is what it is. It's really hard to understand how anyone could say that. Cancer is bad no matter where it is. You always have the feeling it could come back. Cancer is the devil.

    Thanks for responding. I
    Thanks for responding. I agree.
  • IowaBo
    IowaBo Member Posts: 32
    #4
    I think you need to find a
    I think you need to find a new doctor. If It were him or his loved one, would it be a real cancer? You might ask him this.
  • BellsAngel69
    BellsAngel69 Member Posts: 104 Member
    #5
    Not Real?
    Excuse my french, but WTF? You don't know how tired I am of hearing that "It's only thyroid cancer". I'm six years into this journey and let me reassure you, it's just as real and dangerous as any other kind of cancer. I was fine for three years after a TT. A year and a half ago I had a metastasis to my hip bone, and now mets to my liver, which is very, very rare. I'm having surgery March 24th to remove part of my liver.

    Not real? Just thyroid cancer? My ****. It's cancer. It's unpredicatble. It's never good to get, and you can never rest easy that you're cured just because you have a TT.

    I just want to kick their teeth in for making us sound like we won the cancer lottery.

    Find someone more in tune with reality. You don't need a lacadasical attitude like that.
  • emma54
    emma54 Member Posts: 59
    #6
    BellsAngel69 said:

    Not Real?
    Excuse my french, but WTF? You don't know how tired I am of hearing that "It's only thyroid cancer". I'm six years into this journey and let me reassure you, it's just as real and dangerous as any other kind of cancer. I was fine for three years after a TT. A year and a half ago I had a metastasis to my hip bone, and now mets to my liver, which is very, very rare. I'm having surgery March 24th to remove part of my liver.

    Not real? Just thyroid cancer? My ****. It's cancer. It's unpredicatble. It's never good to get, and you can never rest easy that you're cured just because you have a TT.

    I just want to kick their teeth in for making us sound like we won the cancer lottery.

    Find someone more in tune with reality. You don't need a lacadasical attitude like that.

    Thank you for that. I was
    Thank you for that. I was furious. Good luck to you. May you be well soon.
  • tonesgurl
    tonesgurl Member Posts: 42
    #7
    BellsAngel69 said:

    Not Real?
    Excuse my french, but WTF? You don't know how tired I am of hearing that "It's only thyroid cancer". I'm six years into this journey and let me reassure you, it's just as real and dangerous as any other kind of cancer. I was fine for three years after a TT. A year and a half ago I had a metastasis to my hip bone, and now mets to my liver, which is very, very rare. I'm having surgery March 24th to remove part of my liver.

    Not real? Just thyroid cancer? My ****. It's cancer. It's unpredicatble. It's never good to get, and you can never rest easy that you're cured just because you have a TT.

    I just want to kick their teeth in for making us sound like we won the cancer lottery.

    Find someone more in tune with reality. You don't need a lacadasical attitude like that.

    BellsAngel69,
    I heard that!!
    BellsAngel69,

    I heard that!! I am tired of hearing the very same thing. It's as if we don't count, we don't matter because "It's only thyroid cancer" well people better get informed quicky because tyroid cancer is on the rise and they (people) won't be thinking that way if they or a loved one is diagnosed with it.

    I am one who strongly believes that you can't speak on someone else until you have walked in their shoes. Thyroid cancer is not easy in any shape, form or fashion. Although our cancer is said to be not as bad as other forms of cancer we still have a hard fight.

    Just wanted to share how I felt about such an igorant comment!

    Adrian
  • loispol1
    loispol1 Member Posts: 84
    #8
    tonesgurl said:

    BellsAngel69,
    I heard that!!
    BellsAngel69,

    I heard that!! I am tired of hearing the very same thing. It's as if we don't count, we don't matter because "It's only thyroid cancer" well people better get informed quicky because tyroid cancer is on the rise and they (people) won't be thinking that way if they or a loved one is diagnosed with it.

    I am one who strongly believes that you can't speak on someone else until you have walked in their shoes. Thyroid cancer is not easy in any shape, form or fashion. Although our cancer is said to be not as bad as other forms of cancer we still have a hard fight.

    Just wanted to share how I felt about such an igorant comment!

    Adrian

    I think it is insane!
    I have not been diagnosed yet and scheduled for the TT (is that what you call it?) FNA showed hurthle cell neoplasm. I am frightend and alone and at a recent tennis luncheon, where I attended but didn't play (can't play now), one of my teammates announced to everyone that she heard some actress on TV say that thyroid cancer is the good kind of cancer to get as it grows so slowly and is so easily cured right after I said I was having this problem. So there went my whole tennis team support system, out the window, all from one person's stupid comment! I wrote the team yesterday my update and let them know this could be a rare and serious cancer should I have it. I am claiming my support back from friends! Stupidity is all over the place, it is just an excuse "not to care"! I guess there is some corner on the market as to what illnesses/cancers count more than others? Totally crazy!

    Had to get this out of my system! Grrrrrr I am so glad I am finding some support here, it is rough going through this alone!You all have been great!

    Lois
  • dubby88
    dubby88 Member Posts: 15
    #9
    loispol1 said:

    I think it is insane!
    I have not been diagnosed yet and scheduled for the TT (is that what you call it?) FNA showed hurthle cell neoplasm. I am frightend and alone and at a recent tennis luncheon, where I attended but didn't play (can't play now), one of my teammates announced to everyone that she heard some actress on TV say that thyroid cancer is the good kind of cancer to get as it grows so slowly and is so easily cured right after I said I was having this problem. So there went my whole tennis team support system, out the window, all from one person's stupid comment! I wrote the team yesterday my update and let them know this could be a rare and serious cancer should I have it. I am claiming my support back from friends! Stupidity is all over the place, it is just an excuse "not to care"! I guess there is some corner on the market as to what illnesses/cancers count more than others? Totally crazy!

    Had to get this out of my system! Grrrrrr I am so glad I am finding some support here, it is rough going through this alone!You all have been great!

    Lois

    You have a support system here.
    We are all going thru this and we will listen. I had my surgery on the 12 of Feb. and still trying to deal.I went to my primary doctor today and she want me to continue going to the endo and she has refered me to an ondoco. doctor. I've been dealing with this since last May. Please dont hesitate to put your feelings here.
  • loispol1
    loispol1 Member Posts: 84
    #10
    dubby88 said:

    You have a support system here.
    We are all going thru this and we will listen. I had my surgery on the 12 of Feb. and still trying to deal.I went to my primary doctor today and she want me to continue going to the endo and she has refered me to an ondoco. doctor. I've been dealing with this since last May. Please dont hesitate to put your feelings here.

    Hi
    Thank you for your support. I am so very exhausted/worried about all of this. I feel like I want to take my time but all the doctors told me I can't put it off for too long. I really appreciate your response. There doesn't seem to be a lot of people posting here frequently right now, I am still getting used to how this discussion group works though.

    How are you feeling now, over a month after your surgery? How is your cervical neck doing? Please keep me updated as to what is going on with your follow-ups and new appointments. I am exhausted from trying to get all the allergy info put together and waiting for responses etc for just the anesthsia testing. I would rather like to be staying calm right now. I also have a roof leak and the roof never showed to fix it Monday or Tuesday....lucky it is not raining now! Only in Florida! What is the saying, things come in three? I'd better not go wishing for another problem! Thanks for writing me, it meant a lot! Hope you are doing well also!
    Lois
  • weberdns
    weberdns Member Posts: 154
    #11
    loispol1 said:

    I think it is insane!
    I have not been diagnosed yet and scheduled for the TT (is that what you call it?) FNA showed hurthle cell neoplasm. I am frightend and alone and at a recent tennis luncheon, where I attended but didn't play (can't play now), one of my teammates announced to everyone that she heard some actress on TV say that thyroid cancer is the good kind of cancer to get as it grows so slowly and is so easily cured right after I said I was having this problem. So there went my whole tennis team support system, out the window, all from one person's stupid comment! I wrote the team yesterday my update and let them know this could be a rare and serious cancer should I have it. I am claiming my support back from friends! Stupidity is all over the place, it is just an excuse "not to care"! I guess there is some corner on the market as to what illnesses/cancers count more than others? Totally crazy!

    Had to get this out of my system! Grrrrrr I am so glad I am finding some support here, it is rough going through this alone!You all have been great!

    Lois

    I was where you were 2 weeks ago
    I have had 2 surgeries in 8 days. I had a Hurthle cell neoplasm. Had the left half of my Thyroid removed. Biopsy came back foliccular cell carcinoma, so 2 days later was back in the OR to have the rest of the thyroid removed. So far there was 1 lymph node invoved with the first biopsy and now waiting for the second. Will be having radioactive iodine treatment in 6 weeks. You aren't alone....you will learn that many people will say that it is a "good" kind of cancer to have in efforts to reduce your feal, and their own as well. Hopefully you will have good friends who will come out to support you and help you out as much as possible! Please don't eliminate a whole group of support because of the ignorant comment of 1 person! Let them help you while you educate them! Hugs and good luck with your surgery! As surgeries go it really wasn't a bad one. Was only on pain meds for a couple of days.....now dealing with the fatigue that comes with 2 surgeries so close together! Good luck.....maybe you will be lucky and have a good biopsy outcome! Prayers and hugs for you!
  • dubby88
    dubby88 Member Posts: 15
    #12
    loispol1 said:

    Hi
    Thank you for your support. I am so very exhausted/worried about all of this. I feel like I want to take my time but all the doctors told me I can't put it off for too long. I really appreciate your response. There doesn't seem to be a lot of people posting here frequently right now, I am still getting used to how this discussion group works though.

    How are you feeling now, over a month after your surgery? How is your cervical neck doing? Please keep me updated as to what is going on with your follow-ups and new appointments. I am exhausted from trying to get all the allergy info put together and waiting for responses etc for just the anesthsia testing. I would rather like to be staying calm right now. I also have a roof leak and the roof never showed to fix it Monday or Tuesday....lucky it is not raining now! Only in Florida! What is the saying, things come in three? I'd better not go wishing for another problem! Thanks for writing me, it meant a lot! Hope you are doing well also!
    Lois

    Hi
    Well I'm feeling alright go to the endo tomorrow and the Neur. next wed. hope they will have good news for me. I will post how it goes tomorrow after I get home. I'm in Florida also I hope it warms up soon I'm tired of this cold.

    Donna
  • Kate1024
    Kate1024 Member Posts: 1
    #13
    BellsAngel69 said:

    Not Real?
    Excuse my french, but WTF? You don't know how tired I am of hearing that "It's only thyroid cancer". I'm six years into this journey and let me reassure you, it's just as real and dangerous as any other kind of cancer. I was fine for three years after a TT. A year and a half ago I had a metastasis to my hip bone, and now mets to my liver, which is very, very rare. I'm having surgery March 24th to remove part of my liver.

    Not real? Just thyroid cancer? My ****. It's cancer. It's unpredicatble. It's never good to get, and you can never rest easy that you're cured just because you have a TT.

    I just want to kick their teeth in for making us sound like we won the cancer lottery.

    Find someone more in tune with reality. You don't need a lacadasical attitude like that.

    thank you
    Bells, thank you for saying what I was thinking! Everybody acting like thyroid cancer is a walk in the park is a real injustice to people diagnosed with it. What's more, it sets up unreasonable expectations that you'll have your TT, perhaps radiation, and then onto blue skies and smooth sailing.

    I had a TT in July '09 followed by radiation. I just got my recent TSH-stimulated thyroglobulin results back, and my thyroglobulin is too high. So here I am at the hospital, undergoing my second round of radiation. It's scary as hell and it's shocking, cuz after all, thyroid cancer is "the cancer to get" right?
  • butterfly123
    butterfly123 Member Posts: 52
    #14
    Kate1024 said:

    thank you
    Bells, thank you for saying what I was thinking! Everybody acting like thyroid cancer is a walk in the park is a real injustice to people diagnosed with it. What's more, it sets up unreasonable expectations that you'll have your TT, perhaps radiation, and then onto blue skies and smooth sailing.

    I had a TT in July '09 followed by radiation. I just got my recent TSH-stimulated thyroglobulin results back, and my thyroglobulin is too high. So here I am at the hospital, undergoing my second round of radiation. It's scary as hell and it's shocking, cuz after all, thyroid cancer is "the cancer to get" right?

    thank you too
    I am lucky that no one in the last year had said to me that thyroid cancer is "the good cancer." I am not really sure what I would do or say if someone said that to me now.

    I was diagnosed 5 years ago with Stage 1 Papillary. I was told that I should be "so happy" that I "only have thyroid cancer." What a BS statement to make to anyone diagnosed with TC. About 18 months ago, my Tg was high while on thyroid meds. Since then, I have had about 25 diagnostic tests in the last 18 months including RAI. I have a TC tumor on the worse part of the cervical spine, probably micro mets throughout my lungs and probably a couple of positive lymph nodes in my neck. So Kate, I am with you, thryoid is no walk in the park!

    I hope your RAI treatment is successful. Best of health to you.
  • loispol1
    loispol1 Member Posts: 84
    #15
    dubby88 said:

    Hi
    Well I'm feeling alright go to the endo tomorrow and the Neur. next wed. hope they will have good news for me. I will post how it goes tomorrow after I get home. I'm in Florida also I hope it warms up soon I'm tired of this cold.

    Donna

    How did your app't go?
    How did your visit go with the endo? How are you feeling? Please keep me updated!

    I am having a lot of reservations about the surgery. New ultrasound report done at the hospital where the surgeon is located, made no sense what-so-ever. According to that report that did not do a comparison to the two recent ultrsounds and biopsy report, my hurthle cell nodule is practically non-existant. Perhaps it was a typo error? The radiology tech was not good, she said "oh well you are having your thyroid outanyway so I don't have to do a careful scan??? I am thinking about changing my pklans. I have had areall struggle getting info. about anesthesia to be used, now I will never make the deadline for surgery to have allergy testing. It has been too hard! I am thinking about getting a third opinion now, maybe at John Hopkins.

    So where in Florida do you live? It has been really great here in Merritt Island. I am spring cleaning, which takes my mind off of everything. I have been feeling really lonely as I have no one to talk to about all of this.

    Thanks for the message, it helps to know someone is listening and going through this also!
    Keep your chin up and smiles,
    Lois
  • loispol1
    loispol1 Member Posts: 84
    #16
    weberdns said:

    I was where you were 2 weeks ago
    I have had 2 surgeries in 8 days. I had a Hurthle cell neoplasm. Had the left half of my Thyroid removed. Biopsy came back foliccular cell carcinoma, so 2 days later was back in the OR to have the rest of the thyroid removed. So far there was 1 lymph node invoved with the first biopsy and now waiting for the second. Will be having radioactive iodine treatment in 6 weeks. You aren't alone....you will learn that many people will say that it is a "good" kind of cancer to have in efforts to reduce your feal, and their own as well. Hopefully you will have good friends who will come out to support you and help you out as much as possible! Please don't eliminate a whole group of support because of the ignorant comment of 1 person! Let them help you while you educate them! Hugs and good luck with your surgery! As surgeries go it really wasn't a bad one. Was only on pain meds for a couple of days.....now dealing with the fatigue that comes with 2 surgeries so close together! Good luck.....maybe you will be lucky and have a good biopsy outcome! Prayers and hugs for you!

    Hi and thank you for the message!
    I am having a lot of reservations about the surgery and thinking of getting another opinion. My hurthle cell tumor is not large (yet) 1.3-1.6 cm or something. I am uncertain about where I am going and thinking maybe it wouldn't be such a struggle if I went to John Hopkins. Maybe I do not really have cancer. There is that percentage I don't? So you had a FNA Huthle cell neoplasm but ended up having follicular cancer? I am scheduled to have my whole thyroid removed because of all the nodules and hasimotos and I do not have enough strength for two operations. My allergies are so severe to medications, I am afraid only of the surgery itself, believe it or not.

    Thanks for writing me, I feel so alone. I have been spring cleaning to try to get away from own thinking, but in the end I am still worrying like crazy. Well I went to luch with the team but got the feeling the person who announced that Thyroid cancer, and was the good kind to get alreedady announced to them when I wasn't there, I need counseling (instead of listening to me she sent me link to her church counselor! Yeah, like in the middle of researching and going to appointments non-stop, driving 3 hours back and forth for multiple trips and making telephone calls to get information at the doctors office, I am going to stop everything and go talk to some stranger about my medical situation. Honestly right now, the last thing place I want to go for help or advice would be a generic church counselor or another appointment! What would have been great was a friend who would have listen and offered some comfort. I am always there for everyone and no one is hardly ever there for me.

    Anyway, the team captain said to me "don't you have anyone to help you through all of this"? That made me feel really small. What is wrong with people, why can't they just say something nice like "sorry you are going through this", and "if you need help let me know"?

    Okay, I went off on a rant, sorry, please forgive me. Guess I am having a pitty party for myself again. This whole situation really has been tough!

    Thank you so much for your kind words and cyber hugs! It meant alot!

    Thanks for the encouragement and telling me about your surgeries, sorry you had two of them!
    Did they find any hurthe cells on the permanent biopsy? Are you off of thyroid meds now while wating for the Radioactive iodine treatments? I am severely allergic to iodine. I guess that course of action will be out for me should they find any of my thyroid has cancer.

    Sorry to sound so self centered! Well rest up and thanks again!
    Lois
  • weberdns
    weberdns Member Posts: 154
    #17
    loispol1 said:

    Hi and thank you for the message!
    I am having a lot of reservations about the surgery and thinking of getting another opinion. My hurthle cell tumor is not large (yet) 1.3-1.6 cm or something. I am uncertain about where I am going and thinking maybe it wouldn't be such a struggle if I went to John Hopkins. Maybe I do not really have cancer. There is that percentage I don't? So you had a FNA Huthle cell neoplasm but ended up having follicular cancer? I am scheduled to have my whole thyroid removed because of all the nodules and hasimotos and I do not have enough strength for two operations. My allergies are so severe to medications, I am afraid only of the surgery itself, believe it or not.

    Thanks for writing me, I feel so alone. I have been spring cleaning to try to get away from own thinking, but in the end I am still worrying like crazy. Well I went to luch with the team but got the feeling the person who announced that Thyroid cancer, and was the good kind to get alreedady announced to them when I wasn't there, I need counseling (instead of listening to me she sent me link to her church counselor! Yeah, like in the middle of researching and going to appointments non-stop, driving 3 hours back and forth for multiple trips and making telephone calls to get information at the doctors office, I am going to stop everything and go talk to some stranger about my medical situation. Honestly right now, the last thing place I want to go for help or advice would be a generic church counselor or another appointment! What would have been great was a friend who would have listen and offered some comfort. I am always there for everyone and no one is hardly ever there for me.

    Anyway, the team captain said to me "don't you have anyone to help you through all of this"? That made me feel really small. What is wrong with people, why can't they just say something nice like "sorry you are going through this", and "if you need help let me know"?

    Okay, I went off on a rant, sorry, please forgive me. Guess I am having a pitty party for myself again. This whole situation really has been tough!

    Thank you so much for your kind words and cyber hugs! It meant alot!

    Thanks for the encouragement and telling me about your surgeries, sorry you had two of them!
    Did they find any hurthe cells on the permanent biopsy? Are you off of thyroid meds now while wating for the Radioactive iodine treatments? I am severely allergic to iodine. I guess that course of action will be out for me should they find any of my thyroid has cancer.

    Sorry to sound so self centered! Well rest up and thanks again!
    Lois

    So sorry that you are feeling so stressed!
    No you aren't being self centered at all....if anything this is the time to be self centered. Sorry that you aren't getting any support. I must tell you that all the wonderful people that I know have helped to keep my sanity!

    First thing first. A second opinion is in order. If you are feeling unsure it is a MUST!! I felt comfortable with my decision to have the half removal at first....my nodule was only 2.5 CM's on ultrasound and what I read agreed with my doctor. With a diagnosis of Hurthle cell neoplasm you need to do something.....all of them need to be removed. If they aren't cancer now....they may turn into cancer. Don't not do anything because "you might not have cancer". Do it because you might and the earlier they find it and remove it the better success for a cure you will have!

    As far as what the biopsy showed in each case I'm still not sure. When i got my diagnosis it was a preliminary verbal report. I still have yet to see the final report of either biopsies. I am seeing my doctor today and plan on getting copies for my personal use today. My stomach is in knots right now and I'm not sure why. Even if there is cancer in the second biopsy it doesn't change the plan of care.....So why is my stomach in knots.....why did I just turn down my husband going with me (because he has taken so much time off of work and I want him to go to the endo's office on Friday with me!) I want to go back to work....but still need a nap at around 2:30 (and that is after getting up between 8 and 9).....work requires that I be up at 5:30 in the morning and start early.....not sure if I can get through the day and scared I will get sick at work (with nobody to take over if I do!) Sorry.....I highjacked your note with thoughts of my own that I am working out in my head.....sorry..... Now I'm the self centered one!
  • kkirsits
    kkirsits Member Posts: 11
    #18
    I understand
    Hi -- I understand what you are saying. The reality of having been diagnosed with thyroid cancer (mine was papillary) is finally hitting me -- I'm in my third year out. I am finally realizing the cost of my scans, doctor visits, blood work, etc. and my insurance stinks. I have to pay almost $1,500 out of pocket expense before anything is covered. Of course family and friends do not understand where I am coming from and I am tired of hearing, "well do you have to have this done every year?" and my favorite one is from my mother who says, "Well everyone has expenses." I really can't do it anymore -- living expenses (I only bring home $1,300 a month), rent, food, gas for the car, etc and I'm just getting out of debt because I was starting to put things on credit cards and got in over my head. I can't even afford my scan this year because the hospital won't work with me on an acceptable payment plan. they want to me to pay more than what I can afford or will go into collections. What do you do?

    And all I hear from family and friends is, "well you're a cancer survivor" "hey, it's only thyroid cancer" -- what don't they get? You are not a cancer survivor till after 5 years and it's cancer -- I don't care what kind it is.

    thanks for letting me vent.
  • weberdns
    weberdns Member Posts: 154
    #19
    kkirsits said:

    I understand
    Hi -- I understand what you are saying. The reality of having been diagnosed with thyroid cancer (mine was papillary) is finally hitting me -- I'm in my third year out. I am finally realizing the cost of my scans, doctor visits, blood work, etc. and my insurance stinks. I have to pay almost $1,500 out of pocket expense before anything is covered. Of course family and friends do not understand where I am coming from and I am tired of hearing, "well do you have to have this done every year?" and my favorite one is from my mother who says, "Well everyone has expenses." I really can't do it anymore -- living expenses (I only bring home $1,300 a month), rent, food, gas for the car, etc and I'm just getting out of debt because I was starting to put things on credit cards and got in over my head. I can't even afford my scan this year because the hospital won't work with me on an acceptable payment plan. they want to me to pay more than what I can afford or will go into collections. What do you do?

    And all I hear from family and friends is, "well you're a cancer survivor" "hey, it's only thyroid cancer" -- what don't they get? You are not a cancer survivor till after 5 years and it's cancer -- I don't care what kind it is.

    thanks for letting me vent.

    Vent away!
    It's so upsetting that the hospital won't work with you on a payment plan for your scan. Is there anyone who can help you to get it done and give you a loan??? You are right...it is still cancer!
  • kkirsits
    kkirsits Member Posts: 11
    #20
    weberdns said:

    Vent away!
    It's so upsetting that the hospital won't work with you on a payment plan for your scan. Is there anyone who can help you to get it done and give you a loan??? You are right...it is still cancer!

    thanks
    Thank you --- no, there really is not anyone I can get a loan from. The only person I could go to would be my mom and that is not an option. Last year someone annonymous person paid my water bill (cash) and when I asked her if she had done it, she went off on me that it was pretty sad that I couldn't even pay my water bill, was it overdue, on and on and the final words were that I had no pride in myself. Mind you, I had broken my elbow the first week in January, which required surgery, was having car problems (which by the way is about 18 years old and will eventually have to be replaced)plus had to have my scan done. Now that I am almost debt free and realize the amount of money I bring home and what my medical expenses are, there is not anyway I can live on my own. Best case scenario is to live with my mom so I don't have to pay rent, but she will just brow beat me because she feels that because she is my mom she has the right to verbally abuse me. I have very limited contact with her. Again, thanks for letting me vent.
  • dubby88
    dubby88 Member Posts: 15
    #21
    loispol1 said:

    How did your app't go?
    How did your visit go with the endo? How are you feeling? Please keep me updated!

    I am having a lot of reservations about the surgery. New ultrasound report done at the hospital where the surgeon is located, made no sense what-so-ever. According to that report that did not do a comparison to the two recent ultrsounds and biopsy report, my hurthle cell nodule is practically non-existant. Perhaps it was a typo error? The radiology tech was not good, she said "oh well you are having your thyroid outanyway so I don't have to do a careful scan??? I am thinking about changing my pklans. I have had areall struggle getting info. about anesthesia to be used, now I will never make the deadline for surgery to have allergy testing. It has been too hard! I am thinking about getting a third opinion now, maybe at John Hopkins.

    So where in Florida do you live? It has been really great here in Merritt Island. I am spring cleaning, which takes my mind off of everything. I have been feeling really lonely as I have no one to talk to about all of this.

    Thanks for the message, it helps to know someone is listening and going through this also!
    Keep your chin up and smiles,
    Lois

    Sorry I havent been on here in a while.
    My appointment went well my doctor increased my dose and I have alot more energy. I have lost 16 lbs so far. The only thing I'm bothered with is my voice. As the day goes on my voice cracks and sounds like I have a bad cold but I dont. This is a problem because all the people I work with notices. I feel like a 12 year old boy when his voice changes.

    I have to have a scan in six months to see if I need to do the RAI or not.

    I'm in Orlando (East)

    Donna

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